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Clonidine for Tourette's Syndrome User Reviews (Page 2)

Brand names: Catapres, Clonidine ER, Catapres-TTS, Kapvay, Duraclon, Nexiclon XR

Clonidine has an average rating of 6.8 out of 10 from a total of 31 reviews for the off-label treatment of Tourette's Syndrome. 58% of reviewers reported a positive experience, while 23% reported a negative experience.

Reviews for Clonidine

  • Mazza...
  • Taken for less than 1 month
  • August 9, 2017

"I used this medication for 3 days for motor tics (blinking and head jerking) The first day I took half a tablet in the morning and half a tablet at night. The side effects were horrible. Insomnia - feeling weak and lethargic - limbs would go numb especially when I'm trying to sleep - dry mouth - depressed - falling asleep/ dozing off at work and while driving (very dangerous) Day 2 and 3 I just took half a tablet at night and the side effects in the day weren't as bad but still there. The effects at night were just as bad if not worse I was only getting 3 good hours of sleep - the rest is praying to sleep. But in saying that, the tics did ease a little bit. I have now stopped the meds today. Will not take it again."

2 / 10
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7 Report
  • jo bee
  • Taken for 1 to 6 months
  • February 27, 2021

"I’ve had a flare up of vocal tics for several years now. I had tried about 8 meds with no luck. A neurologist put me on .1mg clonidine (final dose). I struggled to stay awake all day and my system dried out. I didn’t notice any benefit. Also, I have ADD-Inattentive. The drug didn’t help for that either. I already have low BP, so that might have added to the fatigue. Am getting to the point where I might try the older anti-psych drugs that carry the risk of permanent movement disorder. Don’t understand why some drugs work for some & not others."

1 / 10
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2 Report
  • RLG
  • Taken for 6 months to 1 year
  • September 14, 2022

"My son started with tics at 4 years of age with throat clearing which escalated to multiple motor tics. At age of 7 he started bilateral shoulder shrugs and smacking himself in nose/sinus area for which brought him relier. Also smacking his ears sometimes. Neurologist complied with our request to start meds at that point. He’s now 7 1/2 and his motor tics are very very well controlled on meds. He still clears throat throughout the day and blinks occasionally but he can suppress it during school for the most part. Also helps with his ADHD so he’s much better with 2nd grade homework. Major improvement over 1st grade homework which required more of our time as parents. Currently he takes 1/2 tablet in morning then 1/4 tablet with his lunch (he takes himself) then another 1/4 tablet around 3.30pm then full tablet at 7.30pm. Every time we try more than 1/2 tablet it makes him very drowsy so we back off. No dry mouth and no blood pressure issues."

10 / 10
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1 Report
  • stevek
  • Taken for 5 to 10 years
  • October 7, 2021

"When I was first given clonidine for my tics, it was frustrating. I'd take a pill (0.1mg), it would take effect after an hour, last an hour, and then I couldn't take another dose for another two hours. Then someone suggested using the transdermal patch. You get a slow dose over 24 hours and it really helped reduce my tics and made life more bearable. I would really encourage anyone to use the patch rather than a pill (and you can cut the patch to get a lower dose, etc)"

9 / 10
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1 Report
  • Nicolas...
  • August 6, 2015

"I have a mild case of Tourette's syndrome, and clonidine has saved my life."

10 / 10
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44 Report

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  • LexMo
  • November 9, 2014

"This helped me cope and treat my Tourette's throughout my childhood. I do rate it a 9 due to it causing drowsiness, and now I am 17 and can't sleep without it."

9 / 10
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46 Report
  • Anonymous
  • February 22, 2017

"My 12 year old daughter has had facial and motor tics, but since she started on clonidine it's like she no longer has Tourette's!"

10 / 10
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22 Report
  • SirLa...
  • Taken for 1 to 6 months
  • October 10, 2022

"Clonidine was ineffective at treating my nervous tics & Tourette’s issues."

1 / 10
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1 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.