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User Reviews for Tegretol

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Tegretol.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Schizoaffective Disorder 1 reviews 28 medications
   
9.0
Bipolar Disorder 25 reviews 32 medications
   
8.1
Epilepsy 24 reviews 27 medications
   
6.8
Trigeminal Neuralgia 19 reviews 9 medications
   
6.6
Summary of Tegretol reviews 69 reviews 7.6

Reviews for Tegretol

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For Trigeminal Neuralgia "I have been on Tegretol for about 7 years which has been good with manageable attacks I between, it took 2 years before I was diagnosed in which time I had the fillings on the right side of my face replaced 3 times looking for the cause! I have now been in an attack for the last 3 an half weeks and at last have some relief , am now having double my dose 800mgs but still have a slight electric shock feeling and my top and bottom jaw ache slightly, I am getting a referral at a London hospital to check my teeth , just to make sure they are ok, but it is just like when I was first diagnosed. Wind or air con are worst for me. This is an awful illness, and do hope you to will get the help that you need,"

   
8.0

Gracie girl August 15, 2015

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For Bipolar Disorder "I currently take 300 mg of carbamazepine a day. 100mg in morning and 200mg at night. Which is hard for me to remember the different doses because this medication causes me to forget everything. I also had really bad nausea and hot flashes when I first started taking it. I quit smoking cigarettes and drinking alcohol on this drug. Super amazing accomplishments, but on the other hand I have lost three jobs in six months. Before tegretol I was taking 300mg of seroquel XR a day and it made me a completely unemotional zombie. So It's hard for me to control myself sometimes because I'm feeling all these things I haven't felt before . I hope tegretol can work for me though and be my miracle drug, because changing meds is my living nightmare."

   
8.0

Fightthepower August 2, 2015

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For Epilepsy "I had 1 seizure, 2 weeks after our son was born... So they put me on 200mg twice a day. I took it, maybe not religiously, but atleast 1 pill a day. Well I missed a full day, and had a seizure in my sleep again. I can't help but think it works well, if the first time I miss a full day I have 1. Mad at myself? Yes. Glad I have Tegretol? Yes."

   
10

DennisF March 25, 2015

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For Trigeminal Neuralgia "Worked for awhile okay. After 2 1/2 months I developed a reaction to it called "Stevens-Johnson Syndrome" which is a potentially deadly skin rash."

   
3.0

hlt00069 March 14, 2015

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For Bipolar Disorder "I tried Lithium, Depakote, and Lamotrigine. I had horrible side effects with all three. But Carbamazepine is a miracle drug, as far as I'm concerned. It started working within just a few days and I only had to take 300 mg a day, in 100mg doses. My doctor and I found I had to have 400 mg a day if I took it twice a day, but spread out in 3 doses 300 mg worked. I always prefer to take the minimum useful dose of drugs if possible. Side effects: 1) teeth, especially at the gums, seem to be in worse shape on it, 2) I have to drink quite a lot of water, or I start to lose some cognitive function, 3) at a higher dose, I seemed to develop empathy deficits as if I had Asperger's or something."

   
9.0

OrcaTotem March 10, 2015

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For Bipolar Disorder "Well im very impressed and happy others have Tegretol works, i am adhd and bipolar yup try that on for size its insane. I use to be an extremist of note but tegretol has controlled this and what i like most its not like the other medications it does not put you on just another high or a buzz, you don't realize what it does but the people around you do. It slows you down to a more controlled state and keeps the depression down. For me combine tegretol with healthy eating no dow etc rice starch, lots of water and gym and youll be sorted no doubt.But always remember like any normal being there are ups and downs and if you realize life is not always peaches and cream, and that you will experience down time, accept and just let it pass."

   
10

Self Medicator (taken for 2 to 5 years) February 9, 2015

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For Epilepsy "Oh my. I was put on carbamazepine for possible epilepsy and it didn't seem to do anything - but the doctors said to just keep trying. However, it continued to worsen, making my focus dip considerably, and causing my hearing to change! (I'm a musician, I could tell - it dropped a semitone down.) Was very annoying."

   
1.0

applesauce7 (taken for 6 months to 1 year) February 6, 2015

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For Epilepsy "Been on Tegretol 200mg twice a day for partial seizures. It's wonderful, it's really helped. I'm down from 10 seizures a day to 8. Have tried everything else hopefully getting there."

   
10

Cheryl green (taken for 1 to 6 months) February 5, 2015

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For Trigeminal Neuralgia "Worked great on the pain. But my AST levels went through the roof. I am now unable to take them. Awaiting MVD surgery that can't come soon enough. Please ensure your doctor gives you regular blood tests. Mine did not hence my liver problems."

   
8.0

az200 (taken for 1 to 6 months) February 3, 2015

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For Trigeminal Neuralgia "When I was first diagnosed, I thought I was dying. I take this (200 mg) - 3 times a day with another medicine. I have been pain free for 7 months. I stay drowsy and stagger at times but I can deal with that as long as the medicines continue to help me."

   
10

PJDW October 15, 2014

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For Bipolar Disorder "No problems or side effects."

   
9.0

SandyBlonde (taken for 5 to 10 years) September 18, 2014

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For Epilepsy "Began taking Tegretol in 1986 along with Epilim, had the op in 1991 and have remained on Tegretol since. Somethings I have noticed over the years although I don't have any medical evidence to back this up only self observation are. Massive increase in body hair. Not on the head but over the rest of the body. Most of my nails split down the centre of the nail. As for controlling my epilepsy can not say they really did, prior to my operation, at first all was hokey dorey, then the body seemed to get used the medication and as a result the dose increased. Today 24 years after the operation I remain on 1200mg a day. Seizure free, thanks to the opp, although i do remain on the tablets."

   
2.0

Twistyfil August 13, 2014

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For Trigeminal Neuralgia "I have spent 17 years with atypical trigeminal neuralgia. This medicine gave me 4 years pain free. It took a long time to work, seems like almost a year, but worked great for a time. Guess now it's on to something else."

   
9.0

Thebigempire (taken for 5 to 10 years) August 12, 2014

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For Epilepsy "I have been on Tegretol 31 years as well as Lamictal, excellent until I turned 52. Then had some partial seizures..... so my neurologist upped it from 400 to 800 Tegretol and upped Lamictal as well. Getting control slowly. Been 5 months....now..improvement is happening but slow...confident..depends on what meds suit your body. Keep positive."

   
9.0

beachhut June 24, 2014

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For Bipolar Disorder "Most effective medicine for bipolar disorder, at least for me."

   
10

yayo53 (taken for 1 to 6 months) June 4, 2014

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For Epilepsy "I have been on this medicine for 27 years. Except for extreme tiredness, I seem okay. Have not had a fit when on this medicine. One week I came off the medicine, between suicidal thoughts, crying jags and depression, I had massive fits. I have not been off since. This medicine seems to affect the liver, so liver tests are a must."

   
8.0

Kate2014 (taken for 10 years or more) May 20, 2014

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For Bipolar Disorder "This medication is saving my life! It really stabilizes my mood. Before I started taking carbamazepine I would experience horribly crippling depression in the afternoons combined with very strong urges to self medicate with alcohol or narcotics. Now I feel about the same all day, never really up and never really down. I have no conflicts taking it with Suboxone. I have only noticed two side effects: nausea, taking it with food fixes that, and increased sleep. I sleep longer than I did before and wake up feeling tired. Actually it helps me to sleep through the night, which isn't all bad. After I get up, take my other medicines, and have some coffee I am ready to face the day. Note: I was previously misdiagnosed with major depression."

   
9.0

rscudder (taken for 1 to 6 months) May 18, 2014

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For Epilepsy "This is the only medcine I am allergic to. Extreme itching! I couldn't stop taking it too fast. Luckily, it doesn't have a very long half life."

   
2.0

Nampajim April 6, 2014

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For Bipolar Disorder "I only took this 1 1/2 days because I had a severe bad reaction physically, but the second evening I was on it I felt so calm, peaceful, and happy, that I didn't even want to fall asleep knowing it would be gone in the morning. I would've given it a 10 if not the physical reaction. I really recommend trying this mood stabilizer for anyone with bipolar and it works in just a couple of days. I was just an unlucky one, again."

   
8.0

Anonymous (taken for less than 1 month) March 7, 2014

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For Bipolar Disorder "I have been taking Tegretol for a couple of years and it really helps with my bipolar. I can notice a big difference compared to if I'm not taking it. I just don't like how it makes my head and tongue feel numb, but it's a small price to pay."

   
9.0

Crazilysweet March 1, 2014

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For Bipolar Disorder "Thought I would share my experiences on "Tegretol" too. I have been on Tegretol for 3 days now and can tell a HUUUGE difference! I have not been given the "full blown" Bipolar diagnose yet, I think this will need some more in depth conversations with my psychiatrist. Well yes I was given Tegretol as a mood stabilizer on Wednesday. I took the first 100mg before I went to sleep. The next morning I didn't really feel any different, it was maybe in the evening or the afternoon that I noticed an improvement. I was a lot calmer, my thoughts were gathered, this has been the case until this day. I will ask my psychiatrist to up the dosage of Tegretol but it's early days yet. All in all I love this medication."

   
9.0

Bipolar? January 26, 2014

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For Bipolar Disorder "I have been on this medicine since late September of this year (2013). I was on Abilify since I was 7 years old. I am now 21. I have gone from being a stick figure to a 254 pound blowfish and I'm 5.9". Since being on Tegretol. I have lost over 20 pounds and am eating less and am more on average scale of what a human being should be consuming on a daily basis. I love this medicine. It helps me think clearly meaning I am much more calm and stabilized with my bi-polar. The ONLY complaint I have is I am constantly having heat-flashes. I am male by the way. I have asked many different psychiatrists, pharmacy, and my PCP about it. None have ever found that to be part of the side effects. I rather deal with this then major weight gain from Abilify."

   
9.0

Wolfie Kins December 19, 2013

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For Epilepsy "This medicine has given nothing but trouble. Headache, Feeling sick and worse of all I now have a very itchy rash all over my body which is driving me round the bend."

   
1.0

Anonymous (taken for 1 to 6 months) October 19, 2013

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For Epilepsy "There is nothing more scarier than that first few seconds when your seizure starts and nobody is around. Tegretol has saved my life! I am so thankful my doc put me on these tablets 200mg three times a day and I'm happily seizure free."

   
10

Kim-ds June 20, 2013

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For Trigeminal Neuralgia "Stoped the pain of trigeminal neuralgia. Side effects like unsteadyness, fingers twitching, sore joints, seeing aura's, reading difficulties, speaking difficulties."

   
6.0

ANGELSFLYWITHME June 12, 2013

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