The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Tegretol (carbamazepine) for Trigeminal Neuralgia: Stoped the pain of trigeminal neuralgia. Side effects like unsteadyness, fingers twitching, sore joints, seeing aura's, reading difficulties, speaking difficulties.
Review by Lindy1628 (taken for less than 1 month):
User Rating:
2.0
Tegretol (carbamazepine) for Trigeminal Neuralgia: I have been put on this medication for pain. After 6 mouth operations - I was left with terrible upper gum and palate pain. I have only been on it for 5 days - it is not working. The pain is severe and constant. I am praying - as I take it longer - it will take the pain away.
Tegretol (carbamazepine) for Schizoaffective Disorder: Tegretol is very effective for my mood swings and hallucinations. It helps slow the racing thoughts and hyperactivity and thinking people are out to get me and helps with hearing voices. When I do not take it, everyone can notice a huge difference in how I act.
Tegretol (carbamazepine) for Trigeminal Neuralgia: I was initially put on Tegretol only to have it stop working after about 3 weeks. Dr. added Neurontin and eventually had surgery to remove the blood vessel and wrap the nerve. Best of luck to anyone with this terrible condition.
Tegretol (carbamazepine) for Epilepsy: Have been taking for 13 years. Have been seizure free. It has changed my life. Only side effect I've noticed is a little more tired than normal. Only sometimes. Other than that good to go!
Tegretol (carbamazepine) for Trigeminal Neuralgia: My problem started with severe uvetis/iritis (inflammation of the iris) for which I was under a eye specialist care. This went on for almost 3 yrs before the Dr was able to get it under control. I lost a lot of vision the the left eye (it was in both eyes). Eventually I became aware that I had tested positive for Lyme disease in 2005 but was never treated for it. I continued to have severe pain around the left eye that was incapacitating. I finally found a Lyme Dr. after much pain, agony, & suffering. I was told I had trigemial neuropathy in my left eye. I was given carbamazepine 100mg x2 per day. I have only been taking it prn but after reading other peoples experience I believe I need to take it every day to get the full effect . Thank Yo
Tegretol (carbamazepine) for Bipolar Disorder: Loved Tegretol, kept my moods stable, worked well, felt calm and happy and in control for the first time in years,
Until a Dr decided it was ok to mix this with antibiotics along with the pill, and sinus medication, I suffered from TENS, after being told 3 times it couldn't be that I was so suck ended up in hospital for 2 months.
Now I remain untreated due to fear, however, what works or some doesn't work for others.
This worked for me until my body decided I was allergic to it and everything else.
Please be mindful of what you take any medication with!
Review by Taylor T. (taken for less than 1 month):
User Rating:
2.0
Tegretol (carbamazepine) for Bipolar Disorder: Caused me to be very drowsy all of the time, sleeping about 16 hours every night and I developed an itchy rash of red pimple-like bumps on my scalp and neckline and middle of my back after taking it for a few days.
Review by Anonymous (taken for less than 1 month):
User Rating:
9.0
Tegretol (carbamazepine) for Bipolar Disorder: I found Tegretol amazing. It made me so calm and stable even after a few days, the only issue with it is it makes me very drowsy and a little disorientated. That's the one side effect I've noticed. So if you drive a lot or operate heavy machinery or are a surgeon this is not the medication for you. Otherwise it is a great mood stabilizer.
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Tegretol (carbamazepine) for Peripheral Neuropathy: Regarding my peripheral neuropathy: Had reached max daily allowable level of Neurontin and was put on Tegretol, 200mg, 4 x daily. Brought it down to one tab daily and have not looked back. Never any side effects. Condition greatly improved! Cannot remember my last "attack".
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Tegretol (carbamazepine) for Epilepsy: Have had complex partial seizure disorder for over 40 years. My main medicine that held me for years was Phenobarbital. When I started having breakthrough seizures, Tegretol was the secondary medicine that has held me okay for the past 4 years. I tried Tegretol XR first but for me, I felt very tired, some dizziness, poor memory, and very bland. When the Dr switched me to regular Tegretol, it was totally opposite! I felt alive again, memory sharp, out riding horses, happy as a lark and felt like my good old self. People should know there are many different medicines for epilepsy these days and also that there is a Tegretol XR (long-acting).
Tegretol (carbamazepine) for Bipolar Disorder: Started taking this medicine about two months ago, after the Lamictal-induced sickness wore off. Up to 400mg now and I think I need a higher dosage as have been manic for a couple of weeks now. But it started to work straight away, and no side effects except for my third day of taking them when I started to get a little confused. Was okay the next day though!
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Tegretol (carbamazepine) for Dystonia: Found it ineffective for facial spasms. Patients must get liver function tests while they are on this medicine. I believe other dystonia sufferers have had some relief with this but I was not one of them.
Tegretol (carbamazepine) for Peripheral Neuropathy: It took approximately 3 months for the Tegretol to have any effect. When it did it was almost overnight. Also found that taking Xanax with it helps tremendously (with Doctor approval of course). I take up to 3 mg Xanax with 3 times daily and 200 mg Tegratol 2 times daily. It really works. The burning has almost ceased.
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Tegretol (carbamazepine) for Bipolar Disorder: I had a horrible experience after being prescribed Tegretol while in the hospital to treat my bipolar disorder. Within a few days of starting it, I began experiencing the shaking, nausea, etc. but the worst was the extreme anger/irritability I started experiencing. It got to the point that I would have horrible rages and felt like I was completely losing control. I kept asking my doctor to take me off the Tegretol, but he wouldn't. During one of these rages, I ended up fracturing my wrist because I hit a door so hard. After that, he agreed to take me off of it. After talking to other patients, I found out that a lot of them had similar experiences with this uncontrollable anger.
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Tegretol (carbamazepine) for Bipolar Disorder: I just started taking Tegretol on June 3 for mood stability. Also prescribed Celexa on same day. I also take Methadone 10mg 4x a day for chronic pain management for last 10 yrs. I love how it makes me feel and it's very hard for me to get angry BUT, it interferes with the methadone. At first nothing except feeling drunk for the first 4-5 days. Then it started. Withdrawal symptoms, increased pain, restlessness, insomnia, fatigue and nausea. Not sure if I can continue treatment but will find out on June 24 after my doctors appointment. Also taking meloxicam. Will let everyone know my results Friday afternoon.
Tegretol (carbamazepine) for Bipolar Disorder: I had a very good experience on Tegretol. I had no side effects and was feeling better within three days. On top of stabilizing my moods it also reduced my fibromyalgia pain by a good 90% (which also helped my mood a lot). The only reason I stopped taking it is because I'm working on becoming pregnant and it does have some nasty side effects there. The new medicines I'm on don't work quite as well and I plan to go back on Tegretol as soon as I have a child.
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Tegretol (carbamazepine) for Trigeminal Neuralgia: I was put on Tegretol 2 weeks ago, and boy or boy the build up felt like forever but now that it is at 800mgs, I am feeling so much better. I believe I will be going up yet again this week another 200mg and then again if need be, before Doctor tapers me down where it is maintainable. I am still having just a bit of breakthrough pain a few times a day, which is nothing compared to where I was 2 weeks ago. I would gladly take the tired, stumbles and slurs over where I had been. This medicine works, and works well! I pray it doesn't stop working for me, ever!
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Tegretol (carbamazepine) for Trigeminal Neuralgia: I've been using CARBAMAZEPINE 200mg twice a day for about two years. It does a good job in limiting the amount of pain I have with Trigeminal Neuralgia. I found it best to take the medication regularly. If I skip days when I am not having problems the pain will be right back and it will take several days to get it back under control. I've tried GABAPENTIN 300mg and OXCARBAZEPINE 150mg but they did not help. The CARBAMAZEPINE makes me tired and sleepy but that is a lot better than the pain.
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Tegretol (carbamazepine) for Trigeminal Neuralgia: I have had TN for about 10 years, but was switched from Trileptal to carbamazepine, 100 mg 3x/day, about a month ago. The first week I felt almost pain-free, but since have been in constant pain. It does not seem to work for me at all now!
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Tegretol (carbamazepine) for Epilepsy: I am 39 years old now, and have been on Tegretol since I was 20. I have not had a seizure for 19 years. Then, this past weekend, I went on a trip and did not take my Tegretol for 3 out of the 4 days I was there. The next day, I had a grandmal seizure and the ambulance came. I attribute it to becoming complacent and it really bit me, but I will not make this mistake of being lazy and not taking it again. I was on 200 mg for the last 3 years without a problem, but will increase it to 400 mg just in case. Tegretol really does work wonders and I hope to be seizure free the rest of my life, if I can faithfully stay on this medicine.
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Tegretol (carbamazepine) for Epilepsy: I have been using Tegretol retard 200mg for ten years now. I made the mistake of forgetting to collect my script from my doctors for a week! I have been lucky as I did not have a seizure, but my word I have been so poorly, depressed, loss of appetite, and body tingles, from my lips to my toes. I never realized how important it is to take my pills till now. I will never make that mistake again, the 1st day I started them again, I was a ball of tears, very sad and tired, but a day later I'm back to my old happy self. I'll never forget them again.
Tegretol (carbamazepine) for Bipolar Disorder: Well, I would say that the side effects, when you stop talking is like so.
I feel like I'm shivering inside, one of the worst feeling in the world. So bad that if I miss a dose, I'm waiting at the Pharmacy before its open.
I suggest that one doesn't miss a dose.
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