The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
I HAVE HAD SEIZURES FOR TWENTY (20) YEARS NOW. i HAVE TAKEN EVERYTHING THERE IS TO TAKE, NOTHING WORKED EXCEPT FOR TEGRETOL. HOWEVER, I STILL HAD BREAKTHROUGH SEIZURES, SO NOW I TAKE KEPPRA WITH THE TEGRETOL. I HAVE NOT HAD ONE SEIZURE FOR THREE (3) YEARS NOW. WOW, OH WHAT A FEELING!
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I have taken Carbamazepine for 36 years and have experienced no significant side effects. I take 400mg per day and have gained almost total control of my condition. No seizures since 1983. Do not cease taking Carbamazapine suddenly for any reason whatsoever. The withdrawal can be extreme. The ER medication is very useful.
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After being on this medication for seven years I am still having break through seizures. I have now developed lucopenia as I did with Depakote. Now I have to go through the trial and error of finding a new medication.
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My neurolgist just discovered I had seizures about a month ago and it has been constant trial and error finding a medication that will work. I was taking 600mg of Tegretol for the last week and I developed a awful red rash and itching all over. My doctor has changed me to dilantin today and I hope I do better on that. Keppra was the first drug and that didn't help.
I have been diagnosed with absence seizures for 6 years now, and have been taking Depakote ER. I have been seizure-free for 4 years, but have had severe migraines on and off, usually more during times of intense stress. My doctor prescribed me Tegretol to take as needed for them about a year ago, and it has always been 100% effective. The only side effect is that it makes me very drowsy.
I am 39 years old now, and have been on Tegretol since I was 20. I have not had a seizure for 19 years. Then, this past weekend, I went on a trip and did not take my Tegretol for 3 out of the 4 days I was there. The next day, I had a grandmal seizure and the ambulance came. I attribute it to becoming complacent and it really bit me, but I will not make this mistake of being lazy and not taking it again. I was on 200 mg for the last 3 years without a problem, but will increase it to 400 mg just in case. Tegretol really does work wonders and I hope to be seizure free the rest of my life, if I can faithfully stay on this medicine.
I have been using Tegretol retard 200mg for ten years now. I made the mistake of forgetting to collect my script from my doctors for a week! I have been lucky as I did not have a seizure, but my word I have been so poorly, depressed, loss of appetite, and body tingles, from my lips to my toes. I never realized how important it is to take my pills till now. I will never make that mistake again, the 1st day I started them again, I was a ball of tears, very sad and tired, but a day later I'm back to my old happy self. I'll never forget them again.
No seizures whilst on Tegretol. Extreme headaches first 4 weeks, extreme tiredness. 6 weeks after starting Tegretol hives started to appear and got worse. Blood tests showed liver enzymes were 3 times higher than usual and red blood cell counts slightly reduced. Thyroid gland swelled up also. All these were shown to be a severe allergic reaction to the drug. People should be aware of this as a possibility.
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