Humira for Ulcerative Colitis User Reviews (Page 2)

• leela
• Taken for 6 months to 1 year
• May 5, 2020

"Began starting doses of Humira last May, then had to stop and restart my previous medication. Began starting doses again in September, and noticed an improvement within a month. I was better than I had been, although my injection site reactions seemed to vary and sometimes caused great irritation. Now after 9 months, my symptoms are starting to come back again and I fear I will have to start a new medication again. Oh well, this is how it is for us."

• Kaos
• March 14, 2017

"This ended up being the end of my relationship with my GI. He wouldn't accept that it was making me very ill. He told me to just keep taking it. This was 6 months in. I decided to quit it and him at the same time. My GI was a narcissist, anyways.."

• Nikki
• May 5, 2021

"I have been diagnosed with UC since I was 16, I'm now 37, so I have been on a few different medications to keep me in remission in those 21 years. I started with Remicade for a few years, but would still have flares, so then I was on a few pills while still taking Remicade. Started with Sulfasalzine (caused bad cramping in my joints) Mercaptopurine (6mp) which caused pancreatitis, which was the worst pain ever, then off and on steroids of course. I have been on 40 mg of Humira every other week for over 11 years at this point. The only few times I have been off of Humira is while I was pregnant twice during those 11 years, and once when I didn't have the insurance coverage because I changed jobs. (I had the worst flare of my life during that time without the insurance for 3 months, couldn't keep any food down, had internal bleeding and had to be rushed to the hospital after a colonoscopy) that was in 2016. Humira has been the only thing that has stopped me from having any flares."

• Cecil...
• September 16, 2016

"I Have UC for almost 3 years now and now start having RA. Start using Humira 02.09.2016. My UC feels like it clear up totely... Fingers Cross. Now I am hoping and believing it will help with RA. I had now 6 Injections and Luckely no side effects.."

• Anonymous
• July 30, 2019

"After being first diagnose with UC in 2008. I just recently had a flare up in December of 2018. I would say that's remarkable. Just recently I had e a colposcopy in January 2019 and started taking first the steroids, Lialda, and then Apriso after being completely healed and no signs of bloody BMs. Yes, I discontinued these drugs. But, I had flare up and started back taking first Lialda, for about a week, then switched to Aspirso for another week and discovered these two drugs should be used only for UC maintenance. So, I called my doctor's office and the Nurse put me back on the steriods. Which isn't working for me at all. The Nurse said it takes a while before you start to see significant results. It's the bubble guts, GI track inflammation, fatigue, and bloody BMs that is excruciating."

• Kemal...
• Taken for 1 to 6 months
• November 27, 2020

"I have been suffering from ulcerative colitis for 15 years, I used to survive mild cases at the age of 60, there are very long attacks now, remissions have decreased. When the cortisone was insufficient, I started the Humira treatment, I started to improve after 9 weeks, now I am in good condition, there is no toileting problem, occasionally muscle pains and one There was some hair loss, but it is gradually decreasing. The 3-month treatment is about to end, the doctor said, 'Humira' continue every 15 days. I am happy for this period."

• Makan...
• December 11, 2017

"I was diagnosed with UC and Crohn’s almost 14 years ago when I was 7. I exhausted my treatment options this year so I was approved for the biological Humira. After the initial loading dose I thought I was seeing improvement but it was hard to tell as I was also on prednisone to control my flare. After my second two injections I woke up the next morning with my symptoms in full swing again. I know it takes time to start working so I just went with it. About a week later I started experiencing bad back pain and thought I had pulled a muscle when I went to the ER they found multiple pulmonary embolisms in my lungs and kept me in the hospital for 9 days (they never found the cause for this so I say humira ) then back 2weeks later for a UC flare"

• Troy
• Taken for 1 to 6 months
• December 30, 2020

"Been on Humira since September for Ulcerative Colitis. It works. Trying to figure out if it is causing constant sinus problems. My Humira nurse ambassador and my GI Dr. either deny it or are oblivious to my sinus problems that I blame on Humira. I lose sleep because of sinus problems / sinus medications, but at least I am not losing blood in diarrhea/ going to the bathroom 6+ times a day while flaring. I hope to adjust or get used to the sinus problems and affects on my sleep. I take Humira once a week. GI Dr. wanted to be me on Azothioprine as well, but I am against adding another immune - system suppressor."

• Anonymous
• Taken for 1 to 2 years
• August 16, 2018

"I have been on Humira for the last year or so. I can only do fortnightly injections as the insurance won't pay for weekly injections. I have breakthrough bleeding, cramping, constipation and horrible back pain. I really miss my simponi but they changed the biologics and I had a bad allergic reaction and that is how I'm on the Humira now. I am running out of options so I feel like I have to suffer through it. Certainly makes day to day living hard."

• Rmano
• Taken for 1 to 6 months
• November 11, 2019

"Was at the end of options . Was put on prednisone and Humira for the last 8 weeks . Every time I lower my dosage of prednisone my symptoms return therefore telling me Humira is not working . I will give it 2 more weeks before I get off Humira .... Really no side effects besides dry eyes and dry mouth. The anxiety of actually pushing down on the pen when giving me the injection is the only issue I have .."

• Doug...
• Taken for 6 months to 1 year
• July 23, 2022

"I was diagnosed with UC in 2003. Azathioprine kept me more or less under control. Really less but it kept me out of the hospital. Things got worse in 2019 so my doctor put me on Humira. One shot to the stomach every two weeks. I was on it about eleven months and I'd have to say it never really worked. No improvement. No side effects though other than the Tuberculosis. Yeah. At that point I quit the Humira. Interestingly after I stopped the Humira I got a lot better for about a year. I'm wondering was it the TB meds? Who knows. I'm looking for something else and would love to hear what's working for you."

• Tano
• Taken for 1 to 6 months
• October 9, 2018

"Dealing with needles the last 20 years of my life, I didn't think I'd have a problem. But, I dread every other Monday with humira. It actually hurts when injecting. And my thigh or stomach goes red and is sore for 3 days after injection. Plus I am overly tired in this time frame which makes working 12 hour shifts challenging. Is it working? After 4 months I'm still open to it, but I haven't noticed any changes. Like I said, I've never been afraid of needles until now. This pen thing really sucks."

• Ken
• February 13, 2020

"Had U.C. for 5 years. My last flare almost killed me. Severe anemia, needed a transfusion etc. I went on humira because I was desperate. At 10 weeks I was noticing no improvement. I started the specific carb diet at that point and started to see improvement. Not sure which helped. Currently I’ve been on humira for 4 months and started having bad site reactions. My doc told me to stop using it. My last dose was 2.5 weeks ago. I don’t believe it helped me at all. It has weird side effects. I’m paranoid using it because of all the folks that have had bad side effects."

• Father
• Taken for 1 to 6 months
• February 4, 2020

"My 14 year old son was diagnosed with UC n May 2019. He has been taking Humira for 9 weeks with no noticeable benefits. 5-7 bowel movements per day, occasional stomach pains, low energy for activities. His GI wants him to stay on Humira for 3 months before re-evaluating."

• Speedy
• Taken for 6 months to 1 year
• May 3, 2021

"I started using Humira in Sep 2020. I had a medium flare in December 2020. I took prednisone to control the flare. I continued Humira but again saw some blood in March. So, clearly this is not working for me."

• Patient
• Taken for 2 to 5 years
• May 17, 2022

"This worked for my UC for about 5 years. Until it stopped working I called it my miracle drug. I was happy with it and it was convenient because I could give myself the injections rather than going to an infusion lab as required for other drugs. I guess I acquired antibodies and had to switch to an infusion drug."

• Dakot...
• Taken for 5 to 10 years
• January 17, 2022

"I was hospitalized & diagnosed with severe UC in 2016. I started on Humira 40mg biweekly. Absolutely magical for me! I switched to the citrate free version when it became available and this made it even better (no more injection pain). I had normal bowel movements, felt great (just minor joint pain). Had a few flares over the next 5 years. Nothing a course of oral prednisone couldn't fix. Then last spring I started noticing TONS of mucus in BM (some bm were pure mucus and no stool). C reactive protein normal but fecal calories protectin off the charts (1700). Doctor checked for antibodies to Humira, and sadly, my body is now making antibodies to the Humira. I am devastated. I wish I could go back in time to when it was a miracle drug for me. I literally had no side effects and there was nothing I couldn't do or eat. Now we are trying dosing with the Humira once weekly and have added methotrexate 15mg weekly (which makes me feel like rubbish, but that is a whole other review, right?)"

• Karma...
• Taken for 6 months to 1 year
• June 24, 2021

"Hi, I have been on Humira 40mg. Every other week for approx 6 months. My TNF is still high and I am in the midst of a horrible; painful bout with UC. And of course my gastroenterologist is on vacation this week and no one on call for her. I have to say that Humira has not helped me at all and this bout is very painful. I cannot eat and limited drinks. Water hits hard. I have been sipping on coke with fresh lemon in it. Does anyone else have this issue when their UC is full blown? Not able to eat; fatigue; acute abdominal pain and passing a lot of mucous. I am at my wits end. Any help???"

• Pamuc
• Taken for 2 to 5 years
• November 10, 2021

"I am taking 2 Humira injections every week for over 3 years now. I find I have a lot of body ache and every now and then at least once a month I feel completely run down exhausted and feverish like I don't have any blood on my body. Is this due to Humira?"

• Victo...
• June 21, 2017

"I've been in remission for 5 years."

• lazy...
• September 29, 2013

"Started Humira in April 2013 and I have lost lots of hair and have skin issues. I have also lost weight and have no appetite. I also am on Diflucan for Valley fever. "

• Doc
• Taken for 1 to 2 years
• April 27, 2020

"Used Humira for two years for UC and it worked great, but my body started rejecting it. This was the longest time I was using only one medication."

• adacol
• Taken for 1 to 6 months
• June 9, 2019

"Humira had ZERO effect on my Ulcerative Colitis (UC)"

• Holly
• Taken for 6 months to 1 year
• June 17, 2018

"I've been on this drug for 6 months works great apart from getting acne and some aches and pains in joints. I tolerate it well."

• Jeena
• September 4, 2016

"This medication is a nightmare!! Ive gotten 2nd degree burns and barely fighting for Life today!! Horrible horrible stuff!! Not worth ur life!!"