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Muscular Dystrophy

What is muscular dystrophy?

Muscular dystrophy (MD) is an inherited disease that causes weakness and loss of muscle. There are several types, such as Duchenne and Becker muscular dystrophy, that affect muscles in different parts of your body. Muscle weakness may lead to difficulty walking. In some cases, it can also lead to difficulty eating, drinking, or breathing.

How is MD diagnosed?

  • Blood tests are done to check for muscle damage and genetic markers of MD.

  • An MRI takes pictures of your muscles to show if you have MD. You may be given dye to help the muscles show up better in the pictures. Tell the healthcare provider if you have ever had an allergic reaction to contrast dye. Do not enter the MRI room with anything metal. Metal can cause serious injury. Tell a healthcare provider if you have any metal in or on your body.

  • An electromyography measures the electrical activity of your muscles at rest and with movement.

  • A biopsy is a procedure to remove a small sample of muscle. Your healthcare provider will send the sample to a lab for tests.

How is MD treated?

There is no cure for MD. The goal of treatment is to help reduce your symptoms and maintain your strength. You may need any of the following:

  • Assistive devices, such as braces, crutches, or wheelchairs, help you move. They can also help protect and support your body to prevent injury.

  • Medicines are given to decrease pain and inflammation, or relax your muscles. Your healthcare provider may also recommend medicine to help other medical conditions that may result from MD.

  • Physical and occupational therapy are programs to help you learn how to take care of yourself. A physical therapist will teach you exercises to help improve movement and strength, and to decrease pain. An occupational therapist will teach you skills to help with your daily activities.

  • Surgery may be done to release tight muscles so it is easier for you to move.

How can I manage my symptoms?

  • Do breathing exercises as directed. Deep breathing can help you breathe more easily. Breathe out with pursed or puckered lips. Use your diaphragm to breathe. Put one hand on your abdomen and breathe in, causing your hand to move outward or upward. This helps make more room so your lungs can take in more air.

  • Stay safe at home and when you walk. Use a 4-pronged cane or walker to help you keep your balance when you walk. Remove loose carpeting from the floor to reduce your risk for a fall. Use chairs with side arms and hard cushions to make it easier to get up or out of a chair. Put grab bars on the walls beside toilets and inside showers and bathtubs. These will help you get up and help prevent falls. You may want to put a shower chair inside the shower.

  • Ask about vaccines. The flu and pneumonia vaccines may help reduce your risk for lung infections. Ask your healthcare provider when to get these shots.

When should I contact my healthcare provider?

  • You have a fever.

  • You have difficulty having a bowel movement.

  • You have more weakness than usual.

  • You have trouble swallowing.

  • You are depressed or feel you cannot cope with your MD.

  • You have questions or concerns about your condition or care.

When should I seek immediate care or call 911?

  • You have trouble breathing.

  • You have any of the following signs of a heart attack:

    • Squeezing, pressure, or pain in your chest that lasts longer than 5 minutes or returns

    • Discomfort or pain in your back, neck, jaw, stomach, or arm

    • Trouble breathing

    • Nausea or vomiting

    • Lightheadedness or a sudden cold sweat, especially with chest pain or trouble breathing

Care Agreement

You have the right to help plan your care. Learn about your health condition and how it may be treated. Discuss treatment options with your caregivers to decide what care you want to receive. You always have the right to refuse treatment. The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.

© 2014 Truven Health Analytics Inc. Information is for End User's use only and may not be sold, redistributed or otherwise used for commercial purposes. All illustrations and images included in CareNotes® are the copyrighted property of A.D.A.M., Inc. or Truven Health Analytics.

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