This is a dirty drug. I am very depressed. I am mean, emotional, tired angry, I forget things easily. I am losing everyone important in my life. My headaches are gone. But I think this is worse. What do I do? Should I just stop taking topamax? Help!
21 Aug 2012
Hi losingfamilyfriends, so sorry to hear about your problems with topamax. There are a plethora of medications in the same family as Topamax, so if the medication is helping your migraines there should be no reason why another medication in the same family shouldn't help also. You should not be forced to take a medication that changes your mood, or personality. BUT as others have said, you MUST go down slowly. It can cause seizures, and you don't want brain damage on top of migraines. Talk to your doctor. I'm sure that they know of another medication that you can try. Also, please ask about botox. It can work miracles!!
Best of luck!!
31 Aug 2012
I've taken Topamax for about 4 yrs., and in the beginning I felt like I was wound tightly inside, and was irritable with others. Finally I explained to them I was starting a new medicine and having side effects, & I was sorry the meds were making me act differently & they tried to understand. What I hate the most is being in the middle of a sentence when my thoughts become fragmented & whatever I had been saying won't come back to me. It is all tied into memory, and I don't know why it happens. Some side effects diminished, some improved... but I don't go to school & also don't work any longer. I would not be able to be employed at my full capacity while taking Topamax. For now, I weigh the pros and cons and know it is to my advantage to continue taking it.
And please remember, you CAN NOT suddenly stop Topamax, but your doctor will tell you how to wean yourself off of it. Good Luck to you!
20 Aug 2012
Hi, I had a friend that was on Topamax at the same time I tried it. We called it "Torpor-max" because it truly leaves ya feeling like you are in a torpor, or foggy headed. NOT a good medication for some people.
I couldn't remember squat on that stuff. I just told my doctor that I was not going to take it anymore, and he agreed. It also can make you lose weight that you might not need or want to lose.
Talk to your doctor and get off of it slowly.
7 Mar 2013
I have been taking topiramate (topamax) for
A month. First started out 25mg 2xs,daily, last week up to 50mg2xsdaily. So now being on 100 mg daily here is what I have noticed, I can not drink soda, especially coke or Pepsi, but rather anything carbonated, which is good fir me anyway, once in a while, though I will forget the nasty taste and drink a mtn dew...
Have had a bit of appetite increase and it has decreased, and my skin is very very dry and itchy. Haven't noticed this until i reached the 100mg dosage. My headaches have gone from daily to maybe once a week. So I am very greatful and very happy to be able to live a headache free life. I do get the tingleness in the feet and hands and peridoic muscle soreness in legs, but I haven't not ruled out if its from the topiramate or if its flat bc I don't sit still. I am always on the go, but yet seem to not lose weight ... lol ... go figure...
Anyway, my point here is that this medicine does work for some people, as all medications work differently for everyone. Not one medicine will work the same for everyone. Good luck to everyone and hope that everyone has found and will find help in preventing and helping ease the migraine.
16 Nov 2012
i jst went to my neurologist 2day,is slowly taking me off of topamax,because of all the side affects,i was,(i mean, i am because im still on it)forgetting things,im mean,i talk slower than i normally would,i see flashing lights at times,so if you didnt already get off of it,in my opinion i think u should.GOOD LUCK
20 Aug 2012
Hello, My Pain doctor has me on 100mg of Topamax three times a day. For severe migraine prevention. I don't know if it was the awful car wrecks I was in a few yrs. back, but I have three disc'c (per MRI) in my neck that are messed up. And my neck and shoulders are constantly swollen. I think I have negetivity from this drug too and want to ask my doctor about something else. I get severe headaches alot, even on the Topamax. Can someone please suggest another migraine prevention medication that helped them? Ruthie
8 Nov 2012
Hi, I am on Topamax for my rapid cycling bipolar mood swings, at first it was very helpful but then my Dr. increased my dosage and I started to become confused, I lost my ability to concentrate and sometimes put the right words together. Instead of the mood swings I became numb with no emotions at all. I also had terrible loss of vision and very bad nightmares. I am a former nurse, and I know do NOT stop this drug cold turkey. Wean off of it slowly so you don't have seizures. Stay in close touch with your Dr. Good luck!
19 Aug 2012
I stopped a drug that affected my mood, Zonisamide. I was taking 200 mg, dropped to 100 mg for 4 days and I was off. I felt remarkably better in just over a week. I'll never go back on an anti sezure drug again. I took Topamax, also known as 'Dopamax', then Lomotrogine and lastly, Zonisamide. It is the only one that affected my mood, made me feel very unmotivated, 'sad', I was irritable and sensitive where I'd want to cry for no reason. Crazy!!! I had cognitive problems with the other two, I hate these drugs. I took my last "Z" pill July 18 and on July 19th I started 5 mg of Flexeril every night, I've had six migraines this past month, that is great!! I had 13 in June and 12 in May. The drug initially helped me, I started it on Jan 3, but after just a few months I was back up to having too many. Good luck!!
- Topamax Information for Consumers
- Topamax Information for Healthcare Professionals (includes dosage details)
- Side Effects of Topamax (detailed)
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