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Lyrica pregabalin - new one - safe?
  1. #1
    Karlin is offline New Member
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    Default Lyrica pregabalin - new one - safe?

    Lyrica pregabalin caps are now being distributed, I got a free sample from my doc.
    I do feel like I am an unpaid volunteer for experimental drug trials, so I am holding off on it.

    It is for my neurological pains, which is actually only part of my "personal pain catalogue". I doubt if my doc knows this though
    [ he allways takes a phone call during our meetings].

    I also doubt if it is safe. I suppose we can assume it is not safe, and that my liver will be damaged from it - they all do that.

    What I really want is info from people who have taken it allready. And info on side effects, deaths, suicides, etc. I cannot find anything, it appears to be the safest drug ever made [but its not, obviously, being a pharmaceutical made from coal tars and with lactose in the pills!!].

    I trust nature's drugs - opiates cannabis etc - and herbs, but not pharmaceuticals.

    After the Vioxx "lies and life-saving information" being withheld, it is safe to assume the pharma-giants don't have MY best interests in mind, and until there is full disclosure about all the pharma-giant products, I really don't want to take any of their drugs, esp not the new ones.

    So, did my doc put me in mortal danger giving me these Pregablin pills? - anyone with info on the dangers of Pregabalin [Lyrica], I would sure appreciate it.



    "Remember: they CREATE the Problems, and then Offer the Solutions"

  2. #2
    zippysgoddess is offline Platinum Member
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    Here's a great site with information on various drugs, problems with them, recalls and etc. It is a very honest and straightforward site and they are not afraid to provide the real scoop on stuff, they also link to further information about Lyrica.

    Now, as to the reason this drug is so touted and loved by doctors, is because it is very similar to Neurontin, being a drug used for Epilepsy to prevent seizures, it is almost impossible to OD on these, because they don't work the same way other drugs do. So you can take a very high dosage with minimal side effects and it is almost impossible to OD on them. The drawback of course, is that if you abruptly stop taking them, even if you aren't epileptic you could have seizures, instead of the traditional drug withdrawals. So you have to be very careful to not run out of your supply or stop them abruptly.

    Another drawback is they only work for certain people with certain types of nerve pain. If you have an impinged nerve or something that is constantly irritated, these types of meds will not help at all. I tried Neurontin with no results, however, my husband, who has recently suffered irritation and problems to his Occipital nerve, has had great results, because his problem isn't a constant thing and it isn't always swollen and irritated.

    My information is not guaranteed correct. I do not get them right all the time, but I do enjoy the hunt~
    Last edited by ddcmod; 07-26-2012 at 11:35 PM.

  3. #3
    Karlin is offline New Member
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    Pain medications (OxyContin) and some anti-anxiety medications can also negatively interact with Lyrica.

    Animal studies also showed serious Lyrica side effects in males. Lyrica reduced the fertility of some male animal subjects during testing. Of those males receiving Lyrica that did reproduce, there was a high risk of birth defects in their offspring.

    '

    Thanks for the link zippy. That quote is from it.

    I don't want to take it.I don't trust pahrmacueticals at all, not even their info. Every pharmceutical has a disease profile too - they causes diseases Kevin Trudeau says. I don't trust pharma-giant corporations most.

    If I can GET seizures from stopping it too fast, and since I don't have seizures now, then it seems not taking it is best.

    If it gives sterility and birth defects, there is something wrong with it, it will be messing with crucial parts of my body, and I do not think they know the full extent of the damgae it does. For one thing, they don't really look for damages in the drug trials, just if it works without outright killing anyone, then its approved. And post-marketing studies have been slim to none dfor most drugs... they don't WANT to know the damages it causes.

    I think they are addictive too, and it is 'covertly advertised' that you can get high on Lyrica pills {"if you take too many" it says!!]... they want us dead man.

    So why would I take their information? its laughable.

    I trust your info source more, Zippy.


    "Remember: they CREATE the Problems, and then Offer the Solutions"

  4. #4
    zippysgoddess is offline Platinum Member
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    Very welcome, I am glad I could help. I always try to provide the most honest and forthright information that I can. Your doc, pharmacist and the patient leaflets don't tell you anything, they aren't supposed to, something that are all taught, they don't want to cause anyone to panic about taking certain drugs. If you specifically ask, they are required to tell you, but if you are clueless about something, then how do you even know what to ask?

    Ridiculous.

    I did try Neurontin for awhile, with no problems and I stopped with no problems, but I tapered myself down, just in case. It did nothing for my pain, because as with most of these drugs, they only work for certain people.



    My information is not guaranteed correct. I do not get them right all the time, but I do enjoy the hunt~

  5. #5
    Karlin is offline New Member
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    Now, my problem, just a worry really, is that I have to tell the prescribing doctor that I rejected his help.

    My worst anxieties each month is the doctor visit. I have to meditate just to get there in one piece.

    I may have mentioned that I take M ESlon morphine. Instead of increasing the doseage due to tolerance, the doctors out here are ALL pushing the idea of "adjunct therapy" - take another pill to compliment the morphine instaead of chasing the tolerance. It sounds reasonable, but its not. Morphine is morphine and nothing takes it place.

    It is obvious that the doctors take their clues from a top-down source, and not doing their own research. One area or province will do it one way, and then I move and find they all do it another way in this area. A whole group of clinics around here has a motto "chronic pain is not treated with morphine" - and that goes for those in pain who are allready addicted [chemically dependant] to morphine, as if we were not alive before we came to them, no history, take it from here and lets pretend you are not on morphine now so we can treat you with newer pills.[i.e. better profits pills].

    This is my life they are playing with. I could not believe this much cruelty exists here if I hadn't lived it.

    "Remember: they CREATE the Problems, and then Offer the Solutions"

  6. #6
    klmrabbit is offline New Member
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    Default Be careful

    Please be careful. A family member of mine is completely, 100% addicted to Lyrica. The pills can no longer be kept where he lives; he is a grown man, but his parents have to keep them. He often takes 2 or 3 times more than he is supposed to. He lies and is always coming up with new ways to get extra. Then he runs out 2 to 3 weeks early and horrible withdraw symptoms start. The last bout, he had such severe chest pains, heart palpitations, and shortness of breath that I wanted him to go to the emergency room. He refused. He was barely able to get out of bed because the pain was so severe.
    This person does have a long history of prescription drug abuse, but this drug is so "good" that it has become his drug of choice. By the way, he is prescribed Lyrica for nerve pain and anxiety. He switched to Lyrica from Neurontin. He abused Neurontin just as badly, but he does not have to take as much extra Lyrica to achieve a good high. Maybe if you are not a "druggie," you will be okay taking Lyrica, but it is a controlled substance and it can be very addictive. Drug users compare it to the feeling of taking Valium. Please check out this link http://epilepsy.emedtv.com/lyrica/lyrica-abuse.html
    Be aware of the dangers.
    h8_thepain likes this.

  7. #7
    Mara13 is offline Junior Member
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    Question more Q's on Lyrica

    I was going to post a new one on Lyrica but saw this so just went with it. I just started taking Lyrica. Decided what the hell, may as well give it a try. I have fibromyalgia@some other pain issues. Currently manage with 75 Elavil, 3-4 Hydrocodone 10's. Used to take Klonazepam but quit a few months ago because changed doctors. (long story) The first night I took 1 (50 mg) capsule of Lyrica. It relaxed my neck@shoulder area so much that it was wonderful! It also helped me to breathe better (no idea why??? it just did, which since I have asthsma, was also wonderful!). It seemed tho that within about 2 nights, the effects weren't so noticeable. I still am thinking it DOES perhaps help but there seem to be side effects. I, like so many of you, do NOT trust these new pharaceutical that we know NOTHING about!!!! side effects for me seem to be, blotchey skin (allergic reaction?), eyes tearing up after after waking up, sinus issues, tiredness. So far, I guess that's it. Maybe a bit of a sore throat yes. I am extremely alarmed by reading the above about Lyrica being addicting! It is VERY expensive and I can only take it IF I manage to get doctors samples! What if I take it for awhile@ then don't get anymore? I was also surprized to read about the guy who was getting "high" off of it. (he must have been taking ALOT????) I suppose that is that feeling I got that first night when there was such a pronounced feeling of relaxation but it went away by night 3. Any and all advice, info, etc. on Lyrica would greatly be appreciated. (I trust the old pills I'm taking more tho!) Thanks. :~) Mara13

  8. #8
    Theo Jacobi is offline New Member
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    Default Lyrica-Miracle Drug?

    When I first started Lyrica I didn't like the dizziness, but I noticed it did seem to help cut down my diabetic nerve pain. I continued to take it and it seemed to help my condition more and more. It seemed like a miracle drug.
    Instead of being crippled in bed with severe burning,
    stabbing, leg pain, I could get up with energy and pretty
    much do normal, everyday activities, within limits. I was
    taking 600mg. a day to get good relief! I was worried that I needed so much of this drug, but a funny thing happened. After taking that much Lyrica for one year recently I only need about 200 or 300 mg. a day
    to feel better. It's like my body is slowly weening itself
    off of the drug. I hope to someday not need to take any.

  9. #9
    janel31 is offline New Member
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    Default

    I'm so happy you have had such luck with Lyrica!! Unfortunately, I felt it helped with my fibromyalgia pain, but after only 2 weeks at 100mg/day, my brain was in a deep fog and my body felt somewhat numb all over, yet the pain was still there.
    The doc took me off of Lyrica when I told him my symptoms. Please, any advice or suggestions you may have will be greatly appreciated.

  10. #10
    kaylalyn is offline New Member
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    Exclamation Lyrica safe?NO

    Hi I joined just so I could respond to this thread.
    I am going to be honest here.
    I take benzodiazapines and have for 20 yrs(going to addiction clinic now to wean off and get my life bk)
    but Lyrica.Develeped neuropathy in my feet 1 yr ago,,,,I think the pain was more present after discontinuing an ssri.
    nonentheless 3 doctors gave me scrips for this drug.Even tho they knew I took benzos.they dont care.but even lyrica by itself is a poisonous evil drug.most anticonvulasnts are,,,but his one is horrific.
    so took it,in my pain desperation and as i recall had trouble getting on it but when my does reached 225 mgs(which is where it is now---drunk feeling,50lb wt gain-stomache trouble-and trouble walking-dry skin dry dry mouth!!!!urinary inf,,,teeth rotting on 225 mgs.Cant remeber words,,,and depression.I was not depressed to begin with but......so decided to taper off after 11 mos.OMG called phizer they say 1 week no prob,pharacist says 8 weeks.
    I drop 50 mg and am suicidally deopressed and I am dead serious.Hellish withdrawl.Wanted to kill myself hysterical crying.
    now went bk on hate the drugged feeling,so it will be also on the taper schedule.
    now heres the thing lyrica is basically gabapentin only stronger.and phizer was sued over gabapentin.it is not just me others have trouble getting off this too it is as bad as benzo withdrawl.The drug co wont tell u that.They want to sell more drugs and this one is for people with desperate pain,,,yes I can walk w/out pain but at what cost???my life?
    please dont take this it is evil and the worst drug I have ever been on.I would rather take morphine,benzos anything else but this.Itis the depression and suicidal thots that get me.I mean lyrica is now getting a black box warning like ad's.
    I am looking for something with less of a knarly side effect profile for the pain.still looking.You know I think 2 people actually committed suicide in the trials.
    Big Pharma.Bahh
    If you are 70 and will stay on the rest of your life okay but beware if u try to come offf of it.
    thanks for listening.
    kayla

  11. #11
    newyorkgal is offline Platinum Member
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    so what do you do if you have horrific foot neuropathy that makes you unable to even sleep at night. My husband has cancer and developed this. The pain got so bad, he said he was thinking of ending it and its not the kind of pain that can be touched by opiates. Doc gave him gabapentin, it worked somewhat, gave him a higher dose it was a charm. He is in the bedroom right now sleeping like a baby. So what do you do if this med is a terrible poison and the other alternative is wanting to just die from the discomfort?.

  12. #12
    randysherry is offline New Member
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    Cool Hmm 2010 no posts .. ill post.

    So its May 4th 2010 no one has posted in this thread for several months but its still a very interesting one so I thought >> share my experience so far "week 2" on Lyrica.

    Started taking Lyrica samples at 150mg 3x p day because my hands were tingling and falling asleep and making me crazy. Ive had muscle pain and nerve pain for years and ive never officially been diagnosed with fibro and now its looking almost 100% fibro because after taking my first dose and then a second dose at bedtime i woke up took my morning pills and within an hour i was in the best mood ive felt in 15 years my hands were not tingling and i felt young and great and no pain in my body it was weird i guess when your in pain every day you get used to it and now i just feel incredible, its not mania, its not mental seratonin syndrome etc my pain is gone but its there but i dont seem to care thats what i mean, and im not drowsy im energetic and i have been this way for almost 2 weeks now. My Dr ran out of samples and my insurance company decided to approve me i pay 25% so its $75.00 a month they pay $210.00 for me, very nice of Humana Medicare Plan, much appreciated. I have to get rid of a few things to fit it in my budget but its worth it so far and not in a drug addict way, im not dying for more or cant wait for my next fix of Lyrica its not like that so far. The only thing ive noticed now is that my hands are starting to tingle badly again not like before but more noticable.

    Ill finish by saying that so far "2 weeks" Lyrica has changed my life so much that I get out more, feel great, am more social and have not taken Naproxen which was killing my stomach.

    I will also say I am a California Medical Marijuana patient as well I smoke that instread of taking Percoset or Vicodin or Soma etc ... and have noticed that Lyrica enhances and prolongs the "Medicated Feeling" of Medical Cannabis.

    Ive also noticed my smoking less of Medical Cannabis since starting Lyrica i dont seem to want it because it will take my happy mood and make me drowsy. interesting...

    I will update this forum next time I notice a change ..or have something to share.

    To Good Health..

    Randy

  13. #13
    d00msay3r3 is offline New Member
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    Let me first give a few details of my situation for reference:
    I have been paralyzed from the belly button down for the last ten years after an atv accident left me with a broken t-9 vertebrae . I went to a "so called" pain specialist for the first 2 years and went through oodles of drugs for some kind of pain relief. I settled on Neurontin as the most effective and took 4800mg/day for almost 5 years. I had to come off the drug after the medicare drug plan went into effect and the insurance company only wanted to pay for 3600mg/day? I don't see how that is legal to this day but that is the system we have. I read an article on the web about Lyrica and suggested it to my doctor and he agreed to let me try it. The first week or two I couldn't sleep. I was so used to being in a zombie like state from the neurontin. I started with 150mg 4X/day and am still on that same dose 2 years later. I still like the Lyrica better, but after 10 years of non stop pain I'm looking for something better. Morphine and Oxy have no effect on the pain what so ever. I'm also confused how anyone could get addicted to this drug. It has no euphoric effect at all. I'm living minute by minute with pain, as it never goes away it's simply how bad it is at any given moment......
    I don't think anyone would want to live the next ten years with a headache and I find it crazy I'm expected to do something worse. I just can't believe there isn't a drug that will stop the pain for awhile. I've been to a specialist about a cord stimulator but with the 2-13" titanium rods, wire cage, and assorted clips and screws I was told it more than likely wouldn't work. Any suggestions?

  14. #14
    dalejrfan71 is offline Member
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    I want to add my 2 cents here, I was prescribed Lyrica for nerve pain that goes from my lumbar region of my spine down my right hip to my right knee. I was taking it for approximately 3 months at 150mg 2 x day. It started to make me puke my guts out. I would puke 2 to 3 times a day, Lyrica is an evil drug and should be banned. I switched to St. John's Wort for my nerve pain. It works great for my nerve pain and no side effects what so ever. Anyone with bad nerve pain, read up on St. John's Wort, it's been used for centuries for mild depression and nerve pain.
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  15. #15
    d00msay3r3 is offline New Member
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    Quote Originally Posted by dalejrfan71 View Post
    I switched to St. John's Wort for my nerve pain. It works great for my nerve pain and no side effects what so ever. Anyone with bad nerve pain, read up on St. John's Wort, it's been used for centuries for mild depression and nerve pain.
    How much do you take?

  16. #16
    dalejrfan71 is offline Member
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    The St. John's Wort? I take 1 capsule 3 times a day. Each capsule is 300mg. My doctor knows that I'm taking St. John's Wort for nerve pain. Thankfully he's the type of doctor that believes in herbal medications.
    If you want to live life on your own terms,
    You got to be willing to crash and burn

  17. #17
    d00msay3r3 is offline New Member
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    Yes, the St. Johns wort. I was reading up on it after your post. Most of what I saw was 900mg/day which is what you confirmed. I'm going to give it a spin myself and see if it would help me.

  18. #18
    gembey is offline New Member
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    Default ben on it 2 years - wonder drug

    i went on it after morrphine,qnd once i got use to it found it to be a clever drug, with side effects that are ok to live wih. i take 225mg twice daily. the higher dose can be counterorductive - i tries 300mg twice dail and it doesn't help. /when i toldthe pain condultant henwasn't surpised. good luck with it it is abrilliant nerve pain blocker,



    Quote Originally Posted by Karlin View Post
    Lyrica pregabalin caps are now being distributed, I got a free sample from my doc.
    I do feel like I am an unpaid volunteer for experimental drug trials, so I am holding off on it.

    It is for my neurological pains, which is actually only part of my "personal pain catalogue". I doubt if my doc knows this though
    [ he allways takes a phone call during our meetings].

    I also doubt if it is safe. I suppose we can assume it is not safe, and that my liver will be damaged from it - they all do that.

    What I really want is info from people who have taken it allready. And info on side effects, deaths, suicides, etc. I cannot find anything, it appears to be the safest drug ever made [but its not, obviously, being a pharmaceutical made from coal tars and with lactose in the pills!!].

    I trust nature's drugs - opiates cannabis etc - and herbs, but not pharmaceuticals.

    After the Vioxx "lies and life-saving information" being withheld, it is safe to assume the pharma-giants don't have MY best interests in mind, and until there is full disclosure about all the pharma-giant products, I really don't want to take any of their drugs, esp not the new ones.

    So, did my doc put me in mortal danger giving me these Pregablin pills? - anyone with info on the dangers of Pregabalin [Lyrica], I would sure appreciate it.



    "Remember: they CREATE the Problems, and then Offer the Solutions"

  19. #19
    d00msay3r3 is offline New Member
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    I started by taking it 3x/day and found that after 6 hours it faded fast. I was miserable trying to wait for the next dose. I had 150's and 50's to make my 200 that I was taking 3x/day. I just started taking the 150 every six hours and for the last dose of the day I took the 3 extra 50's. It works sooooo much better. I've read Pfizer is the one that actually recommends the 3x/day dosage. I have to say that just doesn't work for me. Even though I'm taking the same amount daily, it's like a whole different drug.
    I'm just at the point where it isn't enough. I'd like to find a way to get a few minutes a day even where I am pain free. I'm going to try the st johns wort with my Lyrica, and if that doesn't work I'm going back to my pain doc and asking to try some Topamax with my Lyrica.

  20. #20
    MeredithR is offline New Member
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    Exclamation I am a recovering Addict and I took Lyrica for 1 week. My story!

    I am a recovering addict and have been clean and sober for almost 4 years now. I use to abuse prescription drugs. I have a tremor and nerve damage in my neck and back and was recently prescribed Lyrica. My doctor knows I am an addict and never gives me anything that threatens my recovery. He sent me to a new Ortho guy and even though I told them of my past they still gave me the Lyrica.

    I remember the first day I took it I felt great. I thought is was bc I wasn't shaking as bad and my pain was greatly reduced. But I was very wrong. I was feeling a euphoric feeling all day. Waking up early with energy and going to bed very tired. Sleeping well and all the while having no pain. It felt to good to be true. I went to my normal monday NA meeting and mentioned to a frien of mine that is a nurse what was going on. She gave me some scary info that landed me back at the doctor today and very scared. I didn't relapse thank god bc I took it as prescribed and never took more than I was supposed too. I only took it for 7 days and It was a huge mistake. I also gained 5 pounds in the one week I took it.

    Today was my first day off of it and I have been miserable. I am heavy feeling. Feel very crazy and uneasy. My brain hurts and is hazy. I have no short term memory. I am loosing things left and right and have even had to stop 3 times while writing this to think about what I am writing. It's like my brain doesn't work anymore. This was the worst medicine I have ever taken and if anyone reading this is in Recovery or knows someone that is please do not take this medicine. It is a scary drug!!! I am praying that I live through the next few days. There is no titration for me bc I only took it for 7 days. But after 7 days it's this bad!!! How is this drug even on the market???

  21. #21
    d00msay3r3 is offline New Member
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    I think their are two types of people. Ones with addictive personality, and ones not. I've heard a lot of stories of people becoming addicted to almost all the pain meds I've used or wanted to use over the last 10 years. I don't drink, don't smoke, and don't drink coffee. I've been taking 4-6 Darvocet daily for a little over 10 years now and could stop them at this very moment without a problem. I've asked for something stronger like Vicodin. I took it for 10 days after having my wisdom teeth pulled and they were the best pain days I've had since my accident. My doctors won't give me anything stronger in fear of addiction. They tell me I'm too young and will need that med for too long to not become addicted. I think that should be my decision whether to hurt and me miserable or to be addicted and feel less pain. I know it doesn't sound like much of a decision but when you feel like your standing in the middle of a campfire every waking minute for 10+ years then I will let you decide what is best for me (talking to doctors).
    One thing I've learned is everyone's body chemical makeup is different and thus will have a different effect on each individual. You won't know unless you try.
    pokey63 likes this.

  22. #22
    pokey63 is offline New Member
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    I've been on Lyrica for almost a month. I take it for nerve pain and anxiety. I don't need much, 50 2x a day. I did have blurry vision and some feeling of manic and panic. I would not imagine wanting to take more. I have not gained any weight in this month, but since I have type 1 diabetes, I hardly eat any grains at all. oats are OK. Mostly green veg , fruit and small amounts of dairy...Anyway, I hope that it keeps doing as it should. By the 2nd week, I had a lift in my depression and less need for the Klonopin I take as well. I guess that I've been lucky so far. I've had agoraphobia of different strengths for years, and it has been easier for me to take an unplanned trip. I was in my house for 5 years, only leaving to go with my husband to do errands, and only to places in which I am familiar. I once had a panic attack just smelling mcdonalds, but I also could not leave the car. so I take an ssri, Klonopin, and Lyrica. I had been taking Gabapentin for several years. It made it hard for me to keep my balance ( I also have cerebral palsy) made me tired over time, and ultimately quit helping me with my "hard to treat" anxiety and depression.

  23. #23
    Mushie4Ever is offline New Member
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    I just joined the group, and I saw your post. I was put on Lyrica for periferal neuropathy, but after so many months taking it, it still didn't help, so my doctor and I agreed I could go off of it. You have to ben weaned off of this drug, which I was, but I had the WORST panic and anxiety attacks ever from it when I was weaned off. I will never endorse this drug, and I for sure won't ever try it again.

  24. #24
    h8_thepain is offline New Member
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    I'M new here just to reply on Lyrica. It was Rx for sciatica issues. Have tried all NSAIDs with little help and tore my gut. I'm actually typing this while on lyrica (its not easy) I have the "high" side effects and something else, when I've taken it an hour or 2 later I crave another, then later I crave another. The days I don't take it, I seem ok, no cravings. From what I've read there are too many neg side-effects vs benefits.
    and to make it worse it doesn't help the parasthesia (spelling?) ]

    ANYONE else experience these cravings while on Lyrica?? let me know i'm not alone in this

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