Entyvio User Reviews & Ratings (Page 5)

• Jason
• Taken for 2 to 5 years
• September 19, 2023

For Ulcerative Colitis "I've had UC for 25+ years, most of my adult life, hospitalized once. I've taken ASACOL for many years and tried several other oral medications that I thought were working okay, as I'd only have a few flare-ups per year. Most wouldn't be acute long enough for me to request steroids to combat the flare-up. After consultation with a new GI doctor, I followed his recommendation to try a biologic, and Entyvio was the choice. It has been about 3 years now that I haven't had a single flare-up, and I've never felt better! Entyvio has changed my life with zero side effects. I am very satisfied with the medication. Thank you!"

• Anonymous
• Taken for 5 to 10 years
• August 17, 2023

For Ulcerative Colitis "Prior to receiving Entyvio, several other medications, including at least 3 other biologics, stopped working within a few months. Entyvio got my ulcerative colitis under control so that I almost felt normal again. However, I received Entyvio infusion every 6 weeks rather than the standard 8 weeks. Testing showed my body was depleted of Entyvio after 6 weeks. The 6-week regimen brought the condition totally under control. My doctor's office was calling me their poster child for excellent Entyvio control. The above was deliberately written in the past tense because due to some unfortunate circumstances I did not receive Entyvio for over 7 months. I am now back at the loading position to get back on Entyvio. I had my zero-week infusion two days ago, appointments for week 2 and week 6 infusions, then return to the every 6-week regimen."

• Jonat...
• Taken for 1 to 2 years
• May 19, 2023

For Crohn's Disease, Maintenance "Post ileocolectomy surgery, Entyvio was prescribed for maintenance. The initial 8-week dosage was increased to every 4 weeks after blood work revealed insufficient concentration. A colonoscopy after 6 months revealed no polyps, no inflammation, and no ulcerations. I suffered no side effects. Note: Entyvio was prescribed after 5 years on Humira when blood work revealed the TNF blocker was no longer effective. Since Entyvio is administered by infusion at the hospital, it is covered by Medicare Part B, not Part D, and the copay is covered by a Medigap policy (AARP UNITED HEALTH CARE)."

• dangit
• Taken for 1 to 6 months
• June 3, 2023

For Ulcerative Colitis "Started on Entyvio in March 2023. Have had no real side effects, just a little tired the day after infusion and a slight headache the day of. I am in the third quarter of the first 8-week break. Have had some issues during this period with soreness inside my lower abdomen, not sure if it is related. I usually have well-formed stools and less frequent bowel movements, although I have had some diarrhea when I experienced soreness in my abdomen."

• formi...
• July 25, 2021

For Crohn's Disease "Diagnosed with Crohn's and started Entyvio a year and a half ago. My inflammation markers have been trending down this whole time and I am now in remission. This drug works very well for controlling my Crohn's. I did not have any remarkable or lasting side effects from Entyvio until recently. After my 16th infusion I started getting a rash around my eyes, itchy eye lids, and flaking skin. The dry skin patches have now spread to around my ears and mouth. If this side effect can be managed, I will have no issue with this drug."

• Farme...
• Taken for 6 months to 1 year
• August 17, 2021

For Crohn's Disease "Been on this for just under a year now and seems to be doing the trick. Cimzia was no longer working and that was after remicade and humira. Running out of options it seems but luckily this drug seems to be working well."

• Anonymous
• Taken for 1 to 6 months
• October 13, 2021

For Ulcerative Colitis "I had really thick hair, I started Entyvio, and it made my hair shed so much that I lost probably 30% of my hair. I wasn't too concerned about it at first because I used to have to get my hair thinned because I had so much hair. I stopped Entyvio 3 months ago and my hair is still thinner than it used to be and I am still shedding probably more than the average person but not nearly as bad as when I was on it. I could put my hands through my hair and see so much falling out. Entyvio stays in your system for at least a month after your last dose so I'm hoping my hair will become healthier again. I'm on Humira now so hopefully it doesn't cause it too but it's gotten MUCH BETTER being on Humira. Also Entyvio didn't work for me for UC, it only has a 40% success rate. I was on it for 6 months."

• Anonymous
• Taken for 1 to 6 months
• October 18, 2021

For Ulcerative Colitis "I have received my first three infusions and my hair is falling out so badly. I have lost at least half my hair. I use to have think beautiful curls. I was so sick before the Entyvio. It’s working but after the third infusion I experienced joint pain that made it difficult to walk, fatigue, aches that felt like the flu was setting in. Symptoms continued for two solid weeks. I just wish my hair would stop falling out. I wake up in the middle of the night thinking about it. I’m 47 and devastated that I am on my way to being bald."

• Mary
• Taken for 1 to 2 years
• September 16, 2022

For Crohn's Disease "My son started Remicade and did not work , then we started Entyvio and has been on Entyvio for over a year, he had an ileostomy surgery unfortunately his colon had many polyps, this medicine works slow, real slow. It has controlled his symptoms. The side effects on him loss of hair, stuffy nose, his hands shake after the infusion for a few days, joint pains, then they go away. Compared to Stelara which I’m terrified to use based on the horrible side effects depression, mental issues, etc I prefer to have this one, I know some people don’t react to it do good luck ! This illness is uncontrollable!!! Hate it ."

• Patient
• Taken for 2 to 5 years
• May 17, 2022

For Ulcerative Colitis "Entyvio has worked very well for me with no noticeable side effects. I was in bad shape when I started on this med. I have taken infusions every 8 weeks for about 2.5 years and I am very grateful for this medication."

• Rose
• May 2, 2021

For Crohn's Disease "Entyvio did help me took almost 2 years but now they won't help with insurance copay, and I cannot take it any more it is way to expensive, I am really so angry this has happened, I never thought I could not get the meds I need"

• Deb
• Taken for 1 to 6 months
• September 25, 2021

For Ulcerative Colitis "Had serum sickness on Remicaide due to extended gap in treatment, after failed treatment to conventional therapy. Rash and fever to Humira. I did very well on SYMPHONI. But....insurance refused to pay for the monthly injections (Medicare/supplement) 3 doses in. So I had fatigue, hot flashes, minimal joint pain. Good results so far. I don't like going to office for infusions when self injection was going well. Company that produces this drug refused financial assistance. I retired from nursing after 46y in hospital setting. X"

• Dsr
• Taken for 1 to 2 years
• August 25, 2023

"Nasal congestion, two months of sinusitis, chronic cough, frequent sore throat with fatigue. Tendency to upper respiratory infections. On the positive side, reduced needed dose of budesonide. Note that I am an elderly patient over 80."

• Kevin...
• Taken for 2 to 5 years
• March 15, 2022

For Crohn's Disease "I have been receiving Entyvio infusions for about three years for a Crohn's diagnosis of 40 plus years. I generally feel good but am plagued by frequent bowel movements - two to five time per day. Keeping a normal weight for my height is a challenge as it is a daily struggle to eat enough to replace nutrients lost during my daily purging. My current colonoscopies show that inflammation in my small intestine is 'stable' meaning it hasn't improved or gotten worse. When I first went on Entyvio I was told my Crohn's was in remission. Now I'm questioning whether Entyvio has run its course and time to try another treatment. I would rate the effectiveness of Entyvio at about a 4. If the number of bowel movements were to improve I would rate it close to and 8 or 9."

• Anonymous
• Taken for 2 to 5 years
• March 24, 2022

For Crohn's Disease "I’ve had Crohn’s since 1968. I’ve been on asulfadine, prednisone, Bentyl, amitripaline, parnate, remicade. Prednisone worked but the side effects impacted my joints. Second surgery in 2006. Started Imuran. It worked ok but not great. At my age, the doc said lymphoma potential was becoming a possibility. So I started Entyvio. It’s been over two years. I have my life with no issues except getting the infusion every 8 weeks. No side effects. Colonoscopy after 2 years showed over 90% reduction in inflammation. Biggest issue is losing 2 feet at the end of the small intestine resulted in needing B-12, D, E, K, and iron. BMS down to two a day unless I have certain spices or fatty meat, or anything deep fried. No medicine works for everyone, but this one has worked for me."

• Tracy...
• Taken for 1 to 2 years
• September 9, 2023

"Entyvio has changed my life, so please understand that any of MY side effects or experiences are 100% worth it for me. I have had this disease my whole life. I was finally diagnosed at 25. I’ve had on and off bouts of active, severe disease and long stretches of remission. In 2021 I had the absolute worse flair of disease in my life. I was severely anemic, I could not function due to weakness and diarrhea, pain. I’m 55 and work hard to not let me health rule me life but I felt like I was dying. I didn’t want to start a med like Entyvio because I figured I would need to stay on it forever if I did. I had some long conversations and decided it was the best option. I hate the steroids and I was really too sick to decline the new meds. Within 3 infusions I was so much better. I have continued to improve. My side effects are this- flushed skin and rash 1-2 hours after my appointment, I take Benadryl. Headache body pain, gas, bloating, exhaustion for 48 hr. Entirety worth it."

• Crohn...
• Taken for 5 to 10 years
• March 19, 2024

For Crohn's Disease "This drug has been the best medicine for Crohn's that I’ve tried. I’ve had serious side effects from other immunosuppressant drugs, but not Entyvio since it specifically targets the gut. I have mild fatigue after my infusion, which only started 8 years after I first got on it. It’s been great and I hope it continues to work wonders! In my case, if a drug works, it works at 100%, and if it doesn’t, it’s at 0%, so my Crohn’s symptoms have either been extremely severe (constant hospitalizations/surgeries) or nonexistent. My symptoms are nonexistent on Entyvio. But then again, everybody is different and it may have no effect on some people."

• Peej
• Taken for 2 to 5 years
• March 10, 2024

"The infusions have helped my pouchitis and cuffitis tremendously. I'm finally down from 20+ bowel movements daily to about 10 and under, depending on the day. I should qualify this though, as I do have to take Imodium daily, taking a minimum of 2 in the am and 2 in the pm, with additional as needed throughout the day. I have these infusions every 8 weeks, and depending on the speed of my clinic's pharmacy, I'm usually in and out in about 2 hours. The downside is that I have developed significant side effects from Entyvio. I now have eczema, which is very frustrating and difficult to treat. I also have daily headaches, and they have never been an issue for me before, so I don't appreciate having to take Tylenol every day. The third frustrating side effect is increased gas. You can really hear the movement in what's left of my small bowel, and it can be very embarrassing when I'm out in public."

• Don
• Taken for 1 to 6 months
• September 27, 2023

For Crohn's Disease "I started Entyvio some 26 weeks ago and I've experienced relief. I noticed diminishing symptoms from Crohn's disease around week 3. I did experience some discomfort prior to the second infusion at 8 weeks as well as just prior to the third. My gastroenterologist has now scheduled the infusion every 6 weeks and I look forward to full remission."

• Kara
• Taken for 6 months to 1 year
• August 20, 2023

For Ulcerative Colitis "I took Renflexis for 7 months but had a widespread and itchy rash that started in month 3 and just got worse. I was switched to Entyvio and have been taking it for 8 months. I'm not a fan of infusions, but at least this one only takes half an hour. I haven't had any more rash problems. I still have bleeding occasionally but no bad cramping. I got a strange, bad headache after the first few doses. It was in the back of my head and ran down my neck, shoulders, and arms. Now the only side effect I experience is tiredness. It's the worst right after the infusion. I know to go straight home and rest for the rest of the day. I'm okay with taking Entyvio for now. Too bad it doesn't help my chronic, severe eczema. It would be nice to have some biologics approved by insurance companies that do double duty for those of us who have more than one autoimmune issue. I do appreciate the company's financial assistance program."

• hot...
• Taken for 2 to 5 years
• March 7, 2024

For Ulcerative Colitis "I started Entyvio approximately 3 years ago. The first year was okay, not so much pain. From the start, I experienced not going to the bathroom enough but felt it was better than 16 times a day. A year or two after starting Entyvio, the headaches started and are worse and worse as time goes on. I am currently experiencing sore throats, knee and joint pain, constant and severe back, side, and stomach pain."

• Sonia
• Taken for 1 to 2 years
• May 27, 2023

"After approximately one year on this drug with only nasal congestion, I have now had four consecutive months of upper respiratory infections with heavy coughing. Entyvio has helped me to reduce my Budesonide to about an average of 2 mg per day."

• snowman
• Taken for 6 months to 1 year
• March 12, 2024

For Ulcerative Colitis "I tried two other meds before my doctors found this. They were not good experiences. I've had good infusions with Entyvio. Years ago, I did prednisone and Sulfasalazine. I hated it. What to do? Just hang in there. The Entyvio is working great."

• Jes
• Taken for 6 months to 1 year
• October 23, 2019

For Ulcerative Colitis "30 years of ulcerative colitis. After just 2 months I was symptom free and last colonoscopy I was told my colon was fine. Gave me my life back."

• Anonymous
• Taken for 2 to 5 years
• December 30, 2016

For Ulcerative Colitis "Entyvio has been miraculous. Very close to getting my colon taken out, we decided to try Entyvio. After using Remicade, Humira and many other options, it's the only thing that's worked for me."