Entyvio User Reviews & Ratings (Page 4)

• Carol
• Taken for 1 to 6 months
• November 8, 2023

For Crohn's Disease "So far, so good. I am beginning to notice some good changes in my bowels and overall health. This is also the first time I am using this medicine. The Entyvio is given by IV on a rotating basis, sometimes every other week or every month. The Entyvio seems to be working so far, so I am grateful for my doctors recommending Entyvio. I don't want another surgery. I have had a total of 3 and 3/4 feet removed since 1967. I am so done with surgery. LOL! I do know that the Entyvio does make me feel much better. I actually feel much better after the IV of Entyvio. I've only had 4 IVs so far and many more dates ahead. I am looking forward to these. I feel that the additional IVs are going to put this thing in my body to rest, for the rest of my life! I have had no side effects from Entyvio. My body actually feels so much better after the medicine is fully in my body. My body actually is starting to respond to the Entyvio. I can't say this enough, 'Entyvio' is working!"

• going...
• Taken for 2 to 5 years
• September 6, 2022

For Ulcerative Colitis "I have been on entyvio for 4 year. Pancolitis. It helped right away. I have only had a day in the whole 4 years where I passed blood. This 4th year I def. have worse sinus problems, joint pain, fuzzy head feeling but manageable. I am kind of more tired this last year on it but I'm 42 going on 43 so maybe age related. on 8 weeks still. It is a good drug. Colon cancer runs in my family so I have to be vigilant. Overall it works for me."

• Donna...
• Taken for 2 to 5 years
• November 9, 2023

For Ulcerative Colitis "Entyvio has made my life considerably better. Other medications only minimally helped with my condition. My symptoms were so bad, I was not able to work any longer. I also wasn't able to spend time with family & friends. Now I'm able to again. I do experience side effects each time I have my infusion (headaches, fever, nausea & cramping) for the first few days after my infusion; but the 4-5 weeks after are great!"

• Peggy...
• Taken for 6 months to 1 year
• June 22, 2023

For Ulcerative Colitis "My doctor. Insisted on me taking Entyvio infusions for my colitis. I've been taking infusions for a year now and now I regret ever taking this drug. It started off with my nose being stuffed up and runny like I had a cold. Then pain started in all my muscles and joints now I can hardly move. I'm almost disabled with pain, I used to walk every day, Now I can't because of too much pain. Never again, it's not worth it."

• Scoocha
• June 26, 2017

For Crohn's Disease "Two years on it. Now having liver issues. Colon on recent colonoscopy was clear. Endoscopy showed esophageal varicies stage 1. Fiberscore Labs showed stage 4 fibrosis. Fiberscan the same. Fatigue, general and gut pain continues. Weight is stable but can't gain. Energy low. May need a med break."

• Joey
• March 13, 2018

For Ulcerative Colitis "I have tried almost every medicine there is even entyvio but one medicine that I guarantee will help you is taking suboxone. Please take my advice when you have a whole film of suboxone cut them in 4 slices take just a quarter. I guarantee u that the diarrhea, the pains and everything else will go away. Suboxone for Ulcerative colitis has been a miracle drug for me and has helped me be on remission for about 4 years. Now I had it when I was 23 I took suboxone at the age of 24 and I have been amazed. Subozone is used to treat people with addiction but it can be a miracle drug to other sickness. Please take my advice and at least give it a try I promise u it will work better then any drug. The doctors have no idea what works because they are not rocket scientist and they don't have what we have. We on the other hand know what works n what doesn't"

• Sam
• Taken for 1 to 6 months
• December 29, 2019

For Ulcerative Colitis "3rd infusion next week of Entyvio seems to be helping the Ulcerative colitis (UC) but the attendant proctitis is very much the same (urgency, frequency). No major side symptoms but for serious fatigue. Why was I put on Entyvio before trying another drug?"

• Andrew
• Taken for 1 to 2 years
• July 8, 2021

For Ulcerative Colitis "Was diagnosed with Ulcerative Colitis (UC) 3 years ago. Put off entyvio again and again with my doctor but he kept pushing it and I finally gave in after a second hospitalization. I honestly can’t say if it helped my UC much at all. I lasted a little over a year on the infusions but wish I would have stopped it sooner. Tons of fatigue the day of/after infusions that seemed to steadily build with time into constant extreme fatigue. Hair loss (that hasn’t returned), general autonomic/CNS symptoms - migraines, numbness, worsening insomnia, and aching all over my body. I’d lie in bed at night and feel like my brain was on fire. I’ve been off of it a year and although my doc will deny lasting symptoms from the entyvio, a lot of the neurological symptoms have remained. Wish I hadn’t given in to my doc and stayed off of it by any means necessary. I was supposed to start medical school and likely won’t be able to now. Would highly advise against using it."

• Mary
• Taken for 1 to 2 years
• May 21, 2023

For Ulcerative Colitis "Took Entyvio for 16 months after having a bad flare-up following covid vax. It took 4 months to induce remission but finally did. I've made the choice to stop the treatments now as I have been non-stop sick for the past 6 months with viral infections and bacterial infections. Developed shingles, numerous colds, flu, gastro bugs, and every little thing that my toddler brings home from creche, only I stay sick for weeks while he bounces back. The slightest cut or graze becomes infected. Really feel like my immune system has been hammered. For anyone who suffers the awful joint pain, I found shiatsu works amazingly. I would recommend taking the drug for a limited time to induce remission. Try out holistic therapies, psychotherapy, and change your diet and then get off this drug. It works, but I'd be worried about long-term effects."

• Anonymous
• Taken for 1 to 6 months
• June 18, 2022

For Ulcerative Colitis "Been on Entyvio since December 2021 and have mild to moderate UC, started off with two IV infusions 2 weeks apart then was administering the Entyvio injections myself. I had 6 in total, the first two Infusions were fine and first two self Injections also fine, but started to get injection site reactions where my leg would swell up and become extremely itchy for 2 to 3 days. So my Consultant put my back to IV infusion. My UC cleared up great but now I have started to get these really weird side effects, severe joint and muscle pain, when I wake up my body is so heavy and sore. I feel like super groggy with sticky eyes every morning, can't walk on my left foot now due to tendon pain, also have constant dizziness and balance problems everyday, I'm really freaked out by this and having numerous tests done. Stopping the infusions now going in for review. Its not worth these side effects and it affects my mental health, so be cautious, wish I had of listened to my partner saying to avoid this treatment."

• Bob
• Taken for less than 1 month
• November 2, 2020

For Ulcerative Colitis "I’ve had ulcerative colitis for 16 years I just got my first dose of Intivio and 3 days later I had 2 seizures and Dr is denied that Intivio was the reason. Now my brain is foggy and I don’t feel normal. I will now have to go back to mesalamine Beware and ask your Dr a lot of questions as this drug is really unproven. I know a person that had seizures after first dose of Humira and Dr also denied it had anything to do with Humira These are similar compounds. Don’t be an experiment"

• Theo
• October 20, 2016

For Crohn's Disease "Started Entyvio in the middle of a flare up. I've had the most side effects from this one as compared to all past treatments. Frequent moderate-severe sinus headaches. Flushing, hot feeling. Took 9 months before we saw improvement but I was also on budesonide which might have been the cause of the improvement. Unfortunately it just doesn't seem worth it. I've heard better results for UC patients."

• Mkm
• Taken for 1 to 6 months
• January 14, 2018

For Ulcerative Colitis "Entyvio has worked wonders for me the entire time I’ve been taking it— I finally feel like my ulcerative colitis is under control and I can finally breathe again for the first time in years without the anxiety or worry of my condition weighing me down. The infusion itself is the most inconvenient part, but the affects of the drug of severe colitis is definitely worth the inconvenience. I love it"

• Linds...
• February 8, 2018

For Crohn's Disease "Just had second treatment. My treatments have been every 2 weeks. Crohns is still the same no pain relief at all. 1 hour after infusion nausea starts, diarrhea, joint and muscle pain, stomach pain, hot flashes, tired but trouble sleeping. Not sure if this is right for me"

• Chris-T
• October 20, 2021

For Crohn's Disease "I have been on Entivyo for 1 year. I get horrible headaches for about a week after infusion. I have had Crohn's for 35 years, been on every medication and I don't know if I should continue on it. I've had 4 bowel surgeries and my poor body is still in pain and sick everyday. I fight through and try to stay positive but the headaches are really tough. Anyone else have headaches?"

• Fimk
• Taken for 6 months to 1 year
• January 10, 2021

For Crohn's Disease "I am 67, male, 40 plus years of Crohn's Disease (CD). Several surgeries with only 5 feet of intestines remaining. I have been taking Entyvio for about a year now. It has worked to greatly slow the frequency and urgency of my diarrhea. However the joint pain it caused in me has me debating whether it is worth it. I have never had joint pain before and now I have trouble turning a door knob!"

• jan
• Taken for 6 months to 1 year
• March 5, 2023

For Ulcerative Colitis "I was having bloody diarrhea daily and anything I ate sent me running for the bathroom. Entyvio has completely stopped my diarrhea. I do have some back pain but I am also 50 years old. I eat healthily (no gluten, limit dairy, and limit red meat) and I take daily walks even if my back hurts. I feel like no matter what there will be side effects you just have to pick what you can live with. I will stay with Entyvio."

• KMACK
• December 29, 2017

For Ulcerative Colitis "I was on the clinical trial scheduled for 30 injections, after the second I no longer had symptoms. I was given a third injection per the trial policy. I was then told I would no longer get the injections since it worked for me. I've been in remission since my last injection. I am still taking mesalamine. It has been several months and no symptoms . Thank God."

• JMV
• Taken for 1 to 6 months
• January 5, 2021

For Crohn's Disease "Entyvio wears off a week or two before next infusion. I begin to get flare symptoms. I’m starting a six week infusion schedule. Otherwise after being on every conceivable biological, antibiotic, 5-ASA’,steroids and TNF blockers with the exception of stelara - entivio seems to work well. Unfortunately unlike Stelara, entivio only works on my gut and not other complications from my crohns."

• Miss...
• March 26, 2021

For Crohn's Disease "Extreme fatigue, pain in arms and legs, headaches, constipation. Full time job trying to manage these symptoms, getting worse after 3 years of Entivyo. Crohns is under control, but no energy to live life. Doctor says this is the best choice I have. I’m alive, but not living. I may stop Entivyo and take my chances. Tried supplements, no help."

• Shannon
• Taken for 1 to 6 months
• April 26, 2023

For Crohn's Disease "Entyvio has not improved my symptoms and is a really harsh medication. I am having serious side effects including high blood pressure, blurred vision, back and throat pain, confusion and inability to concentrate, rash on my face, fatigue, and several others. I would not recommend this drug to anyone. I am meeting with my doctor tomorrow to discuss alternative treatment."

• Emano
• Taken for 1 to 6 months
• November 15, 2020

For Crohn's Disease "I started Entyvio as my first biologic ever for Crohn's Disease. I was TERRIFIED of reactions and side effects. It turned out to be great. I get a headache and tired the day of the infusion and that’s it for me! After my third dose (they say the magic dose) I noticed a vast improvement in my Crohns symptoms! It also drastically decreased my CRP levels in a matter of weeks ! Unfortunately, 14 days and 9 hours after my third dose, my lips started to swell. They are thinking it’s a delayed reaction and taking me off the drug. A chance that the swelling is just an extra-intestinal manifestation of my Crohns (which entyvio does not treat because it’s gut specific) but they don’t want to risk it. I also developed antibodies (apparently no one does!) but they weren’t at a level that I would’ve needed to stop but for the lip swelling. I’m so sad to have to stop entyvio :( it has been great and I’m scared to start something else!"

• Carla
• Taken for 1 to 6 months
• June 18, 2022

For Ulcerative Colitis "DO NOT TAKE ENTYVIO!!! I would rather be bleeding from my butt right now than suffer as I have been for the last 3 weeks. I had my first infusion 4 weeks ago and I'm regretting it big time. I have the such a bad immunity . I can't even fight off a common cold. This dirty thing has caused me shingles and today I've now got chicken pox, apparently a common side effect when you look it up. My hair has gone brittle and falling out I'm now wearing a wig I got off amazon. My c section scar has become inflamed and sore. I feel so tired and all I want to do is sleep. I was better off having my flare ups. Also they don't tell you this but its on line, Entyvio can wake up the HPV virus in your body if you have it and you can get cervical cancer from it along with about 6 other ones. Stop taking it if you are on it. This is gonna kill us off. The dirty thing!"

• carol
• Taken for less than 1 month
• November 7, 2023

For Ulcerative Colitis "So far, so good. I've only had three treatments. This is the third drug in this category I have been given. Side effects so far are tiredness and a mild headache for about a week post-infusion. The drug is effective in controlling symptoms of ulcerative colitis."

• MimiSan
• Taken for 1 to 2 years
• October 30, 2023

For Ulcerative Colitis "I was on Entyvio for almost 2 years. The truth is, it was the only treatment that worked for me and put a stop to my symptoms. However, the joint pain was unbearable. Over the months, I began to have severe allergic reactions. I felt so tired after every IV of Entyvio that I couldn't stand up from my bed. I also started to feel facial paralysis and other severe pain, and I had to give it up. It's effective, but you have to decide how long to endure because the side effects are very strong."