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Ustekinumab for Crohn's Disease User Reviews (Page 3)

Brand names: Stelara, Wezlana, Selarsdi

Ustekinumab has an average rating of 6.4 out of 10 from a total of 64 reviews for the treatment of Crohn's Disease. 47% of reviewers reported a positive experience, while 23% reported a negative experience.

Reviews for Ustekinumab

  • Gary...
  • January 19, 2024

Stelara (ustekinumab) "I have been on Stelara for Crohn's for 6 years. It has done a great job for Crohn's, but now I have major skin problems on my hand and really bad on my face, neck, and eyelids. I had the same problem with Remicade on my hand and legs."

7 / 10
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  • Jane
  • Taken for 1 to 2 years
  • March 29, 2018

Stelara (ustekinumab) "Have been on Stelera one year and it has worked great. No more Crohns symptoms. Humira did nothing for me"

10 / 10
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47 Report
  • kate
  • Taken for less than 1 month
  • May 23, 2019

Stelara (ustekinumab) "I'm 2 weeks post IV of Stelara. They told me it might make me tied and the first week I was exhausted beyond belief. The 2nd week I'm not as tired and having more and more normal bowel movements."

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35 Report

Frequently asked questions

  • Elisa
  • Taken for 6 months to 1 year
  • October 13, 2019

Stelara (ustekinumab) "Stelara put my Crohn's into remission within a couple doses. However, I developed horrible depression and had to stop. No other side effects."

5 / 10
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26 Report
  • Ollie
  • Taken for 1 to 6 months
  • July 29, 2019

Stelara (ustekinumab) "I have had one injection of stelara and after 8 weeks no improvement as yet"

3 / 10
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20 Report

Are you taking this medicine?

  • Peter
  • Taken for less than 1 month
  • August 5, 2020

Stelara (ustekinumab) "I got my first infusion of stelara a month ago. I’m starting to notice a slight difference in how I feel. No side effects yet. I will post another update in a few months."

8 / 10
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16 Report
  • Erik
  • Taken for 1 to 2 years
  • October 11, 2021

Stelara (ustekinumab) "Did not help me so much I actually felt better being off of it."

1 / 10
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8 Report

More FAQ

  • Zot
  • Taken for 1 to 6 months
  • December 18, 2020

Stelara (ustekinumab) "I want to give Stelara -5 but I can’t. No effect after 18 weeks.. Avoid this expensive drug."

1 / 10
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8 Report
  • Jethrox
  • Taken for 1 to 6 months
  • June 2, 2021

Stelara (ustekinumab) "Stelara has controlled my UC very effectively, however, my mobility has been affected as I have aching joints and stiff muscles that is particularly bad after I’ve been sitting or driving."

6 / 10
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7 Report
  • Famter
  • Taken for 1 to 6 months
  • November 14, 2020

Stelara (ustekinumab) "Well, used Stelara without any adverse effects, but not effective. Took about 4 months for doctors to realize Stelara is not working very well."

1 / 10
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7 Report
  • Ara
  • Taken for less than 1 month
  • September 1, 2020

Stelara (ustekinumab) "I'm at week 3 for Stelara for my crohn's. I have only had initial IV. No side effects, but my crohn's is worse. No symptom relief till now. I hope that it will work after today.."

2 / 10
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  • Coolio
  • Taken for 1 to 6 months
  • October 1, 2020

Stelara (ustekinumab) "Not responding to Stelara after 2 months, not recommended."

1 / 10
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7 Report
  • Peter
  • Taken for 1 to 2 years
  • April 1, 2022

Stelara (ustekinumab) "I’ve been taking Stelara for 1 1/2 years now for Crohn’s. I haven’t gotten worse but haven’t gotten better either. It also makes me super tired. That could be the Crohns too."

6 / 10
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4 Report
  • Zeb
  • Taken for 1 to 6 months
  • September 14, 2020

Stelara (ustekinumab) "I'm at week 5 after first dose. It’s still not working.. This drug makes you crazy after waiting a lot of weeks.."

1 / 10
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5 Report
  • Anonymous
  • Taken for 5 to 10 years
  • June 29, 2023

Stelara (ustekinumab) "For a number of years, it did help with the cramping and the urgency to go to the bathroom. However, in the past 8 to 10 months, the symptoms have returned."

5 / 10
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  • Cluto
  • Taken for 6 months to 1 year
  • September 16, 2020

"This drug ustekinumab is very slow in working. Not recommended if you have active crohn's. Go for faster working anti-tnf."

1 / 10
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  • Anonymous
  • Taken for 2 to 5 years
  • October 25, 2023

Stelara (ustekinumab) "Stelara has made my life as normal as it gets, a very good drug, for me anyway."

10 / 10
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  • mike
  • Taken for 1 to 2 years
  • February 9, 2024

Stelara (ustekinumab) "I take the shot every 6 weeks for the last year and a half and feel great with only a few side effects. The medication makes me itch and bruise real easy but I can live with it."

10 / 10
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  • verna
  • May 15, 2024

Stelara (ustekinumab) "I have been on Stelara for about one year without any problems. I give myself shots. No side effects. Hope it keeps working."

10 / 10
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0 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.

Learn more about Crohn's Disease

Symptoms and treatments

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