Siponimod for Multiple Sclerosis User Reviews
Brand names: Mayzent
Siponimod has an average rating of 7.3 out of 10 from a total of 7 reviews for the treatment of Multiple Sclerosis. 71% of reviewers reported a positive experience, while 29% reported a negative experience.
- Xeda
- Taken for 6 months to 1 year
- May 12, 2023
Mayzent (siponimod) "I have Secondary progressive MS. I was offered this medication, as the only available option for me, in Canada with SPMS. I was eager to try it. I found my MS got worse. My friends and family members noticed it too. My fatigue, my spasticity, my mobility instantly declined. My doctor wanted me to give it a fair try, as it was the only option, for 6 months. I was very vocal it had made me worse. Following that, my doctor took me off."
- Beari...
- Taken for 6 months to 1 year
- October 17, 2021
Mayzent (siponimod) "BlackMale, DxAug2020 I was on this drug for about 1yr. While on it I was a mental wreck. Extremely bad brain fog. physically I hurt a lot and used a cane from time to time. It didn't work for me, I was a breakthrough case. I averaged 5000 steps a day while on the drug. 2 days off the med and I was able to walk a mile a mile no assistance. Now I'm about 4 weeks off and I've been doing 10000 step days. (Mind you just doing house stuff)."
Frequently asked questions
- Mashee
- Taken for 1 to 6 months
- September 16, 2020
Mayzent (siponimod) "I have been taking this drug for 6 months. I haven't noticed any side affects. This is delivered to my door each month in a box filled with ice packs because it has to be refrigerated. I also have a Mayzent representative that calls me every month to check on me and to see if anything has changed since the prior month. Overall, I feel it's better and easier than the shot I was having to give myself. I would recommend this."
- Anonymous
- Taken for 1 to 2 years
- November 23, 2021
Mayzent (siponimod) "I have been on Mayzent for a little over a year now and I'm pleased with it. I was diagnosed with MS in 2004. My Neurologist at the time started me on Copaxone. It worked for me for 15 years. I had no new lesions. Then my insurance company bullied me to switch to the generic version of Copaxone by threatening to not pay for the medication. I was on the generic version for a little over 6 months before I started having new lesions. My Neurologist switched me to Mayzent. I was a little skeptical at first reading about the possible side effects. After taking it now for a little over a year, I'd have to say I'm pleased with this medication. I haven't experienced any side effects nor do I have any new lesions. Thank you Lord!"
Are you taking this medicine?
- Zen
- Taken for 1 to 6 months
- May 4, 2023
Mayzent (siponimod) "So, it's hot out today and I'm making my bed, but I'm complaining about the sweat dripping down my face and neck. Then I realized, "OMG! I'm sweating!" You must understand and excuse my language, but I haven't been able to sweat in ten years. Sure, I'd get burning hot while riding a bike, but I'd only get maybe a drop of sweat on my forehead, feeling like I was going to fall over dead. But I started taking Mayzent three months ago, and I didn't feel like I was going to drop. I just dripped sweat like a normal person! Yeah! Mayzent is my miracle, and I'm still experiencing small changes every day, including sweat!"
- Kerry
- Taken for 2 to 5 years
- March 28, 2024
Mayzent (siponimod) "I was dx in 1999, I have been on many MS medications including Novantrone, Avonex, Copaxone, IVIG, steroids and now Mayzent. I just had MRIs done in 2023 and lo and behold my lesions are almost non existent! They have all but disappeared and my new Nuero doesn’t feel I even have MS! After 25 years I’m looking at a possible misdiagnosis or is the Mayzent working? I personally feel the Mayzent is working! So much better than IV Infusions and shots you have to do yourself! So grateful I’m on Mayzent!"
- Anonymous
- Taken for 1 to 6 months
- September 23, 2020
Mayzent (siponimod) "My experience is I have been using 3 months. No side effects!"
- Diary
- Taken for less than 1 month
- April 25, 2022
"Was nervous about potential side effects so kept a diary. Nothing to worry about. Finished siponimod today starting maintenance tomorrow. I will update in 6 weeks. Take care everyone."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
Learn more about Multiple Sclerosis
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- During pregnancy
- Drug class: selective immunosuppressants
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- En español
Mayzent (siponimod) "While I was on Mayzent, I started experiencing blurred vision, jerking, stuttering, and frequent falls. My MS was getting worse not better. My quadriceps in my left leg has stopped working and I can not lift my leg more than an inch off of the floor. My left foot drags when I walk and now I have to use a bench to get in and out of the shower. I have had several incidents since I started taking this drug. I can not walk without a cane because my dragging foot causes me to fall flat on my face. I have had so have a spinal fusion due to the falls causing me to have pinched nerves. I have now been put on Ocrevus twice a year infusion and I no longer suffer from stuttering, jerking, double vision, or falls, howerer, most of my damages can not be corrected. I wish I never used this drug for my treatment of Secondary Progressive Multiple Sclerosis. Completely devastated."