Rotigotine for Parkinson's Disease User Reviews

• Siano
• May 3, 2020

Neupro (rotigotine) "On the neupro patch for a couple of years now. Now up to 8 mg. I also take rasagaline and sinemet. It has given me my life back, that parkinsons had taken away. Symptoms without it are terrible, and all of the alternatives that I have tried have had serious side effects with me. The only drawback I have had since I went to 8 mg, is very poor sleep. I am working to try to see if we can get that better. The problem is that on drugs like ropinirole, Mirapex and others, The side effects and or poor response leads to such things as balance issues, confusion, and a number of other problems. On the patch, I have felt the most normal that I have in years. To the point that I am willing to find ways to battle the sleep issues for the sake of staying on the patch. Until the beginning of 2020, this was covered by my affordable care act, care source insurance. But they Changed their formulary, and stopped covering it. I just got approved by the manufacture for their patient assistance program. What a blessing!"

• Anonymous
• November 9, 2010

Neupro (rotigotine) "I have used Neupro for 5 months now, in combination with Azilect. The neurologist Increased my dosage from 2mg to 6mg. My tremors and motor-skills co-ordination are definetely more under control. No significant side effects."

• fronya
• Taken for less than 1 month
• August 10, 2012

Neupro (rotigotine) "The medicine in the patch is incredible. I stand straighter, little to no wearing off in between doses of Sinemet. A little dyskensia, but well worth it. Only 1 complaint, the patch does not stick sometimes. Some of the time I have to use 2 patches, because they literally fall off. I used what UCB suggested, Bandaid tape. Anyone else having a problem with patch sticking? Or do I stand alone? But I won't give up Neupro patch for nothing."

• pupsik
• October 3, 2012

Neupro (rotigotine) "I have been on the patch for about 3 weeks. It has really helped alot. I have not been able to take any oral medcations because they make me very nauseous. I am taking 2 mg. This patch helps me a lot. So far no side effects."

• Sitaram...
• January 9, 2017

Neupro (rotigotine) "Doctor started Neupro patch samples for my dad starting at 2 mg for a week then 4 for another and 6mg for the third week. After three days into the 6 mg dosa, my father started sleeping non stop .. slept for 2+ days..lost all his strength, balance, control and became a totally different person. Patch was stopped and he never returned to pre-patch condition. Had severe memory loss and now he is 100% dependent upon us for all activities from getting out of the bed to going to toilet or eating. He always wants to sleep. He showed symptoms of improvement for a couple of days where he could barely walk on his own but that did not last long. Neupro is a DANEGROUS medicine! be extremely careful!! DO NOT increase the dosage on old people. Samples."

• Not...
• Taken for 2 to 5 years
• August 21, 2019

Neupro (rotigotine) "I've been on Neupro for 4-5 years and for me it works like a wonder drug. It smooths out my movements and makes me feel almost normal again. The price however is stupidly ridiculous. I just found out that if I want to continue taking this it's going to cost me close to $800.00 per month. Say good by to Neupro, Thanks UCB you bunch of fartbags."

• Patch...
• November 18, 2009

Neupro (rotigotine) "I am using these patches for 18 months and it has been very effective. But severe psychiatric side effects like increases sexual urges, compulsive chatting/internet surfing, fast driving etc are making me reconsider the use."

• mjbaz
• Taken for less than 1 month
• June 17, 2017

Neupro (rotigotine) "Tried switching from Mirapex to Neupro patch - made it only a couple of days - then had to rip the patch off. This drug totally de-stabalized me - it appeared to be even interfering with my carbo/levo - haven't shook that bad in a long long time. Other bad side effects: 1. Extreme tiredness.. slept a Saturday away (14 hours) then went to bed slept all night and could hardly get going on Sunday. 2. My arms and legs felt wooden.. stumbled on the stairs a couple of times. 3. Bad Restless leg syndrome Looking at the note I wrote to the doc.. it took me several weeks to recover and get back to where I was before taking this drug."

• Anonymous
• September 5, 2008

Neupro (rotigotine) "I have used the patch for nearly 2 years, receiving it from Europe before it was released in the US. Quite honestly, it has been life altering. I am now able to complete tasks I was totally unable to do before. Now that it has been removed from the US market, it is like taking away the oxygen required to breath. Someone should do something to at least get the compassionate use thing going."

• Pat
• Taken for 1 to 6 months
• May 21, 2018

Neupro (rotigotine) "Neupro has helped my tremors. I have been using patches for three months,2 mgs. My only complaint is that they do not adhere well in this Florida humidity. I have to retape them on several times a day. The price of this med is ridiculous. Hurts the budget!"

• Carole...
• March 3, 2008

Neupro (rotigotine) "I have been on the patch for about 6 months. It has really helped alot. I have not been able to take any oral medcations because they make me very nauseas(?) I can't wait til a higher dose is approved in the US. Carole"

• Shaky...
• January 14, 2017

Neupro (rotigotine) "Neupro seems inappropriate for warm-hot climates, especially in high humidity. My experience in Sydney, Australia, is that I must replace patches 2-3 times/day. Frequently, I'm unaware that the patch has fallen off so for a large part of the day this medication is useless. Last year during a Pacific cruise, I used so many patches that doctors on board agreed that I'd overdosed. Advice contained with the medication tells us not to "store" Neupro at temperatures exceeding 25 degrees centigrade nor leave it in a damp place. How is that possible when the outside temperature is around 40 degrees centigrade with high humidity?"

• Dopagal
• Taken for 6 months to 1 year
• December 1, 2020

Neupro (rotigotine) "I have Dopa responsive Dystonia. I take sinemet and use the 6mg Neupro patch. I moved up by 1mg every 3 days until my diurnal tremors, rigidity, slowing, and tripping over things eased up (that was at 4mg). Then I attempted to cut back on my sinemet which increased those symptoms though milder than before Neupro. It was increased again by 1mg for 3 days, then another until 6mg patch. I reduced the sinemet again. It worked! I was able to decrease my sinemet by HALF. I no longer spill food all over my self when I eat and I can get up the stairs to my bed. My only side effects has been some weight gain because I have an appetite and mild insomnia. I'm underweight and good at napping so no big deal. I'm so happy with this."

• Papas
• March 10, 2008

Neupro (rotigotine) "Our Dad has been on neupro for only two weeks now. We have seen a great improvement however, he now seems to have developed insomnia. That can be a bit rough for us caretakers at night. Hopefully, sooner than later he will return to a better evening sleep pattern."

• Maximum
• Taken for 1 to 2 years
• November 22, 2021

Neupro (rotigotine) "I have been on the 1mg over a year, don't think they help much maybe the tremors are a little better. I find them a nightmare to keep on and it's a nightmare changing their position every time. When on my stomach area they really itch and leave like burn mark. They don't stick well either. Trouble is half the time you don't know they've fallen off."

• Danny
• Taken for less than 1 month
• May 10, 2022

Neupro (rotigotine) "Since being diagnosed with Parkinson's about two & a half years ago I started getting anxiety, then about 12 months ago I stated get panic attacks and I haven't been the same since. I suffer terrible anxiety ALL THE TIME! I am on two different anti-depressants and sinemet. I also see a psychologist and a councilor. I finally saw a Neuropsychiatrist and he seems to think it's the Parkinson's (low dopamine). He put me on 2mg and after a week I thought a miracle had happened & I felt relaxed, but that didn't last long. I have been on 4mg for two weeks. Again I thought it was helping but the last couple of days my anxiety has been terrible. Plus my sleep has not been the best. I have an appointment this week, perhaps 6mg may work? Cross fingers. On the positive my movement is better."

• Gwend...
• Taken for 5 to 10 years
• November 21, 2021

Neupro (rotigotine) "The Neupro Patch was a life changer for us. My husband was initially diagnosed with Lewy Body Dementia. He was actually suffering from extreme apathy, which can be a symptom of Parkinson’s. Levadopa (Madapar) appeared to do nothing. He was attending the Movement Disorder Clinic at one of our major hospitals here in Australia. After discussions among the neurologists, they decided to try the Neupro Patch. Wow…after a few weeks he showed signs of engaging more, and a few more weeks on, he was back to normal cognitively. He was then rediagnosed with Parkinson’s Disease."

• Lexi
• Taken for 2 to 5 years
• March 2, 2024

Neupro (rotigotine) "Been wearing patches for the last two years as I was in pain and unable to walk due to restless legs. The patches stopped this quickly, which I'm so grateful for. Unfortunately, my lower legs are noticeably swollen. I've put on three stone and lack any enthusiasm to lose weight, leading to impulse buying. I am waiting to hear from the Parkinson's nurse but will ring the doctor; I'm worried the restless legs will return if I stop using the patches. I can only wear them on my arms as they keep rubbing off anywhere else."

• Amazing...
• Taken for 1 to 6 months
• June 11, 2023

Neupro (rotigotine) "My patient has been on Neupro for the past month and 2 weeks and takes Sinemet thrice a day. His extreme decline in cognitive and mobility issues began in December prior to Christmas. By the second week in January, his level of deterioration was severe. He couldn't do anything for himself any longer. Doctors were baffled, tests revealed nothing. Nobody had any idea until we observed a very slight tremor! There it was our answer, Parkinson’s. He was given Sinemet and immediately we saw some improvement and the diagnosis we were trying to find! He was placed under the care of a brain trauma specialist who promptly wrote a prescription for Neupro. We were stunned at the price and had to depend upon community resources to get it. Now 6 weeks later, my patient is close to being the way he was 1 year ago prior to this nightmare. He was a man with few symptoms and very active. Now, he can go without using a wheelchair or walker and can talk, reason, and function again. WOW!"

• aj74666
• Taken for 1 to 6 months
• October 11, 2012

Neupro (rotigotine) "Seems to allow for less CD/LD. I think it is minimizing my tremor, allowing me to lower L-Dopa dosage, yet paradoxically, it seems to be increasing my Dyskinesia."

• Nev
• Taken for 2 to 5 years
• June 23, 2019

Neupro (rotigotine) "I have sleep problems since using the neupro patch I have suffered with badly swollen feet"

• Thundy
• August 24, 2015

Neupro (rotigotine) "Severe reaction, but I am allergic to sulfur based drugs. Lasted under a week. Shakes gone first few days, but came back as I developed a reaction."

• pmm
• Taken for 1 to 6 months
• November 23, 2019

Neupro (rotigotine) "the Neupro patches hurt my skin after about 19 hrs....also I think this made my balance worse (I have Parkinson's disease) I think this medication needs improvement"