User Reviews for Oxcarbazepine
Also known as: Oxtellar XR, Trileptal
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Oxcarbazepine.
Reviews for Oxcarbazepine to treat Bipolar Disorder
Review by marggh:
Was on 150 mg to start. 3rd week 300 mg. Now experiencing crusty lips and mouth sores. Will tell Dr tomorrow.
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February 5, 2015 2:35 AM
Review by Baby2dope:
This medicine is WONDERFUL. I can't believe how amazing I feel. I look back at how I was living my life and I can't believe I haven't got on this before. I want to get out of bed now and my mood has changed a lot! First time out on meds and it works!
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January 22, 2015 6:36 AM
Review by Baby2dope:
Just started taking this and I feel GREAT! I have more energy and I feel wonderful. First medication I ever tried so I'm really happy this worked.
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December 27, 2014 5:48 PM
Review by SixTwelve (taken for 1 to 6 months):
I switched to 300 mg oxcarbazepine twice daily from 15 mg Abilify daily to treat my Bipolar disorder after experiencing an uncontrollable appetite, astronomical weight gain, and constant fatigue. Since beginning this medicine I have seen a drastic improvement in my daily emotional state, mood, and level of energy. I love it and have never had better results from any other medication. The one side effect I can say I've experienced is a lightheadedness a couple times after standing up too quickly but since increasing my sodium intake and drinking more water, it hasn't happened again. Outside of that, I have nothing negative to say about this medication. It has been a definite life-saver for me.
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October 23, 2014 11:48 PM
Review by saranodamnedh:
Incredible stuff. I have severe panic disorder and bipolar disorder. Before I took it, I was getting worse and worse, hallucinating and not being able to chill out. I started on 600mg once a day. I clearly remember when I started it. It felt like I was surrounded by pillows when I moved around, in a good way. I feel "normal" now (no pillows, I promise!). I had a crazy rash that caused me to need prednisone, but I'm on Lamictal/Lexapro/Trileptal, so who knows what caused it! I'm at 600mg/3x a day, so 1800 total. I have to take it at 8am / 1pm / 8pm on the dot or I feel like I'm losing it again. I wish there was something that would cover the entire day, but it's worth the trouble.
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October 2, 2014 2:04 PM
Review by Cshepp (taken for 5 to 10 years):
I was on this medication for 8 years. They wanted me to get to 1200 mgs, but I couldn't function past 300, so that's where I've been and I take it at night. I've run out several times and have experienced zero side effects. My sodium gets dangerously low and I have to increase my salt intake. I thought I was all better and stopped taking it several months ago. I've been feeling suicidal and have been on manic spending benders and couldn't figure out what was wrong. Then I realized I shouldn't have taken myself off the medication. I'm also going to see a psychologist. I don't like psychiatrists because they always try to pawn off the latest medication marketed to them with perks.
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September 29, 2014 12:56 PM
Review by cyn37211:
Was diagnosed with Bipolar 1 12 yrs ago, took Neurontin, Lexapro & Seroquel for 2 yrs with no problems. My P doc moved; new one weaned me off Lexapro & added Lamictal. I started getting fevers, stopped Lamictal, fevers more frequent & higher, til I woke up in an ER. Long story short, found out a month later I had NMS (Neuroleptic Malignant Syndrome). My highest fever was 109 deg F. pDoc took me off Seroquel, fevers continued a while. Tried Lamictal alone, got Stevens-Johnson Syndrome. Result, I can't take any antipsychotics. Have some brain damage; can't go outside in hot weather, high blood pressure. Had bad depression, then manic episode, no sleep 8 days, therapist said I was psychotic. This was last 10 days ago. Just started Trileptal. This is my last-ditch resort.
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September 18, 2014 1:45 AM
Review by Defensor Fortis (taken for 1 to 6 months):
My dose is 900mg twice a day. Been on nearly every medication out there. Due to side effects and allergies this was the last medicine before trying lithium. I am a 100% disabled veteran so I receive my healthcare from VA. Also take Lorazepam 1mg three times a day, and Sertraline 100mg in the morning. Trazodone and Prazosin to sleep. Hard to treat BiPolar Disorder and Post Traumatic Stress Disorder, I guess.
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August 14, 2014 9:21 PM
Review by Joshx17:
Even at the maximum dosage, this was honestly nothing more than a placebo, and I didn't feel any more balanced than I was before I got on it. After this, I took Neurontin, which was definitely better for my mood swings, although it took a pretty high dose, and made me a little slow.
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August 1, 2014 3:58 AM
Review by meosheat (taken for 6 months to 1 year):
I am currently prescribed 300mg per day for use as a mood stabilizer. Dr never told me I was bipolar (found out when I googled this medicine). I previously took Latuda. They work the same for me. I took 600mg last night by accident and it has me ultra mellow.
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June 7, 2014 11:28 AM
Review by Briman (taken for 2 to 5 years):
I started taking this medicine about 4 years ago for bipolar. This medicine was exactly what I needed. I still felt my emotions but had control of them. I might get upset at something but didn't go full tilt "hulk mad." I always explain it to the doc like this: it brings my highs down and my lows up. The only downside is I don't ever experience the emotion of "happy." I have forgotten what it is like to have a good time so I mimic what I see other people doing in social settings to appear normal. An interesting side effect I noticed is that when I am depressed I don't feel depressed. I can tell by all of the normal symptoms. I just don't feel it.
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April 10, 2014 12:07 AM
Review by Kaylon (taken for 2 to 5 years):
I tried every anti-psychotic, every re-uptake inhibitor known to man. In 2010 I had a doctor work with me and prescribed Oxcarbazepine. I feel like my old self again. For over 4 years I was able to maintain employment, interact with my children in a healthier way. It has changed my life.
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January 14, 2014 7:47 PM
Review by kuare (taken for 1 to 6 months):
Good medicine. I'm allergic to Lamictal so this is my best option, Depakote causes constant depression.
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January 10, 2014 11:20 AM
Review by bsh85:
Trileptal (oxcarbazepine): I was on Topamax and my Dr. added 300 mg Trileptal twice a day to deal with anxiety issues caused by Topamax. I have experienced no weight gain and few side effects. There was an initial feeling of "contentment" whenever I took it, but this wore off after a couple weeks. Since adding Trileptal to the repertoire I've experience no manic symptoms but blessed, normal emotions. It's like the anxiety was cut away and a real human being was exposed underneath. The emotions are loud and clear but they aren't overpowering. No cycling. I'd say this was a real plus.
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September 24, 2013 9:16 PM
Review by junelynn63 (taken for 2 to 5 years):
Trileptal (oxcarbazepine): Tried Tegretol to no avail. Trileptel is great for me.
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June 15, 2013 8:24 AM
Review by Artemis2:
Would be helpful if reviewers included dose; I'm at 600mg (300 twice a day) and this has worked 'like magic' to slow me down. I used to feel nearly constantly anxious, irritable and visual and auditory input would overwhelmed me. Certain people's voices felt like my ears were being poked; eye contact was overwhelming, like I was receiving too much input. Certain smells were like an 'instant headache'. Trileptal regulated my sleep cycle first, which was always a huge issue - now it's 10:00 PM to 5:30 AM almost the same every night with none of the previous wake-ups and morning exhaustion. I am one of the ones who has the 'low sodium' side effect but what a great side effect - I get to eat more salt. And my blood pressure is lower.
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June 10, 2013 12:52 PM
Review by Ewokbaby:
Trileptal (oxcarbazepine): I have just begun Trileptal as a treatment for Bipolar I. I was previously on Seroquel 150 and was unable to function at all within 45 minutes of taking it. I experience rapid cycling and more manic episodes than depressive ones and so the Seroquel helped me sleep. However, I noticed weight gain almost immediately and immense hunger-almost ravenous. When it would wear off I was extremely hostile and agitated. The side effects seemed to outweigh the benefits. So far Trileptal has left me with no side effects except for a slight headache and I have smoothly transitioned out of my manic episode. I feel like I may need a sleep aid however- still experiencing a bit of insomnia. I can only hope the success continues!
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June 5, 2013 9:34 PM
Review by ladagosta (taken for less than 1 month):
My son has been placed on this medication for bipolar type 2 he had been off medicines for 6 years and after he quit smoking he lost it totally, could not keep his cool and blew up at everything. The girl he was seeing was the last straw and he snapped. Went back to suicidal thoughts and they put him on Celexia which was not helping any of the thoughts he was having and he was in tears over some things and punching walls on other things. He started this medication about 3 weeks ago, the thoughts he says are better but the agitation he got from quitting smoking is still a major problem. He just jumps down someones throat for seemingly no apparent reason or he will not understand what someone is saying to him and read into it.
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May 16, 2013 9:06 PM
Review by Ncderw (taken for less than 1 month):
Trileptal (oxcarbazepine): I am diagnosed with Bipolar, still unsure if my type is 1 or 2 because I experienced good several bout of signification impairment of function depressions and frequent severe hypomanics or mild manics. Mixed episodes are my main presentation of bipolar disorder. I tried Lamotrigine and many antidepressants, all they did was fueled my mild delusional manics and another times was mixed. I was on carbamazepine and lithium, it was good but I developed allergic reaction to carbamazepine and fueled a month and half long of constant hypomania mood and doctor put me on Trileptal. For the first time I am able to feel content without any explanation. It is a great medicine, you don't feel side effect and being content, that's a dream to me.
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February 19, 2013 2:28 PM
Review by Cmunk (taken for 2 to 5 years):
Do NOT stop taking this medication. I was out of state and ran out of it (poor planning on my part). I realized I was going to run out so I started titrating downwards. The results were immediate, and unexpected. Essentially I went into 'withdrawal' (in the psch world labeled 'discontinuation syndrome'). It was very unsettling. When I finally returned to my home state I had to double my dose for a while to feel 'normal'.
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October 8, 2012 10:58 PM
Review by Anonymous (taken for 1 to 2 years):
I am not really sure if this medicine is working as well as it could. I feel better since I started taking it but I still have serious manic days around my period. So much so that I am not allowed to work during those few days. I also wake up with shaky hands and my teeth chatter until the medicines kick in. When my dosage was higher (I take 600mg twice a day) I would have a half hour of being seriously high and I was unable to walk around. It would feel as if I had a really strong eyeglass prescription.
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July 31, 2012 1:10 PM
Review by Anonymous (taken for 10 years or more):
Trileptal (oxcarbazepine): This medicine is wonderful. Only have problems when I can't afford to pay for it. Seems to take the edge off whenever I need it the most.
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July 15, 2012 11:11 AM
Review by Anonymous (taken for less than 1 month):
Trileptal (oxcarbazepine): Trileptal changed my life. After anti-psychotics not being a good add on to my Lithium and Lamitcal because of heavy non-functional side effects/not tolerated. I searched so long and hard for something that might be able to help stabilize my mood (mostly mania). I have been taking Tripetal at a low dose of 600mg per day for 3 weeks, in addition to my current medication, and just in the first week my mood evened out, I felt normal or whatever normal probably feels like. I am now able to go into therapy and tackle some of my addiction/impulsive behavior that I did not have the capacity to do before when I was not in my right mind. I am so grateful for this medicine for my Bipolar disorder.
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May 25, 2012 11:32 PM
Review by Anonymous:
Trileptal (oxcarbazepine): I'm going into my second month using Trileptal and started at 600 mg a day. My Dr just upped it to 900mg because it wasn't stabilizing my moods as much as I would like. I also take Klonopin for anxiety and the Trileptal for my bipolar. So far, no side effects like the Topamax with tingling but I'm hoping it starts working better. My Dr wants to throw in an antidepressant along with something for ADHD but wants to wait till this kicks in.
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April 23, 2012 11:41 PM
Review by Anonymous:
Trileptal (oxcarbazepine): This medication was extremely effective at stabilizing my moods. The problems that I had made it so that I could not continue on it and therefore needed to rate it so low (because of the severe side effects). First off, I literally saw double for several hours after taking it. Do you remember the Wrigley's double mint gum commercials? Well literally that's what I experienced. It DID go away after several hours afterward but was really weird and gave me a headache when it happened every morning. My skin, especially my lips, would get numb and tingly. The biggest problem though was that it gave me constipation so bad that nothing I ate or took could alleviate it. The ONLY way I could EVER go is if I took a heavy (not mild) laxative.
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February 28, 2012 9:41 AM
Learn more about Bipolar Disorder
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