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Nivolumab User Reviews & Ratings (Page 5)

Brand names: Opdivo

Nivolumab has an average rating of 5.4 out of 10 from a total of 116 reviews on Drugs.com. 47% of reviewers reported a positive experience, while 47% reported a negative experience.

Reviews for Nivolumab

  • Opdivo
  • Taken for 1 to 6 months
  • November 29, 2021

Opdivo (nivolumab) "My husband had bladder cancer. His bladder was removed in Febuary2021. Doctors wanted him to start opdivo which he did. Several months after taking this he started having flu like symptoms. Now he is in ICU fighting for his life on a respiratior. He has pneumonitis inflammation in the lungs. Doctors don't tell you the severe side effects. If he had it to do all over again I would of encouraged him to not take this medication. Do your homework. It is awful watching someone go through what he has been through. I would say no to this drug."

1 / 10
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  • Laurie...
  • Taken for 2 to 5 years
  • March 11, 2024

"This drug basically gave me back my life! I receive Opdivo-Yervoy every 4 weeks. I have not had to be hospitalized in over 3 years. Side effects are manageable. I was diagnosed with stage 4 Bile Duct that had metastasized in my liver in 2017. I had a stent put in that prolonged my life. The chemo caused many issues and hospitalizations. The stent caused sepsis, which is now kept clear of infection by a Sulfatrim drug once a day."

10 / 10
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  • Pierre
  • Taken for 1 to 6 months
  • December 5, 2023

Opdivo (nivolumab) for Melanoma, Metastatic "Significant reduction in right lower pulmonary nodules and hepatocellular metastases after 4 injections. Side effects: Very high fever (required hospitalization) Pain in the abdomen, feeling of organs being inflamed Very high sensitivity of chest skin. The treatment is underway."

9 / 10
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Frequently asked questions

  • Carl
  • Taken for 5 to 10 years
  • November 22, 2023

Opdivo (nivolumab) for Non-Small Cell Lung Cancer "Nine years ago, I was told I had 6 to 9 months to live as I was diagnosed with metastatic lung cancer, which had spread to the bone, liver, and brain. I was on chemotherapy for the first year and then switched to Opdivo, which I have been treated with for the past 8 years. My current condition is described as stable, and Opdivo treatments were recently discontinued as it is believed that my own immune system is now attacking cancer growth. I consider Opdivo to be a miracle drug which, for me, had only mild and limited side effects, such as difficulty sleeping, headaches, etc."

10 / 10
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  • Maureen
  • Taken for less than 1 month
  • May 20, 2023

Opdivo (nivolumab) "I have bladder cancer and started Opdivo 2 weeks ago. At first, no side effects but after one week I noticed achy elbows and hip, plus my lower back along with being unusually tired. The next day, had the same joint aches plus headache and tiredness. Took 2 Advil for relief. 10 days out, and I am extremely tired, have aches in my joints still, and now have pressure behind both eyes and headaches. No vision change. Trying to stay well hydrated and rest to see if symptoms go away or lessen. Scheduled blood tests with consult with the oncologist in 4 days. Will review this with her then or call her if symptoms worsen."

6 / 10
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Are you taking this medicine?

  • Anonymous
  • Taken for 1 to 6 months
  • January 18, 2022

Opdivo (nivolumab) for Colorectal Cancer "My brother was in the clinical trials. His tumor had gotten bigger after Opdivo treatments, so he was dropped from the clinical trials. Months later, my brother's tumors "APPEARED" to have shrunk, so he was immediately put back into the trials, so his data could be counted."

1 / 10
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  • Mark
  • Taken for 2 to 5 years
  • September 11, 2023

Opdivo (nivolumab) "I am on my second go-around with Opdivo. My first experience was pretty good. We used Opdivo in combination with Yervoy. I broke out into a severe rash over a large portion of my body. We discontinued the Yervoy and moved forward with Opdivo alone. Treatment was good with no additional issues. My body became cancer-free, and after about a year, treatment was complete. I went 18 months cancer-free until a follow-up screening revealed it was back. That was last November 2022. I started the Opdivo once again and have been cancer-free since January. I continue to receive monthly treatment and feel pretty good. I love my doctors, they are the best!!!"

10 / 10
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  • S3ano
  • January 27, 2017

Opdivo (nivolumab) for Renal Cell Carcinoma "I was on Opdivo for 6 months. It really set me back, I had to quit it before it killed me."

1 / 10
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  • Anonymous
  • July 17, 2017

Opdivo (nivolumab) for Non-Small Cell Lung Cancer "My brother died from taking this medication. His cancer was in his lungs. When he started opdivo, the cancer quickly went to his brain. He died weeks later. Why did the FDA approve this drug?"

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  • Rosebud
  • Taken for 1 to 6 months
  • November 19, 2017

Opdivo (nivolumab) for Melanoma "My Husband has had wonderful success with this medicine it never made him sick the whole time he has been taking it. He is presently still on it for maintaince"

10 / 10
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  • Anonymous
  • Taken for 2 to 5 years
  • May 24, 2020

Opdivo (nivolumab) for Non-Small Cell Lung Cancer "My mom has stage 4 nslc on year 7. She started Opdivo 4 years ago and at age 74 she’s still going strong. Minimal side effects cancer is almost non existent."

10 / 10
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  • Kim...
  • Taken for 1 to 2 years
  • January 29, 2023

Opdivo (nivolumab) for Renal Cell Carcinoma "Renal metastatic cancer in back and lungs also worked terrific going on 6 years cancer free."

10 / 10
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  • Rayray
  • Taken for 1 to 6 months
  • March 2, 2017

Opdivo (nivolumab) for Non-Small Cell Lung Cancer "My mother died from lung cancer. Her last hope of this medication. Within a couple months she was gone"

1 / 10
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  • Richard
  • March 9, 2023

Opdivo (nivolumab) for Colorectal Cancer "Cancer has decreased from 26mm to 8 mm. Experienced diarrhea daily, need to drink lots of water, occasional dizziness, trouble focusing on written words on computer, fatigue."

9 / 10
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  • Uitza...
  • Taken for 6 months to 1 year
  • May 24, 2018

For Melanoma, Metastatic " Now a year on this, with a decrease of 50% and a little more. Now two final scans with good stabilization. Hopefully this can still rescue me from cancer."

8 / 10
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  • Ben...
  • April 2, 2017

For Renal Cell Carcinoma "47 months on treatment in the phase I-b clinical trial. Started Nov 2011 finished trial Oct 2015"

10 / 10
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  • 92101
  • Taken for 1 to 2 years
  • April 21, 2017

For Non-Small Cell Lung Cancer "Very positive till mouth sores & rash Truly love the drug so much better than chemo allows me to do things I couldn't under chemotherapy"

10 / 10
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  • JJano
  • Taken for less than 1 month
  • February 13, 2021

Opdivo (nivolumab) for Head and Neck Cancer "These drugs poisoned my best friend. He had been doing well and after 2 treatments with these drugs he is a dying vegetable"

1 / 10
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  • Bob
  • Taken for 2 to 5 years
  • June 27, 2023

Opdivo (nivolumab) for Renal Cell Carcinoma "Drug is being administered by infusion every 28 days for about two years. No sign of cancer for many months in my CT scans."

10 / 10
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  • VIMAL...
  • Taken for 1 to 6 months
  • February 4, 2022

For Esophageal Carcinoma "Very harmful drug. I lost my father athe nd oncology Doctors are the worst. They don't accept anything is their fault or manage any complications."

1 / 10
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  • Regnar
  • April 15, 2017

For Non-Small Cell Lung Cancer "I was done. The choices were crappy. No more chemo could even help. I hate big chemo companies. Sorry this stuff works period. Now how do you stop... 10k a pop. They say to keep going."

10 / 10
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  • sdwoods
  • Taken for less than 1 month
  • February 26, 2024

Opdivo (nivolumab) for Renal Cell Carcinoma "So far, so good. I have only had one infusion and no side effects. A couple more months and I will have a PET scan. Will know more then. I also have psoriasis so some immunology difficulties."

10 / 10
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  • Mike
  • Taken for 6 months to 1 year
  • January 31, 2024

For Melanoma "Melanoma in my lymph nodes in the left armpit. I had 29 lymph nodes removed and received 12 months of nivolumab infusions. So far, I have been cancer-free for two years."

10 / 10
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Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.