Infliximab User Reviews & Ratings (Page 4)

• Anonymous
• April 26, 2011

Remicade (infliximab) for Crohn's Disease, Maintenance "I am a 16 year old male, and was diagnosed with Crohn's disease when I was 8. I have only been on Remicade for about 8 months, but have not seen much of a difference. My energy has stayed the same, and I haven't grown any. Improvements have been that I don't have the morning cramps that I usually get, and my appetite has grown. I went from 135 pounds before the infusions to 145 pounds. I have a bloody nose at least three times a week, I now catch stomach viruses a lot easier now, and I feel dizzy/lightheaded often. Overall I guess it's working, I will do an update when I have been on the medicine longer."

• Anonymous
• December 6, 2019

Remicade (infliximab) for Psoriatic Arthritis "Used for psoriatic arthritis, the 1st of 3 IV infusions that work great to begin with! From joints becoming near normal to a bounce in my step - then the canker sores are the 1st sign I'm flaring! I went thru 2 severe reactions before realizing it was the drug, which required immediate emergency attention as it affected my breathing, had hives and 2 weeks of misery. If only my body didn't fine ways to subvert all the Docs do to try & help it! It's frustrating!"

• tsowe...
• September 25, 2009

Remicade (infliximab) for Crohn's Disease, Maintenance "I've had Crohn's for 12 years and I'm 44 now. I believe my Crohn's was triggered or worsened by a doctor misdiagnosing my lower back/hip joint pain from Crohn's and prescribing heavy Ibuprofen. I tried Asacol, Imuran, and Pentasa, but always ended up taking prednisone to calm the symptoms. Every February I ended up with flare-ups. Doctor put me on Remicade 4 years ago and other than some swelling up in the hands initially and getting perma-colds occasionally, it has worked very well. Now my insurance is trying to force me to go to Humira. Doctor is fighting it, but we'll see how it goes. Hope this helps."

• Antonio
• Taken for 1 to 2 years
• June 21, 2023

Inflectra (infliximab) for Crohn's Disease "Inflectra helped me manage my Crohn’s after prednisone. Soon after starting I developed an anal fistula. I continued my treatment then I noticed a pimple on my nose that wouldn’t go away since these symptoms weren’t a huge deal I continued my treatment waiting on a dermatologist to check for skin cancer. Throughout treatment I noticed my hair thinning I thought nothing of it until it stopped growing back I’ve also developed alopecia areata during treatment with Pfizer’s Inflextra. I wanted to give this medication 2 or 3 out of 10 because it worked at first but I don’t think a few years of no symptoms is worth what I’m going through now. I would appreciate it if we stop re-creating bio-similar meds to save money for insurance companies and higher profits for big pharma."

• Joseph...
• Taken for 6 months to 1 year
• July 28, 2019

Remicade (infliximab) for Crohn's Disease "There should be a class action lawsuit against Remicade. After 9 months' being on it for Crohn's I developed drug induced Lupus. I was in my 30's and felt like I was 90. I couldn't get out of a chair. My hands curled up and I had to get shots in my back and hands. This drug nearly killed me. My Dr kept pushing me to his physician's assistant and wouldn't see me."

• Serum...
• Taken for less than 1 month
• July 9, 2016

Remicade (infliximab) for Crohn's Disease, Maintenance "My 14 yo had her first Remicade infusion a 10 days ago. After 8 days she had severe serum sickness. Her fever shot up to 106 and her blood pressure was really low. She spent 24 hrs in the PICU. It was very scared. Needless to say, she won't be able to take it again. We are hoping there will be no lasting effects but only time will tell. Her symptoms of serum sickness were: fever, chills, severe joint pain, hives all over, swollen hands, red eyes, and dry mouth."

• d37
• September 30, 2011

Remicade (infliximab) for Ulcerative Colitis "The medicine works great. I've been on it for almost 2 years. The only thing is I'm getting a lot of the side effects. The one thing that is very bad is the itching on my arms that have lasted a long time. No medicine has helped so if anyone has any ideas on how to stop the itching please give me ideas. The only good thing about this medicine is that it's helping my ulcerative colitis."

• Linds
• July 3, 2020

Remicade (infliximab) for Crohn's Disease, Maintenance "I have been on this medication for 14 years now, and maintained remission without any meds. I also had 2 healthy babies while on Remicade. I was diagnosed with CD of my ilium at 20 years old. I had been on Pentasa and then Imuran. Imuran worked okay, but it hurt my stomach and I never felt truly "good". I was put on Remicade after my last blockage in 2006, and I have been in true remission ever since with Remicade alone. I am a little tired after my infusion for a day, but then I feel totally normal. My two kids had no side effects from using during pregnancy. They are now 6 and 3. I had 2 c-sections, with no complications. The only thing it affected, was that my kids couldn't get the Rotavirus vaccine, because it was a live vaccine. (No live vaccines until 6 months for Remicade babies). That vaccine is new and not critical. Remicade has a payment assistance program and they help with co-pays, regardless of income."

• Anonymous
• January 9, 2010

Remicade (infliximab) for Crohn's Disease, Maintenance "I am a 29 year old male and have had Crohn's disease for 8 years. When I was going through college I became very ill and over a two year period of ups and downs lost 100 lbs. Only due to the grace of God I made it through college with a civil engineering degree. I was first put on all the typical drugs: Imuran, Pentasa, Asacol, Prednisone, B-12 injections. I received the Remicade initially only when I had flare ups. I watched my diet to a T (specific carbohydrate diet), but would still end up flaring up. For the past 6 years I have been on a maintenance dose of Remicade every 10 weeks and have done very well. I do have a goal to eventually get off the Remicade."

• bgiz
• February 25, 2016

Remicade (infliximab) for Ulcerative Colitis "I've been getting Remicade infusions for about 15 years. It is the ONLY drug that helped me. I'd been in remission for the past 5 years. Last infusion, my insurance wouldn't pay the hospital. After back and forth communications from doctor, hospital and insurance companies..Medicare...Blue Cross/Blue shield,..Tricare....doctor decreased my max dosage to 1/2 dose. Now I'm having a flare. It's a wonderful drug but the cost is exorbitant...especially for old people like me. Sure was good while the Remicade ride was working. Good luck all"

• Nickie...
• January 7, 2017

Remicade (infliximab) for Rheumatoid Arthritis "I was diagnosed with RA in 2004 and began steroids and methotrexate. Next started Enbrel for approximately 8 months but the citric acid in the Enbrel was unbarable. Then I began Remicade Infusions. I started out nine years ago every 6 weeks. I'm now on 700 mg every four weeks and weekly injections of Methotrexate but wouldn't change a thing. I still have stiffness here or there but the fatigue and pain I use to experience are gone and I live a full and happy life. It's been such a Blessing to me."

• Kenbr...
• Taken for 10 years or more
• July 18, 2018

Remicade (infliximab) for Crohn's Disease "I went on this medicine in 2003 because of disease in my ileum. I was diagnosed with Crohn's the year before, and nothing had worked - asacol, prednisone, imuran. Then Remicade was a LIFESAVER! I actually could live my life like a normal person again! I had a hard time scheduling my infusions because I was in college, so my advice would be to get it as close to your due date (7 weeks, 8 weeks, etc) as you can so you can get ahead of the flare. I've noticed that if I get my remicade late, I feel pretty terrible until my next dose. I've never gotten sick or had an allergic reaction from it, and I've been on it for 15 years. It's not working as well as it once did, so I'm hoping I can change to a shot so I don't have to sit through an infusion. If you're considering going on Remicade, I highly recommend it. It helped me live a semi-normal life. However, I did develop psoriasis about 10 years ago. I'd happily take psoriasis if it means I can be on Remicade. Best of luck!"

• Anonymous
• November 9, 2023

Avsola (infliximab) for Crohn's Disease "Diagnosed 20 years ago with Crohn's. Took Remicade until last year when I was forced to switch to Inflectra, then forced to switch to Avsola. I have no side effects and it is working excellent for me. Very happy so far."

• Parisa
• August 1, 2020

Inflectra (infliximab) for Crohn's Disease "I been living with Crohn’s for 20 years. I was in remission with Ramicade for 7 years but after I started having flare ups I switched to Humira which didn’t work for me. I end up with a Ostomy. About couple of months ago I start getting skin rash and blood work showed sign of active Crohns. I asked my doctor to try remicade again but my doctor recommended an alternative, Inflectra. I got the first injection 2 weeks ago. My blood pressure dropped to the point I couldn’t drive home. I was very tired the next day but felt ok after that. Couple of nights ago I had to go to ER. Severe joint pain, sore throat, swallowing face and hand and fever. In the matter of 3 hours I was in so put pain and could’t move. Worse experience ever. For insurance companies it cost way less than remicade but I am not putting my self in risk and getting the second injection"

• Cuity
• February 3, 2011

Remicade (infliximab) for Ankylosing Spondylitis "My first go around in 2008 was like a miracle. No side effects! After 3 infusions I lost my medical coverage. Remicade took away the morning stiffness and the pain so much I was able to do push ups and squats. If you looked at my stooped forward posture you would know why that's such a big deal. I eventually started driving the city bus after being denied for Social Security. In Sept of 2010, after 2 years of no infusions my condition worsened and I resigned from my bus driver job due to neck movement restriction. Now back on state medical ACHHS, I'm back on Remicade, just had my 2nd infusion, but this time with a cough that I'm not sure was caused by Remicade, time will tell. Overall Remicade is as close to a miracle as it can get."

• shano...
• May 9, 2009

Remicade (infliximab) for Crohn's Disease, Maintenance "I am 24 and I was diagnosed with Crohn's disease a year and a half ago now. I've been receiving this infusion for the past 12 months. The relief was brilliant bar constantly catching coughs, colds and flu's but it was worth it as I could lead a normal life again. My infusions were every 8 weeks and could take anything up to 4 hours but my remission time between infusions began to steadily decrease. I have now had my 9th infusion and receive them every 5 weeks. My body has grown an immunity to the drug and my doctor is changing me onto Humira as a last resort to avoid surgery. Hope this helps somebody."

• LSJ
• Taken for less than 1 month
• January 30, 2020

Remicade (infliximab) for Rheumatoid Arthritis "My mother had RA, was prescribed "remicade" as an option for her RA. To say the least, we ended up burying her. Shortly after taking remicade my mother's health diminished quickly. I do believe the doctor was at fault for suggesting this medicine due to her prior medical conditions. The drug was too strong. Be careful, or you could end up apart of a Eulogy!"

• WCW
• April 12, 2020

Remicade (infliximab) for Crohn's Disease, Maintenance "I am now 80 years old and was diagnosed with Crohn's about 3 years ago. Late in life, I know, but was misdiagnosed with IBS and put on mesalmine which only made me lose my appetite, lost so much energy that I could not walk 10 feet. Went to teaching hospital and was quickly suspected and diagnosed with Crohns. Shortly afterwards put on Remicade. Total remission, regained strength and bowel control within a week and appetite. At first on 8 weeks but noted tendency to some flare tendency toward the end so put on 6 weeks. Have had no problems and lead a "normal" life with wife, children and grandchildren now! Make sure I follow doctor's advise including all vaccinations he recommends. He does full blood work before every infusion. He is very quick to respond to any contacts or questions I make with him."

• Elibe...
• May 7, 2017

Remicade (infliximab) for Rheumatoid Arthritis "I was diagnosed with Systemic Sarcoidosis. After a year and 1/2 of trying different medications with no relief, I started Remicade. The first two Infusions got rid of the flu like symptoms and the horrible aching pain throughout my body. The third Infusion got rid of the same symptoms, except I do feel knee and back pain still due to damage done to those areas from arthritis. I felt the back and knee pain after the first two Infusions too. I didn't realize how sick I was until I felt better. The last time I didn't feel like I had the flu all the time, was 32 years ago! I thank God for Remicade! It's a miracle drug. I have absolutely zero side effects too! I give it a 20 on a scale of 1 to 10!"

• Anonymous
• September 6, 2016

Remicade (infliximab) for Crohn's Disease, Maintenance "I was diagnosed in 2013 with ibs.. Then 2014 ibd....now Feb2016 with crohn's...tried a lot of meds nothing worked went to remicaid well it has been working but never lasts that long... By 5-6 wks I'm starting to flare... This time after load in doses they used me to 7.5 and that worked I got 6 wks out of it instead of 4 wks.... But this time it's bad started flare of belly 4 days ago... And now I can't barely move feels like I've been hit by a truck... All my joints hurt so bad ...this is awful.. Hoping to get an infusion. ... But I read all the same issues...."

• Paula
• Taken for 2 to 5 years
• May 18, 2018

Remicade (infliximab) for Ankylosing Spondylitis "Remicade works well for me. I'm a 30 year old female. I have been on Remicade for 3 years. I sometimes have nausea after the infusions for 1-3 days and hot flashes. My iritis and uveitis have both been put in remission since being placed on Remidade!"

• Gutsy
• June 15, 2013

Remicade (infliximab) for Crohn's Disease, Maintenance "After resisting having read American Black Box warnings I was finally persuaded through my consultants actual experience with the medicine - that and having 6 operations/ colostomy and the disease still beating me. I was exhausted and unable to walk/do anything other than essential basic necessities - if that. I have had three infusions of Remicade so far along with steroids for peri-anal fistula, Crohns, at two weekly intervals and I have some shade of a life back. Immediately after the medicine I am very tired. I have headaches that last for about four days at a time/paracetamol doesn't touch them. I get bad cramps in my legs especially at night and occasional mild flare ups BUT NOTHING like before. Stress plays factor in starting my flare ups."

• Kwixo...
• Taken for 5 to 10 years
• April 13, 2018

Remicade (infliximab) for Crohn's Disease, Maintenance "Six years of Remicade infusions so as to replace prior intake of Prednisone. Must say quite effective, HOWEVER, about 3 1/2 years into it got Shingles of the eye and subsequent post-herpetic neuralgia (and there's still some itching almost five years later). Then August of 2017 got cellulitis in the right arm, a very painful infection requiring a seven day stay in the hospital on antibiotics followed by a week long IV administration at home. Once I was better, I have stopped the Remicade and so long as I am enjoying the remission I'll never return to it. My GI doc has suggested Entyvio but I most likely wouldn't even do that. Heck, if it ain't broke don't fix it!( I don't wish to tamper with my immune system and bring about more disasters!)."

• A-Train
• July 3, 2008

Remicade (infliximab) for Crohn's Disease, Maintenance "I am 22 years old and have had Crohn's disease since age 17. I can't take steriods of any type - makes me go crazy. Remicade is the best drug I've been on for my disease. It works great but has some bothering side effects for me but they are not bad enough to quit gettting this medication every 8 weeks at the hospital through I.V. It takes about 2 or 3 hours for the treatment to be over."

• J Yoder
• August 20, 2016

Remicade (infliximab) for Crohn's Disease, Maintenance "I first had symptoms when I was 17 yrs old. Was not diagnosed until I was 25 during an exploratory surgery to find out what was wrong with me. I am now 67, have had three surgeries, 2 for blockages and a variety of meds.. This last surgery did not go well and my crohn's became worse. The doctor recommended I go on Remicade. Have had three treatments with no improvement, extremely exhausted. During my treatments I developed chest pains, had an angiogram, everything fine. Then became very short of breath, fever and got water on the heart from the procedure. Will be discussing this with the doctor and requesting I stop the treatments. I have not had a rewarding experience with Remicade. Not sure what my options are going forward."