Infliximab User Reviews & Ratings

• Anonymous
• Taken for 1 to 2 years
• November 4, 2018

Remicade (infliximab) for Rheumatoid Arthritis "My wife had RA from when she was a child. She had used the normal meds till remicade. She was in Japan and started on remicade in Apr 2007 and die in Feb 2008 from the reactions/side effect to it. I advise that if you get any of the side effect symptoms to see your doctor right away. I have found that if you get one symptom you will get more. There are 3 pages of side effects/reactions."

• Anonymous
• Taken for 5 to 10 years
• February 15, 2013

Remicade (infliximab) for Ulcerative Colitis "Remicade literally gave me my life back 9 yrs ago. I was so ill ; in & out of hospitals, steroids, taking 20+ pills a day & I was still extremely sick. I finally went to Philly (where on my first visit, they were planning my surgery to remove my colon..during that conversation I stopped listening.) My dr. suggested I give Remicade a try - before surgery. At that point, I would have done anything. Honestly I did not believe anything would work since I had this disease for years and could barely function. The Remicade worked like magic - it is liquid gold - I have never had any side effects or adverse reactions - I have been in remission ever since!"

• Soccer...
• Taken for 1 to 6 months
• January 29, 2021

Inflectra (infliximab) for Crohn's Disease "Insurance forced me to switch to inflectra due to being cheaper for THEM for my Crohn's. I did not have a say, and insurance won't listen to Dr. recommendations. While on Remicade I only had flare ups 3 days a month during my period, but no other issues or side effects. Yet after only 2 infusions on Inflectra I have multiple daily loose stools regardless of healthy diet, as well as bloody stools at least once a day. In addition to Inflectra not preventing flare ups, inflammation, and symptoms; Inflectra has incurred more issues that I didn't have previously: Kidney pain Rib Pain Joint pain: shoulders, wrists, ankles. Nausea Headaches Severe Fatigue Charlie horse cramping in my hands, where I can't move my thumb; it's completely contracted. I'm in my early 40's with a toddler to try to keep up with, as well as career to maintain, and this isn't fair to me or my family."

• Tootr...
• Taken for 1 to 6 months
• April 30, 2020

Remicade (infliximab) for Ulcerative Colitis "This medication Remicade made me in constant pain. I slept for two months 20 hours a day. I felt very depressed. My body was in pain everywhere and I was covered in a rash. Parts of my body have permanent nerve damage months after I got off it. My specialist told me it is hard to diagnose nerve damage, as if that matters. Is everyone a liar till a doctor proves it? This same specialists wanted me to go back on it. I said I really didn't want to go through that again. The specialist would not leave it alone. I Mentioned Covid-19 to him and he said it won't make a difference if I am off remicade or not. Oh okay, I guess all these tests were for nothing then? Now I am without a specialist. He then talked down about me to my family doctor saying I am refusing treatment. Now my family doctor is treating me like I am just wasting people's time. I suspect this is exactly how people become homeless. Do I have no rights? People should consider their specialist might value money more than your life."

• Dee...
• Taken for 1 to 6 months
• November 10, 2014

Remicade (infliximab) for Rheumatoid Arthritis "Horrible joint swelling/pain, fatigue like none other. Diagnosed with rheumatoid arthritis, Dr. figures I probably have had this 15 years, a few replacements along the way. Took MAJOR flare to be diagnosed. Loads of joint damage all over. Started on Remicade, nervous. Cannot take methotrexate due to kidney disease. Third dose dr increased dose, 5 days feeling worn then MIRACLE! NO swelling, pain, best I have been in years, no fatigue. Hoping it continues with each infusion. In tears of joy everyday with my quality of life."

• Tomh
• Taken for 2 to 5 years
• February 23, 2014

Remicade (infliximab) for Ulcerative Colitis "Life-changing. I once thought I was doomed to a life of pain and suffering. Now that I've been on Remicade for 3 years, I feel like a normal human being again. My disease has become a small part of my life and I don't even think about it much anymore. I do seem to be slowly losing response. I had to increase the frequency of infusions and now I sometimes have minor symptoms around the time I am due for my next dose. I was nervous when I started this medicine because of the trips to the hospital for infusions and because my doctor at the time made it sound like a huge deal to be on this. I wish I had started it sooner!"

• Anonymous
• Taken for 10 years or more
• May 13, 2016

Remicade (infliximab) for Ulcerative Colitis "My younger brother was on remicade for 10 years , and yes it helped him with the uc but he just passed away from cancer and liver failure at 27 years old most likely from the years of remicade. So I am leaving the warning to be careful and think that this is just some miracle drug. Everything has consequences"

• Lenny...
• July 3, 2015

Remicade (infliximab) for Crohn's Disease, Maintenance "I have been on Remicade for nearly 4 years. Prior to that I had a variety of Crohn's issues including two surgeries for peri-anal fistulas, severe fatigue and lots of other fun stuff. I have been very lucky in that I have responded very well to the stuff and now most days I am fortunate enough to forget I have the disease. I was apprehensive about potential side effects but to date have experienced none. Prior to Remicade I took a few medications which did absolutely nothing but the Remicade had a pronounced effect within 24 hours of my first infusion. If you have Crohn's or Colitis would seriously consider an anti TNF blocker (haven't used any of the others) and stay the hell away from steroids."

• UC...
• Taken for 5 to 10 years
• December 12, 2013

Remicade (infliximab) for Ulcerative Colitis "I had a second relapse of Ulcerative Colitis in 2005. I spent 2 weeks in hospital, been given a fist full of medicines and sent home. Nothing worked. I contemplated having surgery to free me of the disease and wear an ostomy. To my eternal gratitude, my Gastro MD suggested Remicade. After my last colonoscopy in 2013, he said if I had not seen you as sick as you were... your colon looks perfectly healthy. I will accept the side effects (I have experienced none as of yet) to have my life back. Remicade has assistance programs to help those who need it. I am not a spokesman, I do not sell this. But I use and will as long as I can. I wish this medicine was around for my Dad as he suffered with Crohns and Colitis for years."

• PHINS...
• Taken for 10 years or more
• April 1, 2019

Remicade (infliximab) for Psoriatic Arthritis "I have been taking this med for over ten years now truly a life saver. I have had no side effects and have been able to do almost everything I used too. I only take Remicade, no methotrexate as I took myself off of that because of liver side effects. I also have for several years now extended my infusion out to every 10 weeks I am the only patient I know who does this. I have not seen any negative effects from doing this. Great drug"

• linkman
• Taken for 2 to 5 years
• December 17, 2013

Remicade (infliximab) for Ulcerative Colitis "I have been getting Remicade infusions for 4 1/2 years. I went into remission within a week of my first infusion. My only side effects I have are headaches and some chest pain off and on. But considering how my life was before Remicade I can handle it for now."

• KPano
• Taken for 1 to 2 years
• September 29, 2020

Inflectra (infliximab) for Crohn's Disease "I have Fistulizing Crohn's, dx'd 6 yrs ago @ 36yo- 11 surgeries since then: abscesses, fistulae, drains. Years of my life, my career, independence & ability to have biological children lost but Remicade saved my life. I've been in Remission since early 2018-.Trough levels in high 20's. At JUST that time, my insurance made mandatory switch: ALL patients on Remicade to Inflectra. Since that time, trough levels have steadily dropped to where I'm near rejection & TERRIFIED to start developing abscesses & fistulas again- I'd rather die. Seriously. I'm now writing to Medicare Commissioner who's probably some paper pusher w/o any IBD training to SAVE MY LIFE & give back my Remicade. Insanity. My doctor is writing a letter on my behalf but she told me that she has been denied EVERY SINGLE TIME she's requested her patients moved BACK to Remicade. It's criminal that insurance companies pick drug therapy for a disease that literally BURROWS HOLES through my body. I am only 42 & deserve a chance."

• Mothers...
• October 17, 2015

Remicade (infliximab) for Crohn's Disease, Maintenance "My son has crohns and lost 30 lbs in 2.5 months. He took the medicine the doctor said to take but then he developed a fistula. I could tell he was in a lot of pain but yet he would not tell me what was going on. Both of us being very uneducated of this disease had no idea of the trouble he was headed towards. I made an appointment with the surgeon, the surgeon confirmed a fistula, and said he needed to take Remicade. My son has had four Remicade treatments and I have to say he was doing a lot better after the first treatment. It has been almost 9 months now and he is back to his average weight of 190. We are both afraid of the Remicade and we don't talk about it very much at all but I do have to admit it has given my son his life back."

• Paddyo
• Taken for 2 to 5 years
• December 1, 2018

Remicade (infliximab) for Ulcerative Colitis "I have been diagnosed with UC for about 15 years. I have been on various forms of mesalamine for the entire time. On and off of prednisone, 5-60 mg a day. Remicade had me close to remission for 5 years. While on Remicade I was able to drop the prednisone. For that, I'm grateful for the Remicade. After about 5 years it suddenly lost it's effectiveness. I then went back to the Prednisone while waiting to get approved for Entyvio. Remicade was given via IV every two months. Entyvio did absolutely nothing for me. I'm now on Simponi which is starting to show promising results. It supposedly works on the same inhibitors as Remicade. A lot of trial and error. Be patient and keep the faith."

• Redlady
• Taken for 10 years or more
• August 22, 2015

Remicade (infliximab) for Rheumatoid Arthritis "I was diagnosed with a reactive Rheumatoid Arthritis August 1998 after getting the first shot of Hepatitis B vaccine which triggered my RA. I was on Prednisone for a year, Plaquenil, sulafalazine(which almost killed me), arava (leflunomide) for a while, was on Humira which didint help, changed to Enbrel which gave me rashes. In 2000, my rheumatologist who was into RA research and had RA himself ordered Remicaide infusion wtih MTX. That's 15 years ago of quality of life and contnuing 5mg Remicaide every 10 weeks. All my RA labs and tests are negative except CCP (which is 5X higher than the normal. This coming month I'll be OFF my MTX. Even when I'm on Remission I did not stop my Remicaide coz flare ups are worst than the first symptoms."

• johnppm
• November 9, 2009

Remicade (infliximab) for Rheumatoid Arthritis "I suffered with RA for over 15 years in most of my joints. 6 years ago I moved to a new state and started with a new RA doctor. She started me on Remicade and lowered the dosage of methotrexate. I have been pain free for the past 6 years. Love my doctor and Remicade."

• Glorz...
• February 17, 2015

Remicade (infliximab) for Rheumatoid Arthritis "Had been on REMICADE since 2003 (11 years) 5vials every 4weeks. Doctor took it away due to issues with the infusion dept. I hate not being on REMICADE. REMICADE did wonders for me, it gave me life back and unfortunately I am back to where I started 11+ years ago. I am having difficulty with everything, I can barely type this comment."

• goldr...
• Taken for 1 to 6 months
• August 31, 2012

Remicade (infliximab) for Crohn's Disease, Maintenance "I am a 65 year old male and I acquired Crohn's Disease in 1965 at age 19. Remicade was approved by the FDA in August of 1998 and I was given my first dose the next month. Back then, they only administered 2 doses. I received the second dose 3 months after the first one. I have had no further doses since then. When I got the first dose I was in the midst of a flare, and I had an actively draining abdominal fistula. Three days after the first infusion the fistula closed of its own accord and I happily avoided yet another surgery for Crohn's (I have had over 20 surgeries). I have been SYMPTOM-FREE since the second infusion. I have more health issues now, but at least they are not Crohn's related."

• WNYer
• Taken for 5 to 10 years
• October 27, 2015

Remicade (infliximab) for Ulcerative Colitis "I was diagnosed with uc in my twenties. For many years I maintained with various medications and only a couple of relatively minor flare ups. Suddenly at age 56 I had a severe flare up that did not respond to prednisone. Removing colon was brought up. After much suffering and weight loss for about 3 months I was put on Remicade by my wonderful GI. Within a couple of weeks my condition began to improve. I am now almost 7 years with infusions every 8 weeks. I am very grateful for this medication, although I do wonder if my immune system is weakened. It really doesn't compare to almost dying or having major surgery. I know it doesn't work for everyone but for me it was a miracle."

• In pain
• Taken for less than 1 month
• May 29, 2019

Inflectra (infliximab) for Ulcerative Colitis "Insurance company switched me off my Remicaid to the cheaper drug, Inflectra causing severe flare. Headaches, nausea, diarrhea, and vomiting. No energy during the day, I have to take several naps just to get through the day. I had just gotten used to being and feeling better after fighting with my colitis. The Remiciad put me into remission and now I'm sick again because of Inflectra."

• Jim
• December 31, 2020

Inflectra (infliximab) for Psoriatic Arthritis "Watch out for Inflectra. I originally discussed with my Doctor about using Remicade for my P-Arthritis and Psoriasis because it is covered by medicare and Humira is not. However when I went in I was given Inflectra instead. The nurses tell you it's the same thing or a generic version. They use the Inflectra for prescribed Remicade patients because it costs less. The Inflectra worked on my first two infusions but by the third injection it was useless. My arthritis and psoriasis came back in full force. At the last infusion I had an allergic reaction to the Inflectra at the hospital and was told by the nurse that I almost ended up in the ER. Then when I told the nurse that the Infectra wasn't working anyway, she told me to demand Remicade and they would have to give it to me. A report about the allergic reaction and Inflectra not working went to my doctor and now I am supposed to start Remicade this weekend. I'll post a review on Remicade once I have had a few treatments."

• FeriS...
• July 12, 2016

Remicade (infliximab) for Ulcerative Colitis "Remicade has been a miracle for me. Last year this time I was totally desperate and thinking of get rid of my colon due to severe UC. Now, I am totally healthy and no sign of UC!!! If u r suffering from UC, give it a try without any doubt. Thanks to science and researchers. Of course, it takes couple of months to feel the full effect of it, but as soon as I got the first infusion I felt its positive effect. Its combination with Azathioprine works much better."

• Anonymous
• February 20, 2012

Remicade (infliximab) for Rheumatoid Arthritis "I love it! I'm 16 and have been treated for five years. Methotrexate made me sick and Enbrel, via Epi pen, was more uncomfortable than my arthritis. Remicade is pain free and the time inconvenience is worth it."

• musta...
• Taken for 1 to 2 years
• December 31, 2014

Remicade (infliximab) for Crohn's Disease, Maintenance "I have been dealing with Crohn's Disease for around ten years now and I was only properly diagnosed 2 yrs ago. I have received Remicade infusions every four weeks for the last year and it has made a very significant improvement in my everyday life. I no longer need to take pain meds to get through the day and my energy levels are closer to normal then they have been in years. Before Remicade it had got to the point where I could barely walk due to lower back and hip pain all related to Crohn's."

• Jimmy...
• Taken for 10 years or more
• February 28, 2020

Remicade (infliximab) for Rheumatoid Arthritis "I was diagnosed with RA about 12 years ago. Started on Methotrexate but had to discontinue because of higher than normal enzyme levels in either my kidneys or liver (can't remember which organ). My RA doctor recommended we switch to a biologic Remicade. I was also on Plaquinel and Leuflunomide along with Remicade but have since discontinued Plaquinel with no issues. Still taking leuflunomide. I've been taking Remicade (800 mg infusion every 6 weeks) and Leuflunimide (pill once a day)now for over 10 years since my diagnosis of RA. I've had no side effects with Remicade or leuflunomide, no joint damage (caught RA diagnosis very early) and in complete remission for over 10 years. Now my insurance company wants to switch me to Inflectra over Remicade because it is cheaper. I may have no choice but I'll be calling my RA doctor and see what he thinks. May have to appeal to the insurance company if RA doctor has reservations and stay on Remicade which works remarkably for me!"