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Florinef for Postural Orthostatic Tachycardia Syndrome User Reviews

Florinef has an average rating of 8.7 out of 10 from a total of 6 reviews for the off-label treatment of Postural Orthostatic Tachycardia Syndrome. 67% of reviewers reported a positive experience, while 0% reported a negative experience.

Florinef rating summary

8.7/10 average rating

6 ratings from 6 user reviews.

Compare all 11 medications used in the treatment of Postural Orthostatic Tachycardia Syndrome.

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  • Jay...
  • Taken for 6 months to 1 year
  • June 25, 2019

"I have been "sick" as long as I can remember. I passed out for the first time when I was 14. I've always had the "I feel like I have the flu, and I'm dying symptoms". I did not have a good quality of life. I was diagnosed with POTS and NMH (Neurally Mediated Hypotension) in April of 2018 and immediately put on medicine. The first medicine have me awful side effects, so I was switched to Fludrocortisone. This medicine has changed my life. I can not live without feeling like I'm sick all the time. The only times I feel sick now are when I forget my medicine, or I go too long between meals. The only negative side effect is, I've gained 14 pounds so far, which sucks, but it's better than the alternative."

10 / 10
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57 Report
  • POTSie...
  • June 25, 2015

"I started taking florinef a few months ago and while I haven't noticed a difference, I believe it is keeping my symptoms from progressing. Before I went on it my body was on a downward fall but as soon as I started taking it everything was stable. It has made me gain about 5-10 pounds of water weight but it's not too bad. This drug along with my other medicine allows me to live my life better."

7 / 10
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36 Report
  • A j
  • Taken for 5 to 10 years
  • May 2, 2023

"I have been taking fludrocortisone for about 9 years it is helping me a lot. I have episodes about once a every 2 months sometimes once a month, the way to describe how I look is that l look drunk. Once the episode is finished I'm in bed for 2 days I just need to lay down flat."

10 / 10
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6 Report
  • simpl...
  • December 20, 2009

"I developed a rash and after testing at the NY Medical College and Vanderbilt Center for Dysautonomias, we found my blood volume was not low (often the case with POTS patients) and the mechanism that florinef acts upon."

6 / 10
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33 Report
  • KimC
  • Taken for 1 to 6 months
  • September 5, 2014

"Florinef has helped me out quite a bit. I'm not cured, but am better. I can walk up minor inclines without any problem. I am able to be up and active for longer periods of time."

9 / 10
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36 Report
  • Anonymous
  • August 10, 2010

"I have taken this medicine along with Toprol-XL for a few years and it has helped A LOT! I think this medicine paired with Toprol-XL is great!"

10 / 10
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30 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.