Etanercept for Ankylosing Spondylitis User Reviews (Page 2)

Brand names: Enbrel, Erelzi, Eticovo

Etanercept has an average rating of 7.6 out of 10 from a total of 46 reviews for the treatment of Ankylosing Spondylitis. 70% of reviewers reported a positive experience, while 15% reported a negative experience.

Reviews for Etanercept

Orego...
Taken for less than 1 month
May 22, 2015

Enbrel (etanercept) "I am a 46 yr old female. I had my first flare at 19, but doctors couldn't figure out what it was. I wasn't diagnosed until 5 years ago. I have steadily gone downhill since the diagnosis. They tried me on all the medications they could before starting TNF blockers. I was put on Humira first and although it made me feel some better, my back measurements were getting worse. Then the rheumy changed it to Enbrel. I had terrible site reactions from Enbrel and also tremors. I now have a rx for Simponi but I can't start it until I finish a round of antibiotics for Sinusitis and Bronchitis. I'm so happy to read that some people are getting help from some of these medications and hope that Simponi is my answer to prayer and I'll get my life back!"

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joesp...
May 26, 2015

Enbrel (etanercept) "I started Enbrel for AS 19 months ago. I had been diagnosed 46 years ago and had been taking Indocid SR and then when they stopped making the SR version switched to Voltaren. Even taking these potent drugs I was still with pain and problems as they only masked the symptoms. Within 6 hours of my first shot I was pain free and within 2 weeks was playing tennis again. I must say though that I do get sharp pains in my feet occasionally and I have put on about 20 lbs . all on the lower belly which my rheumatologist told me was a possible side affect. Another thing is my finger joints feel weaker and am having a bit of insomnia. But being pain free has helped my quality of life. I joined of a study group on it and share indo with others in it."

7 / 10

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Anonymous
July 18, 2010

Enbrel (etanercept) "I was diagnosed with AS about 8 years ago. I have been on Enbrel for approximately 7 years, except when pregnant or breastfeeding. Enbrel worked wonders for me. I felt great! Unfortunately it looks like I have become allergic to something (probably preservatives) in the injection. I had a several allergic reaction about a month ago and my doctor switched me to Humira. I just took my first injection this past week and so far so good. Hopefully I won't have a reaction like I recently experienced with Enbrel - keeping my fingers crossed!"

8 / 10

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21 Report

Frequently asked questions

Lozzy
June 28, 2015

Enbrel (etanercept) "I was diagnosed with AS about 2 years ago but felt the pain last 5 years. I have tried everything and absolutely nothing has worked for me, lastly trying Humira which I was on for about 4months and no pain relief and then trying Enbrel weekly for 4 works now and haven't felt any difference at all so far, maybe it may take a lot longer to kick in :("

1 / 10

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14 Report

iLove...
September 14, 2016

Enbrel (etanercept) "I've been on Enbrel since May 2012 for Rheumatoid Arthritis and took it varying from every week to as long as 7 weeks at a time. In March 2016, after trying to lean off enbrel, I started having issues with my lower back SI joint and behind my shoulder. I took Enbrel and it got better. I was officially diagnosed with mild to moderate Ankylosing Spondylitis in June by my rheumatologist. I went back to Enbrel every other week and I feel great. Just like the arthritis, my AS went away. I am only 22 years old but Enbrel has kicked two physical diseases and I'm so happy. Try Enbrel!!!"

10 / 10

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Are you taking this medicine?

Penny...
February 20, 2016

Enbrel (etanercept) "Taking Embel once a week now (Started the day before Christmas 12/24/16). I have had Ankylosing Spondylitis for over 17 years but was misdiagnosed until 3/15. The doctors always told me that I had chronic fatigue syndrome and fibromyalgia. It first started at @ age 37. I could hardly make it through a week without going in and getting IVs full of vitamins and saline. I finally came across a Nurse Practitioner who prescribed me vitamin B injections (twice a week), vitamin D (once a week), and Folic Acid (Deplin - once a week). This really was helpful but the pain was horrific & I never felt right. And I had boughts with bad pain in my Achilles - left foot. There is more to my story but this site will not allow me to type it."

3 / 10

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Rob...
April 8, 2016

Enbrel (etanercept) "I was diagnosed at 33 year , now I' m 36 , I have tried Nucoxia which raised my BP .Then Doc recommended to Etanercept 50 mg weekly . It is really a wonder drug . No side effect , nothing. I'm on this drug for two week. I have used Ciplas Etacept"

9 / 10

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More FAQ

Sukhe...
Taken for 2 to 5 years
September 1, 2013

Enbrel (etanercept) "I'm using ENBREL since last more or less than 3 years. During this time I was painless. It is stopped from last 6 months. Now I'm suffering from pains, pain has been started again after stopping it 2-3 months. As a result I feel should not stop it."

9 / 10

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JAMIE...
March 5, 2016

Enbrel (etanercept) "I'm 37 and was always healthy and pain free till 1 yr ago. I started having pain in my feet and heals, and my stomach & bowels, it got worse gradually. I started having pain in my left wrist, ankles, knee, shoulders and neck, even a couple of my toes also had a fever off and on. I had swelling and couldn't even walk. I had no idea what was going on till I went to a rheumatoid doc and he found out I had ankylosing spondylitis. He started me on enbrel and I stayed off my feet for a week resting my body. I got better and better ever week no pain at all. I just now am noticing my feet hurting, one knee and by shoulders and very fatigue . I'm praying that the medicine is still working. It's been exactly a yr since I started the enbrel."

9 / 10

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Jazz
Taken for 6 months to 1 year
April 12, 2022

Enbrel (etanercept) "I wanted to thank Lsnbc ·November 3, 2013 for the review. I was disheartened after 3 months, then read the review that it can take 6 months.. and really glad I retrained my brain. I have a life again."

10 / 10

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maz
Taken for 10 years or more
October 1, 2021

"I'm lucky as a U.S. Veteran the VA has been covering my officially priced $4800 etanercept for over 10 years. It is a wonder drug, working as well now as when I started. Nothing else worked by that point. Etanercept took a couple weeks to start showing effects then the pain quickly went away and almost all of the red plaques followed over the next few months. Thanks to colds, shipping issues, and etc. I've found you can miss a couple 1 to 2 week periods a year without any noticeable loss of the benefits. However thanks to a major SNAFU I once went more than 3 months without taking etanercept. The symptoms kicked in at 2 and a half months. The pain disappeared within a day upon resuming the medication but some of the new plaques I gained at that time stayed and the two old plaques that never went away in the first place got a lot worse. It is not a cure, but after 10 years I am still functioning well enough to work and hit the gym (low impact)."

9 / 10

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Roger...
Taken for 1 to 6 months
June 18, 2021

Enbrel (etanercept) "I have suffered with joint pain for over 40 years, finally saw a rheumatologist 4 months ago. After tests diagnosed with advanced AS and prescribed Enbrel. 10 weeks in I am feeling less morning stiffness but still struggle with night pain and stiffness and very achy joints all the time. So I guess I feel a slight improvement, hopefully gets better in time."

6 / 10

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Jim
Taken for 1 to 6 months
January 17, 2022

Enbrel (etanercept) "Been on Embrel for 7 weeks. Still have pain in my back. I’m so tired of the terrible pain. I’ve been taking ibuprofen daily. Not sure if injections are worth it at this point. With the side effects listed I just don’t know if it’s worth it"

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Anonymous
January 2, 2012

Enbrel (etanercept) "I am a 14 year old. I was put on this medicine about 4-5 months ago and I have never felt better. I was walking around as if I was 90 and now I feel like a new person."

10 / 10

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Anonymous
January 21, 2009

Enbrel (etanercept) "This medication saved my life. Without it I would be a completely different person. Whoever out there found a way to treat my Ankylosing Spondylitis with this medicine deserves the world. Thank you."

10 / 10

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chefs...
Taken for less than 1 month
August 6, 2019

Enbrel (etanercept) "Tried enbrel when humira stopped working. 1st dose I had a bad cold that lasted about a month. 2nd dose, I was hospitalized for 3 days with sepsis. Didn't work for me and just made me super sick."

1 / 10

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egomez
April 30, 2013

Enbrel (etanercept) "I take Enbrel once a week. I never have any problems."

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21 Report

Ronica...
June 17, 2016

Enbrel (etanercept) "I was diagnosed of AS 2yrs back..My doctor prescribed me with Enbrel 50mg weekly which he tapered it slowly..I am still on Tab Methotrexate..I feel wonderful and have almost no pain days .I m 25"

10 / 10

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Markm
Taken for 10 years or more
October 8, 2016

Enbrel (etanercept) "I am 35 years old and have Been on and off Enbrel for 13 years. It's the only medication that keeps my AS under control. P90x stretching videos work so well for AS also."

9 / 10

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Anonymous
May 19, 2009

Enbrel (etanercept) "I am a 46 year old Ankylosing Spondylitis suffering male and have been on Enbrel for 4 weeks. I feel like a new man, it is brilliant."

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25 Report

Anas...
Taken for 1 to 6 months
March 15, 2017

Enbrel (etanercept) "I am 47 having AS for 26 years. last 5 months have starting using Embrel, I can not describe the results... try it yourself... amazing"

10 / 10

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Sunil...
July 17, 2016

Enbrel (etanercept) "Wonderful drug for ankylosis spondylitis patient"

9 / 10

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Jack
Taken for 6 months to 1 year
April 16, 2018

Enbrel (etanercept) "Essentially eliminated all of my pain. Shot itself isn't too bad."

9 / 10

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deerb...
February 3, 2013

Enbrel (etanercept) "Helped a great deal when I first took this for about two years, five years ago, for spondylitis, and now I've been taking it for 5 months and it's doing much less."

6 / 10

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Anonymous
February 25, 2012

Enbrel (etanercept) "I have now tried Enbrel two different times. It worked really well the first few weeks and has gradually lost its effectiveness."

5 / 10

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15 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.