Vyvgart User Reviews & Ratings

• Inland...
• Taken for 1 to 6 months
• December 22, 2022

For Myasthenia Gravis "I have had 4 Vyvgart treatments. After the first treatment, the next day had no slurring, no drooping eye, and I could eat without food falling out of my mouth. Each treatment felt better. Been 7 weeks and starting to have issues with speech. It sure was great till now."

• walter
• Taken for 1 to 2 years
• June 5, 2023

For Myasthenia Gravis "The first 2 cycles made the MG symptoms worse. one month after the second full cycle, I saw improvement and improvement has continued with each cycle. I believe I am as close to being in pre-MG condition as possible. I am currently on 4 weeks on, 8 weeks off, and could possibly have a longer off duration."

• Bob...
• Taken for 6 months to 1 year
• December 24, 2023

For Myasthenia Gravis "I have been on Vyvanse since Feb 2023. I started with the IV treatment, and now I am getting the Hytruloo treatment. Both forms have helped me get my strength and life back to somewhat normal. I am only at, I would say, 80% of where I used to be before I got MG, but before this medicine, I was probably at 50%. I had problems with the IVs; it took an average of 3 sticks for my veins to hold, so getting the Hytruloo treatment was a blessing for me. Although this shot only lasts for 2 minutes, it does burn quite a bit. We have found that icing the injection site for about 20 minutes is very helpful and greatly reduces the burning pain."

• Brenda...
• Taken for less than 1 month
• May 18, 2023

For Myasthenia Gravis "As of Tuesday, I received my third infusion. However, this is my first cycle. After the second infusion, I had an adverse effect. I usually experience droopy eyelids, but after the infusion, it totally shut my eye where I was unable to open it. After calling my neurologist, he had to prescribe 20mg of prednisone. This opened my eyelids back up to its normal droopy eyelids. As of today, I have not experienced improvement. I’m keeping hope alive that I will see improvement after I complete a full cycle."

• Great...
• Taken for 1 to 6 months
• January 21, 2024

For Myasthenia Gravis "Over the last ten years of coping with this disease, I’ve had IVIG, prednisone, mestinon, rituxan, ultomiris, and Soliris. Most gave me some relief. After my second injection of Vyvgart, there was a noticeable difference in MG symptoms. After my fourth injection, I feel free of MG symptoms completely. I’m almost 3 weeks since my last injection and still doing great - speech, weakness, droopy eye, and breathing are great. I had mild headache and backache for a few days after the injection. I am now waiting to see how long it lasts me."

• Natalia
• Taken for 1 to 2 years
• April 30, 2024

For Myasthenia Gravis "First of all, I was diagnosed 30 years ago, and it took me 3 years to get the right diagnosis. Over all these years, I have tried many medications, but the only medication that made me feel like I never had MG is Vyvgart. I know it's not easy to be a slave to a medication because I'm going to be honest, nobody tells you that you are going to be on that treatment forever! Every 50 days, counting from the first dose, you only have like 15 days to rest and then start all over again. I have to say that I asked my doctor to change from the infusion to the injection, and in the meantime, it took about 3 months for approval. It didn't get approved, so I was without the medication for more than 3 months. Without Vyvgart medication, I noticed something very weird, and it was that I started to feel like I got this condition for the first time all over again. It was horrible! I appreciate Vyvgart because it really works for me, but I have to get it every 50 days; if not, I'm going downhill even with Mestinon and Cellcept."

• Glene...
• Taken for 1 to 6 months
• October 25, 2023

For Myasthenia Gravis "I started Vyvanse on 10/02/2023 and so far, so good. No side effects, well tolerated."

• Doc
• Taken for 1 to 6 months
• March 29, 2024

For Myasthenia Gravis "On second cycle and see some steady improvement. Lost a little bit of taste, but my appetite is good. Balance has improved, and distance walking has picked up."