Libtayo User Reviews & Ratings

• kelly...
• Taken for 2 to 5 years
• June 26, 2023

For Squamous Cell Carcinoma "I'm alive today because of Libtayo. It truly has been a wonder drug for me. It brought me back from death's door when I was in hospice with leptomigineal disease from squamous cell carcinoma. My cancer was virtually eliminated at the time. Two years later, I am practicing law again, living life and loving every minute. I'm back on Libtayo as the cancer has flared up in my spine, but I have no side effects except some moderate fatigue. I'm sorry for people who get skin rashes and other problems, but my experience is wonderful. I was the first Mayo Jacksonville patient to receive the drug (right after FDA approval), and it has far surpassed its expectations. The nurses and doctors here speak of the drug very highly."

• Itisw...
• Taken for 6 months to 1 year
• February 2, 2023

For Squamous Cell Carcinoma "Overall I felt good, except for the terrible itching that started on my back , then my sides, then my legs , then my head. I tried everything the Dr prescribed and a dozen creams and powders, they only work temporarily a hour or so. Then my itching has turned into several sores, large rash like and painful, I wish I knew what would help me with this.I want to keep the treatment going as it's working on my CSCC and NSCLC. I have been on therapy for 8 months. I have 4 months to go. Pray for me. Thank you"

• Walt
• Taken for 1 to 2 years
• December 5, 2023

For Basal Cell Carcinoma "I've been on Libtayo since June 2022. Every 3 weeks. It's working very well and the main side effect is the horrible itching just about everywhere. I had BCC very badly. My oncologist said it was the worst case he had ever seen in his career. I was seeing a dermatologist at first and he had me on pill-based chemotherapy (Erivedge, I think) that was horrible, and it did not work after 10 months. I lost 40 lbs and felt like I was dying. As the sores turned into tumors, he gave up and sent me to an oncologist and then I had to have incision surgery to remove the tumors. The BCC had gone onto my skin very deep and was a major concern. The Libtayo was a lifesaver for sure. The schedule is for 2 years of treatment. I'm 18 months into treatment and doing well. I get CT scans every 12 weeks to monitor progress, which the doctor says I'm responding to very well. The itching has been my only problem, and Fexofenadine helps with it."

• Pat...
• Taken for less than 1 month
• May 16, 2023

For Squamous Cell Carcinoma "Had one treatment, and after 3 days I got a headache, diarrhea, rash, chills, felt weak, and ended up in the hospital for 3 days. I am now on prednisone to combat the rash and it has been 2 weeks and has not improved. Got off of Libtayo because of severe side effects. Now have to seek further treatment for side effects. Cancer has moved to the back burner. Very frustrating."

• Paul
• Taken for 1 to 6 months
• October 8, 2019

For Squamous Cell Carcinoma "It caused skin problems, fatigue and shortness of breath."

• Lotta...
• Taken for 1 to 6 months
• September 22, 2019

For Squamous Cell Carcinoma "Severe eczema on my legs, arms and back, along with itchy skin, feels like ants crawling all over my body for the first 3-4 weeks"