Belimumab User Reviews & Ratings (Page 3)
Brand names: Benlysta
Belimumab has an average rating of 7.9 out of 10 from a total of 59 reviews on Drugs.com. 68% of reviewers reported a positive experience, while 7% reported a negative experience.
Reviews for Belimumab
- Butte...
- Taken for less than 1 month
- August 29, 2021
For Lupus "I have SLE lupus and sjogren's syndrome and OA. Diagnosed in 2020, 15 years of living in pain no one seem to know what it was. Was told from depression/stress to just old age. I’m 49! I took hydroxycloroquine, Mexthotrexate, and felt like a guinea pig, neither of them worked made me WORSE! So my new RA dr said let’s try Autoinjector Benylsta. I took last night in belly, and I feel like I’m 30 again. I feel fabulous. one injection!!! I had a little spine back pain last night after injection and it did make me groggy, took at that night for that reason. I only drink water so I was already hydrated. But today, no inflammation, no muscle spasm, little to no joint pain and energy which I haven’t had in 15 years. They say day 2 and 3 are worse or later on injections, but taking it day by day! First time autoinjector this is what I did with little pain. Ice area 5 min or more till numb, wash hands, clean area, do not pull skin TAUT or pinch, inject, after injection place ice pack. BOOM!"
- DaniBev
- June 8, 2015
Benlysta (belimumab) for Lupus "infusion #2 and my joint pain and swelling went down almost immediately. I think I have finally FINALLY found the answer for me!"
Frequently asked questions
- PaGaPo
- June 29, 2014
Benlysta (belimumab) for Lupus "I have had incredible results, but at week three I come down hard, the good effect did not last the entire 4 weeks."
- Gr8to...
- Taken for 1 to 2 years
- October 26, 2013
Benlysta (belimumab) for Lupus "This medication has been a life saver for me. Even though I do have some very minor side effects, I wouldn't dare think of changing it!!!"
Are you taking this medicine?
- iltd
- Taken for 2 to 5 years
- April 25, 2023
Benlysta (belimumab) for Lupus "Benlysta has been a life saver for me. It did take some time for the medication to start working but after a year of being on it, I felt better than I had in years."
- Dmano
- Taken for less than 1 month
- April 9, 2018
Benlysta (belimumab) for Lupus "Exhaustion, bone pain , spine pain, ocular migraines, vertigo, potassium depletion, chest pain, heart problems, bone damage, memory problems, nastagmus, can't sleep due to pain, fevers, GI problems."
- Smile...
- Taken for 1 to 2 years
- May 17, 2018
Benlysta (belimumab) for Lupus "I’ve been back on Benlysta for past 2 years this go around. Lately I don’t feel the treatment is working anymore. I experienced increased shortness of breath , leg pain and headaches."
- Nadia
- Taken for 1 to 2 years
- March 16, 2024
Benlysta (belimumab) for Lupus "I love it. Benlysta has changed my life for the better."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
More about belimumab
- Check interactions
- Compare alternatives
- Side effects
- Dosage information
- During pregnancy
- Drug class: selective immunosuppressants
- Breastfeeding
- En español
Patient resources
- Belimumab drug information
- Belimumab (Advanced Reading)
- Belimumab Auto-Injectors and Prefilled Syringes
For Lupus "It eventually gives me increased daytime energy for which I am grateful, but simultaneously causes insomnia that I haven't been able to defeat despite trying many sleep aids. It is also giving me unusual nightmares and I'm definitely gaining weight despite eating less than usual. I believe I've ruled out other factors that could be contributing to the weight increase, and should point out that I'm in that 50-59 age bracket that showed weight gain in a clinical trial. Having gone off for 2 weeks and restarting, I'm confident that it is also the reason for an increase in my autoinflammatory disease. Most concerning is I'm crying sporadically and it's difficult to control. This went away during my break from Benlysta. Unfortunately, the side effects are outweighing the benefits so far."