JillynnieI am curious to know if anyone has ever had a reaction to subs that is similar to what I am having. It feels like (to me) that the subs are building up in my system and causing some symptoms that are similar to RA and Fibro. I was wondering if it is, in fact, my disease, or could it be the medication.
I understand that Subs can cause swelling and problems if you have a reaction to it, but according to my subs doc, that will show up within the first few weeks of taking it. I have been on subs since mid August and the first month my Fibro pain was at a 0-1 level. I feel as time goes by my symptoms are getting progressively worse. I have pain in my joints, hands, elbows, ankles, knees, hips... etc. For whatever reason, it seems to me that it is a build up of subs in my system. I was wondering if anyone else who has ever been on or is on this medication ever had something similar?
I will be going in for testing for RA, Lupus, MS, Thyroid, etc..all of the diseases that have similar symptoms to rule them out, but I feel except for the first month that I was on Subs, I have gone down hill in my pain/aches, etc.
I also just recently switched from Cymbalta to Savella to see if I would have better luck with this. So far, can't tell any difference. I am decreasing my Amitriptyline because it makes me too sleepy and I don't want to be on this med at all. (I was on 50mg and am down to 25mg a day.) I also take Buspar 3x day and Baclofen 3x day.
Any feedback would be greatly appreciated.
Thank you,
Jillynnie
Robert_325
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Anonymous 17 Dec 2011
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Thank you for that info. What sort of relief could I expect from the Lyrica or Savella? I don't know what I can feasibly expect to happen? I guess because I have yet to feel better, just progressively worse, I don't know what these meds have the possibility of doing?
NSAIDS are not in my vocabulary. I have tried so many different ones and with food and prior to bedtime, etc. I just can't handle them, they jack my stomach up so badly. I can take Ibuprophen but that is about it.
Anyway, I think I may be struggling with some depression, too. I am not sure if the Amitriptyline was supposed to address that, but I can't stay on this stuff forever. I was using the subs for the pain (as you know) but, what is the point if I am still hurting. Definitely will continue my taper after the holidays. Battling the nausea with every day has affected me, too. Don't mean to sound whiny..at all... I just feel like I am going in the opposite direction and it is really taking its toll on me.
If the Savella works for you then you should be able to see an improvement in a couple weeks at least. If that doesn't happen you could try the Lyrica. It may or may not work better. I guess that is why they call it "practicing" medicine. lol Drs don't know if a particular med will work for you exactly like they want it to. That is why they change people's meds at times. I would be out of place to tell you anything more specific than that. Fibro and other autoimmune disorders are tough to even diagnose, let alone find the exact right med for you personally that keeps them under control. Welcome to my world. I can't begin to tell you how many meds I've had to try over the last 20 years that I've dealt with autoimmune illnesses. They are some of the toughest of all problems to treat. It's a hit and miss game for the drs for the most part with treatments.
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Getting done with that sub taper is going to be a big step in the right direction though. Hope that helps, though I realize the only thing I told you is there are no guarantees with hardly any med. But that is a sad reality of dealing with autoimmune problems.