My boyfriend was diagnosed with cirrhosis of the liver a year and a half ago.Since then he has become more of an alcoholic than ever. He hasn't seen a doctor in over a year and doesn't want to see one.When he was first diagnosed his platelets in his blood were low and they wanted to do a transfusion so he could get his biopsy done.The doctor had him booked with a liver specialist never went to that appointment either.He is looking more sicker everyday has liver spots all over his face,lost weight,had swelling in the stomach and legs but that has stopped for now,sleeping pattern is all mixed up,his mental behavior has changed,loss of memory,spider veins everywhere and so on.This is so hard for me to deal with and I know he's being very selfish and not thinking of what he's putting his family and me through!When he first went to the doctor I'm sure he was in his last stage so I'm wondering how long does a person live for with that disease and especially with the excessive amount of drinking he's doing.I love him and have stood by him but now I'm starting to feel very angry with him knowing how selfish he's being and what he's putting me through.I feel like leaving him but the guilty side of me makes me stay because all I keep thinking is what if he goes and I'm not there for him.I'm in a rock and a hard place but I also feel I'm gonna be sick myself if I keep going through this with him.This is the most stressful thing a person has to go through and I don't wish it upon anyone.Can someone please give me an answer as to how much longer he has thank you.
6 Jan 2014
My wife was an alcoholic who had end-stage liver disease. She was first diagnosed with it over nine years ago at age 46. She suffered greatly, exhibiting most of the symptoms. At age 51 she took her last drink because she had a massive stroke. At age 55 she died; the liver disease had continued to progress. I just pray your boyfriend stops drinking now. I experienced so much from being her care-giver, and I wish this on no one else, it was so difficult.
28 Sep 2013
You are living my life. My best answer to you is take care of you. Find a small pleasure or time just for you everyday even if it is a 15 minute walk. I know how you feel i want to run the other way. This disease is so awful to watch, i have done everything in my power to get him good medical care. But if the patient doesn't do everything in their power to try and get better, it's not your problem. I don't know how much longer he will live i ask myself that question everyday. We only have to day. If you can run, i have children or i would have left a long time ago, still i am always trying to figure it out. You are not alone or selfish
2 Aug 2013
I am deeply sorry for all you are dealing with.
I lost my one true friend to this disease on the 31st of July, so this is very fresh to me.
She was diagnosed 2 1/2 years ago and from everything I can gather during talks with family and friends, I was the only person in her world that knew. She sobered up for 4+ months and began drinking again after she realized there was no hope that she could receive Medicaid. I tried to encourage her otherwise, but being a recovering Alcoholic myself, I knew it was pointless. She kept it a secret from everyone else in her world, including her live in boyfriend. (I had NO idea that no one else knew) She slowly started showing all of the classic signs of end stages 4 months ago, itching, trouble breathing, darkening of urine, protruding abdomen (not obvious due to her previous weight), blacking out and confusion. Sadly, one of her blackouts led to a broken arm and she finally agreed to go to the ER and have it checked out. She was told she had top be admitted and went into a panic. this led to respiratory failure. They revived her, sedated her and placed her on a ventilator. Long story short, that's when the discovered how far gone she was. Several weeks later it was determined she had no electrical activity in her brain and the plug was pulled. It has been a horrible experience. I rest in the fact that she is no longer suffering.
At 5 years sober, I would like to offer you some insight into the Alcoholic brain to ease your mind and set you free. There is nothing you or anyone else can do to get him to stop drinking. At this point, his addiction is so progressed, there is nothing HE can do to quit drinking. Alcoholism is a disease. No matter how hard I tried, I couldn't quit alone. Being an Alcoholic was as painful to me as it was to those around me and maybe even more so. The shame, despair and anguish is sheer torture. I had to make the decision to quit drinking based on what little self love I had left. I had to have massive support to quit and dealing with every day life was a major struggle. It is still pretty tough even after that long. I am now and will always be one drink away from losing everything I have worked so hard to rebuild. It's lifelong.
You have no fault in this whatsoever. I agree with all of the posts that say to care for yourself now and do what you have to do in order to have peace in your world.
Knowing this, I never preached to my friend. I was always there to listen to her feelings and what she was going through and to offer my love. I would have gladly helped her clean, shop (for anything BUT alcohol), or anything else that needed to be done, if she would have let me. She wouldn't because of her shame.
I hope this helps you have some insight on this.
Say the Serenity Prayer as many times as you need to daily. It truly helps.
Sending you love
21 Dec 2015
Hi I have just lost my dad last Monday to this. We have only just today found out after a post mortem this is the cause of death. It's still very raw and I'm in shock that it was so sudden. I wanted to ask a question. Would my dad have known? He had the flu jab 2 weeks ago and since then went down hill. 2 years ago he was taken to hospital because he had hurt his back and he ended up in a wheel chair or using a walking aid to help him. Doctors couldn't find out what was wrong with him and checked everything they have said. My dad was a heavy drinker and I'm worried that they have missed this. Is this why my dad was always in pain and rubbing his stomach? His teeth where falling out he has a swollen stomach which docs gave him water tablets. A couple of months ago (September) he went to do a with a rash on his arms they told him it was scabies.
He also had diabetes but handled that with healthy eaten ( when he could eat) so cut long story short Friday the 11th Dec dad was not feeling great and Saturday he sleep most of the day the. Woke up and never went back to sleep as though he knew it was scared to go to sleep. Sunday he never went to the toilet drank anything or got out of bed. He was very confused and thrashing about the bed. 5.10am mum had been up with him since Saturday thinking it was flu like my dad had thought due to the jab but at that time mum went to the bathroom came back saw he was bleeding from the mouth could get a response and called ambulance they told him to get him in the floor and give CPR and when she started that all this blood came up out his mouth and he was gone. Please can someone shed light on this if my dad could have known or if he knew he was going and wanted to be at home with my mum. I need answers to let me move on. Thanks.
19 Apr 2013
Hi, my name is Denise.
It hurts me to tell you this but my brother-in-law was going through the same thing. He was a heavy drinker ( years of brinking beer and liqour). Last year Noember or December he was hospitalized because he got a very bad seizure, That was when they diagnosed him with cirrhosis. He kept drinking and he looked fine, the doctor's gave him 3 years to live if he kept drinking. Well, he kept drinking and started using speed. He went to the hospital 1 more time and came back to doing the same thing. He was sleeping in the street and everything. Paramedics picked him up at a liqour store because he started throwing up blood, we thought he would get better, he was at the hospital for about a month getting blood everyday, the blood would come out through cuts, when he would use the restroom, throwing up and even coughing. Well, after that month he came home, the doctor's said all we could do for him was just to keep him comfortable (these were his last days). I rememner he came home on a Sunday, was looking okay, had his kids with him playing with him. But as the days went by he started looking pale, yellow, sometimes swollen,and itchy he would sleep for hours fromt he medicine he was receiving, when he would wake up he seemed confused, kinda lost like if he couldn't see a thing and just mumble. As the days went on he started looking weaker and weaker. On the 17th of April 2013 he passed away. He woke up all of a sudden and again had that confused look, looked desperate like he couldn't breathe. I left the house I had some errands to do. A few hours later his dad called and said that he passed away. His mom explained to me that after that heavy breathing i got to see he got worse. She tried to calm him down call his name so he could come to his senses. He had a 24 hr nurse with him, the nurse said there was nothing they could do calling paramedics would not help. he called her out "ama" and threw up a bunch of brown blood and just passed away. The doctor explained to my mother-in-law that before dying he would be sleeping, wake up, he would be confused with heavy breathing and that, that was going to it.
It was very sad to see that, but its caused only by themselves.
he will forever be missed and remembered.
6 Jul 2015
I see this thread has been going for some time and is still active. From all my research (poking around) over the last 8 months I gather that there is no answer to this question. Each case is different, only thing they have in common is either a transplant or passing on. The varices and personality changes are signs of problems but a timeline, no.
My wife and I got her diagnosis last November, tomorrow we go for her third blood draw and later this month an esophageal scope and 3D ultrasonic imaging of the portal vein and liver and they will probably look at the kidneys as well. The cause of her liver disease is genetic but not a recognized ailment, kind of a generic genetic problem. Over the last year she has lost about 40% of her body mass, had varicies, asceties, edema, and is showing some hepatic encephalopathy. Her sleep cycle reversed and is now erratic and appetite is very little and she retches after anything to drink or eat. Hopefully the new MELD will be high enough that we can get something moving.
This is the first active site I have found and I suppose I'm here for support though my search was for a timeline that I knew I would not find. Neither of our families are able to deal with the fact that she is dying, we no longer get phone calls, email, or visits. Only one couple, long time friends, and a neighbor who checks on her when I'm at work are still in regular contact. This is something that really troubles me. Why is it that so many people can't deal with the failing health of a loved one?
23 Oct 2015
I can't answer this question cause I'm looking for answers myself I just found out my uncle who's gay is 77 years old has cirrhosis of the liver and he drinks a lot but in he's in denial I told him what it meant he understands he's respond is I'm going to put my papers in order so I need to know how long before he gets get worse
9 Apr 2014
My husband passed away with the same thing. He also kept drinking i was so mad at him. If he stops drinking he will live longer. My husband was diagnosed in 2004 and because he continued to drink he became very ill in 2007 and was on the transplant list but he passed in 2008. I know excatly what you are going threw stay by him he needs you
7 Mar 2015
Hi.. Im sorry about all of the sad posts Ive read here, my heart goes out to you all. Someone was wondering if her boyfriend was being a jerk to her while hes suffering with his illness. Ive read that liver damage may cause toxins in the brain which causes confusion etc. and possible coma. I don't think hes being a jerk, I think its his condition. Here's a website that some of you may benefit from. Natural wellness. com. Im going to invest in the Milk thistle as my boyfriend just told me that he has liver disease. Im angry because he wasnt honest in the beginning. We met 30yrs ago when we were children..He claimed he was inlove with me but he was 3yrs older and I was not interested in boys lol. However, we remained good friends until I moved away. I never saw or heard from him again until 6months ago and we have been inseparable ever since. He wants to marry me but Im afraid of what the future would be like with him. I do know that I don't want to be without him.
also, anyone with questions on the disease can just type in cirrohsis of the the liver in your browser and it pull up lots of helpful information. I wish you all the best
21 Nov 2013
I am sorry to hear what everyone is going through. I am experiencing this right now with my son's father. We are not married or nor do we live together. He has been a drinker ever since I met him. I have tried to tell him to stop. 1 week ago, he was given a second chance. He fell and his buddy called he ambulance. Everything is messed up. He was in ICU for 3 1/2 days. His spleen and liver are swollen. He has bruises, his veins nearly collapsed, he has cirrhosis, anemia, a polyp on his gallbladder, his hemoglobin was 4.2 when admitted, now as of yesterday it was 8.5. His blood is thin, everything is just screwed up. Thankfully after several prayers a day, he is improving. Still a long way to go and recovery will be hard. He cannot go living in the environment he was in. He told me he was scared. He looked death straight in the face and was very fortunate. Doctors say he is so lucky to be alive. We think it sunk it now.
He will be going to rehab for physical therapy too when he gets out..not back to that house. We are hoping we can get him more therapy so however much time he has left with us will be happy. Our son and myself cannot lose him! We lost my mom last year to kidney cancer, so I am not ready to lose someone else to something that he was so stubborn not to listen to anyone. If looking death in the face is what I took to help him, then I am glad the good Lord did not take him from last week. His jaundice is starting to get better. My heart goes out to all families and friends you are experiencing all this as well. Be supportive and and lots of prayers. Prayers work in the most unusual ways that I have experienced with other family members. God Bless !
30 Jul 2013
I'm so sorry to hear what you are going through. I lost my brother just 9 months ago to cirrhosis of the liver and he was only 29 years old. He was never formally diagnosed with the disease. We didn't find out about it until an autopsy was performed and it was concluded that was the cause of death. About a year before he died he started losing weight and muscle mass drastically. Looking back on it now that was the first sign that he was getting sick but at the time we didn't know. We just thought he was trying to lose weight on his own. The weight loss was the only symptom he had up until 1 month of his death. About 4 weeks before he died he started feeling sick but nothing more than flu like symptoms: weakness, ear ache, cough, etc.
He wouldn't go to the ER and we didn't force him because everyone (including himself) thought it was just a cold and to use over the counter meds. A day or two before he passed he started getting jaundice in his face/eyes, coughing up blood, loss of balance, always tired and slept a lot, swollen stomach, and unable to control his bowels. My parents were finally going to force him to go to the ER but when they went to wake him out of his sleep he was already gone. He had died in his sleep at 29 on 10/11/12. He was a drinker and had been for sometime but no one knew because he was so good at hiding it. I don't think there's a "time limit" on how long a person lives in the final stage. It all depends on the persons overall health, family history, if there's any other issues aside from the liver damage, etc. once my brother's autopsy came back it was learned he was in the beginning stages of congestive heart failure. This was probably contributed to his drinking but point is his drinking contributed to other areas of his body not working right aside from the liver damage and could have sped up his death. Because my brother was never formally diagnosed with this and death was so unexpected, my family and I never got the chance to say our good-byes and thats something that is hard living with. He was here one afternoon and gone the next morning. I pray that whatever time you have left with your loved one, especially knowing they don't have much time, that you will grasp every second and use it wisely. Tell them anything and everything you'd like. After the person is gone you will never get that chance, and for situations like mine, I never got the opportunity at all. May God and peace be with you
10 Dec 2014
Ther is not a right answer to your question, my husband has end stages cirrhosis of the liver caused by alcoholism. He is under Hospice care he was diagnosed with end stage cirrhosis in Oct of 2013 and told less than 2 years to live. He stopped drinking 5 month before his diagnosis. He has anywhere from 1 month to 11 months to live no person is the same but the Dr told him if he didn't quit drinking he would be dead in a month at that time he was vomiting blood, and pooping blood, drinking from 5 am till 11pm every day, forgetting little things and losing stuff. My husband now eats maybe 2 child size meals a day and drinks lots of sweet tea. But he is mostly like a 2 year old, trying to figure out how to do every day tasks. Cirrhosis of the liver is a slow painful death and it can affect other organs such as the heart, kidneys and stomache. Alcoholics who have cirrhosis can die from bleeding out of the stomache, esaufagus and brain.
Ammonia collects in the brain making them have delusions and make them black out. In short they can live many years of die suddenly no 2 people are the same.
2 Jan 2014
I'm in a very similar boat as you and I just can't take it anymore, but at the same time I can't do anything about it either. The doctor told my father that he has cirrhosis a little more than a year back and told him that even smelling alcohol is a sin for him, so drinking it is completely out of the question. Obviously, he's been drinking like a mad man ever since, not caring about me or my mother and what we are going through. He drinks in the morning, sleeps, then drinks again in the evening and sleeps. Repeat the next day.
I've tried talking to him, but we just end up fighting.. a lot, so I realised theres no point. You can't help someone if they don't want to help themselves. Its become very, very hard living in the same house as him and seeing my mom the way she is, so honestly as much as I hate to say it, even I'm just waiting for the day his body finally collapses. Its amazing that he's come as far as he has, seeing his condition. He obviously isn't enjoying the life he is living right now, he's just going through the motions and literally suffocating his family with each passing minute, without a care in the world. Dear God please either make him stop having alcohol (not that it will save him now, but at least we'll be able to have some family time), or just take him away peacefully. Please.
8 Sep 2014
My heart goes out to you my son who was 26 died of this condition 9 months ago. This is very hard for anyone to deal with, and I must say your loyalty to your boyfriend I do appreciate and understand. My son was in endstage about two years, but everyone is different. Remember whatever is happening to your boyfriend he is not rationale the toxin in the liver on top of drinking has gone to his brain. My son's personality over the year changed. As he approached the end he went for drinking more with personality changes, losing weight & sleep different hours. My heart goes out to you, and his family I hope he does not push his loved ones away, and I hope you all can endure. Try to remember the man you love really is mentally gone, and the way he is acting is the disease. Hugs & your boyfriends family.
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