The initial outbreak of shingles I had was accompanied by viral meningitis which was diagnosed vy a spinal draw and brain scan. It's now been 17 months that i have been challenged with PHN in mid-section area for which I have tried Cymbalta, Lyrica, Vicodin, Tramadol, Gabapentin, acupuncture, Indigo bio-feedback, neural therapy (injections of a procaine-like substance into scars to energetically create anew nerve path), three different procedures to try & identify the nerve in the spine causing the issue. Nothing seems to help, but I must say that if I compare the pain to that of a year ago, it has diminished somewhat - I am grateful for any small improvements! The chronic pain is beginning to wear me down and I feel horribly depressed. Thus, am considering the marijuana. Would appreciate any input. Thanks
1 Jul 2012
If you live in a state where medical marijuana is legal, and it certainly seems you've tried everything else under the sun for your pain, I give trying it a big thumbs up. I know many people it has helped, and you might feel a bit more laid back.
17 Jul 2012
TangoAnn, I say go for it if you can get it ! I have had PHN for 4 years, tried everything and nothing works... that's a lot of pain. I use the hydrocodone as well, when I'm not working. Have you tried Horizant? I'm suppose to start it this Thursday, something new used for restless leg and PHN.Ice packs do give some temporary relief... hang in there.
26 Jan 2014
I have had PHN for 8 years. What works for me is 2-3 motrin and icy hot right on the area. I have it on my right shoulder blade. I have never tried any other drugs for it, don't really like even taking motrin. But when the pain gets unbearable, I take it. Will look into medical marijuana, if it gets legalized, or we move to a state that it is.
15 Jul 2014
I have phn in my right ulnar nerve. Been 13 yrs. now. I take hydrocodone and ultram. I switch off every two weeks. It keeps me sane, and mostly functional. I got shingles when I was 55 so I retired. I don`t use marijuana, but I did when I was in Vietnam. I don`t know if it could help with the pain, but I`m quite sure it could help the inevitable depression. The longer I have it, the better I get with coping. Personally, distractions are everything to me. My Grandkids, my hobbies, TV, the Internet, frequently all at the same time. Keep busy!!! When you get in a funk, that`s when it all goes to hell. I think marijuana could help a lot in getting out of those holes of self-pity. Sleeping is the biggest problem for me, because there are no distractions when you`re lying in bed. Marijuana may help with that. I don`t know, but I am suddenly more interested in checking it out. My best advice? Don`t fight it. Don`t think about it. Don`t talk about it.
Absolutely, don`t dwell on it! Ignore it. It`s just part of the new you. The longer you have it, the more normal it becomes. Take your pills at the same times every day. Don`t think, "well, do I really need to take this pill now, or can I wait a while?" Also, don`t think about maybe needing to take the pill a little earlier. All thoughts like that do is make you think about it. It`s a vicious circle. I also had a 2nd bout with shingles. This time in my left ulnar nerve. It was much milder, and miraculously, the pain went away in about 2 or 3 weeks. One of the top ten happiest moments of my life! I hope what I`ve said here might help somebody new to phn. Your world has changed, but you can get on with your life. Vietnam taught me that you really can get used to anything if you have no other choice. Marijuana just might help sometimes, but make sure it`s only sometimes.
26 Sep 2015
I know this is an old post, and I hope you get it. I have a friend who is 80 and has a lot of pain. I think she's tried everything to. We live in CA with legal medical cannabis. She's tried THC salves, (but hurt to put on) , drops of cannabis oil and did not find relief. But, I see so many people being helped with cannabis, I'm sure it would help take the edge off if nothing else. Put you in a better mood. Let me know what's worked for you. Hope you're getting it under control.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
i.e, Has anyone's doctor had any answer to that? Has anyone found anything other than drugs that help the pain?
7 answers • 14 Sep 2009
I have tried many medications/treatments... Topamax, Lyrica, Famvir, Carbatrol, Carbatrol + Baclofen, and acupuncture. None have worked. I have had ...
7 answers • 8 Nov 2010
Dear all My mother is a 77 years old sufferer of PHN who has been trying obediently all the range of drugs (Gabapentin-Neurontin... nerve blocking ...
10 answers • 15 Dec 2013
... and came across this support group. I've been suffering from this PHN for over 20 years now, and it seems to be getting worse. I got the ...
1 answer • 20 Nov 2014
Postherpetic Neuralgia - Are there any local support groups for PHN? I know it depends on where you?
... live, just curious as to how to find one? Thanks for all of you! I appreciate having access to others with this condition. My other question... ...
2 answers • 9 Oct 2015