The initial outbreak of shingles I had was accompanied by viral meningitis which was diagnosed vy a spinal draw and brain scan. It's now been 17 months that i have been challenged with PHN in mid-section area for which I have tried Cymbalta, Lyrica, Vicodin, Tramadol, Gabapentin, acupuncture, Indigo bio-feedback, neural therapy (injections of a procaine-like substance into scars to energetically create anew nerve path), three different procedures to try & identify the nerve in the spine causing the issue. Nothing seems to help, but I must say that if I compare the pain to that of a year ago, it has diminished somewhat - I am grateful for any small improvements! The chronic pain is beginning to wear me down and I feel horribly depressed. Thus, am considering the marijuana. Would appreciate any input. Thanks
1 Jul 2012
If you live in a state where medical marijuana is legal, and it certainly seems you've tried everything else under the sun for your pain, I give trying it a big thumbs up. I know many people it has helped, and you might feel a bit more laid back.
17 Jul 2012
TangoAnn, I say go for it if you can get it ! I have had PHN for 4 years, tried everything and nothing works... that's a lot of pain. I use the hydrocodone as well, when I'm not working. Have you tried Horizant? I'm suppose to start it this Thursday, something new used for restless leg and PHN.Ice packs do give some temporary relief... hang in there.
26 Jan 2014
I have had PHN for 8 years. What works for me is 2-3 motrin and icy hot right on the area. I have it on my right shoulder blade. I have never tried any other drugs for it, don't really like even taking motrin. But when the pain gets unbearable, I take it. Will look into medical marijuana, if it gets legalized, or we move to a state that it is.
15 Jul 2014
I have phn in my right ulnar nerve. Been 13 yrs. now. I take hydrocodone and ultram. I switch off every two weeks. It keeps me sane, and mostly functional. I got shingles when I was 55 so I retired. I don`t use marijuana, but I did when I was in Vietnam. I don`t know if it could help with the pain, but I`m quite sure it could help the inevitable depression. The longer I have it, the better I get with coping. Personally, distractions are everything to me. My Grandkids, my hobbies, TV, the Internet, frequently all at the same time. Keep busy!!! When you get in a funk, that`s when it all goes to hell. I think marijuana could help a lot in getting out of those holes of self-pity. Sleeping is the biggest problem for me, because there are no distractions when you`re lying in bed. Marijuana may help with that. I don`t know, but I am suddenly more interested in checking it out. My best advice? Don`t fight it. Don`t think about it. Don`t talk about it.
Absolutely, don`t dwell on it! Ignore it. It`s just part of the new you. The longer you have it, the more normal it becomes. Take your pills at the same times every day. Don`t think, "well, do I really need to take this pill now, or can I wait a while?" Also, don`t think about maybe needing to take the pill a little earlier. All thoughts like that do is make you think about it. It`s a vicious circle. I also had a 2nd bout with shingles. This time in my left ulnar nerve. It was much milder, and miraculously, the pain went away in about 2 or 3 weeks. One of the top ten happiest moments of my life! I hope what I`ve said here might help somebody new to phn. Your world has changed, but you can get on with your life. Vietnam taught me that you really can get used to anything if you have no other choice. Marijuana just might help sometimes, but make sure it`s only sometimes.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
I have phn on my face and it is healing, I think. It is also in my ear. The itching is worse at night. I have used Sarna but would like to try ...
1 answer • 28 Feb 2010
Postherpetic Neuralgia - I have phn on my head and face - I have not beeen able to wash my hair in 2
... 1/2 weeks - the episodes are subsiding - when can I try to wash my hair and with what, warm or cool water? I am on elevil and lyrica Meredet
2 answers • 19 Aug 2011
( not genital herpes) Initial zoster infection was on the hip ?
1 answer • 26 Nov 2013
Postherpetic Neuralgia - Hi, I had Shingles followed by PHN (then followed by Bell's Palsy) about 15
... years ago. I do take anti-anxiety meds and have annual physicals where I discuss my issues with my doctor. My question is after this long, I ...
1 answer • 11 Nov 2014
... and came across this support group. I've been suffering from this PHN for over 20 years now, and it seems to be getting worse. I got the ...
1 answer • 20 Nov 2014