i.e, Has anyone's doctor had any answer to that? Has anyone found anything other than drugs that help the pain?
I'm wondering if anyone has any idea how long PHN usually hangs on before it runs its course?
Question posted by Wyzwolfe on 14 Sep 2009
Last updated on 25 February 2021 by Sklarkin
Hi all, I haven't figured out how to delete questions, but this has been online for quite a while, so if someone out there can tell me how to delete the question, that would be great. Meanwhile, the simple answer seems to be that no-one (doctors included) know: it varies from person to person. One must wait it out and see.
Thanks to all who replied.
Wyzwolfe
10 Answers
I have been affected since 2009. I have tried every protocol available and have been seen by 28 doctors. They all say the same thing “take your drugs” which I loathe. I have other chronic pain problems as well but PHN pain is very difficult to manage. Gel ice packs do help.
I had shingles 11/2016... the rash was of short duration; however the PHN is still with me... right, lower quadrant as well as the right back... the pain calms, then gets angry and really hurts like now - 2:31 a.m. and that's why I'm asking how long can it last. My doctor says it varies with the person... so I try to ignore it - have tried gabapentin which had no effect. I agree with a prior response... drugs don't seem to be the answer... so I will continue to "try" to ignore the pain and maybe one day it really will heal itself... I have to hope since there does not seem to be a medical solution.
I took myself off all drugs as the side affects were not worth it. My doctor put me on a vegan diet & I take immune support supplements. PHN happens because of a break down of your immune system. Build up your immune system & it will suppress the virus. Get rid of stress in your life too! The drugs will only damage your body even more long term. Find a naturopathic who will work with you. It’s hard work but worth it..
As all of my doctors have told me-"you just have to wait til it goes away"- 3mos, 6mos, yrs... I had shingles mid March, which became PHN- and as we all know, the pain is awful. I have tried all kinds of meds,vitamins,accupunture, and alot of prayers. Right now is month 5- and thankfully I have reached a kind of plateau. My affected area is my right eye(which is still being treated for the shingles virus),right forehead and that triangle back to the top/back of my head. I am taking Lyrica 175mg tid,Lycine 500mg daily,Biotic vit daily, B12 sl bid,Vit b stress comples daily,Nucynta 50mg bid for pain(which I am weaning off of),Elavil 5mg hs... and for the past 2 wks I have actually started to feel like a human being again(YES!) The numbness/pain is there, maybe a level 3, but I can deal with it.
It is the first time in 5 mos that I think there might be a light at the end of the tunnel! After being off work for 5 mos- I anticipate going back, hopefully in the next few months... a first for me. So there is my answer-as I am sure everyone has there own story..thanks for listening cj PS.I forgot to add my topical mixture I put on my forehead/"hot spots"- it is a mixture of ketaphen,lidocaine,neurontin and Klonopin-works wonders.
Wyzwolfe, Your submission is 2 1/2 yrs old. But if you still have the PHN, you might want to check out brookskin.com and read the testimonials. It,s an all herbal application. Good luck.
gbrooks
Hi all... I've had PHN for a year. Every site/doctor I have spoken to says it can last months or years, no one gives a specific amount of time. I have also tried to find this answer with no luck. I have tried Topamax, Lyrica, Carbatrol and Carbatrol + Baclofen to ease pain, but none have worked. The only thing that sometimes takes the edge off is Percocet, but it makes me so sick that usually I'm sobbing by the time I take it. Acupuncture didn't work, neither did Lidocaine cream. I don't know if Capsaicin/Qtenza patch would work, only since my PHN has moved to my face and is in/near my eye. I'd love answers, too!
I am going into my fourth year with PHN. I am now trying accupuncture, have had three treatments and have found some relief. This Dr. Yang does it a different way than just sticking needles in you. He used 23 needles just in my back, seven in my ear, ect. These are then hooked up to a machine and you can feel them working. The only problem is that Medicare does not cover these treatments, so I am limited financially as to how many I can afford, as they are not cheap.
My mother has had PHN after having shingles almost two years ago! It is so painful for her she can't even stand the slightest touch. Her doctor has no answer as to how long it will last. Some meds help alittle. She takes lyrica, hydrocodone, a sleeping pill, and uses the lidocaine patch, and ibuprofen seems to help. She went to a pain management clinic but did not get much relief. The pain is so severe that she has trouble walking.She said the only time it does not hurt is when she is asleep. Sometime I think that it will never go away! We pray every day that it will. I hope and pray yours does also. I hope this answered a few of your questions.
Wish I could help. Have know idea what PHN is. Dave (mpvt) or Robert_325 are very smart guys. They could give you a wealth of information... Sorry I could not be of more assistance... Good Luck and God Bless...
Hi Kimmie, thanks for your feedback. I'm a total greenhorn to this forum.. should I be trying to ask Dave (mpvt) or Robert_325 directly? And if so, how do I reach them?
PHN is the short form for post-herpetic neuralgia. Its a condition you can get after shingles, where pain continues along the affected nerve path. Not everyone who gets shingles get PHN afterwards, just some. I'm one of the unlucky ones. I had shingles from last June to Sept, then PHN from last Oct until now.. and it's still going strong. I've been on almost the same meds as when I had shingles. Very discouraging.
So I wondered if anyone on this forum has had this PHN and knows a bit more firsthand than what I can find out online or from my doctor.
Wyzwolfe
Sorry love, my mother-in-law had shingles for a while. She went to the E.R. and they gave her something. Not sure. But to my knowledge she did not get PHN. Is is very painful? I know the shingles were. She is a tough old gal she just hung in there and took over the counter pain stuff. Best of Luck..Wish you a speedy recovery... Kimmie
try this link it may be of some help. http://en.wikipedia.org/wiki/PHN
Thanks Phil. Wikipedia is a super site and explains PHN and treatments extremely well. The thing is that the websites I've found are not definite as to how long PHN takes to run its course. I'm looking more for the personal touch here, as in "real humans" and how long their PHN took to clear up.. assuming there's someone on the forum who's had it!! I do appreciate your reply. Thanks again for your input! Wyzwolfe
no problem completely understand
I have been told by doctors of varying backgrounds "years" or "your whole life." It's been 2.5 years for me, and it seems like a lifetime! I'd love to find some hope out there, that there could be an end in site, but so far, I can't.
I've had PHN for 13 years now and it's not a lot better. Hate to give you bad news, but the longer you have it, the less of a chance of it going away.
Related topics
pain, neuralgia, postherpetic neuralgia
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