... hyperthyroidism. An ultrasound revealed I have a fairly large goiter on my thyroid an my symptoms from the hyperthyroid are worsening so, doctor has decided its best just to remove my thyroid. I was wondering if there was anyone out there with something similar to my case. How did you feel once the thyroid was removed? Did you begin to gain a lot of weight? Did you have a plan prior to removal? Did you immediately become hypo?
19 Jan 2014
Hello all, i'm having my daughter type this for me. I had a complete Thyroidectomy On Thursday Jan 16, 2014 the decision on having a compete removal was my Drs decision because my thyroid was attacking my organs. I was having heart palpitations, was diagnosed with lupus a few weeks ago an after being on methimazole 100 mg daily for 2yrs an, my numbers was at heart attack an stroke range, I was getting to the point I couldn't swallow an breathing was difficult. I have severe arthritis an edema due to my thyroid, my surgery didn't go as well as some of the others I read, I had to get 23 staples because my Goiter was very large so my cut it almost from ear to ear. I'm having a lot of pain associated with the incision, I popped two of my staples an have an infection..running a high fever, nauseated an still swollen which is expected.
haven't started my synthroid yet due to infection, but I have started my propranolol,Trama-dol, Norco,Trazo-done Meloxicam, an throat spray with cough suppressant, the medicine is helping to an extent but I knew going into the surgery it was going to be a long recovery, I have Great Dr's and Surgeons an now my next step is staying on a regiment an following my Dr orders, keeping my appt an I'll have to get my bw done every 6weeks for 6 months then every 3 months if all is well. I know up be hypo an have to watch out for signs of a thyroid storm, due to my other health related issues. But I have strong faith. An at age 35
single parent of 5 ( 20, 17,15, 13 an 2) year old giving up is not an option. Good luck to Each of you an y'all are i'm my prayer
ving up is not an option, , , surgeont
2 Apr 2015
I just had my thyroid removed on Friday. The surgery went well. Was sent home on Saturday. Was feeling fine all weekend. Monday my hands and legs started having spasms. They got so bad that i could not control them. My doctor told me to come to the office. He sent me directly to ER. They took some tests and found that my calcium level was way too low. They had to give me four bags of calcium before it reached the desired level. I'm still having slight twitches in my legs. I don't know what's causing that. I don't know if it's due to my sciatic nerve problem or what but it is very painful. My legs and hands are so sore from the spasms.
9 May 2014
Without a thyroid you will become hypo so meds for the rest of life is a small price. I believe everyone is different so read the post but mostly listen to your body. Ask questions and keep your doctor abreast of your situation, If ever you feel he/she is not listening then you may have to change doctors. Remember you are a customer. Make sure you get calcium T4 T3 and TSH levels pre surgery. Document your journey this will help you in recovery and help you in communicating with your doctor. My family history is maternal grandmother, maternal first cousin and her daughter all with hyperthyroidism. I am a nurse who just had her thyroid removed 4/21 due to hypothyroidism. Surgery went well. D3 post surgery developed the tingling due to loss of calcium from parathyroid response to surgery. This was corrected with a trip to the ED.
I am now having issues with the my vocals not opening and closing so I am getting some breathy moments, light raspy voice and difficulty with swallowing thin liquids. Surgeon had me see ENT and I can tell you I was not impressed. ENT seemed to be very eager to give me a tracheotomy (hole in throat). I am just at 2.5 weeks post surgery and I will get a second opinion before doing something so drastic and I still have healing to do. I believe the nerves will be restored. This is not that common so I will err on the side of caution and wait at least 6 weeks. In my years of nursing I have heard horror stories of patients who took the word of doctors without yield to their gut instincts. This is my body and I only get this one so I'm not letting someone else tell me what I'm feeling. I am able to get in 2 miles of walking daily. My pre surgery was 3 miles. I am tolerating my Levo dose w/o difficulty and on steroids. I have also lost 3 lbs. I had a pretty large goiter. yet a small scar (awesome surgeon) My symptoms pre surgery were fatigue, extreme cold, constipation, weight gain regardless of exercise, hair loss, dry skin, sinus issues, shortness of breath, right shoulder pain, tired tongue, and chronic fatigue. I have instant relief of all symptoms with the exception of of shortness of breath oh and I guess I will have to wait to see if my hair grows back. In preparation I shaved it all off so that I could see first hand how soon it will grow. I am not worried about my current state after reading study literature on my same issues, things look hopeful. I have always taught my chemo patients to stay as close to normal as they can while going through treatment and rest the body or the body will rest you. I take this literally and as I can I am adding my daily routine back into my life. But I listen to my body. My surgeon is one I have referred to many times so I know his reputation. I am pleased that I now have red cheeks and warm skin. My children noticed immediately that I don't need a blanket in the house. I am switching endo docs (another story) so right now my surgeon is in charge of my meds. You should do well.
20 May 2013
Hi I am currently same age and have been given the choice of surgery or radiation bomb I have three kids so I'm unsure of radiation but my symptoms are bulging eyes goitre headaches sore throat racing pulse and the flu like symptoms I also have trouble sleeping so I am miserable all the time I wanted to know if you have had your surgery and if it was done in Australia ?
15 Jun 2013
Your question and all the responses have been so helpful. My surgery is next week and that plus being reliant on a drug the rest of my life scares me.
These posts have been calming. I hope your surgery went well and your feeling great.
Any thoughts on knowing if you have a good doctor?
14 Aug 2013
Haven't seen any response about an update of your surgery Lacy, hope all is well.I appreciate the words of encouragement that I have read for those that have had surgery.
Here is my story:
I am 30-years old and I am scheduled for thyroid removal surgery in 2 weeks. I am definitely nervous since all of this has accelerated in the last month. I have had low end but still average TSH levels for years now. Early on they detected a goiter, but nothing was done except for ultrasounds to determine if it had grown or not. There was no substantial growth so nothing was done. Last August I missed my ultrasound due to changing insurances, and locating a new Dr. that was in "scope" of my plan. I put off getting an ultrasound due to those factors and early this year I felt uncomfortable pressure on my right side of my neck. I knew it had to be my goiter getting bigger. After still having insurance issues in getting the correct label and coding for my current Dr., I seen the office as an "urgent care" patient, something I have been having to do all year due to confusion in paperwork. I had asked my primary care doctor to provide be labs to get it tested and she told me to wait until I schedule an appointment due to my insurance issues. Anyways, I received a referral to ENT specialist for a different minor reason and mentioned my thyroid since this was my chance to speak to a specialist. The doctor touched my neck and his whole face changed, he immediately scheduled me for an MRI. I had the MRI done and the doctor scheduled surgery 3 weeks after the scan.
According to him, my thyroid is one of the largest he has seen. Only one other as been bigger. I may have to be sedated over night due to swelling. My operation is scheduled for 4-5 hours, a typical one is 1.5 hours.
My question to those that have hyperthyroidism is after removal were you able to lose weight? I have recently lost 50 lbs with diet and exercise. Is this going to set me back? I have heard stories of people losing weight afterwards but I do not know what their TSH levels were.
Also, I have another question:
Has anyone had a severely enlarged thyroid as myself, mine is suppose to be 4x the size of the average persons. How did your surgery turn out?
Thanks in advance for your response. I hope this encourages others to monitor their goiters more closely. It could be the difference of a routine surgery, to a major one like mine.
11 Dec 2012
I had a major depression in 2006 and was prescribed Lithium. That cause me to become hypothyroid in 2007. Unfortunetely in 2011 I was diagnosed with Thyroid Cancer. I had it removed January 2012. I was in the hospital for 3 days because I had trouble with my Calcium levels. You need some pain killer like Advil for when you come out of surgery for a few days. A little hard to eat anything hard. Hard to swallow for a few days too. Then in March I had Rai treatment (Radio Active Iodine) but you will not need that. It is only when you have Cancer. I feel great since I had my thyroid out. I'm not tired anymore. I didn't realise I still felt tired until I had it out. You will feel better. You still need Synthroid to stablelize your sinthetic thyroid for life. But it is well worth it! You will see. I did gain weight, but I just turned 50 so I have been going through menopause. So I have gained about 10 pounds on that and I ate alot of junk in the summer so another 7 pounds there. I said a prayer for your surgery for you!
25 Jul 2014
I had the left side of my thyroid removed 4 years ago, in 2010, due to a large goiter, about 7.5 cm. It took 2 years of going from doctor to doctor, trying to find out why I felt so bad, so fatigued, hair falling out, so many symptoms. My tsh was in the normal range, so no one wanted to look at my thyroid any further as the source of my problems. I was in an endocrinoligists office one day, and he gave me my blood test results, telling me my tsh results were normal, everything was normal, and he couldn't really help me. Tears came to my eyes, and I asked him what I was supposed to do, because there was still something wrong with me. He looked at me, and asked me if I had ever been to see a psychiatrist. If I had had the energy, I would have punched him right in his nose!! I finally found a doctor that suggested we ultrasound my thyroid to see what was going on in there. The left side had a large goiter and the right side had a small goiter.
We did another in 6 months and the right remained the same, but the left was growing fairly fast. Had an inclusive biopsy, and had the left side removed. Benign!! Now, 4 years later, the right side is growing, after having remained the same for all this time!! When they grow, that can be an indication of cancer, so now I'm going to be totally without a thyroid, not to mention the risk that there may be cancer. I'm not afraid of the surgery. I'm not having symptoms right now. I am just really bummed about having no thyroid at all. And scared about the possibility of cancer. :(
7 May 2012
Me again. Just remember that for every story of something going wrong like our friend here, there are thousands of success stories. The surgery is very common and the Results well known. My surgeon had done a few thousand after 40 years. Delaying the surgery can risk your life. It has been a month. Please take care of this soon. Stay in touch, Karen
18 Dec 2013
I had my thyroid removed in sept this yr 2013 I felt great for around 5 weeks after surgery then bam it hit me paulputations anxiety depression hot sweats tight chest (breathlessness) and all together feeling awful my levels are now normal but I still feel down and anxious has anyone experienced this even when there levels are suppose to be normal?
6 Apr 2014
I had my thyroids completely removed Feb 17th due to nodules that turned out to be positive of that dreaded word... Anyway, the surgery was 3 hours and I was given RAI 3 days ago to get rid of any residuals from the surgery. The recuperating has been horrible because the swelling, constipation, mood swings, eating habits, weight gain and the feeling that I am wearing a tight dog collar has gotten the best of me. Have not started my meds yet until a scanning is done. Once those results are in I should start. Thanks to the support of my family I am getting through this and the grace of God. I am glad to read in other comments that you do go back to "normal" which is a good thing ! Thank you all for sharing!
22 Feb 2014
I had all my Thyroid removed 8 years ago
My neck swelled up overnight I had many tests and was told I had an over active thyroid. the hospital treatment I first received was awful, I was put on Carbimasol ( ? spelling) I was on this for 3 year in which time I put weight on. eventually I was sent to another hospital to have radio active treatment, when is saw the Dr there he said it had been left far to long and that all he could do was remove it, but he did ask me if I suffered from heavy periods is said yes very, he said that was caused by the drug carbimazol which had very bad side affects and that I had been kept on it longer than was recommended.
He then sent me to a 3rd hospital Dartford were I had the operation. I was in for a week a 5 hour operation when I came round I was very sick and had two drainage pipes from my neck to two bottles which I had with me and were filled with blood for 3 days. the scar was from ear to ear the Surgeon told me one of my thyroids was the size of a tennis ball the other the size of an apple he said he could see how I breathed.
8 years later my life has never been the same I have put on so much weight felt miserable and fed up and over 8 years I am still having thyroid blood tests for thyroxin levels because they just cant get them right I had another Thursday and am of to the Drs Monday for the result. DONT KNOW WHAT TO DO
2 Mar 2015
Hello I was diagnose Hyperthyroidism May 2013. Now they want to remove both thyroid gland. I don't know if the surgery well help. Or something temporarily. Right now it doesn't bother me as much. Still have symptoms: not sleeping, constant eating, weight gain, mood swings, fatigue, depression, hard to breathe, tiredness, pain, etc.. But after all these years I learned to deal with it. I feel that the doctors don't listening to me when I say the medicine doesn't work. I still don't understand hyperthyroidism and why surgery.
6 Jun 2013
I had a full thyroidectomy 5 1/2 years ago. I had Graves Disease and nodules. I became very sick one winter and started to rapidly loose weight. 60lbs in 3 months. I decided on my own-to have surgery to remove as the nodules could be cancerous. Surgery took 3 hours as I had a large mass below my thyroid. Nodules turned out to be cancerous. I met with an endo and we started the process of getting ready for radiation. I was on no thyroid for a few months until my levels bottomed out. During this time I was severely constipated and just overall sick. I took the radiation pill and for safety reasons-for 6 weeks I stayed away from my grandchildren (my choice). I used paper plates and paper cups for the 3 days and took my 5 showers a day. All in all the cancer is gone, I have dry mouth which is very annoying. My hair is thinner and coarser. It falls out easy. I did gain weight afterwards more so than normal.
My eating habits have not changed, but I am now hypo thyroid, no energy what so ever. Depression and night sweats, mood swings. I blame the thyroid. I am glad I had the surgery and the radiation. I am I the care of a fantastic endo. Review your options and talk to GOOD Dr.'s. Take care and God Bless you all.
16 Apr 2012
Hello. First, yes I had my entire thyroid removed. Your questions are good.
The surgery is easy. Day surgery and goes well unless the goiter is causing extra problems. Your surgeon will let you know that part. I had very little pain with it. Tylenol took care of it.
As far as how you feel, the docs will give you a thyroid medicine that will give a normal amount for your body to respond to. You will be feeling very much better than you have for along time. Sometimes it has to be adjusted a while.
Weight gain is due to eating and is in your control. Because the medicine is putting you back to normal you will not be hypo or hyper. Just normal once you adjust to the med and take it as they prescribe. So no more hungry or less so than before the goiter.
Only adjustment I had was to remember to take it first thing each morning half an hour before you eat with a big glass of water. That is it.
Let me know if you have any questions. Good luck with the surgery.
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