... be cyclical
Cushing's Syndrome - I'm feeling very desperate right now for my 17 yr old daughter...it appears to?
Question posted by ceebee2 on 9 Nov 2013
I apologize--I apparently did not post my question and info correctly. My daughter has episodic high cortisol levels. No exogenous cortisol intake. She's gained 60lbs in 2 yrs, has severe acne that is cystic in some areas and spread to her back, chest and back of arms. She has a large amt of striae on her hips, flank and posterior arms which started way before her weight soared. Her periods are irregular, she is fatigued all the time, brain fog is terrible and she has an obvious buffalo hump. Her testosterone is high and she has had two episodes of 'normal' cortisol levels and two episodes of high cortisol levels. Recent labs showed 'normal', including the 24hr UFC. Current doc (whom she's seen 3 times), told us today, "Her cortisol is normal so there's no Cushing's". I'm floored! If it looks and walks like a duck AND quacks like a duck, isn't it a DUCK??? I suggested it was time for my daughter to see a Cushing's specialist--he thought it was a bit premature to do so. He said he'd order another 24hr UFC and possibly a dex suppression test depending--I said I didn't think that they would tell us much more, esp if this is cyclical Cushing's. I believe times-a-wasting and I'm very concerned about my daughter. How can this NOT be Cushing's SYNDROME if she has MANY of it's symptoms? How can a doc say this isn't Cushing's Syndrome when it's staring him in the face? Doesn't that warrant an aggressive workup?? Please help
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