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Firdapse for Lambert-Eaton Myasthenic Syndrome User Reviews

Firdapse has an average rating of 1.0 out of 10 from a total of 3 reviews for the treatment of Lambert-Eaton Myasthenic Syndrome. 0% of reviewers reported a positive experience, while 100% reported a negative experience.

Firdapse rating summary

1.0/10 average rating

3 ratings from 3 user reviews.

Compare all 3 medications used in the treatment of Lambert-Eaton Myasthenic Syndrome.

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  • Ann
  • Taken for 6 months to 1 year
  • March 30, 2020

"I took firdapse for about 9 months and I had so many side effects. I had a pain in my lower back that went from one hip to the other hip. When I got up in the morning, I could barely walk. It took until afternoon for it to go away, if it did then. I had pains in my thighs and upper arms. After I took the medication, it would take 2 hours for it to work and then it would only last an hour. My previous medicine it took 20 minutes for it to take effect and lasted for 4 hours. I would never recommend this medicine. There are other ones out there that are better. My insurance covered it while on it with help from a foundation but when I stopped using it, they no longer covered it."

1 / 10
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  • Lois
  • April 2, 2023

"Much worse side effects than 3,4-diaminopyridine. In addition, it dramatically exacerbated a kidney problem. Plus it does not last the 4 hours 3,4-diaminopyridine and or Ruzurgi lasted. The FDA did monumental damage to the LEMS patients, and the company which produced Firdapse should be sued and the FDA Approval stripped."

1 / 10
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  • Liz
  • Taken for less than 1 month
  • August 8, 2019

"Allergic. Definitely not the same as 3,4, DAP\Ruzurgi (which I am not allergic to)."

1 / 10
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6 Report

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Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.

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