Upadacitinib User Reviews & Ratings (Page 4)
Brand names: Rinvoq, Rinvoq LQ
Upadacitinib has an average rating of 6.8 out of 10 from a total of 192 reviews on Drugs.com. 54% of reviewers reported a positive experience, while 21% reported a negative experience.
Reviews for Upadacitinib
- jam...
- Taken for less than 1 month
- September 14, 2022
Rinvoq (upadacitinib) for Rheumatoid Arthritis "I started this medicine after Enbrel and Humira failed me. Within a week of taking this medicine, I got shingles, rashes, mouth sores, awful stomach pain, back pain, and my heart was racing at 120 beats a minute. I tried to reason with my Dr, she said the benefits outweigh the risks. I say not, so I am quitting the med and hoping for the best."
- meg...
- Taken for 1 to 2 years
- August 19, 2021
Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have been on Rinvoq for over a year. I previously tried Xeljanz and Olumiant. I have had many problems with dizziness and vertigo. Has anyone else experienced these problems while on this class of drugs? I would appreciate any information on this debilitating problem. Thanks."
Frequently asked questions
- What are the most common skin conditions? (with photos)
- What are the new drugs for rheumatoid arthritis (RA)?
- What is the MOA and half-life for Rinvoq?
- RBM...
- Taken for 1 to 6 months
- May 24, 2022
Rinvoq (upadacitinib) for Rheumatoid Arthritis "I was taking methotrexate ($67 a month) for 14 years. I still had a little pain and inflammation in my joints. My rheumatologist prescribed Rinvoq ($6,300 a month). I took it for 3 months. The first 3 weeks, it worked because I still had methotrexate in my body, but after that, my pain came back a lot stronger! Finally, I went back to methotrexate, but for some reason, methotrexate did not work as good anymore as it worked before I started taking Rinvoq. I am totally disabled to the point that I can’t even do simple things I used to do before I took Rinvoq. I think Rinvoq changed something in my body that is not repairable. This is a very bad drug."
- Oli...
- Taken for 2 to 5 years
- September 6, 2022
Rinvoq (upadacitinib) for Rheumatoid Arthritis "I started this medication 5 yrs after my RA diagnosis. Went through and failed all the others from methotrexate to Humira and Enbrel. I was a shell of my former self when I started Rinvoq. Much to my surprise, it worked immediately. With it came abdominal pain and gastric distress, several bouts of diverticulitis, UTI, and kidney infection. That being said, I went from immobile to mobile, which is a huge consideration. Due to the many infections, my rheumatologist recommended 3 x a week dosing, 15 mg. Much to my dismay, the infections continue. I was just off this med entirely for 6 weeks and returned due to the onset of pain and stiffness in my joints. I do plan on using half my prescribed dose from here on out. If infections persist, I'm gonna have to call it quits. There are side effects to antibiotics (Levofloxacin), such as spontaneous tendon rupture, that pale in comparison to my worst RA day. Do my best to eat right, stay in a normal weight range, and walk, and hope for the best."
Are you taking this medicine?
Your review helps others make informed decisions.- J-S...
- Taken for 1 to 6 months
- November 8, 2023
Rinvoq (upadacitinib) for Ulcerative Colitis "My body has been rejecting biological meds, so this is my first time trying this. I'm on 45mg. I'm having crazy side effects like throat dryness and skin itching and bubbling with open sores. But I will start maintenance dose in Dec, 30mg, and the doctor says side effects will ease up. First time in six years, body inflammation is almost zero. I hope this will work long term, like 20+ years for me."
- joh...
- Taken for 1 to 6 months
- April 14, 2023
Rinvoq (upadacitinib) for Atopic Dermatitis "I had uncontrollable itching and tried all sorts of things to help and was finally prescribed Rinvoq. With no insurance, I was able to sign up for a free Rx. Rinvoq gave me my life back. The itching was gone!!! Then I started seeing the side effects of shortness of breath, my legs breaking out in what appeared to be massive acne, and I am getting headaches, and a slight cough. I have taken it for 3 months and a little of the itching has come back, I am definitely looking for an alternative."
- Liz...
- Taken for 1 to 2 years
- July 4, 2022
Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have RA and Ménière’s (inner ear problem). Rinvoq worsens my inner ear problem, causing increased vertigo. Stopped Rinvoq temporarily for another reason. Vertigo episodes disappeared! Restarted Rinvoq: vertigo returned a week later. Stopped the Rinvoq for 3 weeks again: vertigo disappeared. Restarted Rinvoq: vertigo returned. When I take Rinvoq every other day instead of daily, vertigo episodes are +/- one per month. When I take Rinvoq daily, vertigo episodes are 1 or 2 per day. Rinvoq exacerbates my inner ear problem, making Ménière’s more difficult to control, resulting in more frequent vertigo. Several reviews mention vertigo and dizziness on Rinvoq, but vertigo doesn’t show up in the official side effects list. If you’re having vertigo, spinning sensation, dizziness on Rinvoq, please post here, tell MD, and tell specialty pharmacy. They won’t list it as an uncommon side effect if they don’t know about it. They won’t know about it unless we tell them."
- Dav...
- Taken for 2 to 5 years
- August 24, 2022
Rinvoq (upadacitinib) for Rheumatoid Arthritis "Five years ago, I got diagnosed with rheumatoid arthritis. I was 32 years old, and it was crippling. Considering my second son was just born, it was not good timing. I tried every medicine. I felt like a guinea pig. Nothing really worked. My rheumatologist was getting a little desperate, and that scared me for sure. I tried all types of diets, the carnivore diet definitely worked the best, and getting rid of carbs was big. Some days, I still could barely walk. Rinvoq was amazing, I've been on it for about two years, and I'm 92% better. I can't say much about many side effects. I have an eczema sun rash, but nobody really knows if that's from the medicine. Small price to pay if it is. I wish I knew more diet stuff earlier. The best for me was the carnivore diet (no carbs), but I didn't really try the full vegan diet long enough to tell. In any case, diets really help, but they have to be strict! Overall, Rinvoq was the game changer. Hopefully, no long-term side effects."
- Joe...
- Taken for 1 to 6 months
- July 17, 2023
Rinvoq (upadacitinib) for Ankylosing Spondylitis "I have been on Rinvoq for 5 months. I noticed relief as soon as 4 weeks on this medication and I have continued to slowly get better and better. I'm hoping and praying it continues to work for me. My only complaint is a lot of depression, which is something I have never experienced in my whole life and I am 58 years old, so I'm certain it is Rinvoq. The only reason I have been determined to tolerate it is because I have gotten such good relief from the symptoms of ankylosing spondylitis."
- Kch...
- Taken for 1 to 6 months
- July 6, 2023
Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have been on Rinvoq for 1 month. I had my labs drawn today and my results of my CBC are alarming! Low WBC, RBC, Platelets and more. I'm stopping this med and calling my Dr first thing in the morning."
- Jhu...
- Taken for 1 to 6 months
- May 2, 2023
Rinvoq (upadacitinib) for Atopic Dermatitis "This drug is an absolute life saver! Prior to taking it I had no quality of life. I had severe itching which resulted in approximately 3 hours of sleep a night. The itching was driving me insane to the point like seemed too hard. No medications, creams or lotions worked. I was using a fork to scratch my skin as my nails couldn't relieve the itch. Within about 4 weeks after starting Rinvoq I started getting significant relief. I have been on it for 6 months and the itch issue is 100% gone. The horrendous eczema on my hands that was cracked and bleeding has cleared up as well and an added bonus is I was spontaneously bruising very significantly. I could be sitting watching TV or sleeping at night and I would be covered daily in severe large purple bruises on my body and face. I had no trauma to my body but they spontaneously appeared.I looked like I had been in a bad accident when I was doing nothing to warrant bruising. They have progressively improved to only a few bruises"
- Tom...
- Taken for 6 months to 1 year
- January 6, 2024
Rinvoq (upadacitinib) for Atopic Dermatitis "It's not a miracle cure like they say. I believe there is a 60% improvement in my eczema after being on it for about half a year. No side effects that I've noticed, which is good. Overall, I suppose it's better than nothing, but it's just a little sad to realize there is still no medication that can cure eczema by at least 90% or more, though I realize that biologics work almost fully for some people. I'm just not one of them."
- Swe...
- Taken for 1 to 6 months
- June 7, 2023
Rinvoq (upadacitinib) for Ulcerative Colitis "I have been suffering from colitis for the last 7 years. I have been using rinvoq last 2 months. It’s working well for me but I have had a large hair loss. Don't know if its because of Rinvoq. However, it looks like my life is back thanks to Rinvoq."
- Stu...
- Taken for less than 1 month
- August 31, 2021
Rinvoq (upadacitinib) for Rheumatoid Arthritis "I have psoriatic arthritis, just got off of one medication that kept me sick 3/4 of the time and prescribed Rinvoq. After reading all these comments, I have decided not to take this. I would rather suffer with my arthritis than subject myself to more sickness. The last 3 months on the other medication have been a living nightmare, and I don't want that again."
- Pat...
- Taken for 1 to 6 months
- May 22, 2023
Rinvoq (upadacitinib) for Psoriatic Arthritis "I’ve been searching for relief of psoriatic arthritis in fingers, wrists, knees, ankles, toes, neck, and spine, along with major scalp inflammation and intense itching and burning. After 9 weeks of the 15 mg dose, my arthritis has improved by about 30%. No adverse side effects. This Rinvoq is the most helpful of all that I’ve tried."
- Cam...
- Taken for 1 to 6 months
- March 19, 2024
Rinvoq (upadacitinib) for Ankylosing Spondylitis "I have gotten sick regularly with this drug. It helped my arthritis, but I stopped taking it for 3 days when I started to get a fever and night sweats. After three days of stopping the medication, my arthritis came back with a vengeance, and I started taking it again even though I was sick. I still have back pain and joint pain."
- AxP...
- Taken for less than 1 month
- November 20, 2023
Rinvoq (upadacitinib) for Ankylosing Spondylitis "Within one day, I felt less pain and less stiffness. I can finally walk, and walking the stairs and standing up from a chair is much easier now! It works really fast. Before starting Rinvoq, I had a huge flare-up of AS and Crohn's disease (IBD). I could barely walk. Do others also have mood drops after taking this med? Feeling jittery, sad, almost depressed. I tapered down my dosage to one pill every two days to measure the side effects. Both times, my mood dropped. If it continues, I'll have to switch to another drug. Depression is a no-go for me."
- UCo...
- Taken for less than 1 month
- March 18, 2023
Rinvoq (upadacitinib) for Ulcerative Colitis "I was given Rinvoq for treatment of my Ulcerative Colitis by my Gastroenterologist. Unfortunately, after only my 1st induction dose of 45 mg, I suffered an allergic reaction with the following symptoms: headache, constricted nasal passages, difficulty breathing, pain in my upper back, pain in my lungs, lungs felt like they were burning, lightheadedness, blurry/ fuzzy vision, numbness in my left arm, pain in my left arm, cold sweats, and pain in my abdomen. Ended in the ER and ER doctor said to stop taking this medication."
- Dar...
- February 28, 2022
Rinvoq (upadacitinib) for Rheumatoid Arthritis "I am a 61-year-old woman. I was diagnosed with RA years ago. My specialist had me on so many meds, I even had to take injections. They didn't work, I was in so much pain. I had a hard time getting up in the morning and walking around. I have it in my hands, fingers, toes, ankles, and knees. I started seeing a new specialist, and he put me on Rinvoq. I have been on it for almost 2 years. I have been noticing I am always tired and sleep a lot. I don't know if this is because of the meds, or is it just me. I have been breathing deeper too, so is this normal or what? But I do not have any pain. I can walk again without pain."
- Anonymous
- Taken for 1 to 2 years
- July 1, 2022
Rinvoq (upadacitinib) for Rheumatoid Arthritis "Been on Rinvoq for nearly two years. I started at 67 when I couldn't walk from bad Rheumatoid Arthritis. Both knees had cysts and shooting pain from a fall of bike several years ago woke me up nites. Rinvoq worked miracle for me. Started gardening and cooking again. Only take every other day as I am about 120 lbs, 5 ft 6 inches tall. Also as an elderly person, meds don't metabolize as quickly. However, I do stop taking whenever I feel a scratchy throat or run down from cold symptoms. Also stop if I get a mouth sore from biting my self when chewing."
- Pet...
- Taken for 6 months to 1 year
- April 10, 2023
Rinvoq (upadacitinib) for Rheumatoid Arthritis "Severe respiratory issues, shortness of breath, small skin sores all over my body, and fatigue. I've had severe rheumatoid arthritis for some 35 years now. I've been on pretty much every medication available with some of them giving pretty severe reactions. In my case, Rinvoq has been one of the more difficult medications regarding the side effects I've experienced. Having said that, we're all different what affects one may not cause the same issues with another."
- Anonymous
- May 3, 2020
Rinvoq (upadacitinib) for Rheumatoid Arthritis "Has anyone tried this after Humira? I was on Humira for years and did great, but had to stop when I couldn't afford it because I was student teaching. Fast forward about 4 years later and wanted to get back on it... been on for a year but not seeing the same result after restarting... granted, I haven't always been able to be consistent with it because the mail-order specialty pharmacy my insurance uses is a mess."
- Nor...
- Taken for less than 1 month
- May 12, 2023
Rinvoq (upadacitinib) for Rheumatoid Arthritis "My doctor has recently asked me to start Rinvoq. I’ve had RA for 24 years and have been on Methotrexate, alsulfadine, Plaquenil, enbrel, Orencia, Kevsara, and Cimzia. I’ve had multiple foot surgeries to correct deformities. I’m so bad now I’m wondering if I can continue to drive a car. I can barely lace my shoes. I finally acquired a bad infection and have spent months on IV meds plus another surgery. I thought things couldn’t be much worse but after reading the reports of all of these horrible side effects I realize things could be MUCH worse. I’ll eat the cost of this drug this month but I won’t take it. How does the FDA allow drugs like this to be released? How can it be effective when you pay for it in misery?"
- Tad...
- Taken for 1 to 2 years
- February 2, 2024
Rinvoq (upadacitinib) for Rheumatoid Arthritis "Rinvoq has been the only medicine that has helped, minus steroids, in my 3-year battle with severe RA. It has come with its fair share of side effects, with the most prominent one being dizziness and vertigo spells lasting for long periods of time daily. I have also experienced mild cases of heart discomfort and acne. It's hard to weigh in if it's worth it, as it's the only medication, minus steroids as mentioned before, that has worked. I've tried just about all medications besides one more, so it's alarming that I'm on my last 2 options. I'm continuing for now."
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Rinvoq (upadacitinib) for Atopic Dermatitis "Severe atopic dermatitis popped up out of nowhere a year ago (reaction to 3rd Pfizer vaccine remains suspect). Outbreak had started to taper off at the beginning of 15 mg/day Rinvoq regimen. Continued progress through 2.5 months when I got a 4th Pfizer vaccine, at which point itchy spots started appearing again. Still, nothing like my initial outbreak but the jury's still out as to Rinvoq's effectiveness after 3.5 months. 68-year-old male. No side effects."