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User Reviews for Panhematin

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

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Porphyria 1 reviews 3 medications
   
10

Reviews for Panhematin

For Porphyria "This breakthrough medication is what kept me alive for 27 years living with chronic Acute Intermittent Porphyria. During the course of treatments the adverse effect was the effect it had on my peripheral veins. I had a negligent doctor insist that it was administered through my vein access in my arms. Leaving me with continual painful thrombosis from the IV's that blew because it is very caustic and harmful to the small vein access. After many years and my attacks that required hospitalization became more frequent, other ER doctors needed to put in emergency Central Venous lines and were angry with me while doing it. It took many years to find a doctor finally who ordered the Port a catheter placement and I have received 10 of those."

   
10

Louise Schlosser (taken for 10 years or more) January 23, 2016

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