Guselkumab for Psoriasis User Reviews
Brand names: Tremfya
Guselkumab has an average rating of 7.1 out of 10 from a total of 19 reviews for the treatment of Psoriasis. 63% of reviewers reported a positive experience, while 21% reported a negative experience.
Reviews for Guselkumab
- Toasty
- Taken for 1 to 2 years
- August 11, 2020
Tremfya (guselkumab) "I’ve been on Tremfya for about a year now. I’ve been a lifelong sufferer of psoriasis and this was the first drug that really cleared up my skin. It’s been amazing but my only issue is that it’s now causing me sensitivity to the sun. I break out with a horrible itchy rash on my hands and chest. I’ve tried all kinds of treatments for that and have yet to find a successful one. Is this happening to anyone else? Do you have a thought about what I can do about it? I waited so many years to have clear skin and now this. "
- Scott
- Taken for 1 to 6 months
- November 29, 2021
Tremfya (guselkumab) "I feel like just so awful! Very sick with pain and I think I have inverse psoriasis Very painful and very itchy. I didn't have any of these issues till I started Tremfya. I have been on the medication for 7 months and went to the Dr and they said keep taking it and if my condition doesn't get better go to your primary. What???? They are the specialists. Don't know what to do please help."
Frequently asked questions
- Is Tremfya a biological?
- What are the new drugs for plaque psoriasis?
- How does Tremfya work to treat plaque and psoriatic arthritis?
- LC83
- Taken for 6 months to 1 year
- October 4, 2019
Tremfya (guselkumab) "Been on Tremfya for about a year now. I had some form of psoriasis on about 80% of my body before I began treatment. After the first injection I had 70% clearer skin and 100% after the second. The needle is tiny and it is really easy to give myself the injection with little to no discomfort. No joint pain, I have hypothyroidism so I cannot comment on the fatigue side effects as I am always tired anyway. Did have minor headaches for a couple days after injections. Loved the drug but within the last month I have started developing plaques on my scalp and elbows again. Sad doesn’t even begin to describe my emotions. I have another 4 weeks until my next injection so we’ll see what happens. Heading back to the dermatologist if my symptoms worsen after that."
- Ambo
- Taken for 6 months to 1 year
- April 26, 2019
Tremfya (guselkumab) "Been on Tremfya for over 6 months. Cleared 100% almost immediately. Failed Humira and Cosentyx previously. Body aches and joint pain on the rise. Cold sores occurring. A couple of intense colds . Energy drain. So far worth the side effects for me. For now:)"
Are you taking this medicine?
- Bob
- Taken for 6 months to 1 year
- June 10, 2020
Tremfya (guselkumab) "I have psoriasis but I take this medicine more for psoriatic arthritis. It has not yet been approved by the FDA as of this writing for that purpose. Other medicines in the same category have been approved for this treatment. My psoriasis plaques cleared about 95% after a few months. No side effects that I've noticed. My only complaint is that you take the medicine every 8 weeks on maintenance dosage. By the 6th week I have bad joint pain flare ups in my knees and hand joints. So usually by that time I'm asking for a cortisone shot and begin taking meloxicam along with it until my next dose."
- Anonymous
- Taken for 6 months to 1 year
- August 5, 2019
Tremfya (guselkumab) "I started Tremfya in February 2019. Now my skin is clear, joint pain 90% gone, however, questionable upper respiratory infection after the 2nd shot, and bronchitis after 3rd and now 4th shot. Side effects after 4th shot included worsening bronchitis, fever, chills, and big time malaise... almost flu like symptoms. Continuing to take Tremfya until I can trend the patterns and make sure they are related under my Dr's observations."
- KSlice
- Taken for 6 months to 1 year
- October 29, 2020
Tremfya (guselkumab) "I have been on Tremfya for about 12 months now and have really loved the results. I do have small flare ups just before I am due to take my next injection but over all I have remained psoriasis free. I do have some joint pain which I assume is from the Tremfya but even so it is worth it. Wes, I think you will find getting hypothyroidism could be linked to already having an autoimmune condition such as psoriasis. Often when you have one auto immune condition you are at risk of ending up with two or three. I have both of these conditions. I find intermittent fasting does help a little bit with my overall health."
- Walt
- Taken for 1 to 6 months
- December 1, 2020
Tremfya (guselkumab) "Dermatologist recommended I switch from Enbrel to Tremfya after 7 years of my psoriasis under control. Tremfya did nothing. My scaling came back in multiple areas and I had blotching on my face as well. Bye bye Tremfya."
- Terri
- Taken for 1 to 2 years
- November 1, 2023
Tremfya (guselkumab) "I am 62 years old. I started 100mg/mL Tremfya injections one year ago after suffering for 10 years with progressively worsening psoriasis. I had spots all over my body, including my privates. I was depressed and spent hours daily taking care of my skin (baths, exfoliating, moisturizing). I didn't want to go out or let anyone see my skin. Within a week of my starter dose, there was visible improvement. By 2 months, I was completely clear of all psoriasis spots. What a relief! I'm back to my old self! I have no difficulty administering the injection myself at home, and the pharmacy delivers it right to my door. I've had no negative side effects. Tremfya has been a lifesaver for me."
- Healing...
- September 19, 2020
Tremfya (guselkumab) "Hi, Ive been on steroids few times in past 10 years. The only thing that helps me is healing naturally without steroids and medication. The healing process includes holistic approach not just physical but emotional and spiritual approach."
- Anonymous
- Taken for 1 to 6 months
- January 6, 2024
Tremfya (guselkumab) "I loved Tremfya at first. I have guttate and scalp psoriasis, and it cleared my scalp so fast. The spots on my body are 99% gone, and now there’s just pigmentation. I've stopped scratching behind my ears and the parts of my body with psoriasis on them. Tremfya has helped clear my skin! However, after the second injection, I noticed I started to gain weight. Not only this, but I started experiencing constipation and harder bowel movements. After my fourth injection, I've gained 10 pounds. My periods are irregular and heavier. I've never had these issues before Tremfya. It sucks because it works so well for my psoriasis, but the side effects are not worth it. I will be getting off of Tremfya and letting my hormones and body readjust. Maybe it’s just not right for me or because I'm 22, I think my body just reacted very badly to it."
- Locks...
- Taken for 1 to 2 years
- September 8, 2019
Tremfya (guselkumab) "15 mo on Tremfya for Psoriasis Pros: confidence in public settings, 100% skin clearance, super easy company to work with if insurance won’t cover, once every 8 weeks after startup compared to daily. Cons: many bouts of upper respiratory illnesses, several skin infections, skin sensitivity to sun, diarrhea, extreme tiredness week before my shot, will not help joints."
- DMSEDD
- Taken for 2 to 5 years
- October 26, 2023
Tremfya (guselkumab) "I've been taking Tremfya for 2.5 years. Tremfya was the only medication that worked for my psoriasis. I had bad side effects to 5+ others I tried first. Humira actually made it way worse. My doctor said I had the worst case of psoriasis he had ever seen and he has been practicing for 30+ years. After being on Tremfya for 6+ months, I noticed I began to have to urinate more frequently. After a year on Tremfya, it began to become an issue because sometimes I couldn't hold my bladder long enough to make it to the bathroom. This has gotten worse over the past year, to the point where I have pain in my urethra at times. If I take 600-800mg of ibuprofen when this pain starts, it seems to help ease the urethral pain. I talked to my case manager at Janssen and she said a side effect listed is frequent urination. I hate to switch meds because of the difficulty I've had finding something that works, but I no longer qualify for the patient assistance program."
- ekey
- Taken for 6 months to 1 year
- January 12, 2023
Tremfya (guselkumab) "I moved from Stelara to Tremfya when the Stelara stopped working after 3 years. 100% clear within 6 weeks. I do feel a bit tired after the injection for a few days but nothing major. My only complaint is the injection itself. I have no control over the injection and I'm constantly scared I will lift the injection causing the needle to retract. Bad design, much preferred the control I had with the Stelara injection."
- DaveS
- Taken for 1 to 6 months
- December 13, 2021
Tremfya (guselkumab) "I have a severe case of psoriasis only on the bottoms of my feet. Over the past 30 years, I tried all of the standard topical and oral medications. Nothing worked. I've been doing the Tremfya injections for 20 weeks. I've seen only minimal improvement. I was hoping for better."
- T Fox
- Taken for 1 to 6 months
- March 8, 2022
Tremfya (guselkumab) "I have minor-to-mild psoriasis, about 10-12 relatively small but persistent spots for years. Ointments would work temporarily but I had to constantly reapply and they would stain my clothes. I tried Otezla too and that helped a bit at first but I stopped seeing any benefit after several months. Tremfya has been AMAZING. I finally have my skin back! I love how easy and infrequent I have to take it (and for someone who is afraid of needles I find the approach very manageable. My skin is clear without any noticeable spots after two months."
- Leck
- Taken for 1 to 2 years
- May 23, 2020
"I have been on Tremfya for 18 months. I have been on lots of biologic including stelara, humira and a few others. None helped. I have severe psoriasis head to foot and also psoriatic arthritis. I was clear after a few months and improved dramatically within 8 weeks. My arthritis is a 100x better than before too. Only side effect is itching but goes a few days after injection. I don't get infections or any other problems. I am so happy with this treatment after suffering since I was 5 and trying multiple drugs throughout my life. I am now 28 and able to go swimming etc now with my children!"
- Teresa
- Taken for 2 to 5 years
- February 8, 2024
Tremfya (guselkumab) "I have been taking Tremfya for close to 3 years and am 95% cleared, since month 2. I get my dose delivered to my home and do my own injection. It's super quick and easy. No issues with it at all. Side effects are I now normally need antibiotics for Strep Throat now. However, pros outweigh the cons."
- Arty
- Taken for 2 to 5 years
- July 28, 2023
"After suffering for nearly 40+ years and trying so many creams, tablets, light treatment, you name it, I’ve tried it. I’ve now been on this injection for nearly 4 years. I was among the first people to try it, and it has been life-changing for me. I had a few problems with bloods and liver, but nothing drastic and obviously a very low immune system. I have my confidence back to wear whatever I like again and go swimming in a bikini, which I never had done before. I can wear short dresses and not worry about people staring, all because of one little injection every 8 weeks which doesn’t even hurt. I can only speak from personal view, but I would recommend anyone to try it. Best decision I ever made."
- MAano
- Taken for 6 months to 1 year
- August 19, 2020
Tremfya (guselkumab) "I have been on Tremfya for about a year. What a wonderful medication and psoriasis free! I've been through four other biologics and works like Tremfya!"
- James
- Taken for 1 to 2 years
- February 12, 2023
Tremfya (guselkumab) "I've been using Tremfya for almost 1.2 yrs and so far it doesn't really clear all the scars, only reduced psoriasis by 80%"
- greg
- Taken for 1 to 6 months
- December 21, 2022
Tremfya (guselkumab) "Didn't work on my psoriasis but did help with my arthritis"
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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- Drug class: interleukin inhibitors
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Tremfya (guselkumab) "Started Tremfya Feb 2019 after Taltz stopped working for my psoriasis. Currently about 6 months in I got swelling in my neck. Went to my GP and was told I now have hypothyroidism and a low blood count. Not sure if this was caused by Tremfya but am concerned because my next dose is coming up and I don't know what to do. Will be going to see my dermatologist soon to see what he says. Has anyone had anything like this while on this medication."