Guselkumab User Reviews & Ratings (Page 3)

• Fi t
• Taken for 1 to 6 months
• December 16, 2023

Tremfya (guselkumab) for Plaque Psoriasis "Due to my third injection on Christmas day, within 3 hours of my first injection, I could see a difference. Fabulous! A week later, my body was free of psoriasis after 43 years. Wonderful! I have noticed a tiny bit of psoriasis returning, but I am due for another injection next week. All is well. We actually went on a holiday a few weeks ago. I put on my swimming costume for the first time in years and swam in the sea. I cannot believe my skin, thanks to Tremfya. I've got my life back and loving it. I am wearing clothes I've never worn in years. THANK YOU FOR GIVING ME MY LIFE BACK. CAN'T THANK YOU ENOUGH."

• DaveS
• Taken for 1 to 6 months
• December 13, 2021

Tremfya (guselkumab) for Psoriasis "I have a severe case of psoriasis only on the bottoms of my feet. Over the past 30 years, I tried all of the standard topical and oral medications. Nothing worked. I've been doing the Tremfya injections for 20 weeks. I've seen only minimal improvement. I was hoping for better."

• ekey
• Taken for 6 months to 1 year
• January 12, 2023

Tremfya (guselkumab) for Psoriasis "I moved from Stelara to Tremfya when the Stelara stopped working after 3 years. 100% clear within 6 weeks. I do feel a bit tired after the injection for a few days but nothing major. My only complaint is the injection itself. I have no control over the injection and I'm constantly scared I will lift the injection causing the needle to retract. Bad design, much preferred the control I had with the Stelara injection."

• DMSEDD
• Taken for 2 to 5 years
• October 26, 2023

Tremfya (guselkumab) for Psoriasis "I've been taking Tremfya for 2.5 years. Tremfya was the only medication that worked for my psoriasis. I had bad side effects to 5+ others I tried first. Humira actually made it way worse. My doctor said I had the worst case of psoriasis he had ever seen and he has been practicing for 30+ years. After being on Tremfya for 6+ months, I noticed I began to have to urinate more frequently. After a year on Tremfya, it began to become an issue because sometimes I couldn't hold my bladder long enough to make it to the bathroom. This has gotten worse over the past year, to the point where I have pain in my urethra at times. If I take 600-800mg of ibuprofen when this pain starts, it seems to help ease the urethral pain. I talked to my case manager at Janssen and she said a side effect listed is frequent urination. I hate to switch meds because of the difficulty I've had finding something that works, but I no longer qualify for the patient assistance program."

• ptav
• Taken for 6 months to 1 year
• August 20, 2023

Tremfya (guselkumab) for Psoriatic Arthritis "Tremfya worked well for a short period of time, then the pain and swelling returned. 8 weeks is too long between doses. It lasts about 4 weeks at best. Maybe it's not safe to take it sooner than 8 weeks. I've been through Otezla, Enbrel, and Humira. They were all effective for about a year, then the same thing happened. I'm beginning to understand that there isn't going to be any miracles. I just have to get used to being in pain."

• Mel
• April 16, 2022

Tremfya (guselkumab) for Plaque Psoriasis "I’m about to start my first injection April 20 they taking me off Otezla because that didn’t work at all, I got psoriasis all over my face and my hands now going on my back I think allergy makes me get ps I will keep y’all updated I really hope Tremfya works for me. I have had this for 7 years keep y’all updated"

• docbi...
• October 4, 2021

For Psoriatic Arthritis "I have failed on multiple disease modifying medications include Cosentyx, Simponi, Humira, Embrel. Took my first dose of Tremfya 2 weeks ago. No side effects. 3 days later I noticed slight improvement in tendon inflammation in feet. Day 10, marked almost miraculous improvement in foot pain. I could walk for first time in the three months without severe pain."

• Doug...
• Taken for less than 1 month
• March 10, 2023

Tremfya (guselkumab) for Plaque Psoriasis "I’ve been on another medicine and have given my own shots for years. The first shot of Tremfya hurt so bad, I aborted the shot. I waited the 30 minutes to warm up and had it laying flat. They don’t even provide an alcohol pad to clean the area. Will go back to my former medicine. Those shots are why some people are afraid of needles."

• T Fox
• Taken for 1 to 6 months
• March 8, 2022

Tremfya (guselkumab) for Psoriasis "I have minor-to-mild psoriasis, about 10-12 relatively small but persistent spots for years. Ointments would work temporarily but I had to constantly reapply and they would stain my clothes. I tried Otezla too and that helped a bit at first but I stopped seeing any benefit after several months. Tremfya has been AMAZING. I finally have my skin back! I love how easy and infrequent I have to take it (and for someone who is afraid of needles I find the approach very manageable. My skin is clear without any noticeable spots after two months."

• Loriwo
• Taken for 6 months to 1 year
• February 24, 2022

Tremfya (guselkumab) for Plaque Psoriasis "So happy with Tremfya. Cleared up my skin beautifully except for the palms of my hands. Still dealing with plaque and multiple skin splits. Otherwise it's the best out there. I've not experienced any side effects. Easy to inject."

• Gary
• Taken for 6 months to 1 year
• April 17, 2024

Tremfya (guselkumab) for Plaque Psoriasis "I've had moderate to severe psoriasis in my 20s. It started in my mid-30s and cleared me up in the first 2 months. It completely cleared it. I noticed no side effects. After about 8 months of routine use, in the last 2 shots, I waited 3 months between shots. I noticed spots after the first skipped shot and a little more after the second skipped shot. That's 2 shots in the last six months. I think I will try to stick with every three months even though there are spots and slight itching. If it gets worse, I may have to do every other again, and hopefully, it didn't alter the effect. If it stays clear, I'll try to push out for longer, but as of now, it doesn't seem to be the case."

• Leck
• Taken for 1 to 2 years
• May 23, 2020

For Psoriasis "I have been on Tremfya for 18 months. I have been on lots of biologic including stelara, humira and a few others. None helped. I have severe psoriasis head to foot and also psoriatic arthritis. I was clear after a few months and improved dramatically within 8 weeks. My arthritis is a 100x better than before too. Only side effect is itching but goes a few days after injection. I don't get infections or any other problems. I am so happy with this treatment after suffering since I was 5 and trying multiple drugs throughout my life. I am now 28 and able to go swimming etc now with my children!"

• DrewWA
• Taken for 1 to 2 years
• March 17, 2024

Tremfya (guselkumab) for Psoriatic Arthritis "I have been using Tremfya for over 12 months, started at 8-weekly intervals, found at week 7 pain was returning so taking at 7-week intervals now, but after last 6 months at week 5 to 6 pain is returning worse. I am still taking every 7 weeks as per instructions. However, every treatment I have tried, my body seems to adapt. This is possibly the 10th drug to trial."

• Rob
• Taken for 2 to 5 years
• March 1, 2024

Tremfya (guselkumab) for Plaque Psoriasis "I’m 42 years old and I’ve had plaque psoriasis since I was a teenager. Not only on my elbows and other common places, but literally all over my body. When I went to a new dermatologist about 6 years ago, I had over 90% coverage on my body. I was miserable and embarrassed to be seen by anyone. My quality of life was suffering a lot due to plaque psoriasis. I was prescribed Otezla and took 2 pills a day. It helped a lot but didn’t clear my skin completely. I took it for 2 years before telling my doctor I wanted to try something else to see if I could get my skin even clearer. 4 years ago, I started Tremfya injections. Within 2 weeks of the first injection, I could see significant improvement in my skin. About a month after the first shot, I had 0% coverage. All signs of psoriasis were completely gone everywhere on my body and have been ever since. For me, Tremfya is a miracle drug. It truly has given me my life and confidence back. I haven’t had any noticeable side effects either."

• Chelle
• Taken for 6 months to 1 year
• January 31, 2024

Tremfya (guselkumab) for Plaque Psoriasis "I was covered head to toe with three different types of psoriasis. My doctors and I had tried all topicals on the market, UVB light therapy, and methotrexate to no avail. None of these were a long-term solution for myself. They would bring my psoriasis flush to my skin, but I would still be itchy and sore from all the lesions, and the results would only last a few days before it all flared back up. My skin was getting very thin from the topical steroids. With hesitation, I agreed to try biologics. One week after my initial loading dose of Tremfya, I noticed a decrease in the severity of my lesions. By the time I was ready for my second loading dose, my psoriasis had vastly cleared; all I really had left by this time was scalp and nail psoriasis. I do find that eight weeks is almost too long of a wait for me in between doses. By week six, I start getting spots again, but they are more like tiny little dots that clear up within a week of my next dose. Tremfya is my first biologic, and I am impressed with it."

• Milou...
• Taken for 1 to 2 years
• February 3, 2024

Tremfya (guselkumab) for Psoriatic Arthritis "It has been life-changing. 18 months. Got a bad flare after COVID in December. First flare. Recovering now. Once every eight weeks. I have a bit of psoriasis on fingers. Rheumatologist said thinking of changing dose to 6 weeks. NB I now get this medication free."

• Teresa
• Taken for 2 to 5 years
• February 8, 2024

Tremfya (guselkumab) for Psoriasis "I have been taking Tremfya for close to 3 years and am 95% cleared, since month 2. I get my dose delivered to my home and do my own injection. It's super quick and easy. No issues with it at all. Side effects are I now normally need antibiotics for Strep Throat now. However, pros outweigh the cons."

• Eme
• Taken for 1 to 2 years
• May 23, 2024

Tremfya (guselkumab) for Psoriasis "It helped me a lot, but still I can see it coming back after the 7th dose. My doctor at the beginning told me I need 7 doses, but later on she said I need to continue for the rest of my life, and as you know, it is not cheap."

• BST
• Taken for 6 months to 1 year
• March 29, 2024

Tremfya (guselkumab) for Psoriatic Arthritis "I have AS and PsA. I have taken Humira and Cosentyx, both giving me many side effects. I had to stop taking both drugs. I started getting Psoriasis on my ear and Rheumy wanted to try me on Tremfya. I have been on Tremfya for a total of 9 months. If I am going to rate the drug, I would say a 7 out of 10. It has really helped the severe stabbing right hip and pelvis pain. I continue to struggle with lower back pain, swollen wrists, and knees. I also am hungry all the time and am having issues with anxiety. Never had either of them before using Tremfya. Do I want to quit the drug? No, the side effects and the stabbing hip/pelvic pain alleviated even for a bit is worth it. Is it a wonder drug? No, I still struggle with pain and the added side effects. But to me, it is worth it. I hope it continues to work. I do have 2-3 days after taking the drug where I feel very ill but it goes away."

• Arty
• Taken for 2 to 5 years
• July 28, 2023

For Psoriasis "After suffering for nearly 40+ years and trying so many creams, tablets, light treatment, you name it, I’ve tried it. I’ve now been on this injection for nearly 4 years. I was among the first people to try it, and it has been life-changing for me. I had a few problems with bloods and liver, but nothing drastic and obviously a very low immune system. I have my confidence back to wear whatever I like again and go swimming in a bikini, which I never had done before. I can wear short dresses and not worry about people staring, all because of one little injection every 8 weeks which doesn’t even hurt. I can only speak from personal view, but I would recommend anyone to try it. Best decision I ever made."

• Anonymous
• Taken for 5 to 10 years
• April 30, 2024

Tremfya (guselkumab) for Psoriasis "I have pustular psoriasis and Tremfya has been life-saving. I went through light therapy from November until April every day and was on another medication prior to starting Tremfya. I have not had one flare of any kind since being on it. No side effects. I have been on Tremfya now for 6 years. The only downside is now I take it every 5 weeks and that has been a cause of trouble with the insurance."

• Canad...
• Taken for 2 to 5 years
• August 17, 2023

For Plaque Psoriasis "This has been the only treatment so far that has cleared up my psoriasis completely. I was covered over 85% of my body and severely so. I don't experience any side effects. I have been taking it now for 2 years and it still works great!"

• MAano
• Taken for 1 to 6 months
• April 28, 2020

Tremfya (guselkumab) for Plaque Psoriasis "I have been on Tremfya for four months now with excellent results. Yes I have a few light outbreaks but 90 plus percent better. Don't give up too quick! Excellent medication, give it time."

• BCano
• Taken for 2 to 5 years
• December 24, 2020

Tremfya (guselkumab) for Plaque Psoriasis "Amazing results. 100% clear for nearly 2 years now. Humira did ok-about 70% clearing. Tremfya has been perfection without side effects."

• Aussie
• Taken for 2 to 5 years
• April 11, 2021

Tremfya (guselkumab) for Plaque Psoriasis "It has been brilliant. After almost 50 years with severe psoriasis, I have two small spots, both about the size of a fingernail. AND, best of all, I don't have that incessant itching any more."