Evolocumab User Reviews & Ratings (Page 4)

• Hurting...
• March 27, 2017

Repatha (evolocumab) for High Cholesterol "I'm a very active 63 yr old with a 4x bypass. After a year of not recommending any cholesterol treatment I finally brought it up myself with my doctor, when she recommended Repatha because of my statin intolerance. After my first injection I started to experience muscle pain in my lats and pecs. It felt like a severe muscle cramp that spread to my arms, although my muscles were not constricting as they would with a muscle cramp. I conferred with my doctor and she said I should not be feeling any side effects because it takes 3 months to reach a therapeutic level so I took the shot the second month and I'm sorry that I did and will not be taking it again because the pain has spread to other areas."

• Frell
• December 22, 2019

Repatha (evolocumab) for High Cholesterol "I was on repatha for 5 months 9/18 to 2/19. I am type 2 diabetic. I had to get off the drug as my blood glucose was uncontrollable. Now the repatha site reports a common side effect: High blood sugar levels (diabetes). I have detailed eye exams due to my diabetes each year. Between annual exams, taking repatha, I suddenly have a tear in my retina that I had sealed via laser surgery. MayoClinic site reports eye related side effects of repatha. 6 months after ending repatha, I have bladder cancer. Urologist said the tumor grew ~last 6-8 months and was quite large. I had at CT scan 2 years ago - no cancer or tumors. So cancer is recent. Bladder cancer is caused by smoking (non-smoker) or exposure to chemicals. The repatha side effects: Bladder pain, bloody or cloudy urine, frequent or difficulty or painful urination. Drug appears to affect the bladder. NCIS rule 39: "There is no such thing as coincidence"."

• Falhud
• March 22, 2020

Repatha (evolocumab) for Cardiovascular Risk Reduction "I had a heart attack at 47. My cholesterol was 193 but LDL was a little high. Have a family history so I visited cardiologist at 45 and was told everything was great had“the heart of a 30 year old”. After getting two stents and getting blood work done it’s determined I produce smaller particles and absorb more cholesterol. They put me on statins, there were crippling to me. Joints swollen and ached. I’m very active, in the gym 3-5 days a week and exercise daily. Been on repatha for 3 years, LDL is under 40 every checkup. I don’t notice side effects as I did from the statins. I read these reviews and was shocked by all the problems... sounds like my statin experience."

• MI at...
• Taken for 1 to 6 months
• September 10, 2020

Repatha (evolocumab) for Cardiovascular Risk Reduction "Elevated LDL and I could not tolerate statins. Went years without any medication until my cardiologist recommended to try Repatha saying it has hardly any known side effects. After taking 5 shots I have to disagree and probably stop taking this miracle drug. It certainly works as after 2 months my LDL went down 50%. But after about 1.5 months in I started to have side effects: excessive sweating (head), chills, weak legs, pain and aching in feet, ankles, knees and groin. Dry and itchy sinuses. Change in vision. Mild back pain and overall fatigue, I stopped taking it for a month and about 3 weeks after the side effects were gone. After 4 weeks tried to take another shot and in 4-5 days all the goodies were back. Works great if you can tolerate it."

• Misti
• Taken for 1 to 2 years
• August 29, 2023

Repatha (evolocumab) for High Cholesterol "Repatha worked great to lower my cholesterol and seemed fine for a year. After 1 yr, I started experiencing severe neurapathy starting in one foot then spread to the other foot, up both legs, and then to my hands. An EMG found large fiber nerve damage from ankle to knee. I also experienced severe sciatica at the same time as neurapathy and tried to convince doctors it was related, but they would not consider it and treated them separately. I also experienced blood in urine, and the ER kept saying I had a UTI, but a CT scan of the urinary tract found nothing. I do not have diabetes. I'm a 60+ female and have found other very similar cases online from women of a similar age. I stopped taking it almost 2 months ago, but it takes about 3 months to get out of your system. Sciatica is better with cortisone shots, but I've not seen any improvement in neurapathy yet."

• Karen
• Taken for 6 months to 1 year
• April 2, 2024

Repatha (evolocumab) for High Cholesterol "About three to four days after injecting Repatha, I become very nauseous, dizzy, and extremely fatigued. I just want to lie down and sleep to feel better. I lose one or two days of my life. My cholesterol levels have never been so good, however. Going to discuss with my doctor. This is my third experience, and it’s always after the injection."

• Nonick
• Taken for 1 to 2 years
• October 7, 2019

Repatha (evolocumab) for High Cholesterol, Familial Heterozygous "I was leery about starting a drug that hasn't been on the market that long and also my distrust for pharmaceutical companies. Repatha worked and brought down my LDL but there is a cost. In the beginning, I'd just have cold symptoms and some fatigue which only last a few days but with time I would eventually develop more side effects that lasted longer such as PVCs, and now I get burning in my feet, hands and through out my body. Dr. said I may have neuropathy but when tested at the time it showed no damage. I'd stop Repatha for 2 months and everything was settle down but my fear of having a heart attack would cause me to try it again. Have taken 2 more shots and now the burning is back and I had flu-like symptoms that has caused me to stop exercising and miss some days of work too. Idk what I'm going to do but I don't want to live my life suffering like this. I also don't like when doctors don't want to put the blame on the medication that they know nothing about."

• Dayda
• Taken for 6 months to 1 year
• December 27, 2019

Repatha (evolocumab) for High Cholesterol "I have been taking g 140 mg repatha every 2 weeks for 8 months-cholesterol came down significantly-but.... my feet hurt terribly legs hurt terribly -I am 69 and have had quad bypass 5 years ago and a minor stroke-I have gained 8 pounds -I used to out walk everybody now my pain in my feet and legs are so bad I use a heating pad every night just so the pain will feel better. I also believe it has made me short of breath. So it is good for lowering cholesterol but terrible side effects. I am going to stop taking it and see in 3 months how much my cholesterol goes up. Glucose blood sugars fasting were 90-102 in the mornings now blood sugars fasting can be 120-130. Good luck to all who can tolerate it-but I don't want to spend the rest of my life with this leg and feet pain"

• Cano
• June 11, 2019

Repatha (evolocumab) for High Cholesterol, Familial Heterozygous "I've been taking Repatha for 1 year always had very high cholesterol in spite of good diet regular exercise. Reduced LDL from 262lb to 119lb (can’t tolerate stains, controlled diabetes A1C 6.5.) First few doses, leg cramps stomach upset, reduced injections once month instead of twice, feeling better. Tried again twice pr month muscle weakness, tiredness, blurred vision, tightness in chest/neck, heart palpitations. Reduced once every 3 weeks had tightness chest/neck, breathing stressed. Kept thinking body would adjust. 6 weeks ago took injection and had chest tightness up into neck for 2.5 hours. 4 weeks starting to feel normal. During this time I had two stress tests (one nuclear), carotid scan. All results normal. Wore heart monitor 7 days. Haven’t received results as yet. Tightness back, don’t feel right. Drug reduces cholesterol, it has very serious side effects. Dr kept saying it couldn’t be the drug, I disagree, test result show it, don’t want to create another health issue due to Repatha. "

• Persil
• February 16, 2020

Repatha (evolocumab) for High Cholesterol "I am on my 9th injection of Repatha. Had no side effects until my 9th injection. My cholesterol levels dropped dramatically which was great news. However, on the day after my 9th injection I was out shopping and had a back spasm and had to call for a ride home. The pain has increased to my hips. I am in consultation with my Dr (Via email) to stop taking this medication. Reading the reviews made me realise yes I need to stop. I just paid $435 .00 for this medication"

• Carri...
• Taken for 1 to 6 months
• May 27, 2017

Repatha (evolocumab) for High Cholesterol "I started taking Repatha in April 2017 and the first thing I noticed was back pain, then muscle pain. I can't use my right arm for much and can't open jars and things that required using my wrist. I am dizzy headed, and feel so bad all the time. (Fatigue I guess) I am taking 2-3 hour naps during the day and I am only 51. I've never done this before. I talked to my doctor and she said come off of the Repatha for a month and see how I feel. She's not sure it's the medicine. Repatha is really easy to use and is shipped right to my door in a cooler package. Repatha dropped my bad cholesterol from 187 to 67 after 3 doses. (bi-weekly). I don't know what to do about taking This drug. I think it's making me feel really bad all the time."

• Mickey
• Taken for less than 1 month
• May 4, 2019

Repatha (evolocumab) for High Cholesterol "Took 1st dose of Repatha on a Thursday and had side effects of flu symptoms, terrible back pain, neck pain, vertigo within 24 hrs. By Monday, was in ER with a NSTEMI (a type of heart attack) . Sent home Tues. Back in ER on Thursday with 2nd NSTEMI. 2 angiograms. It's been a month now and still have muscle pain, weakness, blurry vision, fatigue, depression, shoulder pain, hand swelling. And this was from 1 dose. The doc said no side effects. Yeah, ok."

• tajos...
• Taken for 1 to 6 months
• January 21, 2023

Repatha (evolocumab) for Cardiovascular Risk Reduction "I received two stents in my left anterior descending artery (LAD) and felt great afterward. I did not have a heart attack nor did I have a serious event. I caught the occluded artery before any issues. I had Repatha injections every 2 weeks as prescribed. I was a healthy athletic 62-year-old man, and after the injections, I have been just about debilitated. I went to the emergency room several times and felt like I was dying. I have an inflamed gastrointestinal tract, inflamed joints, vertigo, SVT (supraventricular tachycardia), and many other issues. I stopped the injections after 6 months and approximately 4 years later I'm just now feeling a little better. It has not been a good medication for me. Please be careful if you are prescribed this medication. I do not recommend it."

• Jumper
• Taken for 6 months to 1 year
• June 9, 2019

Repatha (evolocumab) for High Cholesterol "Don't let anyone tell you to hold off on Repatha injections and then "try again!" Also, do NOT let your Dr convince you there aren't side effects. This is a dangerous drug if you have pre-existing comorbidities. I have RA (rheumatoid arthritis), need 5 surgeries for vascular blockages in torso and legs, and 4 coronary stents are placed. My RA symptoms of joint pain have worsened with the Repatha but my biggest negative on this drug is increased BP and chest pain. Very dangerous when I'm already a heart patient! Think carefully about what your medical issues are and whether you want to risk them worsening. New problems for me are dizziness, sudden gut pain, anxiety, visual disturbances, nausea and leg weakness. Yes, my cholesterol went from 300 to normal but even taking an injection every 3 months has incapacitated me and exacerbated my medical issues!"

• Mel
• Taken for 1 to 6 months
• November 23, 2019

Repatha (evolocumab) for High Cholesterol "I have been suffering since stopping Repatha after 8 injections. Legs have gone weak and painful to walk. I was ok before I started but now it’s a challenge to get around. I hate it that I even tried it. This is a Lawsuit drug - just stay away!"

• della
• Taken for 1 to 6 months
• September 9, 2018

Repatha (evolocumab) for High Cholesterol "I injected this drug on August 10 2018. The next morning I felt like I had the flu with my hands and face swollen. Then 4 days later horrific diarrhea .After that horrific mucus from coughing and horrific back pain now I have problems with my stomach - I can't eat drink or burp feels like my stomach is dying along with my colon - horrific swelling in my stomach. I have been rushed to hospital twice allergic reaction to repatha also it has given me a auto immune disease. This drug is dangerous. I feel like my organs are dying. My dr is trying different meds to try to reverse the side effects nothing is working. Please be careful I wish I had researched this drug before taking it. Now I'm bed ridden and its Sept 9 2018 and I am still having side effects."

• Annette
• Taken for 1 to 6 months
• June 18, 2023

Repatha (evolocumab) for High Cholesterol "Had 6 doses over 5 months. Each dose made me feel worse than the previous one. Could not tolerate more than one dose per month. Two jabs in one month resulted in 3 days off work. Dizziness, nausea, extreme tiredness, stomach cramps, muscle cramps - especially at night, flu like symptoms, lack of sleep due to blocked nose. Only plus was that cholesterol levels dropped after second dose. Depletion of vitamin D, Lowest ever B12 - Unable to work for 3 days each fortnight. Would not recommend to anyone. However, when the side effects became to severe to cope with and I gave up, I still had to endure muscle pain and general illness."

• BJL
• Taken for 1 to 6 months
• June 17, 2023

Repatha (evolocumab) for High Cholesterol "Extreme fatigue as a result of taking this drug. At first, I used the sureclick 140ml pen every 2 weeks for about 6 weeks. I was unable to do anything, not even simple household chores, because of the fatigue. My cholesterol did lower, but I didn't think it was worth it if I couldn't move. It has taken me about 3 months to regain my full energy after stopping this drug."

• Sue
• December 5, 2019

Repatha (evolocumab) for High Cholesterol "I had to pay over and above my insurance to get this drug just so I could end up having more problems than I've ever had from a prescription. I had the one and only injection on Nov. 3rd, 2019. On the 4th Nov during the night I woke up with the room spinning so bad that I couldn't move. I was told by my cardiologist to call 911 which I did. When they got there they tried to help me up, but couldn't so They told me I would have to wait it out. After two and a half weeks on prednisone I started feeling better. Now I'm getting vertigo off and on. For instance, today I was suppose to go golfing, but from the time I got up this morning I've been so dizzy that I have to cancel. I never had this problem in my whole life until this injection. I can't believe that my doctor even prescribed this poison to me!! I just hope that eventually this goes away. I wouldn't recommend anyone even trying this medication."

• Chris...
• January 29, 2024

Repatha (evolocumab) for High Cholesterol, Familial Homozygous "The Repatha is working really well. I saw a significant decrease in my LDL with the first 3 injections. I do have minimal side effects such as runny nose and some dizziness. My husband usually does the injection but I have had to do it myself as well. It is very easy and only slight discomfort."

• Joyce
• Taken for 6 months to 1 year
• May 8, 2024

Repatha (evolocumab) for High Cholesterol "Cholesterol levels have come down to the normal ranges. I use one SureClick pen every two weeks, which has been very easy to use. Blood sugar is getting harder to control; however, and it keeps going up. I have had Type 2 diabetes for almost 25 years, and my HbA1c was down to 6.5 before Repatha started. Now it is back up to 9. I have not discussed this with my physician yet, but it will be addressed soon. My use of Repatha has been less than one year."

• Disgu...
• Taken for 2 to 5 years
• December 27, 2019

Repatha (evolocumab) for High Cholesterol "The person with bladder cancer you are correct it’s the Repatha. My lung cancer tumor grew fast also and has spread to other parts of my body. It’s stage 4. I too had 2 chest X-rays before I went on Repatha and was fine drive my bike to work everyday I was healthy but my quality of life went downhill This is a law suit ready to happen. It needs to be removed from the market. "

• Jude
• Taken for 1 to 6 months
• March 23, 2019

Repatha (evolocumab) for High Cholesterol "Rapatha is great to lower your cholesterol really fast, but the side effects are terrible. My back, hips, and knees are hurting me 24/7. I have been to the doctor many times and he has given me many different pain meds. Nothing really helps. I can hardly walk across the floor. To work all day is killing me. I just want to cry because of the pain. I have been off the Rapatha for almost 3 mths and pain still is not gone away. I just want to be normal again. Will never take again."

• Nans
• Taken for 1 to 6 months
• November 15, 2021

Repatha (evolocumab) for High Cholesterol "I have taken four injections and I will not take anymore. I have congestion that I have never experienced before. I have completely lost my sense of smell and taste (not from COVID) my test was negative. This is now in my fifth week. My coughing is so bad I think I am not going to make it. I have the runny nose, earaches, sore shoulders. I have one suggestion, don’t take Repatha."

• Report
• Taken for 1 to 2 years
• December 31, 2019

Repatha (evolocumab) for High Cholesterol "Please everyone I been reading all your comments. You need to call the FDA and report what is happening I can’t make it any clearer how important this is. This drug is so bad for patients especially causing cancer. It’s not a coincidence. It’s a horrible drug."