Aptiom User Reviews & Ratings (Page 2)

Aptiom has an average rating of 6.7 out of 10 from a total of 39 reviews on Drugs.com. 58% of reviewers reported a positive experience, while 22% reported a negative experience.

Reviews for Aptiom

Unhappy
Taken for 6 months to 1 year
November 25, 2021

For Epilepsy "My experience with Aptiom has not been good. For one thing it does not control my seizures. I would say maybe worse. I am on 400 mg a day. I know this is a low dose but if I take more it makes me angry and nuts. A hour after I take it I change personality. I go way back into my memory and of course not the good memories. It is really hard to function when this happens. My anxiety is also worse on this. I was told that a person who suffers from mental illness like anxiety and depression and others should be leary of taking Aptiom. I don't know if this is true but for what it does to me I wonder. Hopefully my doctor can find another anticonvulsant that works. I am running out of ones to try. My next step after all my options are up is to go to natural remedies."

2 / 10

Was this helpful?Yes No

3 Report

Dara
Taken for 1 to 6 months
January 14, 2019

For Epilepsy "Well my son's Aptiom dose was upped to 400 mg and now the side effects have started - a real dry cough and a bit of trouble breathing. I hope in the next couple days this improves otherwise he will have to come off of it. He is supposed to increase it to 600 mg in a couple of days which I will be leary to do in case the breathing gets worse. As in my other review I mentioned my son has 22q11 ( deletion of a small piece of chromosome 22) which unfortunately makes him very sensitive to medications. I really hope this one works although the cost is super expensive."

7 / 10

Was this helpful?Yes No

5 Report

Dara
Taken for 1 to 6 months
April 10, 2019

For Epilepsy "The seizure control is great. One big problem with this drug is that it can cause hypothyroidism. My son was hypothyroid before going on this medication and now it has dropped his levels drastically even when he is on thyroid medication. If this doesn't improve with more thyroid medication he will have to stop the Aptiom. I hope this doesn't happen because its the only one he can take."

9 / 10

Was this helpful?Yes No

5 Report

Frequently asked questions

Aptiom vs Keppra, what is the difference?

Atlanta
Taken for 1 to 6 months
March 1, 2018

For Seizures "I was using 800mg Aptiom samples for about two months and they worked great. Pros: no seizures or auras, less side affects and once a day tablets. Cons: Way to expensive!! ($500 a month) and nausea...but only lasted a month. Wish my neurologist told me the cost before getting off keppra and getting my hopes up with aptiom. Doesn’t make sense. Next, oxcarbazepine."

9 / 10

Was this helpful?Yes No

5 Report

Aptiom...
Taken for 2 to 5 years
November 23, 2021

For Seizures "I have medication resistant epilepsy and Aptiom was the medication that worked for the longest time. It was expensive, but insurance was willing to cover it. It made me tired, which was rough since I had to take it twice daily. It was also the medication I was on the longest before the resistance kicked in."

10 / 10

Was this helpful?Yes No

2 Report

Are you taking this medicine?

mb1313
Taken for 1 to 6 months
August 17, 2019

For Seizures "I’ve been on Aptiom 800mg for around 2 months now. Previously was on lamotrigine which caused daily headaches, weekly migraines, skin irritation, haziness and troubles sleeping. Switching to aptiom has definitely helped with the decrease of side affects which have been around weekly headaches and trouble sleeping. I also should note that I do not get my period anymore. I am a 21 year old who has never missed a period before taking this drug. I have confirmed through urine tests at my GP and on my own that I am not pregnant. So, I am currently waiting to see my neurologist to talk about these issues. Just figured I should put this out there in case others were thinking of taking this drug. It is also SUPER expensive costing me around 350$ a month in Canada, luckily I have private insurance through work so they cover 80%. I have been seizure free since going on any anti-seizure medication so I can’t really compare the drugs I’ve tried to that."

8 / 10

Was this helpful?Yes No

2 Report

Grey...
Taken for 1 to 2 years
November 7, 2021

For Epilepsy "I was started on this because nothing else would work, and yes there are side effects I have to deal with. I was always weak in the stomach but now when my stomach trembles I projectile vomit. So being dizzy and having my stomach trembling, scare me. The migraines come about 2 times a month and they are debilitating, to say the least. I'm not sure which is worse the seizures or the side effects. I take 400 mg twice a day, to keep my levels steady, but I've begun to feel, uneasy in my emotions as well I cry a lot, or get angry for no reason. Not sure if I'll continue on this..... Also, I had to fight my insurance to pay for it, or it would cost me $2000.00 a month who can afford that. Now I pay $200, for three month supply."

7 / 10

Was this helpful?Yes No

1 Report

Geegaw
Taken for 1 to 2 years
October 15, 2017

For Seizures "Taking aptiome, dilantin and quetiapine. Nocturnal seizures due to Tuberous Sclerosis Complex (TSC). Difficult to control seizures with any meds. I think aptiome helps most of the time, but may have several seizures suddenly for 5+ days in a stretch...then nothing for a couple of weeks. Feel very on edge and am severely thirsty especially after bathing. Doctor doesn't respond to my concerns as he seems challenged by my situation. Hope to get referral to a Tuberous Sclerosis Complex (TSC) clinic close to home hoping to find other meds."

Was this helpful?Yes No

2 Report

Ken
May 17, 2016

For Seizures "1200 mg at night has helped my nocturnal seizures greatly from happening."

9 / 10

Was this helpful?Yes No

15 Report

Joe
July 3, 2019

For Epilepsy "Side effects experienced: Rash. Waking up in the middle of the night. Low NaCl. Very expensive. Tegretol less side effects same drug Less expensive!"

4 / 10

Was this helpful?Yes No

8 Report

Alex
November 14, 2018

For Epilepsy "Seizure control ok so far. Mild skin rash from 1200mg once a day. Will ask doctor about either reducing dosage or taking 600mg twice a day."

8 / 10

Was this helpful?Yes No

6 Report

big...
Taken for 1 to 2 years
July 28, 2020

For Seizures "been on aptiom for about a year at a dose of 800mg . I had 2 seizures in a year on a a dose 800mg a day. It is very expensive ,doc bumped up to 1000mg day now. new doc and will be leaving aptiom ."

3 / 10

Was this helpful?Yes No

2 Report

Veran...
Taken for less than 1 month
February 21, 2018

For Seizures "I’m about to start taking Aptiom 200mg! I read so many reviews on this medication and hoping it will help with my seizures! "

1 / 10

Was this helpful?Yes No

2 Report

Dhani...
Taken for 1 to 2 years
May 7, 2017

For Seizures "Take 1200 MG once a day makes me feel much more peppy."

9 / 10

Was this helpful?Yes No

2 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.