User Reviews for Diamox
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Diamox.
|Mountain Sickness / Altitude Sickness||3 reviews||32 medications|
|Epilepsy||1 reviews||28 medications|
|Pseudotumor Cerebri||18 reviews||2 medications|
|Glaucoma||8 reviews||28 medications|
|Summary of Diamox reviews||30 reviews||8.0|
Reviews for Diamox
For Pseudotumor Cerebri "Day 21 I had completely lost my eyesight, imagine that. Losing 20/10 vision at 25 years old. I was diagnosed with chiari type 1 malformation and intracranial hypertension. 100mg of prednisone a day, 1500 mg of diamox a day. The side effects, I get a lil tingle in my feet for a minute maybe 4x a day, carbon drinks taste weird. I don't drink soda but due to food poisoning on New Years I didn't have to much of a choice. The diamox dropped my pressure in both eyes to 5 which is low. But I am regaining vision no peripheral vision yet but I am blessed to have something. Sitting in a room for weeks of blackness and opening Christmas gifts in front of your family with no sight I appreciate my family life so much more. Truely blessed for my family."
Akc119 (taken for less than 1 month) January 3, 2016
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For Glaucoma "I have congenital glaucoma this medication was prescribed to me in 2009 the worse medication I've ever had. Tingling of the toes, fingers at times lips. Worse headache of my life and it's related to Diamox according to my doctor. The headache becomes so bad I can't think straight. It doesn't lower eye pressure for me in its entirety. But to a certain degree. Also, accompanied with this medication it falls down horribly on my stomach unbelievable pain as well as dizzy symptoms. Doctor stated to me that this medication does produce these side effects."
nygirl70 (taken for 2 to 5 years) November 26, 2015
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For Pseudotumor Cerebri "I have been taking this for a month and my blood sugar keeps dropping out. I feel terrible and weak all the time. I get numbness everywhere. I have three sons to care for and it's hard. I'm glad most of my symptoms seem to be normal as I have read yours. The pressure in my head hasn't lessened though. They gave me migraine medicine but I'm afraid to take it if it'll put me to sleep during the day. I keep thinking about calling my neurologist. I'd like to know what to do at this point."
Candyrolfe August 31, 2015
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For Pseudotumor Cerebri "I was just diagnosed with IIH/PTC last week. My neuro started me on Diamox the same day. Although I have had tingling in my hands and feet as well as lethargy, the pressure behind my eyes has already started to go down. My ophthalmologist was very pleased today with the optic nerve scan and said there has been decrease of pressure in both eyes. A little tingle here or there and a bit of sleepiness is worth saving my vision! So far, I'm a happy girl!"
Omieliz July 13, 2015
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For Pseudotumor Cerebri "i was diagnosed in 2014, and I can honestly say it has been a very difficult disease to handle......though I know there are much worse out there. I was put on Diamox and my headaches or vision problems did not improve, in fact they got worse. I have had more migraines since starting this than I ever did before. The side effects are awful........no appetite, foggy head (I am barely able to function day to day), nausea, everything you try to eat tastes AWFUL. I am glad this has worked for some, but I can not continue taking it."
Sarah G B June 9, 2015
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For Pseudotumor Cerebri "Effective, but not without side effects. The first month was pretty bad - my hands, feet, and legs were falling asleep and I experienced painful tingling and cramps. My joints also had problems, and I had to wear a brace on my knee for a little while. I was more lethargic. Anything carbonated tasted awful. I couldn't drink caffeine or my whole body would feel weird and tingly. I also had to pee a lot during the first few weeks and was quite thirsty. Over time, most of the side effects went away, and my pressure went down. My vision problems completely went away. However, a new side effect appeared after about two years - tinnitus. It is definitely being caused by the medicine, because I've found that skipping a dose makes it go away."
Sherryola February 1, 2015
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For Pseudotumor Cerebri "I was diagnosed with Pseudotumor Cerebri 2 weeks ago after experiencing blurry vision and dizziness for sometime. I got an eye exam done and they saw I had a swollen optic nerve. The neurologist prescribed Diamox., told me to lose weight and stop birth control. I noticed within about 2 days of taking the medication the blurred vision is completely gone. Dr. told me to ease into the meds. starting 1/2 a 250 mg pill 2x/day for week, then 1 250mg pill 2x/day for week then if symptoms persist take 3 250mg pill 3x/day. This helped getting me used to the side effects so far I have the tingling in fingers and sometimes mouth. I pee alot but am trying to lose weight so drinking lots of water and eating healthy and no pop is likely helping to."
Anonymous (taken for less than 1 month) January 27, 2015
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For Glaucoma "I have been on Diamox 3 times now to manage spikes in eye pressure. On all three occasions my eye pressure soared into the 60's and 70's before I started to come down 7-11 hours later. My body temperature plummeted, I just shivered and could not keep warm for the first few hours. Within the first 24 hours my legs weakened considerably and significantly limited my capacity to walk. My speech and cognitive function also slowed noticeably. Using Diamox for over one week triggered mood changes and suicidal thoughts. While on this my blood pressure was on the low side. Upon discontinuation of this my blood pressure soared to 166/110 with some fluctuations for 2weeks afterwards. I hope sharing this helps others."
InformedPatient December 26, 2014
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For Pseudotumor Cerebri "I have had IIH since June of 2014 but was diagnosed "officially" with IIH in May 2014 after my first LP had an opening pressure of 45. I tried Diamox the first time but it made me so tired I couldn't handle it and then I went into spontaneous remission or at least my pulsatile tinnitus went away and I didn't need to keep taking it. I relapsed about a week ago and had an opening pressure of 55 after having extremely loud pulsatile tinnitus for a week. I was put on 1g of Diamox and for the past week the whooshing noise has gotten much, much softer and sometimes I can't even hear it. I take Vitamin C to help with the tingling and have barely noticed it. I'm thankful my body is responding well this time but it's different for everybody."
Cairolion (taken for less than 1 month) November 28, 2014
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For Pseudotumor Cerebri "I was diagnosed with idiopathic intracranial hypertension in the early summer of 2013. I was put on 1000mg of Diamox at the beginning of November 2013 to keep the fluids from damaging more of my vision through swelling of my optic nerves. Felt the side effects within the first hour. Tingling in my hands and feet, some days my face. There were even days when my eyes and lips would twitch. All carbonated drinks taste like drinking battery acid. The first few weeks sucked, but it gets better with time. I just saw my eye specialist yesterday, 6 months of being on the miracle medicine, and the Diamox (and shedding a few pounds) has done it's job and not a trace of swelling! I'm able to come off it in a few short weeks. Thank God for good doctors!"
LewyLew May 2, 2014
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For Glaucoma "I am taking Diamox this is the 3rd time I have been prescribed this. It definitely works but side effects this time worst of all. Am dizzy and fell, pins and needles hands, feet and face. Headache don't know if medication or from fall. Nausea."
Marydoll March 2, 2014
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For Mountain Sickness / Altitude Sickness "Works very well to prevent symptoms of Acute Mountain Sickness with no perceived side effects. I take 125mg twice per day as recommended by the altitudemedicine.org website for high altitude hiking. This actually speeds up the bodys acclimitization process and doesn't just treat the symptoms. Highly recommend it for staying well on high altitude pursuits."
Anonymous (taken for less than 1 month) January 20, 2014
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For Pseudotumor Cerebri "I was just diagnosed last week with PseudoTumor Cerebraii. I had my first spinal tap yesterday.I started Diamox today. About 4 hours after the first dose I took a sip of Mountain Dew and about vomited. It tasted like drinking melted nails. My appetite is lessened which I am so glad about. I am 60 lbs overweight. My mouth is dry and my lips are somewhat numb. But from everything I have read the side effects to this medication or any other would have to be really bad before I'd say I can't take this medication any more. I pray the meds work so I do not need a shunt. I did not think of this as a disease. I thought it was just an occurrence like reflux or migraines."
QualityRN (taken for less than 1 month) March 16, 2013
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For Pseudotumor Cerebri "I have been on Diamox for many years. Started out with tunnel vision and then found to have pseudotumor cerebri (which my mom has too). I have even had lumbar punctures to drain the fluid off my brain as well in the beginning. This medication has worked wonders. I did have tingling and numbness in my feet, finger, nose, lips but that eased off by taking Vitamin C or eating oranges, (this was recommended by my doctor and it works). Now the tingling and numbness are gone. I don't know what I would have done without this medication. Now all I do is take the medicine once a day and move on with my life. Please hang in there and don't get discouraged."
exwvgirl (taken for 10 years or more) January 22, 2013
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For Mountain Sickness / Altitude Sickness "I don't always use medication when I go skiing in higher altitudes but when I do I prefer Diamox. This is a God send when I am sleeping at 10,000 ft and skiing at 12,000-14,000 ft. I tend to get a little clumsy and do not have the focus and sharp alertness while taking the medicine. I just need to take the medication starting a couple days before the trip for about 4-5 days. The whole process is all about getting your body acclimated to the change in altitude from sea level to 10,000 ft in a few hours. Other preparations are still needed such as avoiding alcohol, caffeine, NSAIDs, aspirin, sleeping agents. Start drinking a gallon of water each day while on this medicine."
MogulMonster January 17, 2013
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For Glaucoma "I have been recently diagnosed with the disease called BIH which occurs mostly in women and very young children and currently taking Diamox with annoying side effects such as pins and needles in feet, hands and lips which can last up to 2 hours at a time and be painful. I wake every night with interrupted sleep with a headache or temperature! I have been turned off a lot of food but mainly fizzy drinks."
AngeS (taken for 1 to 6 months) November 28, 2012
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For Pseudotumor Cerebri "Can I just say for the people that are stating they have tingling/numbness with this medicine. I experienced this over a year and a half ago when I was first put on Diamox, they took me off it and put me on Topamax instead. For a year and a bit I was on Topamax and lost 30kg but the headaches never completely went away. Now I have been put back on Diamox for almost the last two weeks and I find only sometimes will I get any tingling at all... whereas last year when I first tried it I couldn't stand it. What I find works for me is taking the tablet whilst I'm eating, keeping my fluid up (only water), soft drinks and "bad" foods do tend to make it worse so I try to stay away from these. I find Diamox really does work if you're prepared to go that extra mile!"
Anonymous (taken for less than 1 month) August 22, 2012
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For Pseudotumor Cerebri "I have only been taking the medication for a week. 500mg/day. I have lost 11 pounds in that week due to the loss of appetite. When I do eat I get sick. Nothing tastes good to me anymore. I'm having some crazy dreams at night. I urinate every 2 hours minimum. I get a tingling feeling in my fingers, face and legs. I'm having a spinal tap this Friday to relieve some pressure, I'm hoping after that happens I won't have to take this medication anymore. It has alleviated the headaches though!"
Anonymous February 6, 2012
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For Pseudotumor Cerebri "I was diagnosed with this condition in 1997. The radiologist said they did not know what caused it and there was no cure but there is medicine to maintain. Many years later with 3 different shunt placements...I now have a shunt that still does not work but I have my Diamox to help me!"
Anonymous August 24, 2011
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For Pseudotumor Cerebri "This medicine helped me so much to relieve some of the pressure in my head and leveled the pressure in my eyes. I also have edema of the legs and it gets so bad that at times I retain over 20 lbs of water which slows me down terribly. The pills helped me greatly and kept me active. However my doctor decided to take me off them and put me on Topamax because though the pressures were down, the headaches and pain was still there. I have gained so much weight because I barely move at times and have not been as active as I once was. My legs and now my abdomen are filled with fluid. Wish I could get Diamox again!"
Anonymous June 6, 2011
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For Glaucoma "I was given Diamox to prevent any increase in eye pressure after an ICL surgery (basically cataract surgery). My pressures were great, but the side effects from this were no fun. I experienced dizziness, tingling in my toes, and worst of all, my taste was off. The worse taste difference I noticed was in caffeinated beverages and that's what caused my to do some looking around to see what was going on."
Abree March 22, 2011
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For Pseudotumor Cerebri "I've been on this medication for 2 weeks because of increased pressure in my spinal fluid due to head injuries. While the medicine works amazingly well on the headaches, my brain basically turns to mush when I'm on it and I can't function well enough to do my job or understand my school work. I also have really annoying tingling feelings in my hands, feet and lips that hasn't yet gone away. I wish there was a way to get this to keep working for my headaches."
Anonymous November 3, 2010
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For Pseudotumor Cerebri "I have been on this medicine for approximately 4 months. The benefits that I have had with my vision and headaches has been wonderful. The things I am not sure about and cannot find much about is that I have a great deal of memory loss. I have searched this on several sites and I cannot find anything about it so I am not sure if it is a side effect or if it is happening to me for some other reason. I have had some confusion since I have started it and that is starting to concern me. The only alternative to this medication is to have a shunt put in and I am not sure I am ready for that. I don't like the fact that I cannot have carbonated beverages but I am sure that it is a good thing as I was a soda addict."
jennyd55 November 3, 2010
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For Pseudotumor Cerebri "I had been diagnosed with pseudotumor cerebri when I was 10 years old. That was 16 years ago and have been taking DIAMOX on an off for that long. I get very bothersome tingling that doesn't go away, often waking at night with extremely painful tingling in my feet that causes me to have to get up. I get crippling headaches, that hurts when I even breathe, and the last time I was on the medication, the headaches got worse while I was taking it. I am currently back on the medicine and have to go to the bathroom every 10 minutes. I take 1000 mg a day and can no longer drink pop. Anyway, I have good and bad experience with the Diamox but the benefits to my eyes well outway the inconvenience."
Anonymous August 24, 2010
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