Narcolepsy

WHAT YOU SHOULD KNOW:

Narcolepsy is a sleep disorder that causes severe sleepiness and frequent sudden daytime attacks of sleep. Narcolepsy can cause you to fall asleep at any time but can keep you from sleeping well at night. You do not get enough sleep in a 24-hour period. The cause of narcolepsy is not known.

AFTER YOU LEAVE:

Medicines:

  • Stimulants: This is medicine to help keep you awake during the day.

  • Antidepressants: This medicine helps decrease your cataplexy, sleep paralysis, and hallucinations.

  • Take your medicine as directed. Call your healthcare provider if you think your medicine is not helping or if you have side effects. Tell him if you are allergic to any medicine. Keep a list of the medicines, vitamins, and herbs you take. Include the amounts, and when and why you take them. Bring the list or the pill bottles to follow-up visits. Carry your medicine list with you in case of an emergency.

Follow up with your primary healthcare provider or sleep specialist as directed:

You may need to come in up to 4 times each month for treatment. Write down your questions so you remember to ask them during your visits.

Manage your symptoms:

  • Take naps: This can help control your narcolepsy. Take several 20 minute naps at the same time every day. One long nap in the afternoon may also help.

  • Stick to a sleep schedule: Go to bed and get up at the same time every day.

  • Avoid alcohol, caffeine, and tobacco: These can interfere with your sleep and make your symptoms worse.

  • Exercise regularly: Regular exercise at least 4 hours before you go to bed can help you stay awake during the day. It can also help you sleep better at night. Talk to your primary healthcare provider about the best exercise plan for you.

Carry medical alert identification:

Wear medical alert jewelry or carry a card that says you have narcolepsy. Ask where to get these items.

Contact your primary healthcare provider if:

  • You symptoms interfere with your daily activities.

  • You are not able to sleep well at night, even with treatment.

  • You have questions or concerns about your condition or care.

© 2014 Truven Health Analytics Inc. Information is for End User's use only and may not be sold, redistributed or otherwise used for commercial purposes. All illustrations and images included in CareNotes® are the copyrighted property of A.D.A.M., Inc. or Truven Health Analytics.

The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.

Learn more about Narcolepsy (Discharge Care)

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