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Myelodysplastic Syndrome Questions
Related terms: MDS
We found 20 questions associated with the 'Myelodysplastic Syndrome' topic.
My husband has just been diagnosed with therapy-related MDS. He is getting decitabine every 4 weeks?
I would be interested in hearing about others' experiences with decitabine, particularly the side effects and what helps them. We feel pretty much alone in this and would appreciate contact with ...
Posted 14 Jun 2015 • 2 answers
... what were the results
Posted 30 Jan 2015 • 1 answer
Just starting Dec 1st.
Posted 25 Nov 2014 • 1 answer
My muscels get very sore and achey, when I go to bed in the evening and are very stiff in the morning when I get up. Is this a normal ? I have MDS should I be taking procrit?
Posted 15 Nov 2014 • 1 answer
Is he at any risk if he freezes-postpones his vidaza treatment for a couple of months? If his tests show that he is doing really fine and his myelodysplastic syndrome seems to be under complete ...
Posted 23 Feb 2014 • 1 answer
... put him in the hospital a month. Reading side effects not sure that I need to encourage this treatment
Posted 8 Nov 2013 • 1 answer
First used Bactroban topically along with Vancomycin until renal failure then one antibiotic after another. Infection now spread over half her chest with blisters and blood in less than a week. ...
Posted 5 Apr 2013 • 3 answers
MRI shows no problems. After cycle 1 headaches started. Just completed cycle 5 headaches are almost daily getting more severe and affecting quality of life. Dr not sure what to do says my husband can ...
Posted 13 May 2012 • 1 answer
... what did you do to remedy the pain?
Posted 8 May 2012 • 3 answers
Since the first of the year had 4 bouts with (gout) now Dr thinks in may be an infection but blood test says no I want to know if it could be a side effect Been on Dacongen for a year
Posted 20 Mar 2012 • 1 answer
... abcessed tooth
Posted 23 Oct 2011 • 1 answer
... have week stomach and headaches, What is taking this medicine like?. Will I ever feel like traveling again once I start it? I am scared that I will have no quality of life once I start this
Posted 31 May 2011 • 1 answer
are that it has some adverse risks for elderly patients. Is that correct?
Posted 22 Mar 2011 • 1 answer
Discovered I had the condition June 2010. Had numerous Blood Transfusions felt great afterwards for a few days and then felt terrible again. Am on Recormin 30 000 ml. (Also known as Epoetin beta) ...
Posted 24 Oct 2010 • 1 answer
... injections weekly this past year. He is becoming more and more anemic so now they want to switch to Vidaza... any thoughts?
Posted 28 Aug 2009 • 1 answer