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Myelodysplastic Syndrome Questions

Related terms: MDS


We found 20 questions associated with the 'Myelodysplastic Syndrome' topic.

My husband has just been diagnosed with therapy-related MDS. He is getting decitabine every 4 weeks?

I would be interested in hearing about others' experiences with decitabine, particularly the side effects and what helps them. We feel pretty much alone in this and would appreciate contact with ...

Posted 14 Jun 2015 2 answers

Are there pill for Vidaza and how long is the treatment?

Just starting Dec 1st.

Posted 25 Nov 2014 1 answer

Do procrit shots cause muscels to acke?

My muscels get very sore and achey, when I go to bed in the evening and are very stiff in the morning when I get up. Is this a normal ? I have MDS should I be taking procrit?

Posted 15 Nov 2014 1 answer

My dad, diagnosed with myelodysplastic syndrome, is undergoing vidaza treatment for last 17 months?

Is he at any risk if he freezes-postpones his vidaza treatment for a couple of months? If his tests show that he is doing really fine and his myelodysplastic syndrome seems to be under complete ...

Posted 23 Feb 2014 1 answer

Decitabine - Husband is to start this drug Monday. He has lymphoma and MDS. The last chemo we had?

... put him in the hospital a month. Reading side effects not sure that I need to encourage this treatment

Posted 8 Nov 2013 1 answer

Mother has MDS port cath got infection doctors question how to treat been in Hosp 16 days?

First used Bactroban topically along with Vancomycin until renal failure then one antibiotic after another. Infection now spread over half her chest with blisters and blood in less than a week. ...

Posted 5 Apr 2013 3 answers

Are severe headaches lasting for days a side effect of Vidaza?

MRI shows no problems. After cycle 1 headaches started. Just completed cycle 5 headaches are almost daily getting more severe and affecting quality of life. Dr not sure what to do says my husband can ...

Posted 13 May 2012 1 answer

Has anyone experienced abdominal pain with taking Dacogen? If so, was it pretty severe? If so,?

... what did you do to remedy the pain?

Posted 8 May 2012 3 answers

Can Dacogen cause a side effect that would cause your foot to swell and cause pain?

Since the first of the year had 4 bouts with (gout) now Dr thinks in may be an infection but blood test says no I want to know if it could be a side effect Been on Dacongen for a year

Posted 20 Mar 2012 1 answer

Dacogen - I am about to start this medication. I have not symptoms, but doctors say I need this. I?

... have week stomach and headaches, What is taking this medicine like?. Will I ever feel like traveling again once I start it? I am scared that I will have no quality of life once I start this

Posted 31 May 2011 1 answer

Cardura - Have been taking for more than 12 years. Recent indications from MDs?

are that it has some adverse risks for elderly patients. Is that correct?

Posted 22 Mar 2011 1 answer

Mds anemia - can you identify with my symptoms and how I'm feeling?

Discovered I had the condition June 2010. Had numerous Blood Transfusions felt great afterwards for a few days and then felt terrible again. Am on Recormin 30 000 ml. (Also known as Epoetin beta) ...

Posted 24 Oct 2010 1 answer

Myelodysplastic Syndrome - My husband has been recieving procrit and neupogen?

... injections weekly this past year. He is becoming more and more anemic so now they want to switch to Vidaza... any thoughts?

Posted 28 Aug 2009 1 answer

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Further Information

Related Condition Support Groups

Myelodysplastic Diseases

Related Drug Support Groups

Dacogen, Vidaza, decitabine, azacitidine, filgrastim

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