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Myelodysplastic Syndrome Questions
Related terms: MDS
We found 29 questions associated with the 'Myelodysplastic Syndrome' topic.
My husband has just been diagnosed with therapy-related MDS. He is getting decitabine every 4 weeks?
I would be interested in hearing about others' experiences with decitabine, particularly the side effects and what helps them. We feel pretty much alone in this and would appreciate contact with ...
Posted 17 days ago • 0 answers
... what were the results
Posted 30 Jan 2015 • 1 answer
Just starting Dec 1st.
Posted 25 Nov 2014 • 1 answer
My muscels get very sore and achey, when I go to bed in the evening and are very stiff in the morning when I get up. Is this a normal ? I have MDS should I be taking procrit?
Posted 15 Nov 2014 • 1 answer
... zinc? I would like to know the percentage. It seems we have a larger number of people with myelodysplasia in our area. I would like to know the correlation between zinc poisoning and ...
Posted 10 Nov 2014 • 0 answers
Is he at any risk if he freezes-postpones his vidaza treatment for a couple of months? If his tests show that he is doing really fine and his myelodysplastic syndrome seems to be under complete ...
Posted 23 Feb 2014 • 1 answer
What are some nutrition suggestions for 90 year old MDS patient who also has Alzheimers' disease. (Aside from the basic nutritional guidelines we should all follow.) Are some juices, etc. better ...
Posted 27 Dec 2013 • 0 answers
... put him in the hospital a month. Reading side effects not sure that I need to encourage this treatment
Posted 8 Nov 2013 • 1 answer
89 year old male, has CHF, MDS, heart palpatations, not eating, very ill, sometimes unable to talk?
Posted 17 Aug 2013 • 2 answers
... last few shots, I've been running a high fever and horrible muscle aches/pains. Has anyone else had this happen? I feel like I've been run over by a Mack truck. I've been ...
Posted 8 Jun 2013 • 0 answers
First used Bactroban topically along with Vancomycin until renal failure then one antibiotic after another. Infection now spread over half her chest with blisters and blood in less than a week. ...
Posted 5 Apr 2013 • 3 answers
MRI shows no problems. After cycle 1 headaches started. Just completed cycle 5 headaches are almost daily getting more severe and affecting quality of life. Dr not sure what to do says my husband can ...
Posted 13 May 2012 • 1 answer
... what did you do to remedy the pain?
Posted 8 May 2012 • 3 answers
Since the first of the year had 4 bouts with (gout) now Dr thinks in may be an infection but blood test says no I want to know if it could be a side effect Been on Dacongen for a year
Posted 20 Mar 2012 • 1 answer