Myelodysplastic Syndrome Questions

Mother has MDS port cath got infection doctors question how to treat been in Hosp 16 days?

First used Bactroban topically along with Vancomycin until renal failure then one antibiotic after another. Infection now spread over half her chest with blisters and blood in less than a week. ...

Posted 5 Apr 2013 • 3 answers •

Are severe headaches lasting for days a side effect of Vidaza?

MRI shows no problems. After cycle 1 headaches started. Just completed cycle 5 headaches are almost daily getting more severe and affecting quality of life. Dr not sure what to do says my husband can ...

Posted 13 May 2012 • 1 answer •

Has anyone experienced abdominal pain with taking Dacogen? If so, was it pretty severe? If so,?

... what did you do to remedy the pain?

Posted 8 May 2012 • 2 answers •

Is delayed onset of Dacogen side effects unusual?

I will start my 4th cycle of Dacogen a week from this writing. Until now my side effects have been minimal. An occasional light head ache and a slight bit of nausea. However these last few days I am ...

Posted 22 Apr 2012 • 0 answers •

Can Dacogen cause a side effect that would cause your foot to swell and cause pain?

Since the first of the year had 4 bouts with (gout) now Dr thinks in may be an infection but blood test says no I want to know if it could be a side effect Been on Dacongen for a year

Posted 20 Mar 2012 • 1 answer • 1 star

I have MDS and I take neuprogen, so far all is good but I wonder what is ahead?

Posted 22 Dec 2011 • 0 answers •

Myelodysplastic Syndrome patients with above 10 hgb level can receive aranesp injection?

The patients with chief complaints Myelodysplastic Syndrome has hgb leval above 10 and hct as 30.6 and i want to know that patient can receive if the hgb level is above 10?

Posted 21 Nov 2011 • 0 answers •

Myelodysplastic Syndrome - Is there an approved antibiotic that can be taken with MDS. I have an?

... abcessed tooth

Posted 23 Oct 2011 • 1 answer •

Dacogen - I am about to start this medication. I have not symptoms, but doctors say I need this. I?

... have week stomach and headaches, What is taking this medicine like?. Will I ever feel like traveling again once I start it? I am scared that I will have no quality of life once I start this

Posted 31 May 2011 • 1 answer • 1 star

Cardura - Have been taking for more than 12 years. Recent indications from MDs?

are that it has some adverse risks for elderly patients. Is that correct?

Posted 22 Mar 2011 • 1 answer •

What advice can you offer a caregiver of someone who's beginning Aranesp injections soon?

My friend was recently diagnosed with MDS and will begin Aranesp injections soon. We don't know what to expect and would appreciate any insight and advice you have for us.

Posted 30 Jan 2011 • 0 answers •

Mds anemia - can you identify with my symptoms and how I'm feeling?

Discovered I had the condition June 2010. Had numerous Blood Transfusions felt great afterwards for a few days and then felt terrible again. Am on Recormin 30 000 ml. (Also known as Epoetin beta) ...

Posted 24 Oct 2010 • 1 answer •

Myelodysplastic Syndrome - I recently been diagnosed with MDS and I met with the transplant dr and?

... they are looking to start everything by the latest May17. I kind of feel lost does anyone know about the whole bone marrow transplant. It seems like alot with being in the hospital and recovering

Posted 29 Apr 2010 • 2 answers •

Myelodysplastic Syndrome - Does anyone have any information on the oral type of Vidaza? I heard?

... that they were in trials

Posted 10 Mar 2010 • 1 answer • 1 star

Myelodysplastic Syndrome - I am 75years I just found out that I have Myelodysplastc Syndrome what?

... Medication is avalible & how much do they cost? What other treatment is there avalible?

Posted 8 Dec 2009 • 1 answer •