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Myelodysplastic Syndrome Questions

Related terms: MDS


We found 29 questions associated with the 'Myelodysplastic Syndrome' topic.

My husband has just been diagnosed with therapy-related MDS. He is getting decitabine every 4 weeks?

I would be interested in hearing about others' experiences with decitabine, particularly the side effects and what helps them. We feel pretty much alone in this and would appreciate contact with ...

Posted 14 Jun 2015 1 answer

Are there pill for Vidaza and how long is the treatment?

Just starting Dec 1st.

Posted 25 Nov 2014 1 answer

Do procrit shots cause muscels to acke?

My muscels get very sore and achey, when I go to bed in the evening and are very stiff in the morning when I get up. Is this a normal ? I have MDS should I be taking procrit?

Posted 15 Nov 2014 1 answer

Myelodysplastic Syndrome - How many myelodysplasia patients have used denture adhesives that have?

... zinc? I would like to know the percentage. It seems we have a larger number of people with myelodysplasia in our area. I would like to know the correlation between zinc poisoning and ...

Posted 10 Nov 2014 0 answers

My dad, diagnosed with myelodysplastic syndrome, is undergoing vidaza treatment for last 17 months?

Is he at any risk if he freezes-postpones his vidaza treatment for a couple of months? If his tests show that he is doing really fine and his myelodysplastic syndrome seems to be under complete ...

Posted 23 Feb 2014 1 answer

Myelodysplastic Syndrome - what might be beneficial after a blood transfusion?

What are some nutrition suggestions for 90 year old MDS patient who also has Alzheimers' disease. (Aside from the basic nutritional guidelines we should all follow.) Are some juices, etc. better ...

Posted 27 Dec 2013 0 answers

Decitabine - Husband is to start this drug Monday. He has lymphoma and MDS. The last chemo we had?

... put him in the hospital a month. Reading side effects not sure that I need to encourage this treatment

Posted 8 Nov 2013 1 answer

Why give a person 89 yrs old Norco with chf and be sores is dying and not eating?

89 year old male, has CHF, MDS, heart palpatations, not eating, very ill, sometimes unable to talk?

Posted 17 Aug 2013 2 answers

I have been getting injections of Procrit since I was diagnosed with MDS 18 months ago. After the?

... last few shots, I've been running a high fever and horrible muscle aches/pains. Has anyone else had this happen? I feel like I've been run over by a Mack truck. I've been ...

Posted 8 Jun 2013 0 answers

Mother has MDS port cath got infection doctors question how to treat been in Hosp 16 days?

First used Bactroban topically along with Vancomycin until renal failure then one antibiotic after another. Infection now spread over half her chest with blisters and blood in less than a week. ...

Posted 5 Apr 2013 3 answers

Are severe headaches lasting for days a side effect of Vidaza?

MRI shows no problems. After cycle 1 headaches started. Just completed cycle 5 headaches are almost daily getting more severe and affecting quality of life. Dr not sure what to do says my husband can ...

Posted 13 May 2012 1 answer

Has anyone experienced abdominal pain with taking Dacogen? If so, was it pretty severe? If so,?

... what did you do to remedy the pain?

Posted 8 May 2012 3 answers

Is delayed onset of Dacogen side effects unusual?

I will start my 4th cycle of Dacogen a week from this writing. Until now my side effects have been minimal. An occasional light head ache and a slight bit of nausea. However these last few days I am ...

Posted 22 Apr 2012 0 answers

Can Dacogen cause a side effect that would cause your foot to swell and cause pain?

Since the first of the year had 4 bouts with (gout) now Dr thinks in may be an infection but blood test says no I want to know if it could be a side effect Been on Dacongen for a year

Posted 20 Mar 2012 1 answer

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Further Information

Related Condition Support Groups

Myelodysplastic Diseases

Related Drug Support Groups

Vidaza, Dacogen, decitabine, filgrastim, azacitidine

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