I have been on 3MG requip at hs for about 3 YRS for RLS. I also have severe CRPS (diagnosed 2010) of both my legs had a MEDTRONICS UNIT put in (2013) and then taken out. It never worked and had to use meds also. I got very ill from a new pain medication and lost so much weight my MEDTRONICS UNIT started to come thru my skin and had to have it removed. I went to the CCF PAIN MANAGEMENT DEPARTMENT where they removed the MEDTRONICS UNIT and talked me into a new device called THE DRG IMPLANT. It has been in me since October 11th, 2016 and I haven't slept more than 2 hours a night since then. CCF PAIN MANAGEMENT DEPARTMENT does not believe in giving pain medication to anyone and this unit is causing my restlss legs to start every morning and not stop no matter what adjustment is made to my unit. Henceforth, my Requip was increased to 6mg every day. Although I did need to gain some weight, 25 pounds since my Requip was increased was a bit much. The CRPS in my right leg is from a knee replacement done in 2010 that I have suffered severe pain with every day since having the surgery done. 25 additional pounds is alot of weight for my already shot knee to bear, plus the fact that the Requip has increased my RLS 200%. DO YOU HONESTLY THINK ANYONE IN THE MEDICAL COMMUNITY CARES? I HONESTLY DO NOT SEE ANY LIGHT AT THE END OF THE TUNNEL ANYMORE.
Ropinirole - how do you lose the weight requip made you gain?
Question posted by norajoans on 4 Feb 2017
Last updated on 25 February 2018
I HAVE LITERALLY RUN OUT OF PLACES TO TURN TO FOR HELP AT THIS POINT. DOES ANYONE HAVE ANY SUGGESTIONS? MY NEUROLOGIST WILL NOT SUBSTITUTE MY REQUIP AND MY PAIN MANANAGEMENT DR. PLAINLY DOESN'T GIVE A SHIT. KEEPS SAYING I SHOULD GIVE THE UNIT TIME TO WORK. WHY DID THE TRIAL WORK PERFECTLY BUT NOT THE PERMANENT ONE? HE HAS NO ANSWER FOR ME. "NO GOOD RESOLUTION FOR THE HORRID SIDE EFFECTS I GET FROM THE DRG UNIT IMPLANT", I QUOTE.
Answers
Hi! No one knows what it's like to have restless legs than another sufferer. I have had great relief by taking 1 sifrol pill before bed, for past 6 months. If I forget or fall asleep in chair the mussle pain can be in bearable. With trying to bang my legs, move my feet and walk, it's hard not to scream. I also have pins and needles in one hand that is annoying. Try sifrol and I hope it helps.
Sifrol pill? What is this plz?
I’m happy at the Beach too! We are on vacation in Florida for the next month.
So Sefrol...
I never heard of it either so I looked it up because it seems to have gotten good results.
It’s not been studied long enough to give results on long-term use.
It’s a drug brought to us from the European Union.
It a drug used for Parkinson’s Disease and RLS.
It’s Pharmalogical Group : Anti-Parkinson’s.
It’s active ingredient is : Pramipexole.
Availability: It is available in a long-acting dose and an immediate release.
How Does It Work:
Sifrol is a dopamine agonist. It imitates Dopamine which acts on certain parts of the brain that controls movement and coordination. In Parkinson’s disease, the cells of the brain die. These cells producedopamine so there is less circulating dopamine.
Pramipexole stimulates the brain so the person has less problems with movement.
The way it works in RLS is not fully understood but is thought to be related to the dopamine.
The studies were positive and showed the greatest affect was after 12 weeks for RLS.
Side Effects :
1 in 10 complained of nausea.
For Parkinson’s it is more than 1 in 10. Plus - dizziness, dyskinesia, and somnolence.
The other symptoms Include :
Drowsiness - 87
Weight gain - 53
Insomnia with vivid dreams - 27 & 25
These are the main ones but there are 200 more.
Lol...
I’m going to list results of a test involving 1909 patients.
I love to read these stats!
TOTAL PATIENTS :
Stopped Taking Pramipexole -
Duration:
Less than a month - 57
1-6 mo - 106
1-2 years - 93
2-5 years - 116
5-10 years - 36
10 years or more - 5
WHY PATIENTS STOPPED :
Side effects too severe - 263
Doctor’s advice - 142
Did not seem to work - 128
Other - 54
Expense - 29
Personal research - 25
Change in health care coverage - 11
Course of treatment ended - 10
WHAT PEOPLE SWITCHED TO AND FROM : Started taking Pramipexole AFTER Stopping :
Requip - 21
Carbidopa-Levodopa (Sinemet) - 14
Rotigotine (Neupro Patch) - 11
Rasagiline (Symmetrel) - 4
Patients STOPPED Taking Pramixole to :
Sinemet - 28
Requip - 17
Neupro Patch - 10
Stavelo - 3
This info is from Patients Like Me web site.
So that is it.
Have a great day
:-)
I’m happy at the Beach too! We are on vacation in Florida for the next month.
So Sefrol...
I never heard of it either so I looked it up because it seems to have gotten good results.
It’s not been studied long enough to give results on long-term use.
It’s a drug brought to us from the European Union.
It a drug used for Parkinson’s Disease and RLS.
It’s Pharmalogical Group : Anti-Parkinson’s.
It’s active ingredient is : Pramipexole.
Availability: It is available in a long-acting dose and an immediate release.
How Does It Work:
Sifrol is a dopamine agonist. It imitates Dopamine which acts on certain parts of the brain that controls movement and coordination. In Parkinson’s disease, the cells of the brain die. These cells producedopamine so there is less circulating dopamine.
Pramipexole stimulates the brain so the person has less problems with movement.
The way it works in RLS is not fully understood but is thought to be related to the dopamine.
The studies were positive and showed the greatest affect was after 12 weeks for RLS.
Side Effects :
1 in 10 complained of nausea.
For Parkinson’s it is more than 1 in 10. Plus - dizziness, dyskinesia, and somnolence.
The other symptoms Include :
Drowsiness - 87
Weight gain - 53
Insomnia with vivid dreams - 27 & 25
These are the main ones but there are 200 more.
Lol...
I’m going to list results of a test involving 1909 patients.
I love to read these stats!
TOTAL PATIENTS :
Stopped Taking Pramipexole -
Duration:
Less than a month - 57
1-6 mo - 106
1-2 years - 93
2-5 years - 116
5-10 years - 36
10 years or more - 5
WHY PATIENTS STOPPED :
Side effects too severe - 263
Doctor’s advice - 142
Did not seem to work - 128
Other - 54
Expense - 29
Personal research - 25
Change in health care coverage - 11
Course of treatment ended - 10
WHAT PEOPLE SWITCHED TO AND FROM : Started taking Pramipexole AFTER Stopping :
Requip - 21
Carbidopa-Levodopa (Sinemet) - 14
Rotigotine (Neupro Patch) - 11
Rasagiline (Symmetrel) - 4
Patients STOPPED Taking Pramixole to :
Sinemet - 28
Requip - 17
Neupro Patch - 10
Stavelo - 3
This info is from Patients Like Me web site.
So that is it.
Have a great day
:-)
Hi Norajoans,
I can't go into details now but I know what you are going through.
Humiliated, embarrassed and made to feel like your imagining the whole scenario.
I don't know why there is a need for pain specialists anymore. It seems to have been taken over by a bunch of policemen.
I'd gather up my medical records and go see a lawyer.
You do not keep anything in your body that is causing harm!
Look up RSD and print out the treatment options. There are steps to follow and opioids are considered the drug of choice after trying the previous steps. How can they deny all these studies and articles?
I wish I would have seen a lawyer right from the start.
My RSD is a result of a teenage, gum chewing teen working in the office during the summer. She put the wrong needle inserted straight down and hitting my nerve in 2002. It changed my quality of life.
If you have meds that are proven to work then you should have them available.
They are so afraid of the DEA they are violating their Hippocratic Oath.
You know what they are more afraid of?
Lawyers!!!
Best wishes to you.
Please don't hesitate to talk with me if you need some emotional support.
I've been through the alternative med so I can help with that... CBT, meditation, visualization, Reiki , etc.
Be well my friend
:-)
I hear you - I've had RSD (CRPS some call it now - a misnomer!) for over 20 years now. While starting in my neck, right shoulder, arm and hand after 2 cervical neck and 2 right shoulder surgeries all within 4 wks. I thought the pain was almost unbearable !!!
Then 8 yrs later it spread though my face and gums and down my left shoulder, arm and hand!!! After my back surgery 2010 it spread to my legs and feet.
No one knows this horrible horrible pain!!! Then came the RLS! Pain specialist don't really know about RSD!!
Related topics
requip, weight loss (obesity/overweight), reflex sympathetic dystrophy syndrome, restless legs syndrome, ropinirole, weight, diagnosis
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