He stated , and I quote , "that sounds like a pretty aggressive treatment ! "
Well it's a pretty aggressive ailment ,as well...
All these drugs that I take for the eczema, all they do is really bat it down for at most 3-4 days ... a week ... before it reappears ... I've had the dishydrosis for probably 15 years , and the topicals, prednisone, as well as the occasional 10 to 20 mg of Decadron IM, seem to work pretty well.
But the severe atopic dermatitis is a new wrinkle... Only manifesting within the last six months and I am talking about full body coverage during a flare up... ankles to ears !
It is miserable !!!
Is there any way I could speak to or, get in contact with, a physician connected with the Dupixent team that maybe will be a little more understanding ?
I'm going to try the euchrisa ... Although I don't hold out much hope as I have already tried Elidel , as well as protopic , in the past and didn't have much luck with either ... It's my understanding that these are the same class of the drugs as the Euchrisa...
Any assistance you may lend would be greatly appreciated ... Thank you for your time, consideration, and prompt response ...
My physician doesn't want to prescribe Dupixent?
Question posted by Benzobuckaroo69 on 23 Sep 2020
Last updated on 15 November 2020 by ketraminick
Answers
Try to find a dermatologist, I had to seek one because my physician was the same. My scalp, down to my feet were horrible and I couldn't bear it anymore. I used topical creams, medication shampoo and every steroid but nothing helped until I took dupixent. Please try to find a dermatologist and let them help you I promise you want regret it. It truly changed my life.
I also have severe atopic dermatitis that I have had for years but recently got more severe in the past few years. I was so severe a few years ago and no creams, ointments or steroid shots were working. I was put on methotrexate (chemo) for 1 year but they had to keep increasing the dosage and took me off when it got to a dangerous level.
After moving to a new state and finding a new dermatologist, I also was given the elidel and Euchrisa which are temporary fixes. I asked about Dupixent and he refused also and said it was a last resort even though I heard great things.
A few months ago, I was invited to a Dermatology Clinical Trial Research hospital through an eczema website, and talked to the doctor there. She set me up with the Dupixent My Way Patient Assistance Program recently. The nurses on the phone were wonderful and walk you through everything. I am supposed to get my first supply of monthly shots next Tuesday, but I am getting scared after talking to the nurse again yesterday and researching the side effects. The very common side effects are Conjunctivitis, Itchy eyes, Oral herpes, Other herpes simplex virus infections and even genital herpes... along with more common side effects. I don't know if risking all those side effects (like herpes) is worth it. I am going to call my doctor again today. The phone number is 1‑844‑DUPIXEN(T) (1-844-387-4936) Option 1, Monday–Friday, 8 AM–9 PM Eastern time. Ask to speak to a nurse and ask about the "Dupixent My Way program". The website is www.dupixent.com All of the information, including these side effects and videos on giving yourself the shot, and patient reviews are all on the website.
Related topics
atopic dermatitis, eczema, prescription, treatment, drug, dupixent
Further information
- Dupixent uses and safety info
- Dupixent prescribing info & package insert (for Health Professionals)
- Side effects of Dupixent (detailed)
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