Forgot to mention that I have also taken Neurontin and Lyrica and they didn't help either.
I have nerve pain 24/7 and none of the Opioids work. Is there any other solution for nerve pain?
Question posted by Anonymous on 4 Aug 2012
Last updated on 26 June 2020 by Jimeasley35
5 Answers
Jimeasley35
26 June 2020
Firstly I am not a doctor or in the professional field of medicine.
I've had Peripheral Neuropathy going on 19 years. I fully understand your symptoms of tingling and shooting pain, especially at night.
After many combinations of drugs, my doctor has me on one tablet of 600mg of gabapentin and two tablets of 600mg of gabapentin at night. I also take a 300 mg capsule in the morning and at night of Lyrica. (The doctor and the pharmacist will tell you the gabapentin and Lyrica are essential the same, but here is the way i feel about this, it's your body, and you are a part of the prescription to find what ever works best for you to get some relief.
My home remedy for PH that i use especially at night when i first go to bed: apply ice to the bottom of your feet for 20 minutes. To accomplish this best i use ice sandals. Just keep them in the freezer and have them available when needed. In fact I have two pairs in the freezer. This way I always have a spare available if needed.
You can purchase the ice sandals at many medical stores on line or probably on Amazon. I wish you well in your PH relief, it is not fun.
Inactive
4 Aug 2012
Pamee, Balbanese mentioned SSRI's and I was told Elavil, aka amitriptyline, is one that helps with nerve pain. Another alternative might be accupuncture. I know you may be feeling kinda hopeless and in pain right now, try to fight this. Amitriptyline has helped me with partial paresthesia I got from a dental shot. Nothing works overnight unfortunately. Hope y a get some relief soon. Patti
Inactive
4 Aug 2012
Pattyshan thank you! I forgot to mention I have taken SSRIs also antidepressants such as elavil, cymbalta and pamalor. Haven't yet tried acupuncture. Thank you again... pamee
butterflylynn
6 Aug 2012
Pamee,
You should also talk to your pain doc about nerve blocks & see what he thinks.
But normally your pain doc should be the one that gives you muscle relaxers as having your muscles in pain relates to you being in pain. I would definately make sure he knows how much pain you are in & how frustrated you are & really need a new approach to managing your pain. As there are So many more things they can still try to relieve the pain.
Take care & let me know how things go at your appt.
Kathy
spikers3
3 Feb 2015
i know this thread is a little dated but i did want to add a concoction i have found to work over the years. I am no medical professional by any means. I do, however, know what it means to be in pain 24/7 I was in a bad car wreck as a teenager. The real pain didn't start hitting me till about 25 though when all my discs started to blow. I'm up to 6 =/ but the sever sciatica is the worst, What i have found is that if i take 2 full strength nurotins and smoke a nice sized joint right before i go to bed. I a) get a full nights sleep!!! no midnight cramps! b) I wake up feeling like I am in my 20's again. this tends to last at the very least 24 hours. sometimes a week or more. Hope this helps, everyone has there own concoctions that work for them. with mine i can stay sober all day no medicine hangover like with all the pain killers out there.
Inactive
4 Aug 2012
Has your PM doc tried nerve blocks to the affective nerves. What area of your body is hurting or going numb? I have been dealing with nerve pain, so far the best combo I've been able to come up with is ms contin, IR morphine, gabapentin or Neurontin and Robaxin 750. I found it took a while to get the full effect of gabapentin, its not a cure, but my pain is manageable. Really hope you find a solution to your pain issues.
Sweet Hippie
Inactive
4 Aug 2012
Thank you sweet hippie. I have nerve pain from my lower back all the way to my toes front and back of my body 24/7 horrid pain. I took 2,400 neurontin and 300 mg of lyrica and they didn't phase me, nor did the opioids.
Inactive
4 Aug 2012
I have never had a nerve block
Inactive
4 Aug 2012
Have you tried Cymbalta, its kinda similar to Lyrica, but different. Its expensive, but so is Lyrica. I hate it when my arms or legs go numb. My drug combo all taken together seems to help best.
Good luck on your adventures.
Hippie
Inactive
4 Aug 2012
Hello again hippie! Yes I tried cymbalta, elaviil, pamalor and SSRIs. I am so frustrated about this pain. It keeps me stressed and in tears all the time. It is getting to me emotionally and I am losing hope... pamee
balbanese
4 Aug 2012
Me too, what have you tried?
Inactive
4 Aug 2012
Hi balbanese! I have tried oxycontin, oxycodone, methadone, different morphines, fentanyl patch, norco, opana er, tramadol, neurontin, lyrica and none has helped at all. Have you found anything that at least takes the edge off?
balbanese
4 Aug 2012
What is the diagnosis?
Inactive
4 Aug 2012
I was diagnosed with a rare autoimmune disease in 2008 then in 2010 the docs said I have all over body neuropathy and there was nothing more they can do because of it being so complicated, so all they do now is give me any kind of pain med they think might help.
balbanese
4 Aug 2012
Have you tried any of the many SSRI's? These may help you interpret the pain differently.
Inactive
4 Aug 2012
Balbanese I have had several SSRIs and I'm still on celexa, and trazodone for sleep. I have a script of ambien for sleep, but because it affects the gaba recepters like xanax I stay away from ambien.
femmy
4 Aug 2012
Have you tried Cymbalta?
butterflylynn
4 Aug 2012
Pam,
Hi, I was wondering what opioids you have tried?
Also what is the dosage you are taking on the Neurontin & Lyrica?
Also are you on any muscle relaxers if so what kind?
Kathy
Inactive
4 Aug 2012
Hi Kathy!
I have tried Oxycontin, Oxycodone, Fentanyl patch, Different Morphines, OpanaER, Methadone, Norco, Tramadol. 2,400 mg Neurontin, 300 mg Lyrica. At this time I do not take muscle relaxers, but have taken valium and flexeril.
pamee
Inactive
4 Aug 2012
Hi Kathy, I answered your Pm
arcanoidcyst16
4 Aug 2012
Pam if your on pain management therapy then your doctor should have prescribed you a muscle relaxer at least.That way you aren't just taking the pain ones too much.Just my opinion been suffering from chronic lower back pain for years and muscle relaxers can be very beneficial just sayin!!!
Inactive
4 Aug 2012
Arcan hello! I also suffer from painful muscle spasms and my pain doc tells me to see my PCP for my muscle pain and my PCP will not give them to me... hes a jerk.. I usually dnt say negative things about people as its not my nature, but my pcp is a real jerk. I will ask my pain doc again for muscle relaxers. What are some good ones? Thank you for the info.
pamee
Inactive
4 Aug 2012
Arcaniod do you have any suggestions to what kind of muscle relaxers I should ask my pain mgmt doctor for? No benzo's like valium please... thank you
butterflylynn
4 Aug 2012
Pam,
The best muscle relaxer for nerve pain is Baclofen as it was made for nerve pain.
It works by controlling the muscle spasms that are due to injuries & pain from your spine. They prescribe this mostly for injuries that have affected your spine. I have been on it for s long time & have only increased my dosage once. and your pain doc is the one that should be prescribing this to you.
it sounds like you need a new PCP & pain doc as out sounds like they are both trying to do as little as possible & not treating you properly. There is a alot of other procedures that your pain doc should be trying on you that he is not.
Do not just settle that you have to live in pain the rest of your life. Please start looking for new doctors because as you probably know by now, you have to be your own advocate... But never accept that you have to live in this much pain.
Take care my friend & get busy trying to find doctors that Want to Help you... Not just trying & shove you to the other dr.
Kathy
Inactive
5 Aug 2012
Thank you Kathy! My pain doc is a good doc, but he has never mentioned anything for my muscles, but I will let him know when I see him next week. I was in the hospital for about 3 months at that time they gave me Baclofen and after taking it for awhile the took me off as it didn't work. I may ask to give it a try again... I am thinking to for sure find a new PCP soon... thank you for the info.
pamee
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