I am in MI, and been treated for pain with narcotic's after running the entire gamit of procedures, bio-feedback, injections, accupuncture, PT, etc, etc. I was on an acceptable regimen, and was able to function. Last year my brother was diagnosed with Reticular Sarcoma, very aggresive. I had also been diagnosed with breast cancer for the second time while this was going on. I was taking my turn in caring for my brother, the day shift, my husband taking the night shift. And this was while I was recovering from a mastectomy. I was basically living between my home and my brothers. In the confusion, I thought I had misplaced my pain meds, I contacted my pain doc and asked what should I do if I couldn't find them? I was told they would get back to me. If they called me to tell me what to do, I don't know if I missed the call, or they just never called me back, things were so hectic and I was in recovery from surgery.
Fortunately I found I had left them at my brothers home, so in my mind the problem was solved. On my scheduled montly appt for a refill, I show up, but was then taken into a a room where the office manager informs me that the doctor wll no longer give me my meds, the reason being was I did not call back and tell them I had found them. They said I had violated my pain contract by calling in early for pain medication. I was told had I called them back and told them I had found my meds, none of this would be happening. I was shocked! In my mind, I had found them, so the problem was solved. I was crying and upset,and asked to talk to the doctor please (up to that point I thought we had a great doctor-patient relationship) and the office manager said he refused to see me. All she said I could do was to go to another doctor for evaluation the following morning, show up at 7:00 am and see what could be done. Well, I showed up, but was told the doctor would be out of the office until the following Tuesday(this was all happening on a Friday!) I was already 1 day behind on having my meds, so to wait until Tuesay was horrible!
By the grace of God, a friend asked her pain doctor to please see me, she told him what had happened and he agreed to see me on Monday. By the time I saw him I was so sick, I wanted to die. He pulled up my DEA sheet and saw what I had been prescribed, and all he was willing to prescribe what factored out to be a quarter of what my past regimen consisted of. He said he was not comfortable in giving me the doses I had been on for the past 4 years. I had no choice to take what he offered.
To make a long story short, this last year has been a living hell, trying to make due with what he was willing to prescribe. I asked 3 different times if he would increase my dosage, but he told me basically, take what he gives or find another doctor. Now I have been recently diagnosed with Lymphoma, and had an MRI of my back done, which showed drastic changes, yet he refuses to help me.
My question is this: Does anyone know of a good pain management doctor that would be willing to work with me? I live in a suburb of Detroit, and allthe doctors I have researched primarily do 'procedures', that is PT, injections and the like. I have done all of that with no relief. Because of an ongoing skin infection, I am not a candidate for any type of invasive procedure, that is why I ended up on a medication regimen only. Now with the abdominal pain which has been found to be from the Lymphoma. God only knows what the future holds for me pain wise. Please, if there is anyone out there that can recommend a doctor that would be willing to help me get back to my prior regimen. I would be willing to drive any distance just to get some relief. I would be forever grateful. Please help me, my time is limited, and I just can'do this anymore.
Thank you for taking the time to read this, I apologize.