Toxic Epidermal Necrolysis

WHAT YOU SHOULD KNOW:

Toxic epidermal necrolysis (TEN) is a rare skin condition that causes you to lose your outer layer of skin. It may look like a second-degree burn. You may lose 30% of your skin or more.

INSTRUCTIONS:

Medicines:

  • Medicines will help decrease pain or itching, or prevent an infection.

  • Take your medicine as directed. Contact your primary healthcare provider (PHP) if you think your medicine is not helping or if you have side effects. Tell him if you are allergic to any medicine. Keep a list of the medicines, vitamins, and herbs you take. Include the amounts, and when and why you take them. Bring the list or the pill bottles to follow-up visits. Carry your medicine list with you in case of an emergency.

Drink liquids as directed:

Liquids will help prevent dehydration from skin loss. Ask your PHP how much liquid to drink each day and which liquids are best for you.

Wound care:

Care for your wounds as directed. You may need to change your dressings to help decrease pain and promote healing.

Mouth care:

Care for your mouth as directed. You may need a medicated mouthwash, sponge, or soft toothbrush if you have mouth sores.

Go to physical therapy:

A physical therapist teaches you exercises to help improve movement and strength, and to decrease pain.

Medical alert identification:

Wear medical alert jewelry or carry a card that says you have TEN. Ask your PHP where to get these items.

Follow up with your PHP or specialist as directed:

Your PHP may refer you to a dermatologist, ophthalmologist, or plastic surgeon. Write down your questions so you remember to ask them during your visits.

Contact your PHP or specialist if:

  • You have a fever.

  • Your pain gets worse, even after you take medicine.

  • You have questions or concerns about your condition or care.

Return to the emergency department if:

  • You have severe pain.

  • You suddenly have trouble breathing.

© 2014 Truven Health Analytics Inc. Information is for End User's use only and may not be sold, redistributed or otherwise used for commercial purposes. All illustrations and images included in CareNotes® are the copyrighted property of A.D.A.M., Inc. or Truven Health Analytics.

The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.

Learn more about Toxic Epidermal Necrolysis (Aftercare Instructions)

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