Marfan Syndrome
Medically reviewed by Drugs.com. Last updated on May 6, 2024.
Marfan syndrome is a disorder that weakens the connective tissue in your body. Connective tissue gives strength and support to tendons, ligaments, blood vessels, and other parts of your body. Marfan syndrome may keep many of these parts of your body from being as strong as they should be. This can cause problems in your eyes, heart, blood vessels, and bones.
DISCHARGE INSTRUCTIONS:
Call your local emergency number (911 in the US) if:
- You have severe pain in your chest or abdomen.
- You have sudden shortness of breath.
Return to the emergency department if:
- You have sudden pain in your eyes and trouble seeing.
- You cannot control your urine or bowel movements.
Call your doctor if:
- You have a fever.
- You are planning to have a child, or you are pregnant.
- You have pain in your hips and have problems walking.
- You have questions or concerns about your condition or care.
Medicines:
- Beta-blockers help your heart beat softer and slower. This may prevent damage to your heart and aorta.
- Take your medicine as directed. Contact your healthcare provider if you think your medicine is not helping or if you have side effects. Tell your provider if you are allergic to any medicine. Keep a list of the medicines, vitamins, and herbs you take. Include the amounts, and when and why you take them. Bring the list or the pill bottles to follow-up visits. Carry your medicine list with you in case of an emergency.
What you should know before you try to have children:
- Ask about genetic counseling. Genetic counseling can help you understand your chances of passing the condition to your baby. Ask your healthcare provider for more information on genetic counseling.
- Your provider will check your aorta for any widening. Widening may mean you have weakness in the wall of your aorta. Pregnancy may put a lot of strain on your heart and may worsen your condition. You will need to be monitored closely during your pregnancy.
Follow up with your doctor as directed:
Write down your questions so you remember to ask them during your visits.
For more information:
- National Marfan Foundation
22 Manhasset Avenue
Port Washington , NY 11050
Phone: 1- 516 - 883-8712
Phone: 1- 800 - 862-7326
Web Address: www.marfan.org
© Copyright Merative 2024 Information is for End User's use only and may not be sold, redistributed or otherwise used for commercial purposes.
The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.
Learn more about Marfan Syndrome
Treatment options
Care guides
Symptoms and treatments
Further information
Always consult your healthcare provider to ensure the information displayed on this page applies to your personal circumstances.
