Immune globulin intravenous and subcutaneous for Chronic Inflammatory Demyelinating Polyradiculoneuropathy User Reviews

• PoohB...
• Taken for less than 1 month
• November 26, 2018

Gamunex-C (immune globulin intravenous and subcutaneous) "I have been under IViG therapy (intravenous immunoglobulin therapy) for more than 4 years, after first trying steroids for CIDP (Chronic Inflammatory Demyelinating Polyneuropathy). Felt better immediately with steroids, but gained weight which is now impossible to lose! Switched to Gamunex which I have used alternately (every 6 months with a change of living location) with Gamagard - no problems with either one. The only thing I can complain about is the time at the hospital every 3 weeks that is required. At the last appointment I was informed that a switch had been made from the Gamagard to Gamunex-C. Again, no problems whatsoever. I feel fortunate that I no longer fall, and have only mild balance problems, along with NO REACTIONS to the products used in treatment."

• laurah
• January 7, 2014

Gammagard Liquid (immune globulin intravenous and subcutaneous) "I was diagnosed in 2007 with Lewis-Sumner disorder a branch of Chronic Inflammatory Demyelination Polyradiculoneuropathy. I received a week of loaded doses of Gammagard then maintenance dose of 100 g and has been at 90 g for a few years now. This medicine is a great help for the atrophy in my legs but I do get side effects...moderate to severe back and muscle pain, cramping in my upper front main thigh muscle, foot and toes. Also a lot of hair loss and women should not get IVIG infusion when on their menstrual cycle. It causes more clots and a lot of increased flow than normally happens. Double up on your monthly femine products and be prepared to change them every 30 minutes. I also experience fatigue and frequent urination and headaches. Drink lots of water! I take Excedrine migraine."

• CIDP-...
• August 6, 2011

Gamunex-C (immune globulin intravenous and subcutaneous) "After 5 months of infusions I feel better although CIDP symptoms persist. Side effects were mouth sores/swollen lips both with white blisters starting after three days resolving after two weeks. Significant coverage of chest and back rash, large red blotches. Start on the fifth day and resolve after forming black scabs after three weeks. Will continue with last treatment and then quit."

• angw
• Taken for 6 months to 1 year
• December 27, 2022

Gammaked (immune globulin intravenous and subcutaneous) "I was taken off octogam in April changed it to this gammaked For the last 6 months, does not work as well as the others they had to add saline before treatments 2 days every three weeks. Doc is changing to 1x month, thank heavens, in the last treatment my right hand went completely numb though it was slowed down to a crawl. The side effects for this med are more frequent and usually brings on the symptoms of the polyneuropathy, also the headache last 3 days. My body can not seem to get used to this. I wish I could get off these infusions but going for 1x month may be better and helping, but I am not sure."

• Randy
• Taken for 2 to 5 years
• April 20, 2024

Gamunex-C (immune globulin intravenous and subcutaneous) "I have been on Gamunex C for over 4 years now. I have CIDP and before taking Gamunex C, I could hardly walk because of the pain, tingling, electric shock pain, weakness in both legs and feet and my balance was not good at all. Since taking Gamunex C, I have not had all the pain I use to have. My legs are not as weak and most of the tingling, burning, feelings of electrical shock and numbness has mostly gone away where it doesn't hurt to walk, I can sleep at night, and my balance has improved. It is pure gold. It has been a blessing. I look forward to my infusions twice a month. For years prior to being diagnosed I was put on all kinds of pain medication. I am so glad I am off of those pain medications. Pain medications like methadone, percocet, and morphine. No more! I have had no side effects to Gamunex C."

• Deepc...
• Taken for less than 1 month
• March 22, 2023

Gamunex-C (immune globulin intravenous and subcutaneous) "Great medicine. Have severe CIDP symptoms. Yesterday had my first infusion, that night felt like millions of ants inside me building me up. Have had four more infusions 11mg/kg, pretty heavy dose, but helps."