Enhertu for Breast Cancer, Metastatic User Reviews
Enhertu has an average rating of 7.7 out of 10 from a total of 11 reviews for the treatment of Breast Cancer, Metastatic. 73% of reviewers reported a positive experience, while 9% reported a negative experience.
Reviews for Enhertu
- bemar
- Taken for 1 to 6 months
- June 13, 2023
"Had 2 treatments with Enhertu. The side effects were bad and did not go away for a long time: dizziness, jitteriness in the entire body, fatigue, weakness, diarrhea, sick stomach, felt unwell all over and inside the body. Never, never would have another treatment with Endertu!!"
- marga...
- Taken for 1 to 6 months
- August 13, 2023
"I have been on Enhertu for a little over six months. I found it more tolerable when the dosage was decreased. It was good not to have the constant diarrhea I had on a previous drug. You can feel pretty blah a week or so after the infusion, but you get used to its 'schedule' in your body. I was obviously encouraged by the shrinkage of the tumors and hope this continues. I was happier before I began getting a 'tight' feeling in my lower legs, but so far so good. I have recently had a break from the treatment, as I realized it is possible to increase the quality of your life by doing this from time to time. I worried about how the next infusion post-break would affect me, but I haven't had that bad a time. The problem I encountered sadly was that halfway through the break I caught a viral cough which did not have time to clear before the next due infusion. Such bad timing. I am aware that I am on this drug until the side effects or the tumor create a serious problem."
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- Malena
- Taken for less than 1 month
- March 19, 2024
"I had a response/reaction during the first dose that required stopping infusion halfway through. An emergency team came. Received rescue medication and evaluation in the ER. Ruled out a cardiac event. Went home okay. Side effects included profound fatigue, nausea, dizziness, malaise, mouth and nose sores, persistent bad taste, and indigestion. By day 12, I felt better and was able to do short walks, light social activities, sewing, and light gardening, etc. The side effects above persisted but were less. The second infusion was 21 days later. Received the full dose but given at a slower rate (over three hours). Tolerated well. Side effects so far (day 0-7) post-infusion are heavier. Extreme exhaustion, difficult to be out of bed. Nausea, bad taste, indigestion, vertigo, dizziness, malaise."
- SLJ
- November 30, 2023
"Have had 3 treatments. The treatment was presented as chemo 'light'. But it knocked me down pretty bad anyway. It takes at least 10 days to recover. This includes a lot of extra pills to make it bearable. Also, it was said, less hair loss. Well, I lost 90% again. It is true that some side effects are less intense. But now I have to endure this treatment without knowing that you can stop and recover after 7 or 8 treatments. I do think it works because my spine pain is gone, but scans have to confirm. Reading here that the dosage can be lowered gives me hope because this will be difficult to uphold. Don't know what that will do to the effectiveness though.."
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- Peri
- Taken for 6 months to 1 year
- December 4, 2023
"I've had Enhertu infusions for 10 months. Experienced constipation, fatigue & hair loss. I did have my dosage lowered slightly which helped side effects. Hair did grow back before complete loss, constipation side effects were manageable with magnesium citrate supplement. Cancer responded favorably but now after 10 months may be subsiding."
- mary
- Taken for 1 to 2 years
- February 9, 2024
"I have been on this drug for 15 months lost my hair after 1 treatment, starting growing back after a month. Right now I have neuropathy pretty bad, other then that can't complain. My pet scan showed 2 new very small spots on my left ribs ,and another on my lower spine. I will, get another pet in 3 months and go from there. May have to change chemo, been through alot of it. It's been 5 years and 3 months , been metastatic to the bone."
- mary
- Taken for 1 to 2 years
- February 9, 2024
"I have been on this drug for 15 months lost my hair after 1 treatment, starting growing back after a month. Right now I have neuropathy pretty bad, other then that can't complain. My pet scan showed 2 new very small spots on my left ribs ,and another on my lower spine. I will, get another pet in 3 months and go from there. May have to change chemo, been through alot of it. It's been 5 years and 3 months , been metastatic to the bone."
- Lee
- Taken for 1 to 2 years
- August 8, 2023
"I am on a trial and have had 24 infusions. Most of my mets (brain, bone, and lung) have either shrunk or are stable."
- Puschok
- Taken for less than 1 month
- May 27, 2023
"I experienced stomach pain and fatigue during the first week. After week three my hair started to thin and my blood count is very low."
- bemar
- Taken for 1 to 6 months
- June 22, 2023
"Side effects became worse after each treatment and the side effects lasted for a long time"
- Angie
- Taken for 6 months to 1 year
- August 15, 2023
"Primary persistent side effects are dry mouth, change in taste, fatigue, some nausea. Hair loss but some regrowing even during treatment. Mixed results on effectiveness."
- Eliza...
- Taken for 6 months to 1 year
- January 13, 2024
"I am coping okay, but there are times when symptoms are pretty bad. Fatigue and appetite are not so good. Hair thinning."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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- Drug class: HER2 inhibitors
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"I took this drug under pressure from my doctors. I have been through many protocols in the last 6 years, Fulvestrant shots, letrozole, tamoxafen, ACT, CMF, HERCEPTIN, XELODA, +++ AND A LOT OF RADIATION. I wish I had trusted my own instincts and refused to even try this drug. There comes a point when no more means NO more. But I took this dose, probably enough to harm an elephant, and I have been sick ever since. There was no concern for the quality of life that I was still able to maintain, but had to try this big money over hyped drug, until the next one comes along. Plus very hard to find any if at all, the negative clinical trial info. I guess every one of the less then 300 patients(have only qty I found) came out with flying colors. Not enough honest patient info on this drug. May be great for new and young patients.But for those who ran the marathon already, they need do some real clinical trials, before they give us mega doses, and take what QOL we had left."