Genvoya for HIV Infection User Reviews (Page 3)

• VA26
• Taken for 1 to 6 months
• October 4, 2018

"I was diagnosed back in June of 2018 and I have been having the worse side effects with on and off nausea, loss of appetite , dizzyiess , not being able too sleep. Granted My numbers have changed for the better but does it get better at all?"

• Babiboi
• Taken for less than 1 month
• January 26, 2017

"Was diagnosed a year ago, Viral load 20000 and CD4 540. I've always struggled with a Phobia of any medication, so learning of my HIV diagnosis I knew it was going to be a challenge to start treatment. 3 days ago I decided to start. I decided that Genvoya would be a perfect fit for me due to very little side affects. Day one. Slight nausea after and hour of taking Genvoya, but a piece of Pepper Mint candy stoped the nausea. 14 hours in I had a beer a nausea started up. Day Two, I felt really great! Slight dizziness after an hour of taking it, could have been my Anxiety that caused that. Remind you I have a phobia of Medication. The rest of Day Two I felt great, more energy. Day 3, absolutely no issues. I'm feeling great. Genvoya is great!"

• The...
• Taken for 1 to 6 months
• September 24, 2017

"Ok this is my third review. I can say nothing more that thanks god and new advance medicines. I am in the 3 month and I could not be happier. Energy levels back to normal. I feel great. No side effects and my labs are great. My doctor forgot to tell me the numbers but from 300000 copies to undetectable I don’t know my cd4 but my doctor was so pleased that he informed me you only have to come every 6 months so my next appointment February 2018 I feel human again and I keep forgetting I am HIV positive. Good attitude and awesome times ahead I am 40 very happy"

• Kate
• Taken for 2 to 5 years
• January 19, 2022

"Been on Genvoya now for over 5 years. In just the last year, I've been having diagnosed UTI's every month. Also several kidney stones. Now pain in the bladder and pelvic floor. All the normal Dr.'s think it's female stuff. All tests prove negative, brought this up to my current Virologist. He dismissed the possibility with a wave off. I'm changing Dr.'s just because of his condescending attitude. Going to look at switching to Biktarvy."

• Pam65...
• Taken for 1 to 6 months
• June 21, 2017

"I'm a 52/year old heterosexual female. Infected with HIV late 2015. . Diagnosed 2-27-17. Viral load 76,000 and CD count 221... After 1 month viral load 86 and CD count 309. No side effects at all. Take every day 11:30 with a meal. I'm very happy and pleased with Genvoya."

• Casper
• Taken for 1 to 6 months
• July 7, 2018

"Back in 2016 I was diagnosed HIV + and for the first year I was dreading sleep, I didn’t want to die in my sleep. I first was on Stribild, and it wasn’t working enough. So then the doctors put me on Genvoya a year later now that Stribild is too expensive for my insurance to cover. Stribild would make me hurt constantly. Now, being on Genvoya I’m healthy though I was having diarrhea most nights. So I decided to go another route that is not FDA approved. I have added in Limu which is a seaweed.. My doctors have now ran tests and since then all my vitals are back to normal, my HIV is undetectable to where they can’t find any trace of my virus and my health is amazing. I’m no longer feeling pain, my headaches are gone. My CD4 count is extremely high. Now they say I may end up living to be a 100. Though I do stay on Genvoya for now. Let’s see what my future may bring."

• Uptown...
• Taken for 1 to 2 years
• July 28, 2017

"Most of people here have mentioned little to no side effects. That is good and I believe you. I’ve been on this for about 18 months. Before that I was on stribild and Atripla before that. Started in 2010. I’ve no idea why, but I am that 1% who gets side effects others do not. I am now into my 4th doctor since 2003 due to insurance provider issues. Only one ever really listened to me though. One even flat out said it’s not possible to have side effects. I keep saying I have fatigue and other side effects. I can’t concentrate. Forgetful. I recently found out I have the early stages of neuropathy. I have chronic depression. I can’t complain since it’s saving my life but I wish they had a way to tweak the dose for each individual. Oh well."

• Maryl...
• April 28, 2017

"I was very sick and did not know it. In December I had lost 32 lbs and jaundice. Had my gallbladder removed in February. Doctor could not figure out what was wrong. Several doctors had seen me. Then finally my doctor had me take an HIV test. I waited. Then was brought in to be told I am sick. Very sick. Later tests showed my T cells were at 175 and my viral load was 200,000. High. She recommended this drug and within 30 days my blood tests came back undetectable. They are doing another test next week and a geno test to confirm."

• Mike
• April 8, 2017

"Day 1, five hours after taking it the only side effect I notice is being very thirsty. Diagnosed 10/2010 with a VL of 184 and CD4 ~1000. 7 years in, my VL is under 3000 CD4 ~700 with never having taken any HIV meds. Genvoya was prescribed for me a few months ago but I have been dragging my feet. Will update occasionally since it's only day 1 and not much to share yet. Best to you all!"

• Orez
• September 22, 2016

"Feb 2016 I was diagnosed HIV+ with VL 8000000/CD4 700. Was immediately put on Stribild which I was able to tolerate but never felt well. I thought am I always going to have the feeling of not feeling well all the time. My first follow up May 2016 VL 90 did not get CD4 count on first follow up. My second follow up Sept 2016 VL 80/CD4 800. I started Genvoya on my second follow up and after a week I feel a lot better. I don't have the unending feeling of not feeling well. I actually feel better then I have in a long time. I actually feel like doing stuff now. Like when I started Stribild I have a sour taste on my tongue but hopefully it will go away like it did on Stribild. So far I am glad I made the switch. Time will tell."

• Delic...
• Taken for 1 to 6 months
• August 16, 2016

"I have been on genvoya for almost a year now I switched from another medication due to gastrointestinal complications with these medications. I still experience daily bouts of bloating constipation and the inability to clear my bowel. The doctor says I should get a colonoscopy although I had a sigmoidoscopy they found nothing my blood test and fecal samples came back normal I think these medications have it out for my intestines. There are days where there are no issues then there are days where I'm in the bathroom for at least 4 to 5 hours off and on feeling like I could probably die right here on the toilet. I just want relief from my gastrointestinal issues related 2 genvoya.."

• Nacho...
• Taken for 6 months to 1 year
• September 4, 2017

"Switched from Complera to Genvoya without any issues. No side effects that I have noticed and I have maintained undetectable VL throughout the transition. Complera was also a good drug, but Genvoya has additional benefits. Great option."

• Puffe...
• May 15, 2017

"Upon diagnosis, my Doctor ordered a genotype testing to see if I have a certain gene type called HLA-B*5701. While waiting for the result, I researched online to compare Triumeq and Genvoya. My Doctor doesn't feel comfortable with Cobicistat as he worries about drug interactions. I, on the other hand, dislike the potential "gastrointestinal adverse reaction, lactic acid poisoning/acidosis, liver damage and cardiovascular damage" associated with Abacavir, which were denounced by my Doctor as "nonsense". Furthermore, I have trouble sleeping and am yet to fully quit (now so determined to quit more than ever) smoking, I insisted on taking Genvoya and presented to my Doctor with 10 reasons. He didn't object in the end."

• JOhn...
• February 5, 2018

"After continued use of Genvoya (approximately 6 months), I noticed an increase of abdominal fat from under my pecs to lower stomach giving like a barrel appearance. I think they call it HIV belly. It is noticeable and after I eat it gets worse. They are apparently making a new type of Genvoya removing the component that causes this bloating appearance. I changed to another two types of pills that do not contain the bloating elements but the problem now will still not go away."

• SA759...
• Taken for 1 to 6 months
• June 26, 2016

"I have been taking this for almost 3 months, after previously being on Complera with some possible kidney related side effects. So far, not too much problem other than diarrhea about an hour after taking this--every day like clock work. There were some sleep-related issues (not able to) in the first couple weeks of switching to Genvoya, but hose have gone away. Hoping that kidney function tests will return to normal when checked in about a month. My insurance did not cover this at all, and I had to use the Gilead co-pay program, which was relatively easy to sign up for and get started."

• Trey...
• September 26, 2017

"I was diagnosed with HIV 06/2017. Viral load was 1500 with 472 CD4. I began taking Genvoya immediately. Just got my new lab results and my viral load is less than 20. I stop smoking cigarettes. I stopped drinking hard liquor. I started eating better and exercising more. I take a one a day multivitamin. Genvoya is the truth but you have to assist this medicine in the fight against the virus. I am happy to be living proof of to this medications success."

• Austin...
• December 25, 2017

"Hello everyone I'm a 40 year old male I've been taking genvoya for about 8 months now in the beginning it wasn't to bad but lately I been noticing sleep problems every night I have weird dreams or nightmares. Also nausea and stomach cramps . Some days are good and some days I feel out if it going to talk to my doctor about changing to a different med. I noticed it's good to drink a lot of water when your on these meds. Plus lately I noticed protein in my urine I took a urine test and the doctor says it's one level above normal I told the doctor I think the meds are causing that so will see what happens. I'll keep you guys posted. Stay healthy everyone."

• Richard...
• Taken for 6 months to 1 year
• March 21, 2017

"I previously posted my initial review after my first 6 weeks on Genvoya, so here is my update 6 months after that previous blood test. In the past 6 months, my CD4 count has risen from 343 to 474. This averages to an increase of 21 cells per month, which matches well with the official clinical patient trials for Genvoya. I am very very happy with that trend. So in 7.5 months on this drug, I've gone from a CD4 count of 326 to 474. I don't want to get too jazzed about one set of blood test results, but I'll take all the good news I can get. Most of my other bloodwork items came back within the normal ranges, which is nice. I switched health insurance carriers January 1, and now my co-pay has gone down by 95%, which is fantastic."

• Nathan...
• April 11, 2017

"Diagnosed HIV+ 1-28-17 Vital Load - 354,000 CD -254 Began Genvoya 3-13-17 Side effects - None Effective treatment - unknown until next week I have high hopes for this 4 in 1 pill. Fingers crossed I don't experience any future side effects."

• Guise...
• Taken for 1 to 6 months
• July 1, 2018

"I was diagnosed within approx. 3-4 weeks after infection, and the doctor prescribed Genvoya immediately after the results came back. I had been horribly sick for almost 10 days or more. Within a 2-3 days, I was feeling much, much better, and within a week or two, I felt completely healthy. I'm blessed in that I only had one or two issues with an upset stomach. Now, as long as I take it very regularly and with food, I've not experienced any side effects. I will be going in for six month tests within the next few weeks. I'm a bit worried about cholesterol as while it had been high, I managed to reduce it by a lot prior to taking Genvoya. In fact, here is a tip. I lost weight by going on Nutrisystem for 3-4 months (lost almost 30 lbs). Also, each morning, I mix some greens (spinach, kale mostly) with some fresh or frozen fruit and a scoop of protein powder. I also eat a lot more greens throughout the week, and I feel this has really helped bring down my cholesterol."

• Slike...
• Taken for less than 1 month
• March 5, 2017

"Diagnosed January 2017; started treatment on Genvoya, now 7 days in, absolutely zero problems. I notice a common theme of some of the negative comments ... Only one user mentions having taken Genvoya with a regular meal (and his experience has been positive); most users give no indication when they are taking the medication - I take mine at 5:30am with a small meal. Also it seems that users whom may be or have been on some other treatment besides Genvoya have the commonly attributed side effects that they mentioned - numbness, dizziness, forgetfulness, maybe a rash of some sort. I haven't had any such isuues. However, I notice that my skin seems to be easily cut when I'm shaving."

• Fabian
• Taken for less than 1 month
• July 13, 2018

"Diagnosed positive on April 2018. (CD4 Cells:280) Started Genyova on mid-June 2018 and today I got my first blood test results. CD4 cells have gone up to 377 from 280 just in 20 days! CD4/CD8 ratio fall to %57 from %63. it seems like its working for me. As for the early side effects, I had a few. Severe sleeping problems in the first 2 weeks but it's getting better every week. I'm a heavy coffee drinker. I'm suspicious that Cobicistat might interact with caffeine as well. it's really easier to fall asleep on the days I consume less coffee. I also felt really tired in the first 2 weeks, plus muscle and joint aches. after first 4 weeks I feel better, no muscle pains. I don't have any clues for long term side effects but for now, I say Genvoya is effective and working."

• Anonymous
• Taken for 1 to 6 months
• November 9, 2017

"I diagnosed on May 2017 cd4 309, VL 5050. I am almost at my fourth week and everything is fine. I didn’t had any side-effects actually maybe first day stomach ache and headaches. After 30 days I can say I feel normal healthy and safe again :) waiting for my results."

• Ray_Ray
• December 13, 2017

"I've been on this drug for almost two years, not a bit did I like this drug, I started noticing that I was more depressed than ever, I've became so anxious so lost. I constantly had diarrhea and if I was lucky there were some days I was able to deliver the feces normally. My eyes they've been red for almost two years and I assumed it was just my eyes. I remember going off the drug for a two days because I didn't have insurance, everything went back to normal, my eyes whiten again, my stomach felt better and my mentality got better. I then noticed the drug was the problem after 2 years. I switched to a different drug and I'm now recovering and feeling back to normal. Finally convinced the doctor after 2 years."

• Billy...
• Taken for 1 to 2 years
• September 3, 2017

"I don't think that it is helping my body my legs feel weaker everyday and I have been feeling lightheaded. And my doctor will not listen to me, she says they are working . She will get an ear full in the next two weeks if she will not listen I will have to find another doctor."