Azathioprine for Autoimmune Hepatitis User Reviews
Brand names: Imuran, Azasan
Azathioprine has an average rating of 9.3 out of 10 from a total of 10 reviews for the treatment of Autoimmune Hepatitis. 90% of reviewers reported a positive experience, while 0% reported a negative experience.
Reviews for Azathioprine
- CAB
- Taken for 1 to 2 years
- June 4, 2023
"Diagnosed with AIH March 2021, started on prednisone, once liver enzyme levels stabilized I was placed on AZA. No major side effects other than excessive fatigue in the beginning that would come on suddenly. I would be doing well and then fatigue would hit me out of no where. Learned to pace myself, listen to my body and rest when I needed to. I also started to do low impact exercise and get 20 min a day which helped a lot. Fast forward my numbers have been stable the whole time while taking AZA. I just had a liver biopsy which showed no inflammatory activity. I am tapering the medication and will see my liver doctor in 3 month to recheck labs. Healing process has been a hard journey, it just not taking the medication to heal your body, it’s also healing your mind, spirit and soul. Making changes to honor yourself. I pray that everyone who has been diagnosed with this condition are restored and healed."
- Ccm
- Taken for 10 years or more
- December 6, 2020
Imuran (azathioprine) "I have been on Azathioprine for over 20 years, along with Prednisone when I have a flare of Autoimmune Hepatitis. A couple times the Dr tried to lower my doses and each time I flared. Azathioprine has been a life saver."
- Ebbi
- Taken for 10 years or more
- March 14, 2016
Imuran (azathioprine) "I've been taking imuran for 18 years also prednisone Stopped prednisone 3 years ago. And started on alluropinal with Imuran For last 3 years. Have now stopped alluropinal because I've got urticaria they think it's alluropinal . This has been for 6 weeks just started it again 2 days ago and rash back very painful. Not sure what I will take with imuran now if anything. Don't understand. Also take Lipitor Zoloft I'm a diabetic also and take metforam and insulin nova rapid and lantus. Also aspirin. I'm 50 this year and it's worrying"
- Big...
- Taken for 2 to 5 years
- October 2, 2018
"I was diagnosed in 2015. Prednisone until levels came under control and they added the Azathioprine to 'keep me there'. Worked great, levels always in line, made a general conversational comment about getting older- almost 60- and feeling a little 'foggy' on name recall.They took me off immediately out of concerns around memory loss. I don't know if an actual side effect or just getting older. But now struggling to find a replacement. My experience positive until recently but I think I want to give it another try and just monitor more closely. I had NO side effects from the Azathioprine other than that potential."
Are you taking this medicine?
- Lee
- Taken for 5 to 10 years
- September 28, 2019
"Was on Azathioprine for 4-5 years it got my liver numbers down and kept them down. But into the 5th year I ask to try weaning off or lowering dosage, I was constantly getting sick. It seemed that I was being knocked down at least once a month from a cold or just complete fatigue. I also noticed if I went in highly public areas, stores or restaurants I would be laid up the next two days. I did good at lower dosage then stopped taking all together for almost 2 years. I sub-stained knee injuries and required pain medication until then along with lidocaine patches my numbers spiked to 300’s and quickly so I’m back on the Azathioprine. Hopefully I will be able to go off again after healing or something that won’t over suppress my immune system to point I cannot be out in public will come along."
- j-r-p
- Taken for 5 to 10 years
- January 2, 2023
"I have been on Azathioprine 50mg since January 2015, for the first 6 months I took Prednisone which once my numbers leveled out, they took me off. I have stayed with Azathioprine and my numbers have always been great. I had a scan in 2022 and I was still at the same level 1 when I began taking Azathioprine."
- Kkano
- November 28, 2019
"Was diagnosed with autoimmune hepatitis in '06. Been on azapthioprine for 12 years. No problems, no side effects"
- Ccmcphe
- Taken for 10 years or more
- March 30, 2022
"Have been on Imuran 100mg for over 20 years and it has been a life saver. Dr tried to lower several times which caused my liver counts to go up. Can't live without Imuran."
- Ccmcphe
- Taken for 10 years or more
- April 4, 2022
"Been on azathioprine for over 20 years. Keeps my ALT/AST numbers in the normal range."
- only...
- Taken for less than 1 month
- October 31, 2022
"Just started 2 days ago. Reading reviews are very helpful. Thank you"
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Imuran (azathioprine) "I have chronic autoimmune hepatitis and have been taking Imuran for four years. It has prevented further flare ups (which I have taken as much as a year to recover from) it enables me to live my life feeling well with mild side effects (some nausea)."