Upadacitinib for Rheumatoid Arthritis User Reviews (Page 4)
Brand names: Rinvoq, Rinvoq LQ
Upadacitinib has an average rating of 6.4 out of 10 from a total of 96 reviews for the treatment of Rheumatoid Arthritis. 50% of reviewers reported a positive experience, while 30% reported a negative experience.
Reviews for Upadacitinib
- Chloe
- Taken for 1 to 2 years
- May 31, 2023
Rinvoq (upadacitinib) "Rinvoq WAS a lifesaver for me, but not without side effects including sinus infections, yeast infections, nausea, and most bizarre tooth rot below the gumline. I experienced such needed symptom relief with Rinvoq, I believe it sent me into remission."
- Miche...
- May 3, 2023
Rinvoq (upadacitinib) "I have been taking Rinvoq and I have gained 18 pounds in four months. It’s helped my RA, ok but I do have big flares once a month. I tapered the drug down to one every other day myself. I am so depressed too. I have never been so big in my life. I am not liking this drug but don’t want to go on steroids again was on them for 7 years. I have tried all the RA drugs."
Frequently asked questions
- What are the most common skin conditions? (with photos)
- What are the new drugs for rheumatoid arthritis (RA)?
- What is the MOA and half-life for Rinvoq?
- Anonymous
- Taken for less than 1 month
- January 17, 2023
Rinvoq (upadacitinib) "I have had Rheumatoid Arthritis since 2019 and in the last six months, I could not get it fully under control. I was prescribed Rinvoq and have been taking it for 5 days and I have really felt the difference for the better. The swelling is definitely reducing. I have also found wearing arthritis compression gloves helps me to sleep better at night."
- hitch...
- Taken for 2 to 5 years
- December 24, 2023
Rinvoq (upadacitinib) "Stopped flares in hands. No real problems with managing lifestyle. Taking 15 mg daily for the last 2 years, but have gained 8 kg. Have many of the aforementioned side effects, but that might just be old age."
Are you taking this medicine?
- Will...
- Taken for 1 to 2 years
- October 22, 2023
Rinvoq (upadacitinib) "I still have flare-ups, however, the day-to-day pain and swelling are greatly reduced! I get very exhausted after several hours, but still much better than without Rinvoq. Thank you Advie for making it affordable… Without the drug, I would be completely disabled."
- Tad
- Taken for 1 to 2 years
- February 2, 2024
Rinvoq (upadacitinib) "Rinvoq has been the only medicine that has helped, minus steroids, in my 3-year battle with severe RA. It has come with its fair share of side effects, with the most prominent one being dizziness and vertigo spells lasting for long periods of time daily. I have also experienced mild cases of heart discomfort and acne. It's hard to weigh in if it's worth it, as it's the only medication, minus steroids as mentioned before, that has worked. I've tried just about all medications besides one more, so it's alarming that I'm on my last 2 options. I'm continuing for now."
- Kch
- Taken for 1 to 6 months
- July 6, 2023
Rinvoq (upadacitinib) "I have been on Rinvoq for 1 month. I had my labs drawn today and my results of my CBC are alarming! Low WBC, RBC, Platelets and more. I'm stopping this med and calling my Dr first thing in the morning."
- Kathy
- Taken for 1 to 6 months
- November 28, 2023
Rinvoq (upadacitinib) "I too started Rinvoq about 6 months ago and at first it worked wonders. It still works really well, but now I take low dose prednisone when I have a flare-up (maybe twice a month). In the last few months, I've noticed that my scalp has become very sensitive, if not downright painful - it feels just like cystic acne that I had as a young woman. After reading these reviews, I'm realizing acne is a side effect and I 'fortunately' see one other person with this issue on their scalp as well. I realize these reviews aren't an answer, but at least it's a relief that there are others with this issue. On a side note, this Rx was a royal pain to get authorized by my insurance. I was supposed to go on Xeljanz (sp?), but they declined it and made me do this one first. Fortunately, the Rinvoq pharmaceutical offered a discount and I qualified for it."
- MBC
- Taken for 2 to 5 years
- May 19, 2022
"Prior to being diagnosed with RA, I was extremely active. I was a personal trainer and then a flight attendant. I was diagnosed with RA after it hit me like a freight train rendering me bedridden and in pain at 26 for month. After 6 different medications that either I didn’t tolerate or didn’t work well, my rheumatologist put me on Rinvoq. The initial adjustment period to the drug took about 2 months where I was nauseous after I took it. After that- it’s like I was pre-diagnosis. I’m able to lift weights in the gym, hike, travel, and live my life. I don’t follow a diet other that mostly healthy/fast foodie. The medication controls my RA and has prevented a flare for years now. The only time I did flare was after an issue with insurance and I was without the drug for a month. The same cycle happened again after starting back- nausea in the AM after I took it. My friends and family know about my dx but beyond that you would never guess I have RA thanks to Rinvoq."
- Painf...
- Taken for 1 to 6 months
- April 23, 2024
Rinvoq (upadacitinib) "I have been on Rinvoq for two months and it has been a life-changing medication for me. No longer have flares in my wrists, thumbs, and hands. I can actually use my hands to pick up a full glass of water, cook, and open things. Have more energy and less stiffness. Life is different on Rinvoq and I hope it stays that way. Downside is some acne, dry mouth, and dry eyes - something I can deal with because the upside is so great. So far none of the serious side effects."
- Mollys...
- May 2, 2021
"I was on Humira but it wasn’t lasting two weeks. My rheum wanted to try another injectable but my insurance wouldn’t cover it until I failed this class of meds. This is the worst my RA has ever been! This seems to do worse than nothing! I have a bunch of edema in my feet and ankles now, too, not to mention what is in my knuckles. I can barely open a door handle by myself now and I am only 40."
- Linda
- Taken for 6 months to 1 year
- January 5, 2024
Rinvoq (upadacitinib) "I find it alleviates my joint pain. I do suffer from muscle cramps on my right arm, pain in my left side (rib area) and stiffness, pain in the left side of my neck and pins and needles in my left arm. I also get very fatigued from time to time. I also suffer from symptoms of a UTI on and off."
- Deede...
- Taken for 1 to 6 months
- August 5, 2020
Rinvoq (upadacitinib) "I was on Humira and Rasuva injections as well as several oral meds. I am off all of them except Rinvoq. And I feel great!!"
- Debbo
- Taken for 1 to 6 months
- January 1, 2021
Rinvoq (upadacitinib) "This was my 10th medication in 2 years, and we finally found one that works for me - hurray! Started feeling better within 2 weeks. Life changing."
- Anonymous
- Taken for 1 to 6 months
- September 18, 2021
Rinvoq (upadacitinib) "been on Rinvoq a little over a month, it was working great until my leg got very painful and inflamed, found out that there were blood clots in there caused by the Rinvoq :-("
- My...
- Taken for 6 months to 1 year
- August 14, 2021
Rinvoq (upadacitinib) "This has been the best medicine. I feel like I do not have RA now. It worked quick. Easy."
- Anonymous
- Taken for 1 to 2 years
- March 21, 2023
Rinvoq (upadacitinib) "Amazing medicine, has treated my rheumatoid well. No pain after meds used. Once per day."
- Livin...
- Taken for less than 1 month
- October 16, 2021
Rinvoq (upadacitinib) "My skin is breaking out after taking Rinvoq. Never had this problem in my life. It's not just my face.. all over my body... it's only been 3 weeks.... I guess it's time to talk to my doctor.."
- Sue
- Taken for 6 months to 1 year
- November 8, 2022
Rinvoq (upadacitinib) "Rinvoq has been a miracle for me within weeks of starting it my pain and swelling diminished. The benefits far outweigh the side effects,. 11 months now and I'm literally pain free."
- susan
- Taken for 1 to 2 years
- October 26, 2023
Rinvoq (upadacitinib) "Hi, made a huge difference to me. I have tried all the other meds, but this one is working for me. Hands looser and no swelling and much less pain."
- Lee
- Taken for 2 to 5 years
- February 16, 2024
Rinvoq (upadacitinib) "Effective management for rheumatoid arthritis. Possibly skin blemishes."
- Stella
- Taken for 2 to 5 years
- February 2, 2024
Rinvoq (upadacitinib) "Have been on Rinvoq for almost 4 years now. No RA symptoms anymore, but catching colds very easily."
- ABG...
- Taken for 1 to 6 months
- May 27, 2023
Rinvoq (upadacitinib) "It's helped my hands, which were hurting pretty badly. I'd been on humira for years, and it was becoming less effective, so I switched. I have noticed having a little less fatigue."
- Lac
- Taken for 1 to 6 months
- April 12, 2021
"I was on Rinvog for 2 months and had to go off because my white blood cells dropped to low. I do not believe it was working for me anyways."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Rinvoq (upadacitinib) "I was diagnosed 40 years ago and have tried so many different meds. After 3 months on Rinvoq, I started to feel better. More energy and very little swelling. It's now been 9 months and I feel like before. It's just barely keeping symptoms at bay. How I wish for a medicine that helps me in the long run! I haven't had any side effects like others so I am thankful for that."