Ropinirole for Restless Legs Syndrome User Reviews (Page 5)

• Genome
• August 4, 2010

Requip (ropinirole) "I have been using ropinirole for about 2 1/2 years now. I finally can get a good night's sleep. I take it nightly; I can't forget to take it because my legs start getting restless. I have had to increase dosage to 2 mg and I have never experienced any side effects to my knowledge."

• Restl...
• February 26, 2017

"I have been on Requip for 3 days now. 1mg total. It's done nothing. I'm exhausted and want to sleep but the RSL keeps me up. I average about 4 hours of sleep a day now. I spend hours in my chair with my arms and legs shaking. It's pure hell. Sometimes I feel like taking a chainsaw to my limbs."

• Texas...
• January 5, 2017

Requip (ropinirole) "I I wanted to give an update as I hadn't started taking Requip on my first post. I had taken 2 doses, and had one episode of RLS the second day. On the 3rd day, I was sitting in the waiting room at the colonoscopy clinic while my husband was in the back. I kept dozing off, and would wake up, looking for my bottle of water, and it was in my purse, sitting in my lap. This happened over 4-5 times. Anyhow, I took another dose that night, which was a Monday. The next day, on the drive home, I was dozing, then woke up, raised up my seat, put my window down a little, reached out and pushed the mirror up! I didn't say anything, put my window back up, and went back to sleep. That was my last dose and I threw the rest of it away."

• Texas...
• Taken for less than 1 month
• September 29, 2016

Requip (ropinirole) "I haven't taken my first dose yet, but hoping it works. My RLS occurs mostly during the day, and at times also includes my arms. Since I have a problem with chronic pain, I'm on Norco 10/325 every 6 hrs, Gabapentin 300-900mgm 3 times a day, and had been on Diazapam (Valium) 5 mgm every 4-6 hrs as needed for muscle spasms. Well, one day I got so desperate that I took one of each of my meds and the symptoms stopped after about 45 minutes! I was so excited as I would often have 3-4 episodes a day, not every day thank goodness! Then, my pain management doctor stopped the Diazapam! Really made it harder to control the RLS when it would start. I finally upped my dose of Gabapentin, which seemed to help. Still need some Diazapam to work."

• Rionk...
• August 26, 2016

"I have had RLS since I was a teenager and the older I got the more severe it became. I have had many serious and extremely painful surgeries on my back and spinal cord but nothing is as bad as RLS. I have been on requip for almost a dozen years now. For me it has been a miracle drug. I can barely even compare my life before to after requip. Started off at .5 mg and am currently at 7mg. Each year I had to increase it little by little. Recently it has stopped working well even on such a high dose. I am barely sleeping at night and getting miserable again. I knew the day would come but I sure wish I could get a bit more time on it but the writing is on the wall, I will have to try another treatment I suppose."

• Jwright
• Taken for less than 1 month
• February 15, 2017

"Unfortunately I couldn't handle this medication for even a week. I was on 0.25mg once a day (at night). I was plagued by nausea that would last ALL day. I developed moderate muscle cramping and I had extreme daytime sleepiness that not even caffeine could help with (400 mg of caffeine not helping fatigue is more than unusual). I fell asleep in the bathtub while taking a bath, when I woke up my head was nearly fully submerged, the water line was literally at my mouth. Unfortunately I had to discontinue. The nausea was the worst part. Feeling like I want to puke all day long is terrible. It might work for other people but this med is definitely NOT for me."

• Jack...
• Taken for less than 1 month
• September 6, 2019

"So I am now 46 years old and have severe RLS which getting worse over at least 20 years. I started on ropiniroIe and I was very sick at first on 1mg, I stuck with it and after 5 days it stopped. I was taking 2mg per day but after a couple months starting getting worse - I suffer with bad legs and arms and then my whole body gets taken over by this disease!! So I am now on SLOW RELEASE 4MG, however I feel awful every night - Like I am full of the flu, feeling sick. I wondered if the fact its a different brand may make a difference... Anyone else have this issue??"

• squir...
• August 28, 2011

Requip (ropinirole) "I've been on 1 Requip for a couple of months with *great* success. Last night, however, I got my first breakthrough restless legs syndrome; it lasted all night and was excruciating. I took baths, did some stretching and even took another Requip. I got about 4 hours sleep, but RLS woke me up again this morning, and it's the same. I've read that many people have had to up the dosage on this medicine, but this happened to me so soon after taking it, I'm sort of nervous. I don't want to increase the dosage already - it's only been a month. Thank you for mentioning that some of you have RLS breakthrough if you are dehydrated or something else."

• Justf...
• Taken for less than 1 month
• January 6, 2019

"Candoitoo - I read your comments on the dosage and leg tenderness on inside of thigh. I had that before I started using ropinerole. I was concerned and could not figure out why that strange tenderness was there. .25 mg an hour or so before bed, then 1 or 2 of the .25 mg at bedtime. It has helped with the RLS so it has helped with the anxiety, panic and depression that comes with sleep deprivation. Glad to hear someone else is having similar response. Bad dreams come to me with or without the ropinerole. That seems to be part of the whole condition."

• linny
• Taken for 1 to 2 years
• August 11, 2018

"helps me get the rest I need. Without rest I hurt terribly from chronic fatigue syndrome. I tried to stop taking this for a few months and I was exhausted and up most of the night with leg issues. A couple times I actually got up and marched in place for a few minutes. So frustrating to have RLS."

• Who...
• December 23, 2015

"After being on high doses of Percocet for over two months due to kidney issues, I quit my pain meds cold turkey. My RLS went from irritating restless legs to insanity causing restless body. Opiate detox can apparently cause RLS to greatly intensify if you cold turkey off your pain meds. My requip now does absolutely nothing for me. It was hard enough remembering to take one dose at 5pm and a second dose a hour before bed to begin with, now that it's stopped working I've reverted back to taking pain meds at night just to help the RLS. Unfortunately pain meds don't help me sleep, but at least I can lay still and stare at the ceiling."

• eupho...
• Taken for 2 to 5 years
• October 23, 2015

"If I could I could do it over, I would have never started taking ropinirole almost 3 years ago.I've had lifelong RLS. It began to really disrupt my sleep a few years ago. My doctor gave me a prescription to relieve the severity of my symptoms. I began to sleep at night, and my legs were not jumping all day. However, the negative side affects creep up on you over time; they are even worse when coupled with existing depression, bi-polar, anxiety, PTSD, and other mood issues. I have gained at least 30 lbs in the last 3 years (and I exercise EVERY DAY). Plus, when I run out of pills, and I can't get a refill in time, that means I CANNOT SLEEP. My new doc is helping me get off of ropinirole for good."

• Heather
• Taken for 1 to 6 months
• March 2, 2018

"I found this medicine to be a lifesaver, I wasn’t getting any sleep whatsoever and up all night crying with my legs jumping all the time and feeling of tickly legs. I had to take vitamin b 12 and iron tabs 3 times a day then this medication once at night. The instructions say take 1-2 hours before bedtime but I find that after I've taken this I’m asleep within half an hour. I don’t feel myself drift off to sleep, I’m awake one minute and out the next, made a huge difference to my life and comfort at night."

• catla...
• July 5, 2011

Requip (ropinirole) "I have been taking Requip XL for a few years now. It worked great at first, but now I get rebound restless legs syndrome almost every afternoon. I also find that if I'm late taking it, or if I take it after the rebound RLS starts, that it takes hours before it helps. I usually end up taking Percocet to stop the painful twitching. It's better than taking nothing at all, but I would love to go 24 hours without the pain!"

• Monta...
• Taken for 1 to 2 years
• March 2, 2016

"Having had severe bouts of RLS going back as far as 1995, I was finally put on Ropinirol approx 1yr ago by my Primary Doctor. He started me off on .25 mg. Over the past months I have gone to 1 mg. I have experienced no Restless Leg for the last month. Unbelievable! What's more, no side effects! Even better! I have leveled off at 1 mg and I am totally grateful for the results!"

• BARuss
• April 19, 2016

"Knew I had SOMETHING wrong with me, didn't know for the longest time that it was RLS! Dr tried 1 or 2 other pills, worked for a minute, then stopped! Started Requip, some years ago, there was a side effect adjustment to be sure! I discovered that the "3 hours before bed time" was too long for me, and then once I took a pill, could not eat or drink, not even water or I would throw up, now I take a pill (4 MG) every night Immediately before I get into bed and per sleep studies, I have gone from 39 leg movements per hour to Zero! And help me if I don't take a pill before bed, there will be NO sleep if that happens! I always carry some in my purse in case I get stuck somewhere and need to spend the night!!! Thanks Requip!"

• Anonymous
• May 22, 2011

Requip (ropinirole) "Has anyone noticed that Requip XL has more side effects than regular Requip? May doctor has been giving me samples of Requip XL to take instead of my regular requip (insurance will not pay for Requip XL). I take 6mg per day and have taken for many years. My dosage has been as much as 12 mg. but have reduced the dosage to get down to 6 mg. I still have breakthrough restless legs even when I take my medicine on schedule and sometimes when I do not take my medicine on time I will have restless legs for hours after I take my dose. I am having severe nausea, vomiting, sweats, flushing, hot flashes, dizziness, tiredness, etc. "

• Anonymous
• September 7, 2012

"I've suffered with restless legs syndrome since long before they came out with a name for it. Requip for me has been a wonder and the only side effect I've ever noticed is the drowsiness. But unfortunately it seems like either the symptoms are getting worse with age or else my body is increasingly becoming immune to the medication as for many years now I experience daytime symptoms as bad as night time symptoms and am now up to taking a total of 4mg/day (1mg every 4-6 hrs) and it takes over an hour to produce results after taking during which time I am standing at my desk at work working on my computer. Long drives, movie theaters, seminars and flights are all things I can't do without loading up on the medication beforehand."

• Anonymous
• February 29, 2012

Requip (ropinirole) "This somewhat reduced my restless legs syndrome (which occurs every other day and is enough to keep me up at night and be bothersome); however, it gave me insomnia, which came in the form of falling asleep relatively quickly, but I would wake up approximately every two hours in the middle of very vivid dreams. Each time I would wake up, it would take me a good five minutes to realize where exactly I was and that I was semi awake in the middle of a vivid dream; then it would take me a good half hour to fall asleep again and the cycle would repeat. The side effects definitely outweighed the benefits and I stopped using after two nights. Now I'm on Gabapentin, which hopefully will work a bit better for me."

• jen
• November 29, 2008

Requip (ropinirole) "I have chronic kidney disease that can cause RLS. It was wonderful at first when they started me on 0.5mg. As side effects go I got a nice relaxed feeling with nausea. Than I started to get the RLS again and had my dose upped twice. Now I take 2mg of Requip with 1mg klonopin. Still can get a little restless. Still looking for the perfect pill. For those of you like me on dialysis I don't think there is much hope but prayers. Sometimes they work, sometimes they don't. "

• pepsi...
• August 19, 2017

"I have had RLS for a good 15 yrs. I have taken about everything there is for it and one thing I have found is no one thing works for everyone. Ropinirole has worked the best but even that I will have a night now and then when they get real bad. The side effects of ropinirole is tiredness. I call it tired but it is really total fatigue. I can usually keep going for a time when I am tired but with fatigue you have to give up and lay down. I don't go to sleep usually as I am not sleepy but have to lay down. I sleep pretty good at night but wake up in the morning feeling like I hadn't rested at all. There is no describing RLS unless you have it real bad and thank God most that I talk to don't."

• Bagel
• Taken for 1 to 2 years
• October 6, 2019

"I'm on 4mg. It works but I have terrible side effects from it. However RLS is incurable and is worse so I still need to take it. 45 minutes after taking it I get nausea, fever chills, and body aches. It makes me tired which is fine by me."

• Ginaloo
• Taken for 6 months to 1 year
• October 13, 2012

Requip (ropinirole) "I have been taking generic Requip (ropinerole) for about 9 months now for restless legs syndrome and periodic limb movement disorder. My doctor has gradually increased my dose from 0.75 mg a day to 2 mg. It has really helped my PLMD; it doesn't happen anymore. It also helps my RLS. However, my RLS had almost disappeared before I started taking Requip (when I gave up caffeine). The RLS came back when I started taking Requip for the PLMD. Overall, however, I think it has been worth it. I am on a still relatively small dose."

• Short...
• Taken for 5 to 10 years
• September 16, 2019

"Been taking ROPINIROL for years. Don't know If it does any good for my restlegs cuz I'm also on lamotrigine and topamax....which I've taken longer. Now I'm on other meds for my back. But before I started the ropinirole when I didn't know it was RLS I would turn my fan on medium and keep my feet out from under the covers at night. Sometimes I would put socks on, a small ice pack and another pair of socks...I still have to do that sometimes. Also now I'm having memory loss, fuzziness and a few other symptoms from taking it. Going to talk to my neurologist soon"

• KSM
• Taken for 1 to 6 months
• May 31, 2016

"So thankful my sleep doc suggested Requip. It has worked amazingly well! I am so relieved. Just the thought of having to go without it is horrifying. I was in the top 5% with symptoms. It does not last a full 8 hours for me. I also take Ambien right at bedtime. I now sleep 5.5 to 6.5 hours a night. Longest time in my whole life! I am 58. I drive a lot for work. In the evenings, I have to stop and get out to walk for a couple minutes. Sometimes more than once. Small price to pay. No nausea. Just a couple nights with weird symptoms. "