Ropinirole for Restless Legs Syndrome User Reviews (Page 4)

• Dave
• Taken for 6 months to 1 year
• March 12, 2019

"I was suffering with RLS for a couple of years without knowing what was going on. Finally, I mentioned the symptoms to my Dr and he diagnosed me. I started on Ropinirole .25 mg with very little effect. Over the months it has been increased to 2mg. It has helped a great deal. I do find it helps me sleep when I take 2 hours before bedtime. Also, it seems to cause erections. I don’t see this listed on side effects list. Perhaps if I work up the courage I will ask my Dr. About that. I do recommend this medication if you are suffering from RLS."

• CeeCee
• Taken for 2 to 5 years
• February 24, 2019

"I’ve suffered from RLS 20 plus years. Like most, without medication, it is an unbearable sensation and condition. Have been using between 1 to 2, 2 mg per night. If I take it a few hours before bedtime it is most effective. However, I pay for its usage by feeling very sluggish the following day. It’s unfortunate, yet it’s a trade off I’m willing to accept. There’s very little worse than RLS."

• Roger...
• Taken for 2 to 5 years
• October 6, 2012

Requip (ropinirole) "I take 0.75 mg at 6.00pm. This totally relieves restless legs syndrome for me. Side effects are mild but include profound sleepiness and mildly heightened libido (true!) which are somewhat self-defeating. Because Requip is a dopamine agonist it works alongside iron as a co-factor. Therefore, I need to minimise iron-depleting lifestyle factors as well as taking Requip. That means that I can only have de-caffeineated coffee and that I can't drink alcohol. "

• Anonymous
• February 6, 2020

"I started taking 3mg dose of ropinirole at night for my restless legs. I've had horrible restless legs for the past 2 years since I had my daughter. An hour after I took this medicine last night I was very nauseous and started throwing up. I didn't have restless legs last night but I was very sick for about an hour. I'm trying this medication one more night to see if I can get by without getting sick. If I do get sick again I'm going to only take half of the medication next time"

• Daggy
• February 18, 2012

Requip (ropinirole) "I have had restless legs syndrome since before there was any medicine or before they put a name on it. I called it shaken leg syndrome. Then finally my Dr. put me on Requip as soon as it came out, I went up to 4mg quickly but I had it all over my body, so I went out searching again online and found 'NATURES INVENTORY" they have an oil for RLS and it works for moderate or less. So I use the oil when I'm out and about cause Requip makes me very tired. I only have to take 2mg Requip as long as I use the oil, too. Other side effects with Requip are: Sweating, nausea.. I nibble on my pill over about 2 hours and have no side effects that way... I can't imagine life with out Requip."

• kasia...
• March 17, 2009

Requip (ropinirole) "After taking Mirapex for about a year then developing horrible nausea and vomiting, my doctor switched me to Requip 0.5 mg at bedtime. This time, the relief from RLS only lasted about a week. After that the nausea and vomiting returned with a vengeance and I had to discontinue the medication immediately."

• Nicole...
• December 5, 2015

Requip (ropinirole) "I was taking amitriptaline for years, but started losing memory, then I started losing time. With alzheimer's strong in family history, I had to make a change to my medication. I tried horizant, 300mg for a while, then bumped up the mg to 600/night. It still wasn't helping. My legs got worse & worse. I was taking benedryl just to sleep & some times even that didn't work. Fed up of crying & writhing in pain, I called my Dr who put me back on requip. 3mg to start. It was terrible! ! Incredible nausea, vomiting, sweats, syncope.... worst night of my life! I thought I was going to die! ! Luckily, my fiance is a medical assistant, otherwise....I probably wouldn't be able to write this."

• Sjcarr
• Taken for 1 to 2 years
• November 20, 2015

Requip (ropinirole) "I have tried several different medications over the past years. Some work at first, but later stop. Some have horrible side effects or just are not effective. I have found that requip extended release works nearly all the time for me. I have to set a reminder on my phone and take it (2mg) at 4:15pm. Regular (not ext release) requip made me nauseous."

• sunsh...
• Taken for 2 to 5 years
• July 13, 2016

"I take ropinirole, 3 mg about 2 hrs before bed. Restless legs Syndrome rules my life for years now. I would be so lost without this medication. I start having problems with my legs starting early afternoon, but my doctor will not let me take any more than 3 mg...a day. Sleep is more important, so night time it is. I never want to be without Ropinirole!!"

• Bmaeb...
• March 12, 2018

"I began Ropinirole about 3 months. My RLS was out of control at bedtime and just sitting down for periods of time. I started with 1mg before bed, then 2mg, then 3mg. I was SO SICK. Nauseated, using the restroom all the time, severe insomnia, fatigue, dizziness, confusion... However, most of these side-effects have abated. My problem now is that right after I take the Ropinirole, my RLS gets horrible! It goes away after about an hour, but for that one hour, I'm in agony. Anyone else experience this? The restlessness is also in my arms. Ugh. Sometimes the insomnia persists. I'm also on clonazepam as needed."

• Dotoz
• February 22, 2013

Requip (ropinirole) "I have had restless legs syndrome for 5 years. I started Requip at 1mg now I am taking 2.5mg. I have had morning sickness everyday. Nothing else works. I am hoping the path will work. I am willing to try anything."

• Jen
• Taken for 1 to 6 months
• April 13, 2019

"So I started Ropinirole 1mg for restless leg syndrome and it helped so much with my legs. After I took it though it made me very tired Like I was in bed asleep by 8pm. I slept awesome, best sleep in years. then after awhile my Dr increased to 2mg because it seemed to not last all night. In 2-3 hours after taking 2mg I threw up everything!! Took it with food, without, tried...but it was ridiculous how much I was getting sick. Reading peoples experiences I've also had increased muscle aches, cramping in legs and neck stuffiness, so I'm thinking this isn't right for me."

• hippi...
• April 9, 2015

"This was a god send. After suffering from RLS for years I was only sleeping for a couple hrs a night. No matter how exhausted I was. The first night of starting ropinirole I actually managed 6hrs of sleep. It felt amazing. I was actually on the brink of committing suicide. I couldn't function during the day. Lost all joy in my life. Thank goodness for this drug. Have been on it for almost 10 yrs. Any side effects have been minor."

• lilre...
• Taken for 2 to 5 years
• October 20, 2020

Requip (ropinirole) "I took Requip for RLS 3 years and found that it was messing with my emotions. For the longest time I didn't know that the med was causing it. Then I quit taking it for a week and discovered it. So I change to something else"

• Patti...
• April 21, 2011

Requip (ropinirole) "I have been using Requip for approximately 10 years now for severe restless leg syndrome which affects my entire body, not just my legs. I take 4 to 5 1mg tablets a day and don't know what I would do without Requip."

• khsanfo
• Taken for 10 years or more
• January 28, 2016

"Have been taking ropininrole for probably 10 years and could not exist without it. If I forget to take it, I panic because I know my legs will start their crawling dance. As for the side affects that I read about, I have been extremely lucky to have dodged any. I shudder to even imagine this drug being taken off the market."

• msteeq
• November 3, 2015

Requip (ropinirole) "Was on Clonazepam 1 mg as needed. Doctor found out that it causes Alzheimer and dementia so they took me off it. I tried Requip but it made me feel crappy. When I stood still I felt like I was going to fall, I completely lost my appetite, and other things."

• rfields
• Taken for 2 to 5 years
• December 21, 2018

"ADHD all my life but RLS started after back surgery after a 40mph bicycle accident. I was 62 then and am now 70. The symptoms start in the late afternoon or early evening and preclude anything like sitting quietly, reading or watching a movie. At night it was impossible to sleep and I was getting depressed to the point of crying and having thoughts of ending it all. I'm now taking 3mg at 8 pm (3 hrs before bed) with 30 mg of THC orally. Prior to the THC, the Requip would only afford me about 4 hrs sleep a night. The THC helps with the nausea, hot flashes, and helps me get to sleep and stay asleep. Now I get 8+ hrs of sleep most nights. If anyone pursues this course of action, BE ADVISED, start out with 5mg THC and increase as need OVER WEEKS OR MONTHS! This combo has saved my life. Comments I've read here have brought me to tears. I hope this will help some of you. One person mentioned that it helps with ED. I can verify that. However, it does nothing for libido."

• Ruined...
• January 19, 2016

"This drug should be taken off the market. How come there is no mention of the gambling side effect, the bizarre dreams, the hypersexuallity? Most people would "poo poo" such outrageous side effects, but it is real!. My husband is a pharmacist. If they can fall prey to this drug, how can an average person understand this? The drug manufacturer put these side effects in the smallest of small print on their drug fact sheet. It should be highlighted as real and devastating side effects. I accidently discovered these side effects and took the ropinirole away. I also discovered that a no wheat diet solved the RLS. The effect was immediately. Tracked for 3 weeks."

• Shays...
• March 11, 2017

"This medication has been a lifesaver for me. Sometimes I would lay awake 4 hours miserable walks, hot showers, I researched 4 hours looking for a solution. As soon as I started taking this medication I noticed a very big Improvement. There is one downside to it. When I take this I am asleep within 30 minutes I am on the 4 milligram. I am feeling very blessed to finally have a solution to the restless nights."

• Phant...
• Taken for 5 to 10 years
• September 5, 2015

Requip (ropinirole) "I have been on Reqip for about 6 years and have a severe case of RLS. My legs spasms have worn out many sheets. I would have to say I have a love/hate relationship with requip. I take 5mg tablet 1 hour before bed. Almost like clock work 22 to 25 mins later I feel miserable with a constant feeling of the need to puke but I don't. I have always had insomnia which got worse on requip. I have been able to address the insomnia with trazadone and it works well. I have read others post and I think I am going to talk with my doctor about spreading it out in 3 different times to take it. In the past 6 months I have begun to have twitching in my arms, shoulders and wrists."

• Bev
• Taken for 6 months to 1 year
• May 26, 2013

"My Restless Legs Syndrome developed after a back injury, where I was diagnosed with 3 bulging disks and degenerative disk disease. About 12 years ago. At first it was only occasional and popping my back would sometimes help. The last 3 years it developed into an every night hell. The last 6 months I've been on ropinirole 3mg (worked up to the 3mg) and it was working perfectly! But the last month or so I have started getting RLS during the day. I'm considering asking my Dr to increase my dose to 4mg to see if that will keep it at bay. Weather I do or not I will keep taking it every night because I would rather have RLS during the day when I can walk around, then when I'm trying to sleep at night."

• white...
• Taken for 5 to 10 years
• July 14, 2018

"I suffer with restless legs I have for years I suffer with this 24 seven I have got to the point where I have thought of taking a overdose. It is ruining my life I can't stand much more of it I've been to the doctor again and he has prescribed me Ropinirole 25mg which has made me worse - stomach pains and very bad nausea next day I can't take this no more I take Temgesc 400 mg 4 to5 a day dissolve under my tongue which help me a lot but I cannot now sleep for more than an hour which is making me very ill I do not know what to do anymore. The hospital believe it was nerve damage in my lower legs. The pain in my calf muscles is unbelievable from top to bottom my muscles flinch terrible I am finding it very hard to cope with it now "

• Walki...
• May 21, 2014

"This medicine is a God send! I've SUFFERED from Restless legs syndrome for the past 15 years. On the worst nights I found myself laying on my stomach, beating my legs against the mattress, literally! My ankles just wouldn't stop twirling! I would cry & pray all night long for just a tiny moments peace, just long enough to fall asleep! Well, until this medication it never happened! I take 4MG a few hours before bedtime and my legs (and most of rest of my body) are so calm, I am asleep within 10 mins! I have also tried Mirapex, but did not get such results as with Requip. Good luck!"

• Linda...
• Taken for 10 years or more
• November 1, 2016

"I have had RLS for perhaps 35 years or so. It would start and stop. But about 5 years ago I started on .25 mg of roprinole. it takes an hour to work so I took it at about 8 PM. But over the years the dosage crept up to .50 mg once at 4:30 PM and once at 6:30 PM and I was good for the night. Some nausea and some sleepiness which were OKay. then the two pills turned into an additional pill of .5 mg in the middle of the night. Still okay. But then about 6 months ago my doctor sent me to an RLS sleep specialist. What a nightmare this began. The specialist tells me that I will just continue to take more and more and eventually Augmentation would start. this site will not let me finish my story."